UNREST Feature Documentary (With Captions and Multilingual Subtitles)

[@abbyarmstrong-green7200]

"And when we crash, we disappear, so you never see us at our worst". So frustratingly true.

[@SensaSand]

Yes. Thank you for that sentence. The truth of our lives. I have disappeared from everyone’s life. They all erased me.

[@homeland1128]

FACTS

[@billpeet1933]

So true and unfair, expecially when you are supposed to live the best years of your life and you are condamned to hell without any possible relief for decades until you are dead instead 😢

[@beneath.the.rosesluciddrea8470]

"If you say too little, they can't help you, but if you say too much, they think you're a mental patient." This struck me so hard. It was really good to hear a well person see this and say it.

[@WhyFemaleMatters]

I remember all of these symptoms so well from my 10 bedridden years. Medical professionals didn't even believe the seizures I had after moving. I was gaslit and blamed for my own ill health, despite also being told I was so ill I might not make it through the night on 2 occasions as my organs were failing. I am beyond lucky to now be able to drive again and self care, though I still have to spend 17 hours of every day in bed. This film remains as powerful as the day it was made. I've been ill now for 31 years and there is still no test for ME or effective treatments, let alone a cure. Still woefully underfunded in research terms. The only good thing to come out of the Covid pandemic is that Long Covid is being researched and it might also help ME patients.

[@NitaJain]

I relate so strongly to everything you describe. The gaslighting, psychologization of symptoms, seizures, neuropathy, systemic side effects. I've been ill for a couple decades with dysautonomia, chronic cystitis, inflammatory bowel disease, and long Covid most recently. Appreciate efforts to raise awareness and hopefully get closer to effective treatments!

[@gillsmith3723]

Glad to hear you are more mobile now. Must be amazing to drive again. Have you any idea what shifted you from being really, really sick to them seeing an improvement?

[@WhyFemaleMatters]

@@gillsmith3723 Wish I knew, just very lucky I think. I did pace activity & rest for 4 years before it started to help - hardest thing I've ever done. By 'activity' I mean talk for 5 mins then cut the convo off and lie in the dark and quiet for an hour - I upset friends/family by doing this. Or sit upright for 3 mins then lie in the dark for an hour, very very gradually increasing the time by many months/years. I had to learn to be totally self focused, didn't come easy. The fact I lived alone with zero care made me have to still have to move to survive (and by move I mean crawl to the loo and lie on the floor passed out after bathing) - I do wonder if this stopped me from dying.

[@libraryfiles4470]

Test for genetic causes of Ataxias.

[@danitheuerkauf7095]

Look into what the musician Ren (u.k.) is doing for his lyme disease. He had 2 stem cell transplants. Currently in canada for 6 to 12 months of treatment. He has m.e. among other issues. Hes in this film and singing the song towards the end. Hes seeing improvements.

[@gregwood7135]

I was honoured to be part of a team who organised a screening of this movie in Blue Mountains, Australia - when it first became available. At our local neighbourhood centre hall we had about 100 people attending for this screening. So glad it is now on KZbin and we can share it even more widely. Many thanks to Jennifer Brea and all who made this movie possible.

[@philliphall9817]

Phillip's wife Susan here. I helped the ME/CFS & Lyme Association of WA screen Unrest at the University of WA. Watching this amongst other people who had this condition was so validating. Hearing shared laughter at all the different things we had tried in order to improve.

[@katechapman3850]

I’m very glad to hear. I spent my ‘acute’ years in the BM, housebound in a mouldy house. Two and half decades later I’m fairly functional but something will happen in my system and I’m back in relapse. I’m very proud of the small things I’ve been able to do and achieve though. I’ve had to shrink my expectations around life to actually look after myself and yes ME/Cfs is incredibly isolating and most have not a clue what you go thru.

[@misanthropic_shithead7438]

"Honoured"?! Id be embarrassed 😂

[@sammhammiam]

I've been living with CFS/ME since 2004. It's robbed me over half of my life. Scary to think we will never have a treatment for it. We will never be taken seriously no matter how many people come down with this disease because we go "missing" and are forgotten about. It's the most isolating disease. Such a shame we are so alone.

[@suemarie6032]

I truly thought the onset of covid long haulers would put ME back in the spotlight and get us the research dollars we need. Instead, many with long covid are getting the same treatment we did. There are going to be many more people disabled for life and it seems the powers that be don't learn through history because they keep making the same assumptions and mistakes.

[@billpeet1933]

My exactly feeling. My life was robbed. I died 20 years ago.

