Finally the "mytacondilria being the powerhouse of the cell" has finally become useful knowledge 😂

"If you say too little, they can't help you, but if you say too much, they think you're a mental patient." This struck me so hard. It was really good to hear a well person see this and say it.

Great film, beautiful love story. Thank you so much Jennifer Brea for representing us.💖🙏

It's the pity that's the hardest. Stay strong, dear ones.

Thank you so much for this moving film🙏❤

La mère dune amie est en état grave dans le noir comple et le silence 24h sur 24 nourrie pars sonde mon elle même mallade elle viens dapprendre quelle a la la maladie de chacot et qui lui reste 3ans a vivre

Ca me fait de la peine de voir pleurer

Ouf such a brutal disorder...

Ren brought me here. His music is so powerful and his story opened my eyes to this illness. I hope you all have continuous days of peace, free of pain and anguish. I hope the awareness about M.E. will continue to spread and more funding will come towards research and treatment of patients. Stay strong. I love you all. 🙏🙏❤❤

The "its psychiatric disorder" It's because the premise began with having depression or anxiety/trauma increased your chances of getting m.e and fibromyalgia. But it isn't the cause. More doctors now think it's an issue with atp synthesis issue that then causes the auto immune like symptoms. Like the amount of trauma+ sickness viral/infections disrupt somethung bioligical causing an attack. And then boom m.e. it in a way makes sense, so much phisical/viral/ emotional trauma to tge body is bound to do something to it.

I've had it for 42 years. Thank you Jen.

I always tell my doctors that im not depressed. Ive been depressed as a teen. Now that im ilder and have m.e and fibro. Im just sick and tired of being sick and tired. Its different.

Gracias por este documental . Desde el 2011 padeciendo fatiga crónica y fibromyalgia. Perdí mi matrimonio por la misma razon😢. Espero en dios algún día encuentren la cura.

The radical activism, transableism and poor me syndrome approach by the me/cfs community has not helped the credibility of this condition. Most people who see this movie or hear us whine just find us more obnoxious than credible.

Heartbreaking but necessary. I pray a cure is found soon so you can all get the help you need and deserve

So the CDC has a long history of fucking up immunopathology. Well, I guess, it’s only been on the medical radar for around a hundred years. Mb, third or fourth time will be a charm for them!

Sadly, the people who really need to see this film will never look at it. As long as hard hearts and fixed minds rule the medical system, nothing will change for sufferers of ME. Different people could make another 'Unrest' today and the story would be the same.

After watching this! I’m wondering has anyone looked into the fact that it seems to effect the Killer T Cells and when the T cells are effected and stop working it causes a catastrophic domino effect in the immune system. It seems to leave the body with only way to fight off anything that over making what of immune system you have left. I believe that leads to the inflammation. Then I am wondering if paralleling things like HIV that the Latten stage of AIDS. In this case you have two completely unknowns. This starts less severe and it could be “fixed” maybe with something like AIDS. Drug that doesn’t allow the virus into the T cells. That maybe we could stop it from turning into this full blown disease. Hopefully someone sees this. They go you are onto something and we are going to figure it out.

Sent by Ren ❤❤

"I don't have to let go of everything I had hoped for", this resonates with me. Especially during the work I do for my chronic illness that takes all my time. It helps with the grief of losing yourself and your personality to it. I don't suffer from M.E., the documentary is helpful though in highlighting invisible illnesses and making me feel less alone with mine. I appreciate the recommendation from RenMakesStuff.

Wow, mental illness is no joke.

Hoping this gets a lot more views and a lot more eyes on what millions are living with. Ren recommend, this to watch! Another kind soul told us it was here. You are all incredible humans with the strength of Gods. Or universe. Maybe just maybe the right person will see this. We will find away of catching it and stoping it or healing it.

has anyone contacted Dr Judy Mikovits?? and is anyone looking for parasites?

energy where are u ENERGY...

thank u Ren for mentioning this doc. this should be a worldwide wake up to this disease ❤ speechless... it s an every second battle... & DENMARK WTF is wrong with u!!!!!!!!!!!!!!!!1

This was heartbreaking and infuriating 😭 I only know of this film because of Ren Gill, whose song Patience was featured in the film. He is telling his story with M.E. and Lyme disease in seven installments on his YT page, to raise awareness and help others who are suffering. His next song Troubles is about chronic illness and tells the story of his experience and treatment by the medical industry. Troubles premieres May 9, 2024 on RenMakesMusic KZbin page.

Could someone point me to an online community where I can find emotional and moral support. I am suffering from ME for 25 years. And I am pretty much isolated and cut off from humanity. I need some help.

I got a mosquito virus on vacation in 2014 and have never been the same since. Hyper POTS sympathetic overdrive, tremors are the absolute worst.

