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@lastcall170
@lastcall170 2 күн бұрын
I had both.
@lastcall170
@lastcall170 2 күн бұрын
Are you a cerified audiologist? Where do you make those claims from? What source? I had only one type of hyperacusis. Pain and loudness intolerance. I dont see how this weird claim even is used today. How does it help? Whispers dont sound like screams either. Imdont think you understand hyperacusis.
@robertdegroot8302
@robertdegroot8302 7 күн бұрын
What gives me some relief is vibrating my tongue, making the french r and the spanish r interchangably, without vocalization. It's a bit like cat purring.
@奇C
@奇C 19 күн бұрын
I advise you to seek therapy from a traditional Chinese medicine (TCM) doctor. Not sure if anyone of those is in your city. If they are a qualified TMC doctor, you will probably get some relief with some Chinese medicine.
@GreenSaDistribution-en1ii
@GreenSaDistribution-en1ii 19 күн бұрын
5 years later and im much less sensitive to sound. For mnths, it felt as though someone was stabbing my inner ears with knitting needles. Breaking ice in an ice tray was tormenting. Someone placing cutlery in the cupboard with the items clanging together was hell. Curtains being swung upon a railing were a particular hell.
@TheTallulaah
@TheTallulaah 23 күн бұрын
Thanks for sharing this story. I am experiencing the same thing for 3 years now. Still hoping getting better. We need more research on this topic to help us in this living nightmare.
@juniorjunior4087
@juniorjunior4087 27 күн бұрын
I hve T and H and hve struggled mightingly. All i can do is pray. I already gave up but God is holding me from falling. Ò lord Jesus..i commit all sufferers of this illness. Grace us o lord.
@yasmineaydin3507
@yasmineaydin3507 28 күн бұрын
Merci beaucoup pour votre témoignage. Il serait tant que l'on trouve une solution et des traitements pour nos souffrances au lieu de créer des humains artificiels
@LANouveau
@LANouveau Ай бұрын
Merci beaucoup pour raconter votre histoire. C'est importante de savoir que je ne suis pas seule avec ce condition, mais bien sur je ne souhaite pas que personne le suffrir. My heart goes out to you and your loved ones. Please keep hope. There *are* people who have had improvement, and I hope that you will soon become one of them.
@babs93160
@babs93160 Ай бұрын
Nous sommes nombreux à souffrir seuls, en silence. Parfois, entendre un témoignage similaire apporte un peu de réconfort et de compassion. ❤
@FearIncorporatedBandOfficial
@FearIncorporatedBandOfficial Ай бұрын
Wishing you a swift solution and recovery Barbara from a fellow sufferer-Sending you positive vibes and may healing come to all of us who suffer from this condition
@babs93160
@babs93160 Ай бұрын
Merci beaucoup ❤ c est très gentil.
@juniorjunior4087
@juniorjunior4087 Ай бұрын
I got my T and H after covid virus. My world came to a halt. Its a brutal illness. Had to fight off the negativity that sipped into my mind. As a man of faith. I pray for all my fellow partakers of this suffering. ❤❤❤
@novadrian
@novadrian Ай бұрын
A comment here mentions "it's been a roller coaster ride" which is an appropriate analogy. The internet has brought it into the open and made me realise zI wasnt the only one.
@novadrian
@novadrian Ай бұрын
I've had hyperacusis from the age of 15. I'm 71. Throughout my youth it was never really recognised as something other than imagination. It was 20 years before an article in Modern Drummer magazine gave it a name for me. It was several more decades before I discovered the cause had been firing a machine gun with no protection in the cadet force (obligatory)at boarding school. I'd always assumed it was that nasty thing called Rock. The intolerance to loud sounds has never got better, but intolerance to normal low volume sounds does improve, although setbacks occur, due to loud sound exposure.
@babycoffees
@babycoffees 7 күн бұрын
HI! Long time ago I was hit a few times in my cheek/ear area. After a few hits I hear some sort of squeak in my ear, which stopped after a few seconds but ever since then my hearing is party disorted. It's hard to understand, I've been to many doctors and all the tests I've got are not showing any irregularities, but I can't stand loud places, when it's getting loud or anything like that I hear disortion in the ear I was hit. I'm not experiencing a hear loss, and also when place is quiet I'm hearing normally, but loud and specific sounds are kinda... robotic? I really can't explain that, but it made my daily life so much harder, I'm crying everyday because when it firsted happened I thought it was temporary, but so much time passed since that so I know it won't go away, and no doctor will ever give me solution because tests don't show anything. I don't know how to accept it, I catch myself thinking about my life before that and I cry again because I know I can't go back to that, and I need to learn how to live with that. I started avoiding places with lots of people and it's so hard to me because I've always been the person who needs social relationships... I also feel very alienated because when people look at me they don't see something it's wrong, yet I don't feel like a part of "normal" human beings because of this. I am also aware that I'm not in the worst position, because this doesn't cause me physical pain or being unable to go to loud place, it's just that it's really uncomfortable because I hear that disortion. How did you deal with your condition on a psychological level?
