It's a terrible disease. Please scientists find a treatment to stop the skin tightening. Please 🙏🏼

What if one has Ehlers Danlos syndrome.

Me gustó mucho como explicó, llevo 6 meses con el diagnóstico que yo misma hice pues soy fisioterapista, el reumatólogo lo confirmó, aquí en Guatemala no hay asociación de escleroderma por lo que me interesan muchísimo estos videos. Gracias mil

Please create a medication to reduce immensely the skin tightening 🙏🏼

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im so pertified i have this after a vaccine. felt parotid swelling for 2 days after the vax, 5 weeks later dry mouth. initial bloods were ana negative.. repeating them now.

Im 71, diagnosed 10 years ago, scleroderma, raynauds, & a few others. Take it one day at a time, live in an area where theres no support groups, GOD IS MY SUPPORT❤❤❤❤❤

I am in a similar condition, diagnosed 10 years ago, im 71, its a day to day struggle...❤❤❤❤

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I am so glad I was able to view this again. I will add one more thing, communication with family openly and early while you are going through start of symptoms is so important. People who care also grieve for you and want to do everything RIGHT but being in dark for them is the hardest thing.

Stem cell transplant is the new age. We know it difficult but there is an organization that support stem cell transplant. If you want a stem cell and you don't know how to go about it, contact us. You will get 50% off the stem cell price.

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From one Warrior to another: keep fighting and never give up. God bless you!

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Wonderful young lady with a super attitude!😊

My heart goes out to you. Im 71 and was diagnosed with scleroderma 10 years ago. It is progressing, I manage to stay positive most all the time.This young lady has been through alot, prayers for her❤❤❤❤❤❤

Thanks for sharing Barb!!🦋

A wise young lady, at 71 with progressing scleroderma, concentrating on things I love, nature, flowers, music, birds, going for rides in the country, and talking with God, keeps my mind off of my deteriorating condotion!!😊😊

Im 71, got diagnosed with Scleroderma 10 years ago. Despite living pretty healthy, my scleroderma is progressing and its a ROUGH journey, it feels like fire& pain 24/7...I keep my spirits up by talking to THE LORD, as I live in an area where there are no support groups, and the climate, north, is extreme on my scleroderma. Ive lost52 pounds in 4 years. God is my only support now, but Im HAPPY for those of you that do have a support system, or family!😊😊😊

Planet Ayurveda has the best treatment for Scleroderma. Their natural approach has given me significant relief. I’m so grateful for their effective and safe remedies.

Also, USE MITTENS !!!!

Another tool for Reynaud's sufferers with digital ulcers are the silicone spatulas. I use them in the car to release the seat belt and compress the control buttons on the dash.

This is wonderful! I am committed to do this everyday!

I’m so happy for Kim! God is good! My mom has CREST syndrome very badly and her scleroderma is affecting her esophagus. Does anyone have any direction for me to go to try to help her? Does anyone know how I can contact Dr. Shah? She’s in a terrible flare up and need help outside of what she can get here. 🙏 Thank you for any help you can provide!

I just developed hemifacial atrophy with morphea like plaque and I’ve been treated for late stage Lyme by both an infectious disease doc and Lyme-literate rheumatologist within the last three years. I live in US. Lyme specific bands were P39 and P28.

I was in the SCOT trial and was randomized patient 2 for cyclophosphamide! Still doing great!

Why was IBIO-100 discontinued?

I have lost family members to this awful thing,is there any hope has your research produced any???

This doctor is amazing

Thank you for your work

Hi beautiful! Is there anyway to find the video you did "Hallelujah.. Singing for Stem cells" 2:09 ? It was the most beautiful song I ever heard. I have Diffuse Scleroderma n I'm struggling. That song, you singing it, gave me hope and is so so very uplifting. God bless you and love from Pennsylvania ❤

I hate myself i look awful

I have symptoms of lupus together with dry eyes and mouth. Have to drink water when eating

I was wondering about linear morohia as far as making or at least helping the marks on the skin fade or dare I say disappear? I know it’s a long shot, but maybe not? Does anyone know about this or know where I could find studies or info? I haven’t watched this whole video yet, but I definitely will. Cannabis should be available to anyone that could benefit from it.

What about semaglutide?

I am from Austin.. Suffering for the past year and new.. Any suggestions on how to deal with this..

Just was diagnosed with morphea on my scalp. I never noticed when it was active but now I have the indentation. Need to go back to UT health for a follow up

Amanda, I’m from NJ too!

I am 69 yrs old and have it 22 years.

Good talk! Thank you!

Hello, what about just having antibodies SCL70, but to symptoms, great lung xray , good capillaroscopy?

Hi...Just Made...MY day... God BLESS YOU/I'LL B IN TOUCH...ME SCLE...20 YRS NOW/I'M TELL MYSELF TO KEEP ON ...KEEPN ON... I'LL B IN TOUCH...OK...UMADE MY... DAY ❤

❤❤❤ ty for sharing ur story and helping others. I'm in awe of u

Muy buena información para personal de salud, especialmente para médicos.

Wow, you have an amazing story! Thank you for sharing! 🎉Happy birthday🎂! Wishing you many more happy and uplifting ones! 💜💜🙏

WALMART IS A KILLER OF SMALL TOWNS. I understand that sometimes the discount prices are tempting, but once we lose the independent market in these small towns, we no longer have a choice of where we shop. Keep breathing 👍

Very inspiring story. I am also a Scleroderma Patient since 2018. I am doing well with my strong Will Power and mind control. Thank you so much. God bless you with healthy and long life. 🙏

Yes, probiotics really help reduce the symptomps ... I've been battling scleroderma, overlap with vasculitis, rheumatoid arthritis, and polymyositis for more than 8 years ... This are things that help me go on remission : - Avoid gluten, refined sugar, seed oil (fried stuff) - rich probiotics everyday, i use kimchi, kefir, yoghurt - bone broth helps - i often use moringa, turmeric, curcuma powder drink it like a tea, half tablespoon - vitamin D + K2 supplement - magnesium & potassium rich food - avoid any inflammation triggers - deep and slow breathing technique helps to calm down 🙏

Nowhere near me to get proper treatment. I live in Omaha, AR.

morphia I’ve had it since I was a child and it looks like a burn mark people say or big bruise and it grows and shrinks but it never goes away and I’ve noticed when it grows my back in that area gets so itchy and when it shrinks it feels like the tissues and the muscles tighten up and it feels like it’s squeezing my ribs.