Video 41-Pouchitis Update-Mar 4-2014
10:50
Video 40-Health Insurance-Feb 20 2014
13:09
Video 39 Jpouch Update Feb 12 2014
12:34
Jpouch 8 month update-Video 38
14:18
10 жыл бұрын
PSC Update-Video 37
19:55
10 жыл бұрын
Jpouch-Video 36-5 1/2 month update
22:43
Video 35-13 week Jpouch update
22:00
11 жыл бұрын
Video 34-J pouch-8 week update
25:21
11 жыл бұрын
Trailer
2:17
11 жыл бұрын
Video 33-1 month Jpouch update-May 6
32:05
Video 30-Apr 9-Early morning walk
2:25
Video 29B-Apr 8-Later that evening
1:42
Video 29A-Apr 8-Later that evening
6:10
Video 27-Apr 8-Going into surgery
0:24
Пікірлер
@beckybates4332
@beckybates4332 16 күн бұрын
Do you still have your ostomy bag or were you able to get a reversal ?
@chantalsscaleisafibber
@chantalsscaleisafibber 5 ай бұрын
Ulcerative colitis is such a nasty condition and often having a stoma makes life a lot better in the long term.
@AileenMcManamon-mz1ch
@AileenMcManamon-mz1ch 5 ай бұрын
I have mine 4 8 yrs now I have a inverted stoma pretty small right above my belly button wish it was more yo the side but I had a blocked n have no colon have only sm intense; .dealing with the leaks n gas n bloating n the different noise of the gas But your heathly n thT all that matters.
@timmieatancrell1901
@timmieatancrell1901 5 ай бұрын
Love your videos. The bag trick is awesome. I had my surgery back in October so I’m new to this. My surgery had a lot of complications and my stomach is on the inside and not out. One trick I learned with the powder is to turn the bottle right side up so sir fills the top of the bottle and squeeze the bottle to blow off the extra powder. I also found using a hair dryer once everything is on helps seal the flange with the rings to me. Thank you for your video.
@carolmarashian2
@carolmarashian2 7 ай бұрын
Great job! And a good informative video.
@sempafi899
@sempafi899 7 ай бұрын
YEs have everything prepped to go. I had mt wafer/ring pre cut .Adhesive remover is best. They taught me to take the bag off first. Then take the wafer/ring off then get the skin clean. As the skin starts to dry Check for sore or red skin around the stoma. I used a skin cream for the redness. There is a powder which is to alleviate any odour and you put a small amount in the bag. Then repeat the process, Wafer/ring warm it up to help the adhesive get sticky, apply it to you. Have the bag ready to go, Put the seal on then put the bag on. Its all about practice and confidence. Always take a grab bag with you when you go out juts in case you need to change anything.
@crystalzamora7094
@crystalzamora7094 8 ай бұрын
Does it get moisture
@user-nk6jq3qd9n
@user-nk6jq3qd9n 9 ай бұрын
Anche io ho la stomia dal 30 marzo 1988 coraggio
@marivicchansing4717
@marivicchansing4717 10 ай бұрын
You can order spray adhesive remover very easy to peal it off Then you can use a bottle spray with water. spray around it to clean your skin and stoma. Don't be afraid to use water bottle spray. Then pat it with dry paper towel or mini fan so around the stoma is totally dry. Do not pour the powder to your stoma . Only to your irritated skin . If you accidentally pour to your stoma make sure spray water because if you don't and once the powder it gets dry your stoma will bleed. Then after that you use the skin barrier so your skin won't irritate. There's also a lubricant to put inside the bag easier to empty your bag
@andrewthomas2823
@andrewthomas2823 11 ай бұрын
THANK YOU what a wonderful EXAMPLE you are for teaching the world that this is NORMAL
@mt7427
@mt7427 11 ай бұрын
The vented bags stink up the room- good luch
@JoseZometa-e7b
@JoseZometa-e7b 11 ай бұрын
Thank you so much for your words.. and how you explain everything In detail. I just had my ileostomy bag removed after 2 months. I had a terrible bad time with the bag since my stoma was retracted and there were leakedge every day.. but had questions about after thus surgery and you touched on them really nice.. thank you for your words and information.
@malgorzata546
@malgorzata546 11 ай бұрын
Brawo za odwagę. Szanuję i podziwiam za nagranie tego filmu. Mój syn ma 8 lat urodził się z przepuklina oponowo - rdzeniową i choruje na jelito neurogenne i pęcherz neurogenny.