@sandymcdonald4353
@sandymcdonald4353 Ай бұрын
I had successful surgery at the SIlverstein Institute in Sarasota, Florida. I feel your pain! Please take care.
@adnanzia9167
@adnanzia9167 Ай бұрын
Sorry had to laugh a bit now, the guys talking as if its not cureable...sorry bro but if you need to know how to get rid of it. You dont need research for hyperacvusis, kind of makes me mad
@adnanzia9167
@adnanzia9167 Ай бұрын
I can totally connect to you the musician. i had tinnitusc😂 and hyperaccusis, and not only that my ears were painful and blocked
@adnanzia9167
@adnanzia9167 Ай бұрын
Oh by the way you know you can totally cure hyperaccusis, i had it bad, i totally changed my lifestyle, slowly in months started going away. Never knew it even existed.....this video now feels very outdated because its totally cureable but not via your GP
@robertdegroot8302
@robertdegroot8302 5 күн бұрын
Can you explain how it's cured?
@adnanzia9167
@adnanzia9167 4 күн бұрын
@robertdegroot8302 you mean hyperaccusis and tinnifus or hyperaccusis? In my situation i had both, really bad. My perfect life turned upside down but i folliwed Liam Boehms advice, literally the only guy that maxe sense but it seemed impossible because of reading and hearing about with people having it gor years. Anyway, I did the folowing, Diet was a HUGE factor, any type of carb or sugar would make byperaccusis really bax. I stopped eating everything and i mean everything, the ONLY thing i ate and i mean only, mirning fried half cooked eggs, beef liver twice a day, salmon fish, steak, grilked chicken and occassional baked potato. 2 litres of water a day, alot of walking and grounding, no T.V , startex to sleep early, mobike switched ofc and wifi router, no table lamps in bedroom and phine away at night, dry fasted around 3 days a week. Absutely no herbes or spices or any kind seasoning, lost alot of weight, salt, chillies etc is very very bad for hypetaccusis and tinnitus, very very strict about it, and guess what hyperaccusis started going down and tinnitus, as soon as i ate chocolate or any kind of things i mentioned it started to come back, very hard to believe it was improving, over 6 months hard work all gone. Im telling you if you want to get rid of it its very possible and go back to normal, now i can listen to music etc...and eat some junk food and study. Such a journey which was very very hard, family supported i cried got angry and shouted, why me and eventually it went away. If you cant do
@daksh1673
@daksh1673 Ай бұрын
Thank you so much for this video. I've also been experiencing this since 2021. And it keeps getting worse.
@yasmer9147
@yasmer9147 Ай бұрын
I had some thing 😢😢😢😢 ,are you better know?
@adnanzia9167
@adnanzia9167 Ай бұрын
So glad i came across this, how is it now? Mine hyperaccysis started after tinnitus, it was ao horrible, i never knew what it was. flushing the toilet would sound like smashed glass, noise of ambulance omg was so horrible. no muaic, no mobile phonea, i was ao stuck. It took my a while but mine is totallly gone now. just to let you know audiologists and docors will not help. i had to figure it myself, food was a big big factor, fasted, only ate meat, eggs, fish...lots of water, started getting better, then as soon as i ate any kind of carb, spice, my ears would block, hyperaccuais would worse. im from a science and medical background so went into autophagy mode.....in weeks, slowly started improving, took alot of patience rwfraining from everything, no its gone, tinnitua gone. just thought let everyone know it is very curable indeed..