I have had both fibromyalgia and M.E. for 27 yrs. In the beginning, it seemed the fibro was the worst part, being in constant pain and trying to work is very difficult. Especially when you're a nurse. I was a Hospice nurse and really loved my job! I was only 42 when i lost my 22 yr old daughter, and then everything came crashing down. Still, I believe I would have been alright if I had been able to continue working! But, then the depression kicked in, and I became suicidal.. I felt worthless becuz I couldn't work. The fatigue was too much. Anyway, the last few yrs has been the worst, as far as the fatigue goes! If I go anywhere, to the Dr's, to my daughter's for a bday party, I will be sleeping round the clock for days! I get up to feed my cat's, order food, eat a little, but then it's right back to bed! Funny, when I tell my Drs about this, they just stare at me, I can hear the crickets! No one says, "Oh! You have CFS!" What is going on? Can't we all just get past this, "What is it?" Syndrome?? I've been tested for Lupis. Once, I was Pos for ANA, next time, yrs later, my ANA is Normal! 🤔

Mr. Per Fink has an entirely suitable name!

FYI you’re doctor didn’t want to help

Caused by vxes maybe???

Does anyone know if this is available with AD - audio descriptive?

So they have this clearly defined list of debilitating symptoms that developed after suffering a virus or bacterial infection. So they take this list to the doctors and are told 'it's all in their heads'. Then they go online, search their symptoms and find thousands of others from around the world suffering from THE SAME SYMPTOMS. It's like a miracle! All of those people suffering from the exact same symptoms that they never heard of before- and somehow it's psychological? You would have to be crazy to believe that. And now, after they neglected ME research for decades, we have millions suffering from these same symptoms after getting Covid. I hope these funders wake the hll up and figure out they need to take this seriously.

薬が出来て完治したいです

...I actually have stuff on the mental health part that are highly opposing to this, ..even tho I happen to gain physical symptoms on the way just b/c. What bugs me the most is that it still feels a lot like a taboo to have what I've been thru including behavioral deviances whatnot. Worst of all is that when I'm not only searching for answers but almost self-diagnosing out of need. Jen is very lucky to be highly privileged I see, at least I'm grateful that I have another door open for the possibility that I might not be totally alone.

Quaternary ammonium compounds are my kryptonite.

Thank you so much for this.

"And when we crash, we disappear, so you never see us at our worst". So frustratingly true.

I've been bedridden with M.E since 2010. I've had to be spoonfed, use a bedpan and I'm not able to wash. My Dr said it's attention seeking. This illness takes away everything that means anything and leaves us with tortuous existence, nothing more.

I first watched this in 2018/2019, and like most people who believed themselves healthy at the time, just having finished my degree and started my career, had great empathy for those who suffered with this unimaginable illness. Two years later I realized my uncomfortable "anxious dizzy spells" I'd been having since puberty in 2006 was POTS, and my allergies since birth were MCAS. In 2021, years after seeing this film, I had to move back in with my mother and quit my full time job. I have been stuck in my bedroom for two years now, spending all the energy I have on getting doctors to listen to me. I've seen 20+ medical professionals in the past two years, tested so many drugs that have made me more ill, and 9 months ago I felt so hopeless I chose to end my life. Obviously it didn't work, and since then a really good psychologist helped me remember what hope is. TL;DR For anyone watching this film, remember that ANYONE can have this. Including you. Take it seriously and have empathy <3

whats the link for the unnrest song in the video

Ren signposted this amazing video; thanks so much for making it available. I really hope it generates more funding. It's unbelievable there are so few specialists for something so widespread. I'm sending love and acknowledgement.

I am still here!

This is the most Amazing film!!

This documentary really sheds light on the harms of bringing new people into existence. Some of the parents even talk about their children like they're property instead of human beings. They cry that their lives would have no meaning without having children and then they're saying after all this it's still worth it to roll the dice and force a new person to risk suffering exactly the way they continue to.. How the heck do they get to decide for another individual that their inevitable suffering is gonna be worth it, to consciously drag them into this circus knowing full well the pain they'll go through? Even if they don't come down with ME there's a billion other ways their lives will likely suck. All that time in bed to think to say "Yeah, I'd gamble with someone else's life anyway!" All the money and resources in the world and we're no closer to the thousands of different individualized cures this monster of a disease calls for, but the chronically insecure will insist on needing to become bio parents and rationalize subjecting all these new babies to this nightmare of an existence by convincing themselves how their kids gonna be the hero to cure it. Should've been called Unreal, even spending two seconds grieving parenthood or encouraging others to do it anyway, with no regard for what life even absent something like ME does to a human being, is just a huge selfish slap in the face

Thank you thank you for this film. As a patient and a healthcare worker we need to speak out more. These illnesses are real. You can’t go from being completely healthy to bedridden and be told that you’re making it up. Much love to all that are facing unexplained illness.

We live in our minds. We escape into our minds. FMS/CFS as well as ME/CFS. That's how we live. Long -COVID or post infection illnesses as well.

Fibromyalgia Syndrome (FMS) and its corresponding CFS and ME/CFS overlap. I think there are either some of the same pathways involved or similar ones. They are all, CFS in all its facets is abominable and cruel and robs you of your life and soul!!! And you look fairly okay from the outside so doctors think that you are okay and that "it is all in your head!". Fu.k you!!! It is NOT IN MY HEAD!!! I do not remember having any severe infections when it commenced, when my world shatterred into a gazillion pieces in 2002. I am drowning. I have - square root of 0 Energy!!! And -0(-1/2) does not exist. 😞🚫🙄😡😒👎😤😣😢

Jennifer is amazing and now very vital in getting to the bottom of all this. I hope I can be helpful.