I sent in my ct scans I’m going to request to see Dr Robert’s
@brandicesimpson3 күн бұрын
Thank you so much for sharing. Wishing you continued healing and strength.
@GarySchering5 күн бұрын
Appreciate your willingness to share your experience. My prayer is that all of us who have been diagnosed with this condition realize that we have been given a second chance to make a difference in this world. Stay close to what really matters in life each and every day. God bless and stay strong.
@KenKthulhu5 күн бұрын
Heya Gregg. I hope you are doing okay. What an amazing story about a terrible ordeal. Please keep in touch and let us know how you are doing.
@christinakoller74896 күн бұрын
Thank you ladies. That was fun. Any one could do this. I have done painting on ceramic bakeware. Now I know I didn't use the correct paint but still it still worked and unintentionally set the paint when I stuck it in the oven to bake something.
@carin-aortichope7 күн бұрын
Great job as always!
@christhomas-z4n7 күн бұрын
by the way I listened to the audio and one thing was a little off ... my boys didn't sell my house as we were leasing a house in the area to see if we're going to build obviously that didn't happen 🙂 they moved me out of my home and sold much of the contents which was great. love those boys and all those that help straighten out everything while I was gone.
@christhomas-z4n7 күн бұрын
I appreciate your thoughts I think life is our miracle and we are along for the ride and yes this is quiet a ride. I hope the story has some value.
@christinakoller74899 күн бұрын
Thanks for sharing your incredible story. So many miracles. Great story telling.
@memolly13 күн бұрын
Hi everyone! Hi John!
@StephanieLloyd-o1u16 күн бұрын
Cousin, we love you, and I'm so happy you're still here.
@bruceoroak366817 күн бұрын
Thank you for sharing, Kevin. I wasn't the best patient either. They had to put me back under because I was pulling out tubes and fighting with the nursing staff. I'm very impressed with your ability to be happy with your situation so soon after your dissection. I'm two years out from my dissection, and I am just now "looking on the brightside." I never thought I would ever look back at my dissection as being a positive thing. I love your attitude. I hope to see you in one of our support group chats.
@elenaarellano109917 күн бұрын
Thanks for sharing
@fitzroyharbour21 күн бұрын
Excellent interview. It should be offered as a starter video for all new members.
@KenKthulhu22 күн бұрын
I found Aortic Hope on youtube. I am very glad I did. I look forward to your story, Kevin.
@AorticHope22 күн бұрын
Me too!
@gatman928823 күн бұрын
Thank you for sharing this. I'm 5 weeks out from emergency open heart surgery to repair my ascending aorta and replace my aortic valve, and still struggling through it. I couldn't agree more about hospital beds, but it sounds like your hospital food was way better. I was also rehospitalized for a while about a week after I got home the first time to have a ton of fluid drained from my pericardium. I have also been having trouble sleeping, often just afraid to sleep; it was especially bad during that first week at home before they drained the fluid. It's reassuring to see that these things will improve and that you're doing much better now.
@KenKthulhu24 күн бұрын
Hey John Thanks for sharing your story. I know its tough to relive what happened. 😢 I dissected in October 2023. Similar to yours mine went from my heart to the iliac with most of organs running off the good side, but the dissection runs into my left kidney and into my cephalic. And it was only through a series of unlikely events that I survived at all. Wear your scar like a badge of honour. You survived!
@gatman928824 күн бұрын
Thank you so much for sharing this. I'm around your age, and I'm now 5 weeks out from a Type A dissection, emergency open heart surgery, ascending aorta repair with a graft and aortic valve replacement. It all happened very suddenly one day for me with no warning at all. I also have a residual dissection that extends around the arch into my descending aorta, but not as extensive as yours. It's early for me, I'm still completely freaked out and struggling every day, but getting stronger and getting by with a lot of support from family and friends. I'm just really grateful to hear your story and get the feeling of not walking this path alone, as you said. It takes a lot of courage to put yourself out there like this and share your story, and I'm really grateful you did.
@kash617524 күн бұрын
Thanks for sharing I had similar 5 year experiences from dissection to mitral valve repair surgery and few other wrinkles lad cabbage and Covid pneumonia
@madorsey07724 күн бұрын
Thank you John. Very informative. I had mine in 12/2021. Every day is a blessing. Take care!
@veldamackenzie618825 күн бұрын
great job telling your story John... thank you
@KenKthulhu29 күн бұрын
They fixed my ascending dissection. And left the descending dissection. It intrudes into a few other arteries. The fear is real. Keep moving and caring for yourself.
@bruceoroak3668Ай бұрын
Thank you for sharing your story, Joyce. I have/had a similar experience with PTSD, and hearing your story, and stories like your, helps my recovery immensely.