@Noobita_2211
@Noobita_2211 Ай бұрын
horrbile mother who doesnt have an emphathy on her own son
@dbreiden83080
@dbreiden83080 Ай бұрын
This video is 1 year old and I truly hope you have found your way to a better place my brother.. After 3 months I have taken some time off work and am just trying to get back to things slowly.. I was NOT diagnosed with any ear damage or acoustic trauma by my ENT or audiologist they too feel it is mental and stress related.. I have started some medication for the anxiety. It was NOT 100% clear if they diagnosed you with ear damage.. However 1 thing I can tell you is the mental side of this condition is very real and can NOT be dismissed.. You seem to dismiss this and the idea of therapy, and therapy might be a great thing for you to try brother.. I have found with myself that If i wake up in the morning and feel that sound sensitivity it can 1 of 2 ways for me.. I can get depressed into thinking all sounds will hurt me or I can think as positive about the sound as possible. Simple things like turning up the volume slowly on the TV and telling myself "You got this.. It is NOT going to hurt" or driving with the windows down like I always did.. Don't be afraid of it.... Basically your brain gets wired to negative thoughts and patterns tied to sound and the pain follows.. Now I am NOT saying that's all there is to it as certain high pitch noises still suck and who knows how long I will need to get past it? Decibel is still an issue I have to work through it.. The biggest thing I am finding is thinking about Hyperacusis all day is the worst thing you can do.. The brain needs positive vibes.. Staying as positive about this as possible will help. Good luck brother. You can do this..
@N0N4M30
@N0N4M30 Ай бұрын
I have both and tinnitus
@macstreamer8943
@macstreamer8943 2 ай бұрын
We need more research!
@babywah3290
@babywah3290 2 ай бұрын
Have you changed your diet? High sodium can cause problems, lack of potassium. Chocolates, caffeine in general. It can be some form of allergy.
@naelbeno6249
@naelbeno6249 2 ай бұрын
I have pain and burnin Hyperacusis with Tinnitus 😢
@TylerSmith-ph4el
@TylerSmith-ph4el 2 ай бұрын
This may not work for everyone, but this actually saved my life: Try BPC-157. It completely reversed my pain Hyperacusis. I was suicidal and almost gave up, then I found bpc 157. I havent dealt with it for almost a year now. No earplugs, no tinnitus, no sensitivity, NO PAIN. I have to wear ear plugs at concerts, but I would advise that people do that anyways. Try bpc 157. Do your research and make an informed decision. It could change your life.
@OurNotSoSeriousLife
@OurNotSoSeriousLife 2 ай бұрын
Mine is in the treble range. I wear earplugs at work and when I take them out sounds distorted. My ear pain is like a knife.
@rebeccagutierrez1960
@rebeccagutierrez1960 3 ай бұрын
My heart goes out to the people that suffer from this terrible condition. I suffered from this one Sunday afternoon but only for several minutes around eight years ago. It happened like this. My daughter came to visit and I was in my bedroom watching TV when she came into the bedroom. She sat very close to me almost touching my torso area and I told her you're hogging up all the space let me move so you can have more space on the bed. So we chatted for a little bit. My husband was relaxing in the living room. Now, in all this, I had to sort of twist my body in an uncomfortable way just so my daughter could have more space on the bed to sit. It was actually funny. We talked only for several minutes. Then I said, "I gotta get my body out of this weird position." It was either I move way out to the left side of the bed to give her real sitting position room on my bed, or just sit up myself, so I did that. I proceeded to just sit on my bed as we continued talking. I positioned my back to the wall. (I didn't had a headboard). Suddenly my left ear became...bionic! That's exactly what I could call it. The sound coming from the tv seemed extremely loud, my daughters talking was unbearable. I became so confused I felt my eyes open wide I could see the shock in my daughter's face she knew something was wrong. "please stop talking and turn off the tv." I whispered very slowly to her. I could barely stand the sound of my own voice. She gasped! "Mom, what's wrong?" I quickly put my index finger on my lips to motion to her. Be quiet! It's too loud! I pointed towards my left ear as I was also trying to cover them both and I whispered to her, ever so lightly, "I feel like I have a bionic ear." I pointed to my left ear. "Everything seems so loud, I can't take it. I don't know what's going on. I was crying at this point. My daughter had a terrified look on her face and quietly said, " I'm telling dad." She quickly got up. I stopped her. "No, he's going to be frightened. Let's pray." I began to pray with ALL the faith I had in God!!! Quickly, of course. I'm not kidding! This experience terrified me. A few minutes later it stopped. My hearing was back to normal. I believe with all my heart that what caused it was the weird body position I was in for those few minutes when I was trying to give my daughter a bit more space on the day. My cervical neck and spine area was affected (maybe) in some way and provoked the hyperacusis to appear. I have not had this experience ever since. Thank God! I really mean it, thank God.
@vnioneio
@vnioneio 3 ай бұрын
I don’t know about you guys but have you checked out Dr Liam, his herbal treatment helped removed my tinnitus and vertigo , I also see a lot of other people whom his treatment has helped on KZbin , his channel is “Dr Liam Ogbebor herbal centre””””000😊””0
@ordayan4410
@ordayan4410 3 ай бұрын
If its not improve being deaf is mach more easy. ..