[@Julie-wc2gc]

So happy it is on KZbin now! This film is so important!

[@gillsmith3723]

Totally agree

[@elizabethconroy7665]

Thank goodness,her wonderful husband is compassionate and supportive Many marriages would be torn apart from this Lovely,well spoken young woman trapped in a Prison

[@AEPhotog1]

My marriage of 33 years was torn apart…

[@anneyfrancis701]

@@AEPhotog1 ❤

[@heatherluesmith9515]

Thank you thank you for this film. As a patient and a healthcare worker we need to speak out more. These illnesses are real. You can’t go from being completely healthy to bedridden and be told that you’re making it up. Much love to all that are facing unexplained illness.

[@sadeddinmus]

Shoulda been on KZbin day 1. This documentary is crucial to get a grip of this illness.

[@SandyDiVa]

I CANNOT THANK YOU ENOUGH, Jennifer Brea. I may have a less severe version of this.. I have been diagnosed with Dysautonomia & more specifically, Hyperadrenergic Postural Orthostatic Tachycardia Syndrome (HyperPOTS). That womans husband who left…the family…the its all in your head, you have a mental illness, you are a hypochondriac, etc etc etc…THIS MOVIE IS ME. Its MY LIFE. Whether i have CFS/ME or HyperPOTS or any ither Autonomic condition, IT ALL LOOKS THE SAME in the end..disability, confinement to bed for at least some of your life, the inability to perform basic tasks like showering or walking, the sense of loss (of your previous life like you have truly died and were reborn in a broken body you dont understand, your friends, even family), the sense of anger, frustration and the intense need to be a doctor and advocate for yourself because not all doctors are created equal & healthcare for lesser known conditions is abysmal worldwide, and most importantly, THE NEED TO BE BELIEVED. Its THE EXACT SAME just swap the condition. I will be sending this to all family, friends, and personally showing this to my spouse and stepson who i am losing because i am sick. I believe your movie could literally save my relationship with both. I have never cried so much in my life and if mold has something to do with it, im going to have to try to raise $$$$ to get my entire building disinfected. I live in Philly. Its humid. But dehumidfiers exist and after a proper mold removal cleaning with constant dehumidifiers, it might make life more livable. I am less disabled than you are…for now. I can get up, walk, bounce around the house as my spouse puts it…but only with the help of opioid pain medicine which, somehow, decreases my symptoms which tells me this is neurological not mental 1 billion percent. But EVERY SINGLE THING I CAN DO is done in between laying in bed. Bed to bathroom to bed. Bed to store to bed. Bed to family’s house to bed for 2 days. I need a cane to walk short distances, but if i were to go anywhere for more than an hour, I’d need a wheelchair now. But since losing our car, i have been bound to a 3 block radius of my home so a wheelchair is irrelevant now. I hope that someday VERY soon, there will be a push of interest, funding, research and education (FOR ALL healthcare professionals old & new) for ALL autonomic, neurologic, and nerve disorders…including renaming conditions to reflect their severity. Pots is just dumb sounding and if you go by the name alone, our hearts race a little when we stand up! My God i WISH that were all it was! Dont you wish Chronic Fatigue Syndrome was just you being a little more tired than everyone else? I bet you do. Id rather our conditions be named ANY PERSONS NAME Syndrome or Disorder because those are taken more seriously than Chronic Fatigue or Postural Orthostatic Tachycardia Syndrom (aka Standing Racing Heart Syndrome 🙄) What I want to know is, how do i get involved? How do we join forces for all nerve & brain disorders? Because the millions missing would be 100 fold if all the conditions that people dont believe joined forces. We are stronger in numbers, louder. Our voices need to be heard! If you ever the find the strength to make another film talking about Dysautonomia, the types, etc. Count me in! I reply with how i can be reached since saying that here will flag my comment so only you can see it. Again THANK YOU. You did an amazing job and I wish you the best of everything…including finding a cure one day soon. 💗🙏🏻💗

[@cherdaniellle]

This was hard to watch. 15 yrs suffering. Those who have the support so infinitely fortunate in this one way.

[@flower9015]

Yes, those lucky enough to have support at least aren't goin it alone..the scene where Brea's Husband says it's just ENOUGH he can BE WITH HER, makes Me wish I had the same.

[@nancydaleo3359]

@@flower9015 me2. alone. so hard.

[@BadApple4Life]

I found this movie via Ren, beginning with "Hi Ren" and i still cry every single time 😭 I had no idea that long covid has anything to do with this, but i was told i had long covid and permanent lung damage from when I had Covid in April 2022. Ive been constantly sick ever since. I need to do a lot more research after reading that in these comments.

