Advice From A Lifelong Sufferer- Amy's Hyperacusis Story

[@rebeccagutierrez1960]

My heart goes out to the people that suffer from this terrible condition. I suffered from this one Sunday afternoon but only for several minutes around eight years ago. It happened like this. My daughter came to visit and I was in my bedroom watching TV when she came into the bedroom. She sat very close to me almost touching my torso area and I told her you're hogging up all the space let me move so you can have more space on the bed. So we chatted for a little bit. My husband was relaxing in the living room. Now, in all this, I had to sort of twist my body in an uncomfortable way just so my daughter could have more space on the bed to sit. It was actually funny. We talked only for several minutes. Then I said, "I gotta get my body out of this weird position." It was either I move way out to the left side of the bed to give her real sitting position room on my bed, or just sit up myself, so I did that. I proceeded to just sit on my bed as we continued talking. I positioned my back to the wall. (I didn't had a headboard). Suddenly my left ear became...bionic! That's exactly what I could call it. The sound coming from the tv seemed extremely loud, my daughters talking was unbearable. I became so confused I felt my eyes open wide I could see the shock in my daughter's face she knew something was wrong. "please stop talking and turn off the tv." I whispered very slowly to her. I could barely stand the sound of my own voice. She gasped! "Mom, what's wrong?" I quickly put my index finger on my lips to motion to her. Be quiet! It's too loud! I pointed towards my left ear as I was also trying to cover them both and I whispered to her, ever so lightly, "I feel like I have a bionic ear." I pointed to my left ear. "Everything seems so loud, I can't take it. I don't know what's going on. I was crying at this point. My daughter had a terrified look on her face and quietly said, " I'm telling dad." She quickly got up. I stopped her. "No, he's going to be frightened. Let's pray." I began to pray with ALL the faith I had in God!!! Quickly, of course. I'm not kidding! This experience terrified me. A few minutes later it stopped. My hearing was back to normal. I believe with all my heart that what caused it was the weird body position I was in for those few minutes when I was trying to give my daughter a bit more space on the day. My cervical neck and spine area was affected (maybe) in some way and provoked the hyperacusis to appear. I have not had this experience ever since. Thank God! I really mean it, thank God.

[@marianneferguson3181]

Thank you Amy for your story. It’s what most of us have experienced but your words of giving us value in our lives are so appreciated. Wishing you all the best.

[@viratKohli-y7o]

Earmuffs or earplugs are best for Hyperacusis for certain events like theatres music concerts parties and even in traffic also but using earmuffs or earplugs All the times will make your ears even more sensitive for example in our homes or normal quite neighborhoods and all stuffs so better tried to avoid it so that ears will automatically adjust to those conditions and we spent most of the times in that environments so use only in some events like theatres, music concerts, parties and traffics

[@givemeabreakdoc]

“Control my environment and when I can’t, wear hearing protection.” That’s what I’ve done, since this BS started. I don’t think the “experts” have a damn clue. Beyond useless. Great video.

[@mircoverhelst]

A cure wont be available soon because tinnitus and hyperacusis been around for ages

[@Hdshalom]

Thank you for the uplifting words, it brings tears to my eyes. I’m sorry you’ve had to deal with this your whole life. God bless you and everyone walking through this journey!

[@Blisoft]

thank you Amy for your story

[@bhawley1000]

Amy - thank you so much for a totally spot on description of the life of a hyperacusis sufferer. I am also a life long musician. My music world has been totally impacted. Now I mostly play at home by myself, with 10 db custom earplugs. I have had a few surprise loud sound moments in public where my whole body instantly shakes - I can’t control it. I was not wearing hearing protection when those moments happened. I have become socially disfunctional. My whole life has changed. Do I just become a hermit? B

[@SomethingNew1133]

🙏Wishing you well Mary. I know the terrible pain in my ear and throughout my body when there is a noise, the pain is so bad, I wish I could reach in and grab and pull out the areas that are in such intense pain ✨💜 Thank-you for sharing your journey.✨💛✨

[@JaniceEwald-jv7xu]

Wonderful thoughts and message, thank you ❤️

[@slydog7131]

Amy, given that you have had problems with this your entire life, the problem could be that you have hypermobile inner ear bones. This can be caused by trauma, but it can also be congenital. You should check out the Silverstein Institute in Florida. They have developed a minor surgical technique to stabilize hyperactive inner ear bones that can reduce or eliminate hyperacusis because of that hypermobility.

[@MarieLouiseLa]

Thank you so much. After going to two Neurootologists and now back to the Audiology Clinic at our university I have begun using Widex hearing aids with masking sound. I am very interested in the walker game earmuffs. There are many varieties, what particularly do you recommend? 1000% agree with your description of gaslighting in the medical community. I’ve experienced this with other specialists. And I am hoping not to in the field of Audiology.

[@AmyDelaware]

Marie, I am curious about what you think of the Widex hearing aids. The Walker's Game Ears that I have are the Razer Electronic Muffs. They have considerable head squeeze, so if pressure is a problem for you, you may want to look into other brands. Good luck!

[@lastcall170]

I had a law enforcement job and had to shoot firearms to secure my job. I bought 40db muffs with built in speakers that would cut off sound at high dbs. I had no choice in getting disability or insurance to pay my cost because hyperacusis isnt recognized. I gave up my music...friends..church...etc. After 5 years....i beat this for good. Im healed❤.

[@log791]

How did you do it?

[@RsKonan]

Thank you!! sending blessings 🙏🏼

[@williamcook1253]

Thanks Amy

[@leofrasionio5290]

Hi Amy, does the Walker Game earmuffs consequently amplify sounds since it is active earmuffs, making it a potential risk for unexpected noise shocks?

[@lucbrugere2219]

Where can find you everybody on social network (group or things like that to follow and exchange) ? thanks

[@kendracorreo]

Please, could someone tell me the brand and model of the anc shooter headphones?

[@Hdshalom]

Currently, “earmuffs” make my voice louder and I feel the vibration so much more e trembly when I walk. I can’t tolerate the earmuffs. I stay in my bedroom as much as I can. I’ve had to stop being a dental hygienist. I’m still listening to the tv. And gotten used to the bird noises. Mine came with panic attacks! I can’t wait for it to leave!!

[@IncredibleNeo]

Hi @HdShalom, How are you doing now ? I started suffering with this condition two months back. I desperately need to hear that people have healed from this condition

[@yassoufa321]

I want to ask you a question, can you travel by plane? Because my husband has hyperacusis and I was wondering if he will stay like this stuck in one place?

[@AmyDelaware]

The last time I traveled by plane my problem was more mild. I got stuck in Miami overnight and it was just a disaster. I don’t know if I could do that again. There are a lot of variables at play and some people are able to do it with a lot of protection and preparation.

[@yassoufa321]

@@AmyDelaware thanks for your reply

[@DocDisguise]

Which ear plugs do you sleep with?

[@mircoverhelst]

I use my earpluggs 24 hours

[@shresthification]

How are you doing now

[@MiguelAngel-fp9rr]

😢

[@mircoverhelst]

why wouldnt you just use earplugs around the house ( there better and smaller )