Nice ❤ have you seen the new Light blue 💙😍 Velvet Fendi just dropped

I need that!!

So cute! ‼️

it'll be my 1st cruise as well, so excited

Not dem playing Sexy Red on da ship🎉❤❤😂 I sail April 2025 with a group of 200+ black folk, I pray the DJ nice to us🥳 Great video you made here! I'm sailing Valiant Lady as well

Jump jump!!

That beach in the Bahamas…wow!

Great food choices! I love that it wasn’t crowed on the ship…😊

Yes!

🔥🔥

Niceee ! Looks like yall had fun!

Therapy is so important. Unfortunately, people push the perspective that therapy means something is wrong with you when that is not so. We need to release our thoughts, frustrations, and trauma. Sometimes people don’t have anyone to talk to and it can make what you’re going through so much worse. GO TO THERAPY!! Yes, sis you are absolutely right!

That Cajun redfish looks bomb. 😋

I’m so proud of you! 👏 honored to know you! 🫶🏼

I had a blast! Definitely running it back with the gang 😝🤞🏼

Oooo! Yes this cruise looks like they had way better options when it came to food😋

Looks fun!

You are such an inspiration ❤ thank you so much for sharing! God is so good ❤ Edit: I also wanted to add re. the singing, remember your voice is a muscle too. Vocal exercises & correct technique will really help! I have Necrotising Myositis and was (am) a singer/ dancer. I’m slowly rebuilding my voice & my range. My range was 4 octaves but I lost about 3 when I was at my worst, but 2 years later (still trying to manage my condition just like you are) I am able to sing without pain and have 2 1/2 octaves, sometimes 3 on a good day and I’m STILL healing, so by the grace of God, I will get them back! And I pray the same for you too!

Thank you soo much for sharing your story. You are definitely helping me.

Thank you for sharing! I have Pigmented Purpura Dermatosis (PPD) and i was looking for adults who maybe experiencing similar on KZbin but nothing. I have outbreaks twice year where i look like a bee stung me on my forehead, arms, and legs. I take Methylprednisolone and honestly thats the only medicine helping but we all know there side effects. I have been trying to up the subscribers on my channel in hopes of educating anyone who wants to listen and also be educated as well😉

I love that you still have a good sense of humor about it!! I’m sorry, I hollered when you said “Am I gone see bones?!” 😩🤣 God is a Healer. He’s pleased with you sharing your story with others. A Great Testimony is on the way! 🙏🏾✨

🔥 that devils claw has definitely helped me with cramps , joint pains and aches! Thanks for being the plug! So proud of you ! Can’t wait for you to tap into your holistic Dr bag! We are waiting on the cookbook too😊

🙌🏽

🙏🏾🙏🏾 Thank you for sharing!

Interesting jack inhibitors to treat DM. I’m on Tacrolimus, cellcept, plaquenil and at one time prednisone for my DM. I will check into that treatment . Your videos are very informative! You’re right the health starts in the gut! I’m trying to heal my gut. However, this is a TOUGH! Disease! But exercise has really helped me! An Anti-inflammatory diet, staying out of the sun and God! I appreciate your positive outlook!

praying for your recovery. you got this!

It’s a blessing that you’re so knowledgeable about your disease and that you’re able to advocate for yourself. Thank you for sharing your journey with us! I also love how you never lost faith and how strong your relationship is with God, it’s encouraging. I’m glad you brought therapy up too, that’s something I would like to get in to. You’re definitely one of Gods strongest soldiers, keep pushing! 🫶🏿❤️

This is so informative and I love how you are continuing to praise God. 🙏🏾🙌🏾

So proud of you J!

💪🏾💪🏾

Thank you for your transparency and your encouragement for those that are dealing with situations. Your faith in God is such a blessing to witness. Praying that God continues to give you the strength that you need during this time.

Jordan, thank you for sharing your journey. Your research is impressive, we will all learn something for sure. We can do hard things and your journey is an example of that. Continued Blessings..🥰

Thanks so much for sharing your experience and your holistic approach. My doctors only recommend me 1000 iu per day but I keep having low energy and sadness. I will get your recommendation in terms of the quantity ❤ also thank you for sharing your input about the spiritual welfare that us with MDA5 suffer. As you mention this is not easy, and the worst part is that is so different from person to person that the medication that didn’t work for you is working for me but I can’t travel, I have ILD, I can’t take sun and can’t work. But we need to keep strong and thankful with the lord for every little thing. This life is so precious and we need to constantly work on strengthening our faith and our souls so we can reflect that in our wellbeing. 🙏🏾

God’s strongest soldier 💪🏾

A time was had , food was ate and we danced in the rain !

Okay viewsss lol yall had the best view of the city

“5 bushels of bananas” 🤣🤣🤣

Looks fun!

Beautiful

Hello, I pray that you are doing well. First I would like to thank you for sharing your journey. I love the drive and motivation to take your health back and your trust in God through this process. Question. How long did you take the CKLS?

Not she be in the bed by 11!

Thank you for sharing. I was diagnosed in 2018 with DM and my rheumatologist told me I was lucky because it was caught so early (just a bit of 'mechanic's hands' and some proximal muscle weakness at the time) . However, since that time I have developed smooth muscle weakness in my chest, causing lower esophageal dysphagia, an intolerance to exercise due to weakened diaphragmatic smooth muscles, and occasional dysphonia. I work with a physiotherapist regularly, but my neurologist and motility specialist informed me smooth (involuntary) muscles do not respond to exercise the way voluntary muscles do, so I am having to learn to adjust. I try to stay positive and have a great team of doctors, but the one thing that is so difficult is finding others who can understand how awful this disease can be. So thank you for sharing and shedding light to others who may see someone with this disease and not understand what's wrong, or think everything is just fine because they cannot 'physically' see the disease for themselves. Stay strong and positive!

Amen ❤

Thank you for this. I was just diagnosed a month ago. I don’t have a rash but I have muscle weakness. Mine is also linked to ILD which they are testing my lungs to find out how bad. Right now the worse part is I do have to be on oxygen now. I literally went from July 3rd being fine to July 4th not being able to breath. I do have scarring in my lungs now. I am on 30mg Prednisone and another steroid and then I will be going on Cellcept. I’ll be changing my diet now.

Such a fun trip!!

🔥🔥

Yall are triplets for real lol