A fantastic real world explanation of how to self care ❤

Well made, very useful video. Thank you!

Thank you for this video, I really needed to sort of have a conversation (or listen!) to someone who understands me. I have very recently been diagnosed with Crohn's Disease after many years of awful gut symptoms which I talked myself into thinking were stress and anxiety related! It was only when I started developing unusual and debilitating pains all over my body and in my joints a few months ago that led me to my diagnosis. So much of what you said, I can relate to. I have over the years suffered with skin issues, eye issues, mouth ulcers and even costochondritis! I am starting my treatment next month (Infliximab infusions and Azathoprine) and I am keeping everything crossed that they will work for me and I will feel more like my normal self again.

You tummy may have hurt but may your automatically and naturally more and more brave about it in a ever increasing way have a blessed day my strong and resourceful friends

How did you feel the day after the infusion? I got my first yesterday, and today, I feel horrible 😟

I've just found you a few days ago, and have watched a few different of your blogs and I feel like I'm watching my own video. I To start I have Fibromyalgia, and Type 1 diabetes. Last fall 2023 I started have gastro issues. And my Gi had me do 12 stool samples. I couldnt eat anything without it going through me in a matter of 10 minutes. Constantly nauseous, same as you dont leave home with out Zofran or I Imodium. got tested for Chrohns, , Ulcerative Collitis, Colon Cancer. So I feel for you. You are so brave and awesome. Turns out I have EPI Exocrine Pancreatic Insufficiency, I have to take about 6+ Pacreatic enzymes when I eat before I start, in the middle, and at the end. I have all the same full, feelings ,stabbing g pain, bloating. It's awful, autoimmune diseases are horrible. Right after the beginning of the year in February my Fibromyalgia had a flare up, and with in a few days I was a hot mees my spine hurt so bad I could barely move all my joints my wrists, fingers, hands, elbows, everything from head to 2, I couldn't even get out of bed. And just listening to you, I got tested for everything they thought I had a spinal infection, Rheumatoid Arthritis, Lupus, and as you I got tested for Sjhogrens which is a sister disease to Lupus. I have the same severe dry eye issue, and dry mouth , I may have to have eye surgery the help the eye ducks in my eye do something , not sure what but to produce my fluid because it's so bad I'm in so much pain. They finally diagnosed me in July after so many test with another autoimmune disease Spondylitis, causing severe Arthritis. I started Humira, but with my other meds and health issues I was hvi g severe side effects. So I hd to stop after 3 shots. I see my Rheumatologist on Monday the 23rd. Sorry if this was long, hope it wasn't strange. Just watching you,I felt such a connection. Talking to my Drs, and even my my family and friends going through all this, I felt they thought I was crazy. Best of Luck to you. I wouldn't mind a response. Colleen

My Crohns is pretty bad and it has been a week since I’ve gotten my first infusion on Skyrizi. How many weeks after your first infusion did you start to feel better?

kzbin.info/www/bejne/q2jam2esZquCobM -- I think "tenesmus" is the term for what you're describing.

Yes!! This exactly. Thank you!

Thank you for your post. I really related to it. I am about to start the infusions that you have just had. I have been struggling with this Crohn's for so long and your video with the treatment you have had gives me so much hope. I start in 2 weeks and it is truley given me hope that this next step will help me. Thank you for sharing and wishing you all the best ❤

I laughed out loud when you mentioned that weird, new nauseous feeling. Hunger? What’s that? I’m right there with you

Oh, good old food sensitivity tests... they literally show positive for every single thing you eat a lot of the two days following up to the test. I got positive for my complete summer food plate - watermelon, bread, cottage cheese/ dairy, oats, pistacchios, mushrooms, apples...😂

Dear pls reply me ...iam also diagnosed small terminal ileum ulcer ...it's means crohn's tell me plz

My 22 yr old son starts Skyrizi tomorrow. This guy is tough as nails. He's been dealing with this since he was 14. Jeesh. This is his second time getting down to 90 lbs. So he's on a tpn and back up to around 100 lbs. I wouldn't wish this on no one. But, now my wife (his mom) has Crohn's too. 2024 has been guy wrenching. Looking forward to your continued updates.

