It looks great! 👍 I recently buzzed my hair lol it’s taking getting used too but I feel like playing around with different hairstyles is fun

Is it possible I can email you or something I’m currently dealing with the same thing

As a women who grew up with hEDS and didn't want to be different. My battle is being lost, since many with EDS, the symptoms become so worse as you get older. I am disabled. I barely can walk, eat or work. My family members never acknowledged my pain because they would say, but you look so good, you must be exaggerating your symptoms. Lots of love

How are you feeling now September 6/ 2023

Im getting ready to have the gastric emptying study tomorrow but so far ive found out i have gerd and my pancreas is dying so i will find out what else is going on thanks for letting me know what im getting ready to get done

This was so painful to watch! Especially with hair that beautiful! A hairdresser would’ve done wonders with that style!

This was very hard for me to watch.

Ужас ужасный, после просмотра я поняла как не надо стричься

How are your headaches now? Hoping they have improved! I have heavy long, long hair also and suffer with migraines. AND I want to do the layers also!!

I have hEDS and a Wolf Cut and I FLEW over here from brads channel to check out urs when I saw the shirt

Very beautiful I love your haircut it turned out really nice you're gorgeous

You are supposed to do a pony at the front and one on the top of your head

Honey wet your fair

You need to cut it shorter. You can’t reach it. Lol

Your hair is absolutely gorgeous. I love the color!

brad reacted today!

have you tried getting a daith piercing in your ear? it cures migraines, never had them ever since.

What on earth are you doing, girl? Lol why are you struggling and holding your hair way up like that, instead of just bringing it forward and cutting it? 😂

Looks great!

It turns out very well❤, i love how it looks

My hair is heavy also.. I do suffer migraines as well. I did this cut and it’s such a relief 😅..

You are a young woman; I'm slightly older--36 to be precise. I've "been around the block," per se. I'm NOT saying I'm better; please don't take it that way. But, at the same time, I have been called everything under the sun: crippled, handicapped, disabled, physically impaired, "differently abled," and of course slurs. But I have to tell you, one of the most-common, at least in Europe, is something you didn't even touch upon. That term is "Invalid." Now, if anyone who happens to come across this post, and who hails from Central/Eastern Europe, can confirm; the term "Invalid" is embedded within the language itself (Russian, Czech, Ukrainian, Slovak, etc.) So, let's say you are referring to someone who uses a wheelchair, you would say "wózek inwalidzki;" the literal translation of this word is a "chair for an invalid." I didn't make this up; I read/speak/write (self-taught) in the Father-tongue; it's a Masculine culture, things are referred predominately in the Masculine. Surnames, for instance, are differentiated, for the most part, between "-ski" for Male and "-ska" for Female. So, what is my point? Anything and everything is "better" than "Invalid," at least in my estimation. When everything is weighed against that diminishing word; I think most people would agree. Of course, people can disagree--I guess--but here's just a brief exercise. If we were having a conversation and I said, "Oh, I couldn't disagree with you more on [X]" versus "Oh, your opinion on [X} is completely INVALID," I think you'll agree that you'd rather face opposition to an opinion you had versus being said your opinion is INVALIDATED (as if completely). This was one of the reasons I called my personal blog "INVALID VOICE." It's half because it works as a title (catchy) but also as a middle-finger to the idea that a voice (any one) can be considered INVALIDATED simply because of who they are. *SHRUG* Anyways, if anyone is interested, my blog can be found here: invalidvoice.wordpress.com/

I agree with most things you and Molly said. But I actually thought about the difference between person first and identity first and I prefer identity first to describe myself BECAUSE my disability is one characteristic of many and I want people to treat it as such. For example usually you say "smart person" instead of "person with high IQ" or you say "pretty person" instead of "person with subjectively pretty appearance". So why should you say " Person with disability/disabilities"? That's why I prefer "disabled person". 🤷🏼‍♀️ this is just what I use to describe myself and I actually use both when I talk about the community. Tbh I don't care too much and I totally get it when other people don't care. As long as you don't call me names it's fine.

Your hair is so gorgeous my hair thickness is less than half your hair, lucky!!

This sounds exactly like what I've been putting up with for the last 9 months. I've been going to the ER almost every week for the last 9 months with nausea and vomiting. I'll wake up and throw up anything I ate the day before. I'm actually sitting here right now having an emptying study done which is how I found this video.

