Teal Talk: Young Adult Panel - June 6 2024

  Рет қаралды 262

National Scleroderma Foundation

National Scleroderma Foundation

Күн бұрын

Пікірлер: 6
@robinsonresources2
@robinsonresources2 4 ай бұрын
Good talk! Thank you!
@rohinibhat4955
@rohinibhat4955 3 ай бұрын
I am so glad I was able to view this again. I will add one more thing, communication with family openly and early while you are going through start of symptoms is so important. People who care also grieve for you and want to do everything RIGHT but being in dark for them is the hardest thing.
@sherirose1434
@sherirose1434 4 ай бұрын
Amanda, I’m from NJ too!
@chundulavanya4379
@chundulavanya4379 4 ай бұрын
I am from Austin.. Suffering for the past year and new.. Any suggestions on how to deal with this..
@SclerodermaUS
@SclerodermaUS 4 ай бұрын
First and foremost, it is important to discuss these things with your healthcare provider team. Our website, scleroderma.org, has a number of informational resources for the scleroderma community. If you're interested in our support groups, please email support@scleroderma.org.
@sherirose1434
@sherirose1434 4 ай бұрын
I am 69 yrs old and have it 22 years.
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