I got misdiagnosed a few years ago “scar tissue” wouldn’t operate now need a finger amputated..thanks to finding this link realised I’ve it on my feet also

Extra corporeal shockwave therapy. Game changer.

I had RT for the whole of my right hand 4 years ago, I had minimal sideffects but it didn't help the Dupuytren's. I don't want an operation so what's my options?

I just got diagnosed during an ultrasound (so no chance to ask a specialist questions) and couldn't find any information until I found your organisation and this video, thank you!

how do you differentiate between Mortons Neuroma and Ledderhose disease? Would you follow a different treatment pathway?

Excellent Webinar. I am sure this is still pretty up to date despite it being a few years old. I had one lump and it didn't go far but recently I had a long endurance cycle ride over many days and I now have some nerve damage in my hands (probably to be expected) from the pounding. I have noticed loads of new nodules now in both hands. I really wonder if the cycling has made the nodules grow! Many thanks for the time taken by all concerned.

Dr Chris says 1 week after NA 30-40% patients return with a perfectly straight finger and the rest, the swelling comes up, then goes down and they are left with a beautifully soft hand! What does this mean? 30-40% return with a straight finger, the rest return with a beautifully soft hand??? Do these soft handed patients also have a straight finger? Why the differentiation?

Thankyou so much for this excellent webinar and for all your clinical work on our behalf. I've just had my first (and hopefully only) fasciectomy and thoroughly enjoyed the experience. My whole arm was numbed and I was able to see inside my hand which was amazing. My grateful thanks to everyone in the operating theatre and on the wards that day. I'm told I'm slightly unusual in that I'm female (61) and the contracture was in my right index finger. The op was 6 days ago and so far so good. It's so nice to have a straight finger again! Thankyou everyone at the BDS for all this helpful information. (PS: Type 1 diabetes in my family: father and brother)

I got both in my 20's. Had surgery on my hand, it's back. Now it's in both hands, my left foot and I have had a frozen shoulder. I have had several surgeries over the years.

Thank you for sharing your knowledge and experience. As a health care prof myself, its wonderful to hear you all speak with that knowledge and experience

New treatment modality ,possibilities. THOUGHTS PLEASE . High or med more frequent focussed extracirporeal Shock wave therapy this seems ideally suited bothe in disintegration or breaking down collagen and in promoting healing and much less damaging than surgery ,one might combine this with adenilub re Oxfird trial or with collegenaze which should facilitate uptake of drugs ,maybe longer term ultrasound or micro current to encourage full cycle mrna dna signalling regeneration back into the correct liminal pattern and collagen 1 from 3,6 reversion. TH😢OUGHTS PLEASE

Great information but what if you are early and not progressing. What is the harm in getting RT now to ensure it does not progress and you can put it behind you ridding yourself of any initial discomfort? Thanks.

The disease state is genetic, alcohol use can make it worse and a bad diet, Try alkaline diet

Needle procedure is the best procedure for this disease, an alkaline diet and DMSO cream, surgery encourages more scar tissue and 1 year recovery

Hello, with plantar fibromatosis / Ledderhose being related to excess collagen, I'm curious if the problem could be affected by regularly taking collagen or biotin supplements. Do you know?

Do we have an update on all that’s been mentioned?

I have so many nodules I'm going through radiation now. I'm in so much pain that I want amputation

Just been diagnosed. Doctor said there's nothing I can do to stop it get worse so feel helpless especially as i'm only in my 40's. Just watched this video and that man talking about avoiding amputation has made me even more worried. My doctor didn't even tell me that was a possibility, probably because she didn't want to scare me. This video should be reassuring people, not scaring them. It's certainly got me scared now

Amputation? I’ve had a stroke and now only have the use of one hand. That active hand has now been diagnosed as having Dupuytren’s contracture. After having an op to resolve trigger finger is when Dupuytren’s reared its ugly head. If anything else happens I fear I’ll be helpless with having two non-functioning hands. I’m now waiting for an operation to hopefully get rid of the contracture, but I fear it will return. I’d much rather of had it in my inactive hand, but it is what it is.

After having radiation treatment for my ledderhose I've been In none stop pain daily.