[@PetraGeorgiou]

I found this through Ren, I knew he had some kind of illness, but never that this is it. I cried all the way, my heart goes to everyone who suffers this. This documentary should be a compulsory to watch. What an eye opener, enlightenment. I will never ever moan about my life. Thank you for making this documentary!

[@nursedialysis1301]

Sorry to hear you are sick. I have had myalgic E for 15 years… what I found helped me was naltrexone. I started on low dose naltrexone 4.5 mg once a day. It helped with some symptoms but not the post-exertional malaise. But multidosing 6-8 mg every 2-3 hours does help the post exertional malaise. I get 50 mg tabs and split them up. I also do twice a week hyperbaric oxygen chamber treatments. They also help to prevent the post exertional malaise. I hear that JAK-STAT inhibitors might be a cure. Professor Ron Davis August 2024 at the Santa Clara county ME hearing said this: “…we think this disease is initiated when you initiate innate immunity… you can turn it back off by JAK-STAT inhibitor… we have seen one patient in Australia who took it… within three days of taking the drug was completely cured…”

[@michaelseitz8938]

@52:44 "People get angry about a psychological diagnosis because of prejudice" No, people get angry because treating ME as a psychological illness (1) doesn't improve patience's lives, and (2) stops research on physical causes and potential (real) treatments! Per Fink is an abhorrent human being 🙁 My own story is 8 years of "treatment" for a moderate to severe depression, before doctors finally acknowledged that it was not a depression that caused tiredness/fatigue, but ME that caused physical symptoms like tiredness/fatigue. My depression is just my reaction to being unable to live my life like a healthy person. Thankfully, the Danish parliament changed their mind about ME in 2019 and acknowledges ME as a physical neurological illness. Per Fink and people like him belong in prison! These people destroy lives 🙁

[@Cynthia63636]

When i was deeply depressed and suicidal as a teenager i used to think no one actually cared about me.. they would care if i died, but if no one told them and i just disappeared no one would care... I'm not depressed anymore.. i see the value in my life right now even though I'm house bound 95% of the time but it definitely hit home when they talked about the disappearing... I disappeared and barely anyone noticed or cares..

[@ednafernandesyi]

I can deeply resonate with this❤🌸🙏🏾

[@Isthisinterestingnow]

Still pretty sure no one cares about me at least. Everyone says I'm not important. I'm told there aren't enough resources for me to be alive and I'm in the way.

[@ednafernandesyi]

@@Isthisinterestingnow I also have ME and Fibromyalgia and many other issues...reach out ....I am happy to chat or connect in a way that could help...I have experienced much isolation and have been able to navigate a little bit better my solitude. You are important!!!!! You are important....

[@asmrvidsaccount]

As a longtime sufferer of ME, I’ve been wanting to watch this for years. Glad it’s finally on here! Can’t wait till doctors can finally understand and treat this disease properly, it is incredibly hard to live your life every day while suffering from ME and it really dehumanizes you over time.

[@MyMELife]

kzbin.info/www/bejne/b3bMe2qwa9qAjNksi=dp3AtSgMSVw5sMeZ

[@themupsmuppet]

Was bummed it got removed from Netflix so am happy to see it here 🙏 Very well made & useful to refer to when someone doesn't get it.

[@BangSonor]

Maybe add ME/CFS (Long COVID, PostVac, and other diseases) to the title so that it can actually be found more easily? My wife is suffering from ME/CFS for 6 years and just 6 months ago she was diagnosed. This movie is really great for sharing it with English speaking folks.

[@JS-ow2ct]

This film is so important to me. It’s the first I heard of ME/CFS, a condition I have. I recognized myself immediately. And was able to get far better medical care because I knew what was going on. I was able to take far better care of myself, knowing how to pace, and being able to learn about managing the condition. I will forever be grateful.

[@JoolsVoiceOver]

Thank you for making and sharing this film. I actually bought it and never could fight my way to the dvd player and sit up and watch it. Today I could lie in bed with it on my laptop and watch in it's entirety. I so wish everyone was made to watch this and see it is not in our heads xxx

[@themeltedchocolate]

Very important film. Very heartbreaking. I'm not as severe as she is but I live every day in fear of becoming completely bedbound, unable to even type this on my phone.