Thanks for the informative and cautionary video. I tried some hyperbaric oxygen treatments during a recent flare from ulcerative colitis. The treatments reduced my symptoms, but hyperbaric oxygen alone wasn't enough to get me out of the flare. (Prednisone tablets + mesalamine enemas got me out of my flare.) My gastroenterologist actually prescribes hyperbaric oxygen treatments to some of his crohn's patients. I suspect that hyperbaric oxygen treatments combined with mesalamine enemas could be an effective combination for many ulcerative colitis patients. This strategy could treat the disease both systemically and locally without the bad side effects from steroids. -Inflectra saved my colon and it has worked pretty well for me. But I would still like to eventually get weaned from this medicine. Perhaps someday hyperbaric oxygen will be a regular part of my health routine. We'll see!

Hi,From Calgary. I will be starting Skyrizi soon so decided to watch two of your videos. Looking forward to it. You didn’t mention anything about your diet. My insurance stopped covering my remicade so I tried Inflectra and had a bad reaction to it. Blood pressure went up to over 170. As far as diet, I would recommend, being I’ve had crohns since I was 12 now 58, that diet would help significantly. Three major ones would be all milk products, gluten, big time, caused fistula’s, and medications which would include nsaids, antibiotics and vaccines. The first two would cause instant glare ups. And the vaccines I believe are what causes crohns and many other diseases. Worst one being covid. But would abstain from all vaccines. Anyways hope that helps. Again thx for the videos and good luck with increased improvement. Not a fun thing to have. God Bless. 🙂 Kerry.

I have excellent health insurance, and I had to be hospitalized twice and on the verge of losing my colon before I finally received inflectra (which is basically remicade). It's so frustrating and difficult to fight the insurance company while you're sick! -But once I received inflectra, I started to feel better in less than a day. And I regained the weight I had lost in just a few months. I really hope you get the medicine you need soon!

Which country are you from? And what is the cost mam??

Great info.

Thank you for your update.

Crohns since 2008-9. I got your back on all emotions and understanding on this life we walk in

I've walked in the shoe's you beginning with Crohns. So true in what you said in this video. Wonderful job.

I am starting Skyrizi for my Crohns Disease in a week and I’ve been feeling really uncertain and anxious about starting it, your videos have completely put me at ease and made me feel less alone and isolated as I am also a young woman trying to get control of my disease. Thank you so much for your candid, honest and non-fear-mongering documentation of your experience. You are brave and I will be thinking of these videos when I have my first infusion. Thank you❤

Best of luck! Biologics are hopeful. Colitis since 2012.

Glad to hear Skyrizi isn’t giving any miserable side effects. I’m waiting for insurance to an authorize. Holistic medicine is good for a lot of things. Keep pursuing this topic for Chrone’s/Colitis. Also for mental health. Gut health/mental health. Good luck!

May I ask ? are you cancer rising?

Thank you!

I recognized the voice from the skyrizi video, I watched that too for my OBI last week! lol! Didn’t hurt until I took it off. Also was noticing some symptoms in the week leading up to the injection and even some days after. Have to manage stress.

Never let tummy issues stop you from having a #HotGirlSummer

Thank you so much for this, I am currently going through the process of getting diagnosed and I find it really helpful to hear other people's experiences. I have been having symptoms for many years but I always assumed it was IBS. In the past year it has gotten a lot worse so after months of putting it off, I finally went to the doctors last week. My calprotectin level came back 1300, so that's not good. I'm quite nervous about what's to come, but I guess things can only get better with a proper diagnosis and a treatment plan..

the toxic part felt very real. i feel like ive always dealt with people that blamed me for the mean things they did and at some point its easy to start believing its true and getting away from that thought is difficult especially if no one believes whats happening to you or youre unlucky in the way that you only find people who agree that its your fault. came here after watching almost all your astrology videos and needing more similar content and i did really learned from this video.thanks

I just started Skyrizi too! I had my first infusion last week and I had a rather weird possible reaction in that my lips started tingling. They’re going to continue to see what happens. It completely wiped me out though, I came home and slept the rest of the day and was pretty off kilter the next day too. I’ve had Crohn’s since I was 9 and I actually had surgery to have an ostomy placed 9 years ago and I’d been in remission since then..this is my first time getting meds again! I’ve had more extra manifestations than Crohn’s issues which led me to put me on it…some tummy aches but tons of debilitating joint pain and skin issues. I’m hopeful it helps!