@joycecarambot7713Ай бұрын
Thank you for watching! That means a lot. I got nervous and forgot to talk about some things, but I hope the overall message will help others. Maybe I'll have another time to share more.
@KenKthulhuАй бұрын
Hey Tom. Good to hear your story. You have some good advice on recovery and coping with change. I like your attitude... a survivor focused on surviving. And three percent? Wow.
@KenKthulhuАй бұрын
Thank you, Molly. This is good information. Always good information from Aortic Hope TV.
@AllenHarless-l5rАй бұрын
❤looking good
@ericaclark3370Ай бұрын
Thank you for this video
@cliffg4437Ай бұрын
Gee, you've got me mispronouncing that now, and I originally wrote it! Need to find a different word! Once you start laughing, that's it.
@veldamackenzie6188Ай бұрын
❤great show ❤thank you ‼️
@memollyАй бұрын
Hi!!!!
@DanM-w9uАй бұрын
Please send me the details of your application
@Tom-yz4zcАй бұрын
Thank you!
@christinakoller7489Ай бұрын
Thanks Molly. I got there at the end so had to watch most of it on the replay. I did NOT get a notification email with link or you tube icon to pull down on my phone . It finally showed up when i checked in on the you tupe app again I got in just in time to read the comments and to sign up for Bingo tomorrow. I have no A/c so might have to sit outside with Bingo. I 😍❤
@GuillermoSeguraRamírezАй бұрын
del. Maestro. Jesus. Que. Experiensia puedes. Platicar
@GuillermoSeguraRamírezАй бұрын
Eres. Colaboradora. de. Al. gun. Sanatorio. te. dedicas a. dar. Terapias. A. Enfermos
@79thstreetsoundstageАй бұрын
Thanks for telling your story. It sounds like you have been on a marathon of a journey. We are coming up on our second year since my wife's aneurysm was discovered. We have been able to seek out and learn along the way and so far, had planned surgeries so she has not had a dissection. We are wearing down because it has gotten increasingly hard to stay positive on our journey. 5 procedures in the last 24 months. Your resilience is inspiring.
@ErinCavanaghАй бұрын
Thank you for writing. Yes, there are times it becomes "weighty" and because we live in a "microwave" era ( wanting instant results) it is difficult to wait or be patient for results. That is compounded by watching you special person struggling. 😊 Remember this is an exciting time for survival. And although it is slower going than you would ultimately like, it is stiles made over the past several years that have given so many the gift of life. Reach out anytime...
@KenKthulhuАй бұрын
Hi Erin. Thank you sharing your story with us. I think it is difficult to see things taken away from you, to have little control without much understanding. As I have said I gave my life to their hands for two weeks and then they gave it back to me... to us. It is always good to see our stories through the eyes of our caregivers and supporters. I still have questions and I am not out of the woods yet, but I am glad that I have her to hold my hand as we step once more into the sunshine. So glad to have Tom with us, and you with him. Bless.
@ErinCavanaghАй бұрын
Hi Ken, I'm happy your journey has been so positive! Having someone to walk with is empowering. So much has improved in recent years. I pray for your continued healing.
@steveburzlaff14302 ай бұрын
I have one. Goes on the outside of the window.
@bruceoroak36682 ай бұрын
Thank you for the moment of silence.
@KenKthulhu2 ай бұрын
Don Martin here. Nice to be remembered, Molly. 😂
@KenKthulhu2 ай бұрын
Thanks, Molly So glad I subscribed to receive these updates.
@michellevanraes29252 ай бұрын
Thank you John for your counsel . Trying every day to build up my hope and live in the moment and accept. I am a Type B and a Type A aortic dissection survivor. I will require surgery in the future too as there is another 4.8 cm descending thoracic aneurysm. So much to process.
@johnquick58982 ай бұрын
You are most welcome Natalie :-)
@WalidGamawi2 ай бұрын
Salam ça va
@WalidGamawi2 ай бұрын
Sml❤❤
@christinakoller74892 ай бұрын
I got two lol. I can t find my really nice cow so my cow robe got to do...
@christinakoller74892 ай бұрын
Thanks Diana and Terri. Sorry I wasn't available for the live. T shirts look great. Well done ladies.
@KenKthulhu2 ай бұрын
3:16 Hi Amber and Zach. We were in the ER, never heard of dissection and asking if we could think about it over the weekend. I am so glad you made this interview. Strength to you both.
@KenKthulhu2 ай бұрын
I like what you are doing. A great service to those with aortic issues. Thanks, Diane.
@perreaultkatherine2 ай бұрын
Wow i don’t even know what to say. I know this story was very difficult for you to share. I can’t imagine at all what you’ve been through. So so glad you’ve survived all of these horrific events and are here to tell the story. Continued healing to you always.