[@damienb6184]

Me too :( best of luck to you friend, I hope you’re able to find something that helps and go into remission

[@themeltedchocolate]

@@damienb6184 thank you :)) I hope so too

[@angelapower9570]

Stop eating

[@themeltedchocolate]

@@angelapower9570 wtf?? 😂

[@DefinetlyAHuman]

Same here

[@violax3467]

A wonderful film that shows so well the psychological strength of Jennifer Brae. As a ME affected sufferer myself, I know well how this weakness and the other symptoms feel like, and how awful it is to be labeled as psychologically ill, when you have a stable, healthy psyche.

[@antonioserna6402]

Thank you for a much needed documentary. I have severe fibromyalgia. This is the third time I have seen the documentary. Sorry for my english. Much strength. Greetings from Madrid.

[@alexdv5575]

I also have severe fibro and medium severe cfs. Still, we have to hold on to hope. ❤

[@Penlady5]

I can't tell you how happy I am to see this available publicly now! I tried to show it to as many people as possible when it first came out, then lost track of how to access it for other people. I am sharing this in all of my ME Facebook groups. Thank you, Thank you, Thank you! I think it will make a huge step forward if more can see how disabling this is.

[@gerhav1]

At my peak I spent 23 hours a day in bed, sleeping 18 - 22 hours a day, with extreme noise and light sensitivity, Vertigo, migraines, pressure behind the eyes, mental fog and Aphasia and many more. I did not go past the letter box for over 2.5 years, except to go to the Dr's, Hospital, Outpatients Clinic, Specialist or Osteopath. I would get woken up, assisted to get ready, sleep in the car on the way to the appointment, sometimes even in the waiting room, after the appointment I would sleep in the car, until we got home and then I had to be assisted into bed. Lying on the floor with one leg either side of the toilet bowl, as my head feels like it is going to explode, and the room won't stop spinning, then crawling far enough for the Ambulance crew to get me on a stretcher. A inability to process what the hang was going on. When one goes into a church, one should not be assessing the hitch points from which to hang yourself, or assessing fuel and toxicity of materials to ensure you were unconscious before the flames got to you. The most frustrating ongoing thing as you recover, is the inability to know how much you can do without being put flat on your back for three days, and people telling you to harden up. Even now, after 8 years, I still need plenty of naps, and have to plan well. If I have a meeting on Wednesday, I basically to nothing on Monday, Tuesday, to prepare, and nothing on Thursday, Friday.

[@RoseAmberley]

I would give anything to get to the bottom of this debilitating illness & all of its facets. Thanks for making this documentary. More funding & research is greatly needed. Advocacy means so much to those unable to expend the energy for themselves to do so. Somehow we must persevere through it all. Much love & respect to my fellow warriors. Godspeed!

[@ShikisaiMaki]

I'm so happy this is finally available on KZbin with subtitles in multiple languages! Thank you!

[@ThaisCanto]

Thanks for making the move available here on KZbin with subtitles in so many languages. I have long covid and I watched this move around 7 months after starting my symptoms. I have no words to say how much this move helped me start to accept the journey that I was starting at that moment. It was really good watch it again after, almost, 2 years and recognize how much I learned from ME. 🤗

[@nektariosandmagdalena4985]

Is lomg covid me/cfs? I have one doctor who says i have lomg covid, one who says me/cfs?

[@ThaisCanto]

@@nektariosandmagdalena4985 there are discussions if both are the same illness or not, but anyway many people with long covid meet the diagnostic criteria for ME/CFS. 😕

[@MP-uo6qd]

did y ou get ill after catching covid? If so then you probably have long covid. Try taking thyroxine and T3 as well as B12. @@nektariosandmagdalena4985

[@sekischro5093]

​@@nektariosandmagdalena4985 they are related. they may have the different pathology but same cluster of many symptoms or slightly different.

[@dallascowboy23]

Concussion triggered my me\cfs and dysautonomia. This was an amazing eye opening look into the world of me\cfs. It's crazy how similar the symptoms are and on such a spectrum. Everybody needs to see this. Especially DRS

[@jennyhorner]

A powerful film. Great to see this now available for everyone on KZbin.

[@freshmaiden5488]

Watching this because a good friend of mine recently got diagnosed with me/cfs. As a Dane, the part with Karina is genuinely shocking to hear.

[@KaristinaLafae]

I bought a copy of Unrest when it first came out, but I haven't actually watched it yet. It's another bedbound day, although unlike when I woke up yesterday, I now have laboratory-confirmed evidence of Sjogren's syndrome by lip biopsy, which I now have reason to believe is what my ME/CFS is secondary to. (Post-viral onset after a severe case of mono in college.) Lots of comorbidities, including small fiber neuropathy and POTS. Watching this is like reliving my own trauma. Medical researchers and treatment providers need to do better by us.

