There are claims that the carnivore diet reversed PD. Would be interested in an episode on this.
@justinmariana1220 сағат бұрын
Was diagnosed three years ago. Male, will be 72 in August. Have depression, anxiety, apathy, nausea, unsteadiness, severe fatigue, insomnia. I only go out to the doctors or to buy food. I workout every other day. My son and his girl moved in with me. They understand and help. Both of them recently lost their jobs. We are all struggling. My mortgage went up by 400.00. Bills late. Just doing the best I can. One therapist said I need to go out more. I am an introvert. I take no happiness in my hobbies anymore. Few out there understand.
@clausdnk516320 сағат бұрын
Agreed 100% Of course it’s Parkinson’s related.
@kevinowens8681Күн бұрын
I am now searching for that coffee mug.....
@staceyconroy16302 күн бұрын
Exercises is very important to everyone, and I am committed, but wow it is teaching me something these days, hard lessons. 😂 Is it stiffness or is it yesterdays squats. 🤣
@thesecretlifeofparkinsonsКүн бұрын
I think about that all the time ;)
@user-mw5sg2ts8z2 күн бұрын
I have 7 hours
@user-mw5sg2ts8z2 күн бұрын
Her job
@andrewalthuis36662 күн бұрын
150 minutes cardio far too much That's 5 × 30 minutes sessions. 2-3 strength and 2-3 30 minute cardio sessions is more than enough. It all depends on age 😊
@thesecretlifeofparkinsonsКүн бұрын
Totally agree!
@John-lt8bh2 күн бұрын
For me exercise is my top priority, I do strength training in my home gym about 3 times a week @ 30 min per session, I row around 9,500 meters a week and lastly, I do cycling out with my road bike about 100 miles per week. Some weeks are a little less some times a little more. I was a runner at one time but PD took that away from me, so I focus on the other areas I can do.
@Lenteja772 күн бұрын
For me three times a week is perfecto but I do none
@user-zh6lw5zy1w4 күн бұрын
Thanks for the information.
@justinmariana124 күн бұрын
I have brutal fatigue. I am 71, male diagnosed 3 years ago. Have arthritis in my hands, knees, spine. Lots of nausea. I exercise every other day. I have very interest in doing my hobbies, reading books. I talk to a therapist twice a month. Sometimes I cancel the appt, due to depression and fatigue, I get threatened with being taken off the program
@thesecretlifeofparkinsons4 күн бұрын
Sorry to hear that. Have you checked out episode #2 or #15 where we talk about Apathy? Sounds like that vs. depression. Apathy is when you don't care to do anything or show little interest in things you used to do. Here's a quick short from episode #15: kzbin.infowXRiXbJKHpA?feature=share
@thorarthur66ddz4 күн бұрын
Shortly after I got the Moderna Covid MRNA vaccine I developed tremors when I yawn and when I'm sleeping, which wakes me up. The first Neurologist I went to thought it was related to my cervical spine. The second Neurologist thought it was related to carpal tunnel syndrome and ulnar nerve compression, but when I noticed that my left arm wasn't swinging, I insisted on seeing a Movement Disorder Specialist.who diagnosed me with Parkinson's.
@thesecretlifeofparkinsons4 күн бұрын
Sorry to hear that. Glad you went to see a Movement Disorder Specialist. They are the best at diagnosing Parkinson's. Thanks for watching our channel!
@thorarthur66ddz4 күн бұрын
@@thesecretlifeofparkinsons Thank you. I learn a lot from your channel.
@johndonaldson51264 күн бұрын
Good episode. I'll pass this on to my PD group
@thesecretlifeofparkinsons4 күн бұрын
Great! Hope they work as well for you as they are for me!
@xjet4 күн бұрын
I never realised until watching this that I *do* find it harder to roll over or reposition myself in bed at night. Sometimes these changes happen so gradually they go unnoticed until you stop and think about it.
@thesecretlifeofparkinsons4 күн бұрын
Right?! I didn't think of it either until Melissa mentioned it in class.
@jnm.6244 күн бұрын
Interesting... do you have to buy the flat & fitted sheets separately? It appears like you do. So are the pajama top and bottom sold separately also?
@thesecretlifeofparkinsons4 күн бұрын
Correct. It's all sold separately at this point from my understanding (at least that's how I purchased them)
@56deedles5 күн бұрын
I can relate to fatigue and constant changes. Bad nights are the worse!
@Lenteja775 күн бұрын
Do you think if I have DBS I could play golf again?
@thesecretlifeofparkinsons4 күн бұрын
Every person with PD is different and from what I've seen every experience with DBS is different. But its not just DBS, exercise needs to be involved too. But I would like to think that yes, you would be able to play golf again, but I don't think anyone can be sure. Good luck on your journey!
@Lenteja775 күн бұрын
Great news. I really hope this helps
@normanrubenzer5 күн бұрын
this is one of your best pod cast to date with martha. i have been doing reseach on the gut also. excellent job
@thesecretlifeofparkinsons4 күн бұрын
Thanks! Let us know if you learn anything else!
@lauradirico26475 күн бұрын
I have gone to 3 doctors. One said I had a stroke. But I didn't one said I had old legs one said one said I had a pinched nerve. I have balance loss and other things
@thesecretlifeofparkinsons4 күн бұрын
Have you seen a Movement Disorder Specialist? They are a special Neurologists that diagnose Parkinson's and other movement disorders. I recommend trying to find one and get their opinion.
@lauradirico26472 күн бұрын
Yep. She is the one I have a pinched nerve. I'm seeing another one in Sept.
@reub5439evil5 күн бұрын
I wish my movement specialist was like yours. He does not want to talk to me about my PD or the meds or my condition. He works out of the same office as my last MD but it's different trying to talk to him. I am wondering if my age is part of this problem. I just turned 85 last month. I stopped working in Dec. and feel like I am going down hill since.
