MND : Ian's Story
4:25
4 жыл бұрын
DIPG : Daisy's Story
3:54
4 жыл бұрын
DIPG : Gughi's Story
2:22
4 жыл бұрын
Convection Enhanced Delivery (CED)
5:41
Пікірлер
@faris928
@faris928 7 ай бұрын
My son detected DIPG looking for treatment, am wondered no treatment for cure , if any one has know about treatment pls advise
@ritsukohairsalon
@ritsukohairsalon 7 ай бұрын
what is gdnf? the website looks sketchy.
@stuartsutherland7664
@stuartsutherland7664 8 ай бұрын
I wonder if they ever got the money?
@keitymarley733
@keitymarley733 9 ай бұрын
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again💫..
@allany27
@allany27 10 ай бұрын
doctor RAVI PANERI FROM INDIA HAS THE CURE FOR PARKINSONS YOU CAN TESTIMONIALS ON KZbin
@OncoFetal
@OncoFetal Жыл бұрын
Are we hearing the story of a girl with cancer, or treatment studies?
@anneroberts9841
@anneroberts9841 Жыл бұрын
How old were u when u we’re diagnosed please
@Neuro-funs
@Neuro-funs Жыл бұрын
Nice
@pelon22
@pelon22 Жыл бұрын
them bastards dont tell you to look for natural remedies, they make you wait until is too late for natural cures to work, they will wait until the tumor is too big just to tell you there is nothing they can do anymore 🖕🖕🖕🖕
@markbalogh9655
@markbalogh9655 Жыл бұрын
that is amazing
@christinesmith8330
@christinesmith8330 Жыл бұрын
Has anyone tried to make a go fund me page to raise the money for the study? I'd rather see families reaching out to strangers to raise money hen what most ppl use it for to raise money for burials instead of having life insurance on your kids.
@grateful9181
@grateful9181 Жыл бұрын
Their seems to be an abundance of money that the government can give away. Children are not a priority in our government.
@pelon22
@pelon22 Жыл бұрын
is better if you can help spread the word to look for natural remedies instead of waiting on the doctors, they will wait until tumor is too big just to tell you there is nothing they can do after they talk about treating the patient but they wont, they will make you wait, they wont accept there is cure for something they cant cure, arrogant bastards
@jancraig9298
@jancraig9298 Жыл бұрын
I’ve come across these videos on KZbin lately, about MND. I live in the United States, and here we know this awful disease as ALS. But what is so intriguing to me, is that mostly every story I’ve seen & read the person is usually so fit & healthy. I mean majority of everyone is a healthy individual that ends up having this disease. I haven’t seen,or read a story yet, about an individual being a drug addict or a unhealthy person that has contracted this disease. I’m honestly beginning to think it’s a correlation to this .
@fiecl4383
@fiecl4383 Жыл бұрын
very nice observation. somehow, being athletic or someone who overexercise I guess has a higher chance of getting the illness..
@jancraig9298
@jancraig9298 Жыл бұрын
@@fiecl4383 thank you for your comment. My observation lead to my husband who is in the military. And men & women in the military have a higher risk of getting this disease . And unfortunately they don’t know why that is. Also I’ve read about a personal trainer who just got diagnosed with it. And also, a couple of football players also have been diagnosed with it as well. So I’m seeing the correlation with fitness & active ppl, unfortunately are being diagnosed with this dreadful, awful disease.
@muggz73
@muggz73 Жыл бұрын
@@fiecl4383 maybe correct 👍
@nievespascua9340
@nievespascua9340 10 ай бұрын
Update please 🙏 😊
@davidknight8172
@davidknight8172 Жыл бұрын
Update please.
@rogerramonmavarecohen8166
@rogerramonmavarecohen8166 Жыл бұрын
Tengo parkinso quiero más información en español
@kdurukal
@kdurukal Жыл бұрын
Pescado crudo almendra. humus. cerveza de cactus Escuche música alegre. Muchos huevos. vitamina C Banana. Papas. Bailar Para tomar una ducha. Frijoles rojos
@rogerramonmavarecohen8166
@rogerramonmavarecohen8166 Жыл бұрын
Tengo parkinson quiero más información en español
@MrSpecificity
@MrSpecificity Жыл бұрын
You’re from Italy so you should know the English way of spelling cancerous lumps is “tumOr”
@MrSpecificity
@MrSpecificity Жыл бұрын
There no such thing as radio therapy. You mean radiation therapy
@Babyboffa2018
@Babyboffa2018 2 жыл бұрын
Stop wasting NHS money on gender reassignment, correcting botched private plastic surgery, gender neutral toilets in hospitals, £120K jobs for “diversity managers” and instead spend the money on saving children from this horrendous disease.