[@raggedblossom508]

Sadly, the people who really need to see this film will never look at it. As long as hard hearts and fixed minds rule the medical system, nothing will change for sufferers of ME. Different people could make another 'Unrest' today and the story would be the same.

[@DM101L]

I always wanted to watch this. Thank you, for putting it on KZbin! I have suffered with ME/CFS for 33 years. This documentary really "hits home".

[@claremoody4095]

When viewing you need to switch on cc (top right corner of You Tube screen for foreign language subtitles). Thanks for uploading. I was ‘fortunate ‘ to be diagnosed with ME/CFS in NZ where I live. Also devastated to be told that there is no cure and that I will get a phone call if one is developed. Newly diagnosed people with this condition need immediate well informed practical and medical support put into place to maximise the potential for recovery and minimise the danger of worsening symptoms

[@jodybogdanovich4333]

Thx for the subtitle tip. I watched this movie last night and figured out the gist of the Denmark dialogue after the fact. (Shocking what that family endured)

[@Time.and.Spoons]

Thank you so much for making this film accessible. I've been stuck with cfs for 3 years.

[@adrianashahrokh4108]

Very good documentary. A big hug to all of you struggling with this terrible disease.

[@penelopeasmr1009]

Watching this to better understand what people with Me/cfs have to go through. The gaslighting people with this condition must experience has to be frustrating to put it mildly. Hoping this gets more views so it can be better understood and accepted as a real illness, including in the medical community

[@piotrbiedowicz1602]

I personally know how it is like living with CFS everyday. I have it since 2010😢

[@rose13red]

Me since 2015

[@ronbokje6213]

My dad has it voor over 30 years now and I don’t know how long, I can’t remember when it started. 50 now and step by step it slows me down, but still able to work 3 days in the week.

[@susanhall5514]

I have had it since 1981

[@asmrvidsaccount]

Me since 2015, at age 19. Let’s all pray that this awful disease gets more research and a cure soon

[@katwartooth]

1998 here. ❤

[@jkcliff2956]

I've had it for 42 years. Thank you Jen.

[@rebeccabrandt3440]

i’ve only had 15 i can’t imagine. im glad you’re still here.

[@adele865]

Thanks for sharing this. I have shared it on my FB. I personally don;t have the cognitive stamina to watch it myself but it's good to see this movie finally on YT to share.

[@steved1191]

I was diagnosed just two months ago. Although frightening to watch, it’s great documentaries like these are made.

[@eljaruben]

Thank you so much for sharing it for free online now 💙

[@fibromyalgianational]

So happy this film is available for more people to see. It's inspired so many and has so much heart!

[@pjdelport]

Thank you for making this available! 💜

[@allysongill4809]

An update on the documentarian- Jennifer Brea is in remission after receiving two neurosurgeries. In addition to MECFS, she also had POTS and hEDS as well as CCI. Unfortunately there are few doctors who are able to effectively treat these conditions and even less that are willing to consider surgery even though it has proved to be effective in 1000’s of cases. We need awareness as ME and the comorbidities it runs with are skyrocketing from covid. Encourage everyone to watch this film and share it with their loved ones.

[@awushuful]

She does not have EDS. She had CCI and tethered cord. Please read her blog posts about it; she states multiple times that she doesn’t have EDS. There’s enough misinformation, please don’t spread more.

[@danielle_0824]

@@awushufulThank you for clarifying. We can’t diagnose people. She has stated her conditions.

[@KiroRocks]

Thank you, Jen. I have ME/CFS, too.

[@teripeterson5709]

I’m Thankful for Y’all making this! I’ve been diagnosed with Post viral fatigue syndrome/ME/CFS Long Covid Living with this illness IS NOT REALLY LIVING

[@drina4706]

No. We aren't living. You are right.

[@xizes]

Absolutely amazing work with the documentary and willpower towards living. It makes us remember to appreciate life even in the hard moments and constantly put ourselves into perspective, so we don't complain about the silly bad things of our time around. I really hope more fund is dedicated to ME and that politics get involved. Thanks for the effort of putting this together!

[@dlibby4979]

The most famous person that has this is the Physics Girl from KZbin Dianne Cowern. She is very very ill. I really hope the researchers get the funding to help people.

