2 ай бұрын
2 ай бұрын
Пікірлер
@MaryKane-qv5vz 8 сағат бұрын
Hope my medical team is up to date in my treatment.
@MaryKane-qv5vz 8 сағат бұрын
Hoping my medical team are up to date with all this in my treatment.
@johndowling5336 Күн бұрын
Brings back bad memories.
@shanenickolson644 2 күн бұрын
And yet Health Canada won’t cover Daratumamab for front line therapy.
@avatar5558 3 күн бұрын
How about in dating?
@rmcellig 3 күн бұрын
Another great video. I've had myeloma since 2005 and now have AML (acute myeloid leukemia). Can you please do a video on patients dealing with two blood cancers? I'm more familiar with what's going on in the myeloma world than I am in the AML world.
@brennadickinson2920 4 күн бұрын
Started Dex as part of immunotherapy, with Daratumumab, nearly 3 years ago and have gradually been lowering the dose over that time. Gave me insomnia and a raging appetite. Not a good combination! Up all night looking for something else to eat! I've put on about 60 lbs!, I think it's effecting my hip joints and have some early liver problems. I hope to be off Dex altogether soon and can lose some of that extra weight.
@garycrawley1868 4 күн бұрын
So will it remain a part of the maintenance therapy? I’m all for coming off some of the drugs.
@TimJohnsonBizNet3 4 күн бұрын
I'm off dex for my maintenance. VERY happy for that.
@IMFMyeloma 4 күн бұрын
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. [email protected] 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
@richardhowe898 4 күн бұрын
Very helpful information
@stephenrichards5386 7 күн бұрын
My Kappa levels rose nearly 50mg in one year. Lamda rose and then deminished. 😊Ratio went from 3.65 to 6.909. Any thoughts?
@christophersandmann 8 күн бұрын
Excellent presentation.
@SuzyQ-v1p 8 күн бұрын
I have been diagnosed with a plasmacytoma in my right humerus bone in April of 2024, and have just been told that the odds are quite high that it might turn into multiple myeloma down the line. Now I try to prepare myself for what sounds almost inevitable to come my way.
@terryfuqua1668 9 күн бұрын
Thank you for all you do. So appreciated!
@monicaallen233 10 күн бұрын
I want to be a part of this study
@brianraupp8058 11 күн бұрын
Pretty sure I had smoldering myeloma for several years before it really blew up. Over that time my PCP pretty much shrugged her shoulders when I asked about my high protein numbers at physicals. If I knew then what I know now... Not sure what it would take to get the word out about Smoldering Myeloma. But I'm sure it would potentially keep others from getting sicker, especially as we learn more about keeping it at bay.
@JWB671 10 күн бұрын
You had high total protein numbers with your yearly blood tests?
@IMFMyeloma 11 күн бұрын
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. [email protected] 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
@saulalvarezmusic 12 күн бұрын
Not if your independent contractor
@haphapful 13 күн бұрын
Well, when i was informed of my myeloma, I thought I'd live a maximum of 18 month, this was10 years ago. So, when I see you, a 28 years survivor, I begin to feel sorry for my wife!
@topanton 13 күн бұрын
Thank you, Yelak. You are an great leader and an inspiration for the whole myeloma community!
@pauldodd2120 13 күн бұрын
Is there a research paper?
@kevindebruyne8624 13 күн бұрын
Julie from the uk
@lashellhopkins8270 14 күн бұрын
Great information. Thank you !
@lashellhopkins8270 14 күн бұрын
Great information! Thank you!
@lashellhopkins8270 15 күн бұрын
Great information. Thank you ‼️
@rocioguarniz5186 15 күн бұрын
Thank you for your video! IsMultiple Myeloma autoimmune or developmental? Thanks again.
@shanenickolson644 15 күн бұрын
Great presentation! Looking ahead these developments are so exciting!
@tweeker216 15 күн бұрын
Only 29% of the non-ASCT arm eventually needed a transplant.
@christinacutlass1694 16 күн бұрын
Deliberately blind or ? The shots are causing more harm than good. Only those who profit via big pharma are pushing them at this point. They KNOW this!
@khangul24 16 күн бұрын
I lost my father after a long and expensive treatment that started in 2021. After four cycles, the doctor prescribed a type of capsule. Unfortunately, I didn’t carefully check the expiry date. On the front, it showed an expiry of 2025, but after my father’s passing, I wanted to donate the remaining capsules to a needy patient. Upon opening the used pack, I was shocked to find two stamps with two different expiry dates, the original was 2022, but a fraudulent stamp showed 2025. Please take care of your patients and always be vigilant when using medicines.
@Ebobster 16 күн бұрын
This is the best news I’ve heard in a very long time. Thank you so very much for this clear, straight forward, summary of promising developments in treatment of MM.
@TimJohnsonBizNet3 17 күн бұрын
My company is remote first so I’m not sure they’d pass the 50 employees with 75 miles criterion once I hit one year with them the end of February. I have chosen to disclose nothing about my situation simply for self-protection. There are days when it feels less than above board but losing my job over cancer would be worse.
@Ebobster 17 күн бұрын
For those of us who have MM but are not drs, this was a bit confusing. Get that many were pre-treated patients and some were not and those who had not received any treatment before responded better. Question: for each group (pretreated vs non pretreated) who were in the 44.3% that did respond to this treatment what was the average survival time for each group? For either group were there any months of complete remission observed?