@Ryder382
@Ryder382 Жыл бұрын
2021 had part of my bowel taken out,next will be this thank you for the video I'm kinda freaking out about all of this. 👍
@kazzah364
@kazzah364 Жыл бұрын
As my partner had an Ileostomy and then we really had to learn alot about preparation of the skin , skin care, why so many leaks ( particularly in men?) THE HAIR GROWTH pushes the flange out so you need to keep the area shaved and extremely clean , plus , there are SO many products. Ask as many questions as you need to and keep asking
@rgold02
@rgold02 Жыл бұрын
Thank you sharing this good info. May I share this with my family member who just had surgery? Goldie
@roxannegordon6162
@roxannegordon6162 Жыл бұрын
Hi It looks like it's been 2 years since this video. How about an update? It really looks painful to peel it off your skin. The other commenters said there is spray to help with that. I hope you have found it. I have also read that you can use a opaque bag, not transparent. What is the advantage of this one you have instead of the opaque? Thanks for the video, you are brave to do this and very helpful to us all.
@saintejeannedarc9460
@saintejeannedarc9460 9 ай бұрын
It's been 11 years since he did the video. I didn't check to see if he had newer videos on the channel. LetsTalkIBD is a young married woman, who has this kind of content and much more, which is a current channel. I just came across this for things to be grateful for. I have different struggles, and very glad it isn't these one. All the best to those that have to deal w/ all this. Glad there is better alternatives these days than what there used to be.
@luiscoslop776
@luiscoslop776 Жыл бұрын
Muchas gracias por estar a qué otras personas puedan hacer sus cambios de bolsa, saludos desde Ensenada BC México...❤
@vegan4theanimals
@vegan4theanimals Жыл бұрын
I had my entire colon removed recently, UC. Sending you all love and strength 💜
@akaPixelChick
@akaPixelChick Жыл бұрын
Thanks for the upload, & sharing your journey. It’s very helpful to me, I’m waiting to have a permanent ileostomy, no J-pouch for me or any other options. What I would like to point out is how healthy you’re looking in this video, it’s certainly made all the difference. For me I’m having to spend 24 hours a day in bed with immense fatigue and pain, I can’t wait to get my life back. You have given me hope & faith and eased any worries I have, so thank you 🙏 ❤ and congrats for getting where you are, it’s not easygoing that I can see 😅🎉
@miguelQR
@miguelQR Жыл бұрын
Wow that was brave
@user-mq1ei1zf7t
@user-mq1ei1zf7t Жыл бұрын
КОМУ ЭТО ДРОЧ ИНТЕРЕСНА?
@user-mq1ei1zf7t
@user-mq1ei1zf7t Жыл бұрын
ТЕБЕ САМОМУ ПРИЯТНО ? ТЕБЕ НЕ СТЫДНО СНИМАТЬ ЭТУ ЕБУРЛУ КАК ТЫ? СРЕШ
@anitabell3976
@anitabell3976 Жыл бұрын
I don't like touching my stoma or my pouch so I always use disposable gloves. If you are a germaphobic I would suggest you do the same.
@kimberleypex
@kimberleypex Жыл бұрын
We ( my best friend the stoma)are going every day together shower . He like s it. Sounds strange maybe , but he saved my life.
@DrifterSun
@DrifterSun Жыл бұрын
Before my ostomy I was having bloody stool and the urge to go a lot everyday but could never actually go and sometimes it would hurt
@akeempopoola4729
@akeempopoola4729 Жыл бұрын
Please i need help ! Its 26years now that i have not been able to poo, except i use excessive laxative. It seems my inner rectum or the inner anus contracts whenever i have the urge and i tried to push poo out in the toilet, but the poo will not pass out.😢 And after a long months i go to the toilet push and the poo goes out easily without the use of any laxative, that sometime happens maybe in just a day in several months of no poo at all..😮 Over the years have tried all Kindly advice on what to eat vegetable, fruits, fibre but all abortive no positive result. Please i need advice on what to do, so i can move on with my life.. living life in this trauma is serously fustrating my life
@sicwititdimeful
@sicwititdimeful Жыл бұрын
You need to take a smart pill test and sitzmark test
@tammyhanes5806
@tammyhanes5806 Жыл бұрын
😢❤ Iam glad you do ok 👌 thow
@lindamcano1032
@lindamcano1032 Жыл бұрын
I have a colostomy bag due to me almost dying of diverticulitis
@ruthelliott5563
@ruthelliott5563 Жыл бұрын
Those bags be stink like hell
@bettyswollocks5278
@bettyswollocks5278 7 ай бұрын
Explain what you mean?