[@student22044]

Ren signposted this amazing video; thanks so much for making it available. I really hope it generates more funding. It's unbelievable there are so few specialists for something so widespread. I'm sending love and acknowledgement.

[@katwartooth]

Thank you for publishing this. I have moved to a new city and my friends here don't understand like my hometown friends do (no hospital runs yet). This will help me explain why I just can't have what I want.

[@famprima]

I have ME/CFS since 1997. I will be damned if I let it take my life. There is still so much I can be, do and experience.

[@UnrestFilm]

Thanks everyone for all of your incredible comments! English speakers, here is a version of the film where the Danish subtitles are "burned in" in case you choose not to watch with captions: kzbin.info/www/bejne/iH20f5mpic6bZ5I Follow the new feature documentary by Jennifer Brea, 4mm: linktr.ee/4mmfilm

[@melissasoria5740]

Thank you for posting this film. It's bittersweet knowing that I am not alone in this.

[@MollyMcMullen]

Great film, beautiful love story. Thank you so much Jennifer Brea for representing us.💖🙏

[@kindaskayee875]

I have been suffering for the last 6 years too it’s so depressing and life changing people just don’t understand even family in the beginning family found it difficult to understand what was going on. 😢 sometimes it’s a lonely journey but the thing is I feel positive but my body and mind doesn’t follow

[@sloth6247]

We are not alone!

[@32446]

I’ve been living with this for over 12 years. I’m ok at the moment but I know a relapse will be around the corner. It never goes away. I feel sorry for anyone who had this condition. It’s simply a living hell. I hope one day they will find a cure.

[@suemarie6032]

I got ME in 1987, 11 years before I got online. Even then, I realized what I had but could not convince either of my 2 GP's. One called it depression, with nothing to base his findings on. When I got flippant and said, "Does depression have something to do with our blood because you told me I cannot donate blood anymore". Still, that did not convince him order more tests or send me to a specialist. It took me 25 years and a lot of begging to get a formal diagnosis. Even then, my 2nd GP never spoke of it again, so I wasn't even getting help with the symptoms. I wish every medical student had to see this!

[@MissHaotic]

Sending you lots of love, you endured so much 💜 I have been suffering for almost 10 years, only last year I got the diagnosis.

[@suemarie6032]

@@MissHaotic Wishing us all better days...and hopefully a cure in my lifetime.

[@Roxygirl176]

Please remove the flashing logos at the start. It is really disturbing for ME/CFS people with visual sensitivities

[@sharonclarke2587]

This is also my story in so much of this film. Watching it reminded me of all the doctors I saw, all the 'it's all in your head' remarks from medical people to family to friends. This disease stole my career, my marriage, my self-confidence and the only things that held me up were those people who didn't judge me, or dismiss me and my faith in Jesus Christ. I cried buckets as I watched certain parts of this film. Almost 40 years later, I still struggle. I still drive with hand controls although even they tire out my arms if I have to drive far enough - thank God for cruise control! God, please help us all find a cure for these illnesses!

[@madalenamachado2995]

Thank you so much for this excelent Documentary film❤. Thank you Jennnifer and Omar for doing it. This is what real Love is/means ❤... How brave and courageous to bring this reality ,so we may face it too, helping All Those which were (are) suffering, in silence, as they were (are) still not understood, not only for most of the Doctors, but also by this Society we leave in (and sometimes, by their Beloved Ones).. This was eye opening.. May it be seen all over the World (thank you "internet" for making it possible). I will do my part, spreading it, through my contacts, hoping/wishing it may help someone who may go through it and who knows, Science will invest consistently to find a cure... HOPE is the last to dye.. My deepest thanks, go also to all other intervenients, blessing them for their courage and their families for their unconditional support.. Please stand there.. Please proceed and You will be suceeded ❤.

[@RobertJohanssonRBImGuy]

Doctors cant do shit and when they realize that it can be weird.

[@MichaelJohns]

Jennifer is amazing and now very vital in getting to the bottom of all this. I hope I can be helpful.

[@InsomniacsRaine]

Thank you for sharing this and bring this to light.

[@myriamdelgado1983]

HolaJen!Ojala pudieras leer esto. He vivido con esta enfermedad desde los 5 años, ahora tengo 60. A los 9 años ,casi morí por una infección viral mucho más severa que las anteriores. Estuve 6 meses hospitalizada. Vivo en chile, al final del mundo, del tercer mundo. Imagina! Si en los países desarrollados tienen que lidiar con la indolencia de muchos médicos , acá aveces tienes que superar la burla y muchas veces la personalidad de divinidad que desarrollan muchos de ellos. Gracias por UNREST, me ha ayudado mucho, especialmente con los miembros mas cercanos de mi familia. No tengo amigos ni vida social y pasó mucho tiempo en cama con mucho dolor, pero aun así, espero un futuro maravilloso. Ánimo Jennifer!!! Si he logrado llegar hasta aquí, en condiciones tan precarias,tú también lo harás ❤

[@paranoiaaa4126]

Can't wait to check it out!