@IMFMyeloma 17 күн бұрын
Hello, these videos are definitely very complex. We create this series primarily for healthcare professionals who are unable to attend the ASH conference but would like to know the latest updates in myeloma research. Our Chief Medical Officer, Dr. Joseph Mikhael, hosts a series where he breaks down these research updates for our patient community. Please consider subscribing to be notified of when these videos are released. We are also available to answer any questions you have on these topics. You can reach us by calling our Infoline at 1-818-487-7455 or emailing us at [email protected].
@Ebobster 17 күн бұрын
@ Thank you.
@IMFMyeloma 18 күн бұрын
Reach out to us with your questions! Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@rmcellig 20 күн бұрын
I had multiple myeloma since 2025. I did almost 100 marathons ranging from 10K to 42K. Over the holidays I was also notified that I had AML leukemia. A new adventure for sure. What awaits me is still to unfold. In the meantime I'm going to focus on my life and leave the medical stuff up to the doctors. If you ever want to interview me, let me know. Thanks!!!!
@IMFMyeloma 20 күн бұрын
Hello, thank you so much for continuing to support our channel. We hope that our information and stories that we share have been supportive to you. We are sorry to hear about your diagnoses. Please reach out to our Infoline at [email protected] and they can help get you in touch with our team that organizes our Day in the Life podcast.
@salemmouchref9174 21 күн бұрын
What do you think of Teclistamab it dropped my IgG level so far down to 82
@IMFMyeloma 20 күн бұрын
Hello! we’ll be sure to include your question for Dr. Joe to answer when we film his next Q&A video. Additionally, our staff of information coordinators are here to assist you with this question or any more personal questions you have as well. Worldwide: 1-818-487-7455 or e-mail us at [email protected]
@thunderstrike-rw4hn 21 күн бұрын
But I bet you watch and look on if you know most people relapses 😮 most interesting! 😮 !
@paddycdub 25 күн бұрын
Other counties have drugs payment schemes where may you never pay over a certain amount a month. Like say 80€ and the rest absorbed by the state
@IMFMyeloma 25 күн бұрын
Reach out to us with your questions! Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@IMFMyeloma 25 күн бұрын
Reach out to us with your questions! Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@rmcellig 25 күн бұрын
I have had multiple myeloma since 2005. I was on the elranatomab trial when a bone marrow biopsy indicated I now have AML. I was told my prognosis is grim but I refuse to give up. Is there anything positive with this new situation? I am being treated for AML at the moment but am unsure about the myeloma side. I'm 68 years young with a very positive attitude. I would like Dr Joe to address this issue maybe with a leukemia specialist because I'm sure there are many people in my position
@IMFMyeloma 25 күн бұрын
Hello, we are so sorry to hear of your diagnosis. We’ll be sure to include your question for Dr. Joe to answer when we film his next Q&A video. But please reach out to us so that we can assist you at a more personalized level. Our staff of information coordinators are here to assist you. Call us at: 1-818-487-7455 or e-mail us at [email protected]
@anams3177 24 күн бұрын
How did it turn to aml?
@michaelwinter4758 25 күн бұрын
I was just diagnosed last August with SMM and find these videos very informative, simply and concise as well as positive to listen to with regard to new studies and treatment... Thank you And to add... These are not lengthy as others are. We need short and concise thank you
@IMFMyeloma 25 күн бұрын
Hi Michael, we are sorry to hear of your diagnosis. As our President and CEO Yelak, who has lived with myeloma for 28 years, says: "If you have to have myeloma, now is the best time to have it." There are lots of new treatment options, with new research being conducted every day. Please reach out to us if you have any questions. We want to support you with finding the answers and resources you need. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@kimthompson6029 25 күн бұрын
What blood test are used to diagnose this ( besides stem cell biopsy)
@IMFMyeloma 25 күн бұрын
Hi Kim, Please reach out to us with your questions! Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@heidipucci9078 26 күн бұрын
Wow thank you for bringing awareness to this!😊
@IMFMyeloma 25 күн бұрын
We are glad this is helpful to you! Please reach out to us with your questions. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@johndowling5336 28 күн бұрын
You are absolutely correct, even though I have remission I still feel like a patient.
@rosalinedrakes2069 Ай бұрын
Hi now came across this site,very good information back then I got diagnosed I saw so shock, I never heard about the disease before
@IMFMyeloma 25 күн бұрын
We are glad this is helpful to you! We have even more updated webinars as well as many upcoming information events. Visit events.myeloma.org to see some of the in person or online workshops. Please reach out to us with your questions. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@TimJohnsonBizNet3 Ай бұрын
Could you do a “what are the first things you should and shouldn’t do when you receive your diagnosis“ video, please? I’ll start with a shouldn’t: DON’T Google it. The search results are wrong and it will scare the s&$t out of you.
@IMFMyeloma 25 күн бұрын
Hi Tim, we love this idea. We’ll include this for Dr. Joe to address in his following videos. Please reach out to us if you have any questions. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@johndowling5336 Ай бұрын
It works for me, 2 years.
@IMFMyeloma 25 күн бұрын
We are so glad to hear this. Please reach out to us if you have any questions. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@matthewgraham2546 Ай бұрын
I have MM , I was in good shape for a 71 year old 2/3/24 my vertebrae fractured, repaired with rods etc. My age keeps me from being a candidate for cell procedure. working on being a survivor. Don't be scared!
@IMFMyeloma 25 күн бұрын
Hi Matthew, we are so sorry to hear of your diagnosis. Please reach out to us with your questions. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at [email protected]
@babsbunny4069 Ай бұрын
Merry Christmas and Happy New Year 🎈🎊🎆