@AdrianJ9494
@AdrianJ9494 2 жыл бұрын
I am no expert but Dr.'s say there is no known cause for DIPG, which can't completely rule out environmental factors that may be in play. I'm not trying to turn this into a conspiracy but the chemicals and pollution we encounter every day must be taken into consideration
@Karen-hj3we
@Karen-hj3we Жыл бұрын
Everything we eat wear drink breathe is toxic and for our innocent children it is the worst. God bless them all
@LIONESSOFZION
@LIONESSOFZION Жыл бұрын
💉 should be looked into as that’s something children have in common
@jenniferwells9032
@jenniferwells9032 2 жыл бұрын
I’m so sorry 😢😢😢😢😢
@melaniemarceaux9580
@melaniemarceaux9580 2 жыл бұрын
We have got to do more to save our children, they are our future.
@GoProGoalieUzi
@GoProGoalieUzi 2 жыл бұрын
Dbs..deep brain stimulation..
@constantinhaller4391
@constantinhaller4391 2 жыл бұрын
can kymriah help? its very expensive
@mcmlxii4419
@mcmlxii4419 2 жыл бұрын
Evidently what they were touting in this video did not work very well. This was 8 years ago, and children are still dying to this day.
@angelapetrie2418
@angelapetrie2418 Жыл бұрын
I'm thinking the same, these poor children 😢. However, after many years of cancer research, & many years of constant requests for more & more money, how much has really changed? I'm currently following several people who have desperately tried all available treatments, all still eventually told they're dying & there's nothing more we can do. Precious time left spent miserable & sick from 'treatments' that didn't work.....that poor little girl.
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 жыл бұрын
Please god. let there be a cure for pediatric cancer known as DIPG
@wafflekorea4582
@wafflekorea4582 2 жыл бұрын
Please help 😢 a 5 years old baby has DIPG. He just start radio therapy 20 days ago 😢 🙏 🙏 🙏
@farzanakousar1318
@farzanakousar1318 2 жыл бұрын
Have any body recover from dipg tumor ?
@ellaelliott4415
@ellaelliott4415 2 жыл бұрын
Unfortunately no. It has a 100% mortality rate. As of right now no one has survived
@Incipeaut
@Incipeaut 2 жыл бұрын
@@ellaelliott4415 there is actually a girl named Emerson Hoogendoorn who got cured from DIPG.
@mitzioldendorf7750
@mitzioldendorf7750 Жыл бұрын
@@ellaelliott4415 ,I believe it has a 5%survival rate, still not good but it's a little hope😪😪
@Mike-gl2pf
@Mike-gl2pf Жыл бұрын
@@ellaelliott4415 Some people have survived. The Jack's Angels podcast has interviewed a few survivors such as Laurel Simer and Tori Moreno. Laurel still has the tumor it has just never grown. Tori Moreno was cured by the Burzynski clinic. Burzynski has been unable to cure most DIPG patients. There is video evidence of this in part 2 of the Burzynski documentary.
@Mike-gl2pf
@Mike-gl2pf Жыл бұрын
@@Incipeaut She technically hasn’t been cured since she still needs to take medication. ONC201 usually stops working after a while so Emerson is very lucky.
@nondassteele9329
@nondassteele9329 3 жыл бұрын
Oh God please stop this...
@LectronCircuits
@LectronCircuits 3 жыл бұрын
Absent a cure, the only effective course of action is make funeral arrangements and maximize what precious little time remains. Cherish those moments.
@einsteiniumconsumer3486
@einsteiniumconsumer3486 3 жыл бұрын
lol
@tainosun7993
@tainosun7993 3 жыл бұрын
I HATE CANCER 😠
@gordanazakula5669
@gordanazakula5669 2 жыл бұрын
TS, HATE the treatment more. I would never be able to take it. However, at least that child died with some dignity, without having to endure treatment.