@2puttShakur
@2puttShakur Жыл бұрын
Thank you for sharing and being so open and informative. I'm considering this procedure if my current biological treatments do not work.
@danjamil167
@danjamil167 Жыл бұрын
How many days could you keep it on if you didn't want to change it?
@vaniamuniz1
@vaniamuniz1 10 ай бұрын
7 dias no máximo. Mínimo 3.
@ruthelliott5563
@ruthelliott5563 Жыл бұрын
That shit be stink as fuck
@ruthelliott5563
@ruthelliott5563 Жыл бұрын
She had a glove touching that
@lindagardner7189
@lindagardner7189 Жыл бұрын
Definitely worth the money...
@marlenerobinson7684
@marlenerobinson7684 Жыл бұрын
Thanks for your video. I got an ileostomy as well. And yes I got lightheaded too. Just have to take it easy. You did a great job. Take care😊
@JustIzzan
@JustIzzan Жыл бұрын
one last video would be awesome :) . I'm getting 2nd surgery done in december and takedown hopefully in march next year
@robertdenero2884
@robertdenero2884 2 жыл бұрын
Had my colostomy takedown on Friday everything he was saying was pretty much my same experience except I was on water right away and I did not need very much pain medicine just tylonal actually but glad to say everything is going smoothly 😊 I was really nervous about having another surgery before this but truly you do not need to worry yourself trust your body and pat yourself on the back for coming this far !!
@attaullahshabukhari3026
@attaullahshabukhari3026 2 жыл бұрын
Sir j pouch surjery effect by sexual relationship
@swillmen
@swillmen 2 жыл бұрын
I could recommend some suggestions for long term care of the pouch. Dr. Scott Willmen Please contact me
@odym6090
@odym6090 2 жыл бұрын
Your video is so instructive and explained so nice . Enjoyed it .. thanks so much I’m seeing this video as I’ll be to the process soon and I have heard horror stories but I don’t want permanent bag right now ., want to try my options so thank you
@karenlangford7019
@karenlangford7019 2 жыл бұрын
Congratulations! I’m hoping to have my ostomy reversed this summer, had it since January 5th and I hate it! So happy for you! Keep us updated!
@JustIzzan
@JustIzzan Жыл бұрын
how did it go? I hope everything is going well with the j pouch for you, my takedown is this friday and I'm very nervous
@aaronreyes6992
@aaronreyes6992 2 жыл бұрын
Helpful videos many years later, in hospital after takedown surgery this week.
@zenaillahibaccus5781
@zenaillahibaccus5781 2 жыл бұрын
Ask for adhesive removal spray
@zenaillahibaccus5781
@zenaillahibaccus5781 2 жыл бұрын
I have tried these and they do not work because once it gets heavy with output, there is no clip to keep it”locked” and so you will end up having lots of leaks
@anthonyc2430
@anthonyc2430 2 жыл бұрын
I wonder how this guy is holding up hope all is great and much improved
@robertfrank615
@robertfrank615 2 жыл бұрын
I was wondering the same thing.
@michaellane9654
@michaellane9654 2 жыл бұрын
I know it's a long time since you had yours done I'm 5 weeks away from my takedown surgery and your videos have been so helpful. Could you give me any dietary tips for my first few weeks
@martespsaila3271
@martespsaila3271 2 жыл бұрын
I have a Stoma bag. Doing ok with it. 👍
@JLamont45
@JLamont45 2 жыл бұрын
Much needed. Me: Joe, UC diagnosed 2004. Total colectomy next Thursday. Wish I could ask you questions!
@jorgieamphittheater2525
@jorgieamphittheater2525 3 жыл бұрын
Tq for the video..it reallly helps my sisster to understand how colostomy works....shes like 2 week after surgery....she had a colostomy beg with her.....usally im the one that help her change the stoma bag and clean the area and the perimal surface ...but now that back to work...she had to do yhe thing her self....i will share this video to her ....so she could learn how to take over her stoma care by herself...anyway...tq and stay healthy..