I am so glad I was able to view this again. I will add one more thing, communication with family openly and early while you are going through start of symptoms is so important. People who care also grieve for you and want to do everything RIGHT but being in dark for them is the hardest thing.
@sherirose14344 ай бұрын
Amanda, I’m from NJ too!
@chundulavanya43794 ай бұрын
I am from Austin.. Suffering for the past year and new.. Any suggestions on how to deal with this..
@SclerodermaUS4 ай бұрын
First and foremost, it is important to discuss these things with your healthcare provider team. Our website, scleroderma.org, has a number of informational resources for the scleroderma community. If you're interested in our support groups, please email support@scleroderma.org.