[@Brooke00755]

Thank you to Jools for recommending this. Awareness is so important! We ❤ you Jools ❤

[@elizabethconroy7665]

Jools is a remarkable Lady ,loved by all her Subscribers It’s heartbreaking to know what she goes through on a daily basis God Bless her Also she never complains

[@Rockfeel]

Thank you!

[@FireflyOnTheMoon]

I'm glad she has made a full recovery in the last few years.

[@mihakavcic7237]

She did?

[@famprima]

She didn't. She is in remission. That is something completely different.

[@zp6814]

Thank you for making and sharing this documentary! Wish all of us regaining good health in 2024 ❤

[@beemedia4931]

Thank you Jennifer Brae for this film. It really takes a special kind of soul to stand by someone with ME . They should all be commended xx life is very precious xx

[@geenwereldkind7864]

So happy it's on youtube

[@rosalyparamo1761]

Gracias por este documental . Desde el 2011 padeciendo fatiga crónica y fibromyalgia. Perdí mi matrimonio por la misma razon😢. Espero en dios algún día encuentren la cura.

[@darylandcat]

While I don’t have the actual diagnosis yet, it is a highly probable as I work with my neurologist and an appointment in Boston MA. I got Lyme disease in 2022, and things took a downward spiral fast. I fell permanently ill in January of 2023. I was physically active. Working in automotive, parts and turning wrenches. Riding a single speed track / race bike 10-15 miles 3 - 4 days per week. Hiking 8+ miles per day when I wasn’t riding, and weather permitting. It’s appalling to know there are people out there that think this is some kind of “lazy” disease. I want nothing more than to go back to work, get on my bike, or go fishing, but I literally cannot. I have even tried to ignore it and push through, only to my detriment. All of the things I enjoyed doing so much, I don’t even have the will, energy or sometimes the memory to even do. It’s horrible.

[@lajoyous1568]

❤

[@Riekalina]

Thank you so much for this moving film🙏❤

[@Nora-chicha]

Merci d'avoir fait ce magnifique documentaire qui rend enfin visibles les invisibles. Il faut que les choses avancent. Que du budget soit alloué pour la recherche sur des traitements et que les personnes malades soient écoutées et respectées.

[@kieranwarden1412]

It'd be good if you could include the basic facts about ME/CFS in the description as there are very few in the film if I recall: physiological abnormalities (Immune, nervous, endocrine systems and energy metabolism), quality of life score, funding comparisons to other diseases etc. These were all covered in Jen's TED talk but not in the film

[@nellaarnella9868]

Thank you for uploading this great film! Will German subtitles be available soon?

[@UnrestFilm]

They’re available now 😊

[@Enn-]

Wonderful that it's not on KZbin!

[@debbiemurphy2512]

How can people even think of making jokes about this terrible illness?!!!

[@silentlady408]

BRAVO !!!!!!!

[@sicpuppy9500]

I came here to hear the song "Patience" by REN (Gill )

[@karmen181]

I came to watch this because I found Ren last week. And just wow . I watched his chapters last night and he pointed this out . I do not have ME but I have an invisible disease so I feel this so much .. this was powerful thank you

[@bielbl5124]

I'm glad we as society are giving visibility to such conditions, it is very real, exists and we all need to be aware of this, don't ignore the symptoms

[@the14thmoonofuranus]

I've been bedridden with M.E since 2010. I've had to be spoonfed, use a bedpan and I'm not able to wash. My Dr said it's attention seeking. This illness takes away everything that means anything and leaves us with tortuous existence, nothing more.

[@Aiz4511]

I’m so sorry to hear that. You probably hear that every time someone finds out about it but I’m truly sorry. There’s an artist named Ren, full name Ren Gill, who has a very similar story to share with people like you. He was in snippets of this video. I recommend checking him out. He’s releasing his full story starting today and finishing it on may 9th with a song. You won’t be disappointed if you check him out. He’s got great music too.

[@the14thmoonofuranus]

@@Aiz4511 @AizlynLucero yes I know Ren and his music! I've been following him a long long time, he's very inspirational. I keep hanging on to hope that there will be better days for us all. Thank you for your kind words, I do really appreciate it.