I’m on Skyrizi, and it’s worked so great. I just had an ileostomy surgery April 2, 2024 and my surgeon said my bowels looks amazing. Love this medicine. Hope it works for you. Praying fora great output.

Thank you Nina, i would love to hear more about your journey with this. Going to check out part 2. Sending you lots of love and warm hugs!

I’m starting skyrizi once insurance approves it and I’m super nervous. I couldn’t tolerate entyvio very well and I’m super anxious ab trying another biologic but this video gives me a lot of confidence and hope. I hope this medicine is the right fit for me💞I truly believe you kinda have to keep trying out meds until you find the right one.✨

Have you gained weight on your medication.

I start Remicade tomorrow and Azeothioprine the day after, and I have been filled with anxiety

Thank you for sharing this! It resonates a lot with me unfortunately

Just went to a functional/ integrative medicine doctor yesterday and they wanted me to complete a 9 month protocol, I was all in until they handed me the cost breakdown that totaled $18,500.00

I'm on Skyrizi also I'm on a every 8 weeks home on body injector. My crohn's symptoms come and go more good days than bad. My energy levels have not came back. Since I started Skyrizi I've gained weight more than 50 lbs. I've developed Fatty liver disease. Depression and anxiety has gone crazy since they journey has started. Probably a major factor of the weight gain. In the past few weeks I've been trying to get out and walk if I have time energy.

I HAVE THE EXACT SAME SYMPTOMS AND HEALTH PROBLEMS LIKE YOU. As I'm listening to you speak more about your illness and health Im like this exactly me right now. Just really unsure and confused as to what i should be eating or what sort of treatment i should go through . I have been experiencing issues very similar to you since like 5 years, I have symptoms like fatigue, mood issues like anxiety, depression ,constipation(more so due to inflammed colon), just pain in the gut after eating anything burning sort of sensation throughout my gut which makes me really tired and fatigued. Did an endoscopy i had apthous ulcer in the terminal illeum just like you that you had mentioned more about in your other video. The biopsy also showed i had chronic colitis but since i dont have any sort of ulcers or aggresive inflammed tissues that can be seen in a colonoscopy my GI just diagnosed and he believes that i have IBS. Now these symptoms i have is completely debilitating i think you mentioned you had like migraine like issues for me i also experience headaches its more like swelling and i have swelling of nasal tissues hindering my breathing just really weird issues. Watching your video made me feel that im not alone and gave me hope that everything might turn out to be good. So thank you for sharing your story and i hope everything sorts out for you and become well soon. And also i was just wondering is there any safe foods for you that is working and not causing any symptoms?

I love how you describe being hungry! I’m just starting to feel that too, like who knew food could FIX that feeling?

I don’t think that’s true that it’s more difficult for humans to process meat, but we are allowed to believe and follow whatever diet we want to! I also have crohns and have had those other symptoms (eczema, chostochondritis, joint pain, dry eyes, skin issues, etc) this disease is a bear!! Found your channel because I’m starting Skyrizi and you posted a video about it. Your experience gives me hope about getting my energy back!!

I take a vitamin L-Lysine which helps with cold sores due to my Lupus. You should look into it if your interested. It may also help with dry eyes but not 100% sure on that. I'm finding your videos very helpful.

Thank you for exposing the lies.

I’ve had Crohn’s for 24 years. Been on nearly every med they have including 3 surgeries. None have worked to bring relief for long. The rinvoq I was on cost $240k a year. Humira was $72k. I forgot how much the stelara was. Starting skyrizi soon.. It disheartening knowing someone on the opposite end is getting rich off the suffering of people like us. Not much we can do about it.

Glad it's working. I'm also getting on skyrizi. The doctor suggested stelara but I wanted my rizz to be sky high so we went with skyrizi. In order for me to get on it my TB tests have to come back negative so i'm hoping for the best. Also getting on a gluten and dairy free diet has helped me tremendously. I would suggest. It's hard but it makes me feel better.

This is another great video. I am going to get on Skyrizzi after the 1st of the year. I have been on Remicade and 6mp for about a year and a half. Please keep us informed about how this works for you in the long term. The combination treatment works great for me but the risk of developing certain cancers is problematic.

Thank you for this. I have ulcerative colitis and have been going through a tough time. I'm so thankful to hear that there are people out there who are going through a similar situation. 🙏

Thanks for this video. How are you feeling now? :) I’ve been through the wringer with meditations and my doctor wants me to start this one.