He's afraid I feel the same most of the time my shoulders hurt so bad. Bl hands, Bl feet. Knuckle pads. I'm African-American 2022. I was 28 when finger first started to bend. 6 years Army

Interesting report from a patient with dupuytrens describing his unhappiness at his first surgery which was not NA- a pity we were left to wonder why he was unhappy apart from it being NOT what he expected. I am about to have surgery and this will not be NA, and will apparently require non use of my hand for 2 weeks. I had not found a surgeon who will use NA, and I wish to hear more about costs and recovery. Also in this session mention was made of the use of radio therapy- is there any evidence that this will help to prevent recurrence? 15-10-2022

great, hearing about radiotherapy for dupuytrens, but serious disappointment in that you are telling us a great deal about the non serious effects of treatment. But with Dupuytrens I hoped for some information on what is clearly the most important issue for sufferers...flexibility improvement. NOTHING for me here.

Why the intrusive and irritating music? It adds nothing! Informative video spoiled.

I heard it was to do with themed ian's nerve

Thank you for this very informative webinar, just diagnosed and investigating treatment options. Appreciated the inclusion of doctors from a variety of countries. This information was extremely helpful.

Ive had them in my left for for 10 years and on their own they've flattened out. My right foot started growing them 2 years ago and have grown fast. Id be curious to try these therapies.

Will you please add links to the study referenced in this video? Thanks in advance!

Thankyou. This is a very helpful video for affected individuals, but the sound quality and actual production could be improved. I think speaking the highlighted points out loud would be useful and the music is also a bit unnecessary.

Dear Richard - Your expert comments are - as always - very easy to understand, well termed and logic in wording ... and almost complete ! The only aspect I was personally missing was your "White Cat with the Grey Ears" which is sometimes passing your desk in front of the PC screen to make the LIFE INTERVIEW even more convincing ! Thank you for the great job you are giving to the public, Heinrich Seegenschmiedt 😃😉

My only effect was slowing the progress. I would do it again if I had to, and if it was permitted. My left hand has been done twice.

Where can I get this done mine hurt please help

Thank you for these clear results

This is unfortunately very disappointing. Your releasing such useless information is sadly a waste of time! Why do you do this!?

Thank you very much sir

This video is ridiculous. It would of made sense to of added what procedures are available. A big smiling narrator saying stay positive does nothing for those with this condition.

This was extremely interesting, thank you. I am having a z-plasty surgery on my R hand soon (conjecture at about 30), but may consider RT for my L hand, which is less severe. My dtr. lives in London - should I check your website for info on how to go about that?

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Very useful information. Thank you

Thanks as I found this very reassuring. I think that specialists who make the initial diagnosis should point patients in the direction of the Depuytrens society! It certainly would have helped me at the outset. Do you have a video with advice regarding specific ways to reduce the possibility of flare ups including avoiding activities that might induce them and what these might be? For example, rowing, craft work etc.

I had it done on my feet and hands about 4 years ago. It has been working well for me.

Just a comment about a lnk to trauma.....@ 1:06 the surgeon says some patients suggest to him that a trauma started the problem.....my Dupuytrens was diagnosed 2 weeks ago and my palm definitely started thickening when I had shoulder impingement & tenodesis surgery 5 and a half months ago....I suggested it but the link was dismissed by my GP..... I am not diagnosed with EDS myself but I passed it on to my daughters/grandaughters from my mother so I likely do have some form of genetic callogen disorder. Thank you for sharing the video and I hope that there will be some readily available treatment to stop progression available soon.

Very helpful. Measuring and recording will help us understand what if any progression there is in our DD. Appreciate your interview. Chris

Is placing your finger in contracture making it worse. I do stretches and contractions getting close to a contracture but sometimes finger contracts and I have to straighten. Sometimes under the power of the finger and at other times I have to pry with other hand.

Hearing you say young onset for the guy made me cry cuz I have the pads nodules cords lederhose with toe contraction and I’m 22 😭😭

Google searches provide the worst info, I am interested in adaptive recommendations especially if you have nodules that flare up occasionally and you don’t want to lose your hand function. Most of this video is not that useful.

Highly aggressive DC started at 35.

Thank you! So helpful as I was just diagnosed. Lots of changes quickly and looking into radiotherapy in my area. C

Having recently been diagnosed with it, coming across a video that talks about avoiding amputation is not very encouraging or supportive.

This is very useful. My father had Dupuytrens to the point of contracture on both hands, and had several surgical operations. My right hand is now developing this (stage N) and I am keen to try to address this earlier rather than later. I am 70 years old and otherwise healthy and mobile.