[@Aiz4511]

@@the14thmoonofuranus ❤️

[@multiversomental6893]

As a Long Covid sufferer, I empathize. I have experienced the medical gaslighting, losing my job, confusing treatments and relapses. I lost all my “friends”. God gave me a new perspective of life and now I know I want to join this battle, so sooner rather than later we all have the treatment we deserve. We may be weaker on the outside, but we got so much stronger inside. May God let us find our treatment.

[@catherinez8643]

Beautiful 😊 I tried to go on you tube but to ill. It's a lot of work. She is Lucky she have a husband. A lot leave or have no empathy. Good luck to the girls. No man when you are sick. Very sad. This movie don't show it. She have a supportive husband :one on a million

[@Ruby-xk8kn]

Thats so sad im sorry :( i heard when a woman becomes ill, men are several times more likely to leave compared to if the man gets ill the women will stay amd look after him. Its shameful that most men act like that.

[@catherinez8643]

@@Ruby-xk8kn just right 👍 I think it's important to say it or scream it because it's the only way things can change 🙂

[@lydiatankersley8154]

@@Ruby-xk8kn My dad is like this threatening to leave my mom over her chronic pain and long covid. I resent him sometimes.

[@clarysagemannoroth]

Thank you ❤

[@inmacampos2516]

Breaks my heart in thousend pieces…

[@movingpicutres99]

And yet a number of symptoms like sensitivity to light and sound are the same as migraine which is also dismissed as female hypochondria too often.

[@theveganflower5135]

I always tell my doctors that im not depressed. Ive been depressed as a teen. Now that im ilder and have m.e and fibro. Im just sick and tired of being sick and tired. Its different.

[@DavidWaterhouse100]

Thank you so much for this.

[@sleepybluebear3571]

I have had both fibromyalgia and M.E. for 27 yrs. In the beginning, it seemed the fibro was the worst part, being in constant pain and trying to work is very difficult. Especially when you're a nurse. I was a Hospice nurse and really loved my job! I was only 42 when i lost my 22 yr old daughter, and then everything came crashing down. Still, I believe I would have been alright if I had been able to continue working! But, then the depression kicked in, and I became suicidal.. I felt worthless becuz I couldn't work. The fatigue was too much. Anyway, the last few yrs has been the worst, as far as the fatigue goes! If I go anywhere, to the Dr's, to my daughter's for a bday party, I will be sleeping round the clock for days! I get up to feed my cat's, order food, eat a little, but then it's right back to bed! Funny, when I tell my Drs about this, they just stare at me, I can hear the crickets! No one says, "Oh! You have CFS!" What is going on? Can't we all just get past this, "What is it?" Syndrome?? I've been tested for Lupis. Once, I was Pos for ANA, next time, yrs later, my ANA is Normal! 🤔

[@AS-ok2ni]

Hoping this gets a lot more views and a lot more eyes on what millions are living with. Ren recommend, this to watch! Another kind soul told us it was here. You are all incredible humans with the strength of Gods. Or universe. Maybe just maybe the right person will see this. We will find away of catching it and stoping it or healing it.

[@Miss_Distress]

Struggling with worsening ME and dysautonomia which is ruling my life most days. I almost couldn’t watch this, because it makes me sad to remind myself of how little we know and care about invisible illness like this. Especially having to hear some of the awful nonsense people say.

[@cfc105]

what a bunch of fighters and heroes, hope a cure is found soon 🙏much love and strength to you all💪💜 Ren brought me here.

[@theresilientspud]

I'm living this right now thanks to lyme disease

[@lorymedearis5636]

Myself as well....Lyme Disease started the immune system to go into neuro inflammation and the immune system just got worn down. Then got Long COVID and then everything just ramped up symptom wise. Especially mitrochondria & now cardio functions (that is a covid issue that seems to be unique to the Covid virus). But, like Lyme, then Chronic Fatigue (ridiculous name for a virus that literally shuts you down) & now Covid...there still are no cures. Hoping with Covid, the mass of people affected & the awareness it brought globally, will bring answers. My love, understanding & warmest hopes to you in finding your healing. ❤️💯

[@abbyarmstrong-green7200]

Thank you so much for this.

[@H4NDCRAFTED]

I still don’t get how anybody is ok with calling it Chronic Fatigue to steal a quote ‘it’s like calling alzheimer's chronic forgetfulness’ George Carlin would of seen straight through that silly title and it’s purpose.