@elanamccullum1677
@elanamccullum1677 3 жыл бұрын
WHY ARE SO MANY KIDS DIAGNOSED WITH THIS...
@marysueeasteregg
@marysueeasteregg 2 жыл бұрын
If by "this" you mean DIPG specifically -- DIPG is a *rare* cancer. Which is part of the problem treating it. All rare cancers are difficult to study for treatments. In the UK, 20 - 30 children are diagnosed with DIPG each year. In the U.S., 150 - 300 children a year. Contrast that with, as one example of a very common cancer, about 270,000 new cases of breast cancer in the U.S. yearly, and about 56,000 new cases yearly in the UK.
@jewelseng9900
@jewelseng9900 3 жыл бұрын
Please God let there be a cure for pediatric DIPG
@MissMariQueen
@MissMariQueen Жыл бұрын
Yeah right, as if this god existed 🙄
@ullas0
@ullas0 3 жыл бұрын
My child is diagnosed with DIPG 3 months back, completed radiation therapy. Health condition deteriorating.
@mariacecillya623
@mariacecillya623 3 жыл бұрын
kzbin.info/www/bejne/o4fZcoqqZdipZ8U
@im2cuteferu
@im2cuteferu 3 жыл бұрын
I’m so sorry to hear that 😔
@giordano7199
@giordano7199 3 жыл бұрын
Hope she's better, brother :(
@revelgirl1742
@revelgirl1742 3 жыл бұрын
I pray for your child and your family. May God’s blessings shower you all.
@wafflekorea4582
@wafflekorea4582 2 жыл бұрын
Please help 😢 a 5 years old baby has DIPG. He just start radio therapy 20 days ago 😢 🙏 🙏 🙏
@allhandlesaretaken
@allhandlesaretaken 3 жыл бұрын
wow i hope this is going to be the cure. and also that last fact is false. there are survivors
@kjlandon9140
@kjlandon9140 3 жыл бұрын
Nope there are no survivors and the longest case of survival was 12 years You’re referring to misdiagnosis
@allhandlesaretaken
@allhandlesaretaken 3 жыл бұрын
@@kjlandon9140 actually there are people who have survived a long time, and there is someone from my country who has had it for pretty much her entire life and she is still alive
@ry.butterfly
@ry.butterfly 2 жыл бұрын
Unfortunately the last fact isn't false. There may be a few very rare cases where children live past the 9 month mark but eventually every DIPG patient will pass from this disease
@allhandlesaretaken
@allhandlesaretaken 2 жыл бұрын
@@ry.butterfly there is one adult who survived
@ry.butterfly
@ry.butterfly 2 жыл бұрын
@@allhandlesaretaken Oh wow really? Did the tumor shrink or disapear? That's amazing!
@IndigoRoses7
@IndigoRoses7 3 жыл бұрын
We must find a cure, so all these beautiful kids can go on to enjoy their lives. They deserve to be here, and the day we find a cure..will be the most joyous day 🌞 im praying for every single person effected by this terrible disease
@poloab2273
@poloab2273 Жыл бұрын
I wish we could get my daughter is suffering now from this dieases disease
@jade1655
@jade1655 4 жыл бұрын
Poor baby
@adanoid
@adanoid 4 жыл бұрын
Thanks for your story. i started watching these personal stories a few years ago as i got symptoms that were concerning. Like you i was losing dexterity and found it difficult to eat and put a spoon in my mouth or get it out again. Dropping things and falling over a few times a day. Horrendous fatigue with muscles twitching madly. Saliva turned to jelly and i couldn't spit. strange body sensations that made me feel i was going to die. This for 6 years now and slowly getting better. Only fall over every few days now. I had been exposed to toxic fumes for 3 months which i believe caused all this. That is why my lungs still have a thick jelly coating on them and my body is weak. I drive trucks but have limited strength to lift anything and embarrassingly fall over sometimes in the office or elsewhere. I believe there is a toxin that is responsible for triggering MND. There is a growing concern that Blue Green Algae may be responsible as there are clusters of MND cases near effected waterways. You may already know that but it would be worth trying to detox your body as i have done early on to try to stop the progression of the illness. Steam and sauna rooms are marvellous for flushing out toxins from the body. All the best Ian.
@mira0997
@mira0997 2 жыл бұрын
Have you researched more about this? How can we clear the toxins from our body?