How is the service dog thing going

Hey Hadley! Thank you for making this video! I am suffering from these symptoms and its very encouraging that there maybe a treatment! I am watching this in 2022! Did you have to change your diet significantly and if you did what foods were good and which ones exacerbated your symptoms? Thank you again for these videos and for sharing!

I already have POTS🫀 (funny name) I got my test done today. Wish me luck. 🤞

I feel like "differently abled" though accurate, is kind of patronizing. I'm disabled. Not unable.

So for person first, it's the idea that you shouldn't be identified BY your disability, but as a person that happens to have a disability. The problem comes when you are an actual disabled person, feeling like their needs are being ignored. I am an autistic woman. I will never not be autistic, and autism can not be separate from my identity. It even affects my personality, so I don't want that part of me to be ignored.

how were you diagnosed with mast cell?

There are service dog programs that go to peoples homes and the process of the trainer being at your home only takes 3 days

Did the pill and solution help you with your diagnosis? Also did the slow digestion cause you to have bad breath sometimes😐?

Mine was horrible! It was so painful 😣!

Does it still hurt you?

Thank you for sharing your experience! I'm going to do the test and there's no a lot of people talking about it. I'm very scared because I already feel pain on my muscles and nerves in all four limbs, pretty much all the time, but I'm a little bit calmer after your story. I hope you got better already!

Hi Hadley! I just stumbled across your channel because I have my EMG test tomorrow. I also have POTS and EDS (the hypermobile kind). How are you doing currently? My POTS was so severe that I was diagnosed right away. We just got back from The Cleveland Clinic, and I either have copper deficiency or Wilson's Disease. My gait is extremely, extremely poor, and I walk with a cane but only for very short distances. My only ask is that people stop staring at me like a three-headed monster. I'm just a normal, regular person who can't walk very well. I'm fighting for my life. Getting offended by phrases is not on my list of priorities. Thanks for your post! I hope you are doing well!

Thank you. I have a date for 6/11/21

Cool. Same thing happened to me. Still waiting on test results. I took some ibuprofen about 30 minutes before. Nobody needs to fear it. It's just natural to feel apprehensive. But the Doctor's take pride in being professional and the test is done quickly. Liked your vid. Jb

😥 thanks!

How do I contact a va about service animals

Why don't they ever consult with the people they're making policy for when they come up with this stuff? This phenomenon doesn't just happen in sensitivity training- it's pretty much everywhere and I think it's due to laziness. BTW your channel was recommended because I was watching gastric emptying videos so- just saying I don't know much about your particular situation.

I was born with progressive disabilities. I am losing the use of my legs because of them. I’m crippled and I don't need any pretty terms used to describe it and I would hope people feel comfortable enough around me to say things like stand up for justice. I agree the pendulum was swung too far in the opposite direction. I just flat out tackled at your last video when the lady says access inclusion seekers. That is just ridiculously funny.

Thank you Hadley for sharing your journey with the world. My husband has been suffering with ab pain for 6 years now with no real dx. he is having a gastric emptying study soon and hoping its not GP. My question to you is: you mentioned "mass cell" or "mast cell" ? I tried to look that up and only found cancer subjects ..... could you explain what that is?

(: thank you for making this! very helpful xx

LMAO at 'differently abled'. We can't do many of the things that are required to be successful in this world. Pretty sure that means we are disabled. Maybe they are trying to avoid the "dis" prefix as it implies something negative. Words are not hurting or helping us. How about let's acknowledge reality and actually help disabled people with accommodations and treatments so we can have a better quality of life.

Did the radioactive material upset your stomach?

Did your hands ever fully recover since this? If so what did you start doing ? Just had this procedure done and they said they found no signs of carpal tunnel but my hands ache as soon as I use the phone or lab top 😭

I have to take this test and I just want to thank you for sharing your experience. I feel a lot better about it now.

I really agree with a lot of what you said! I feel like some of the new “inclusive ideas” being put out there right now can get a little strange and out-there. 😂 You made a really good point that refusing to call a person disabled almost insinuates that “disabled” is a dirty word. Often, I feel that the people-first type of language is very helpful to respect and acknowledge those with disabilities and conditions that aren’t physical, (ie. autistic person vs person living with autism). On the other hand, I have hearing loss, and I tell people that I’m deaf, or that I’m hard of hearing. They understand that, and I feel like it’d be bizarre and unnatural to implement specific “inclusion language” to describe myself as deaf. “I’m living with deafness.” 😂