@swapnilbhat2929
@swapnilbhat2929 4 ай бұрын
Are you cured
@btroger
@btroger 4 ай бұрын
Clomipramine has been very effective in treating my long-term case of pain hyperacusis. Maybe it can help some of you. I know I am not the only one this drug works for.
@enescimen
@enescimen 3 ай бұрын
How many mg and for how long did you use it?
@naelbeno6249
@naelbeno6249 3 ай бұрын
Clomipramine (anafranil) can help if are THE nerv pathways or Nerv! With Cochlear damage or haircell damage it‘s another story. BY THE WAY.. CLOMIPRAMINE HAS SIDE EFFECTS!
@vegetossgss1114
@vegetossgss1114 2 ай бұрын
do you have to take clomipramine lifelong?
@naelbeno6249
@naelbeno6249 2 ай бұрын
@@vegetossgss1114 no! 1-2 years must be enough. You should stop taking the medication slowly
@btroger
@btroger 2 ай бұрын
@@vegetossgss1114 I'm not done recovering, so I don't know if I will have to continue the drug. From folks I have read about, they have taken it 6-12 months, and then tapered off. Most said the hyperacusis did not come back, but a few did have problems again. I guess in that case they would re-start treatment.
@mariajackelinechorny8254
@mariajackelinechorny8254 4 ай бұрын
I have hiperacusis too but I have been paying attention to my diet and it has gone down …..you have to eat clean ! Pay attention to Liam stops tinnitus…..the same treatment for tinnitus works for hiperacusis
@rohitmodi1038
@rohitmodi1038 4 ай бұрын
Bro,I am in tears... I have similar phase in my life..
@younesszineddine1741
@younesszineddine1741 5 ай бұрын
I know how difficult it is. Unfortunately no cure for that because of lack of research on it. I hope the best for you and thank you for sharing your story brother
@ResultsDefined
@ResultsDefined 5 ай бұрын
Thank You!!! For making this video at times I feel so misunderstood…
@ResultsDefined
@ResultsDefined 5 ай бұрын
On God I can relate!!! 🤦🏾‍♂️ 🙏🏾🙏🏾🙏🏾
@healthiswealth3081
@healthiswealth3081 5 ай бұрын
Energy drinks, Pre workout, Caffeine in pill form, CAUSE hyperacusis for me. COFFEE does not! Coffee actual helps normalize my hearing somehow!
@grunntalll
@grunntalll 5 ай бұрын
has anyone tried bioresonance therapy?
@Hdshalom
@Hdshalom 5 ай бұрын
Jon what is your job? Thanks for making this video. I wish I could still work but that’s not happening in a dental office.
@paulmiller6336
@paulmiller6336 5 ай бұрын
Thank you so much for sharing Brian…we need more leading voices such as yours to move this condition up the agenda. Thank you for being bold enough to do so
@hanakhan2622
@hanakhan2622 5 ай бұрын
17 year I. House bound cannot workice in total isolation. Moved to flat now I'm catastrophe lould. Dear x9 catehome. Elders it dosnt HP here ultra lould no staf getit feel death isblesi g it ruind mi life just seem this to reasure me
@rosebloom2214
@rosebloom2214 5 ай бұрын
I have tensor tympani syndrome, this is rare too. Praying for tinnitus cures
@rosebloom2214
@rosebloom2214 5 ай бұрын
Prayers for you. I have tinnitus , pulsatile Tinnitus, tensor tympani syndrome so I understand.
@AndJusticeForAll...1985
@AndJusticeForAll...1985 5 ай бұрын
Dang man why does God do this to his children?
@AndJusticeForAll...1985
@AndJusticeForAll...1985 6 ай бұрын
I just watched your story. I'm here with you bro, I totally understand what you're dealing with and going through. Any hard object touches another hard object and it hurts. Whether that's accidentally dropping something on the floor or sitting a cup on top of a table. I'm here with ya man. We will get through this life. Gods with us. Cry out to him.
@jasonstieber2589
@jasonstieber2589 6 ай бұрын
Thank you for sharing, I am currently experiencing symptoms myself. How is your condition now?
@erikcaldwell2913
@erikcaldwell2913 6 ай бұрын
The Susan Shore device that will be out sometime after approval has shown very promising results in trials for somatic tinnitus, which could potentially help hyperacusis 🤞
@erikcaldwell2913
@erikcaldwell2913 6 ай бұрын
Maybe if you could find a way to contact Dolly Parton, she might be willing to help you financially, since it happened at her theme park?🤔 I really believe she would help you, if you could just find a way to contact her.