@thesecretlifeofparkinsons4 күн бұрын
Are you exercising and socializing? That is the key to slowing the progression...at any age. I'm surprised your movement disorder specialist doesn't want to talk about anything PD related.
@user-gk2qo7tg3u6 күн бұрын
Thats right my shakes bad after workout 30 minutes then ok lreland
@thesecretlifeofparkinsons4 күн бұрын
I experience that sometimes too.
@kathymalmquist9016 күн бұрын
Your podcasts have been so helpful ! Thank you so much ! I wish I had known about the exercise that I would need to do. The Drs just say exercise but they don’t explain the type needed to help keep the progression away. Rock Steady Boxing I found 3 years ago , but really wish I had known about it at the time of my diagnosis back in 2018. 😊
@thesecretlifeofparkinsons4 күн бұрын
Glad you found it when you did! Starting exercise at anytime in your PD journey will help slow the progression and in some cases I've seen some people improve (example: I know someone who had trouble raising both their arms and then being able to fully extend them). Good luck to you!
@jnm.6246 күн бұрын
you have to reinvent a sleep routines & exercise because PD makes it so difficult
@elizabethsky46817 күн бұрын
Woo hoo! Happy birthday to Brian as well!!
@jnm.6247 күн бұрын
Awesome!! & Happy Birthday Brian!! What a great coincidence!! ❤❤
@dollywolf97237 күн бұрын
Let Michael J. Fox know about this. He's got at least 40 more years left in his life.
@danbaker2417 күн бұрын
You mentioned that you had a medication change that helped. Was that a dosage change or a different medication? I relate so much to your dystonia symptoms.
@thesecretlifeofparkinsons4 күн бұрын
Back from episode #5, I was probably referring to my change from Ropinirole (dopamine agonist) to Carbidopa Levodopa. I had to get off Ropinirole because I became addicted to work. Dopamine agonists are known to cause addictions or obsessions...usually with gambling or shopping. But it can be to anything. Anyway, that's when I switch to C/L. Most recently, around episode #106, I went from 2 C/L at four times a day down to 1.5 C/L at four times a day because my arm pain was relieved from physical therapy and the 2 C/L at a time were making me dyskinetic. Hope this helps!
@danbaker241Күн бұрын
@@thesecretlifeofparkinsons Thank you so much Jessica, for the detailed response! Very much appreciated. Thanks for what you are doing for this community. Looks like I will be going the path of botox injections to ease the foot dystonia pain. We'll see how that goes. Take care.
@juliet-m317 күн бұрын
This is great news!!❤🎉😊
@ohblimey218 күн бұрын
I’m GREAT too! GREAT
@John-lt8bh8 күн бұрын
My left hand has the death grip on the steering wheel every time I drive and my right is loose goose.
@thesecretlifeofparkinsons4 күн бұрын
I know how that feels!
@justinmariana129 күн бұрын
The majority of people have no clue what Parkinsons is or what we go through
@JohnMcCreery9 күн бұрын
Bravo!
@justinmariana129 күн бұрын
I have very bad insomnia. I am in bed 10 to 13 hours. Have constipation, bone pain, bad fatigue.
@thesecretlifeofparkinsons4 күн бұрын
I know how you feel.
@lhscatnap9 күн бұрын
❤
@annb56109 күн бұрын
Sounds like driving to the Mayo Clinic 6 hours thinking they have more info....a plan of action and.....expertise.......ended up.....a waste of time
@jhb84268 күн бұрын
Opposite results for me. Just a 2 hr drive. After 3 visits the diagnosed the issue and recommended a treatment. Go every 3 months for a nerve block. Works wonders.
@annb56107 күн бұрын
@jhb8426 That's Great Your Lucky and Blessed! They offered me nothing no plan no treatments no supplements no Patient trials had to practically beg for a telehealth follow up and was rushed off the phone.
@thesecretlifeofparkinsons4 күн бұрын
Sorry to hear that. I hope you found someone that works better for you!
@LoriHanf-f5p10 күн бұрын
You mention probiotics, what should I be taken. At present I’m not taken anything. I was having a yogurt every morning and somewhere i read or someone told me I shouldn’t eat yogurt.
@thesecretlifeofparkinsons4 күн бұрын
Check out episode #94: kzbin.info/www/bejne/m6G1fGSJoMdrprs We talk to a gut health expert who developed her own probiotics. Those are the ones I started taking and I really like them.
@evied.447510 күн бұрын
I sure appreciate your show. It’s so helpful!
@John-lt8bh10 күн бұрын
at 10:52 you talk about probiotics what does it do for you?
@thesecretlifeofparkinsons4 күн бұрын
What I have noticed on the probiotics is that I'm more regular and I stayed healthy during the winter when my entire family was sick.
@Streamliner111 күн бұрын
Great article below
@keitymarley73312 күн бұрын
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured completely 👌👌.
@keitymarley73312 күн бұрын
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured completely 👌👌.
@keitymarley73312 күн бұрын
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌…
@altusforwomen12 күн бұрын
Hi Jessica! You mentioned that you have a friend in Philadelphia who had just received Botox injections. My movement disorder specialist is in Philadelphia and when I asked him about the possibility of Botox injections for my tremor, he was hesitant/non-committal. So I’m wondering if you would be able to tell me where your friend went for her Botox injections and who performed them for her? I would like to explore this Botox option because I am tremor dominant and my left arm is starting to be painful (due to the constant tremors, irritating the muscles), inhibiting my ability to work out/move smoothly without pain. Thank you in advance for Any suggestions you can offer me about getting Botox in Philadelphia (or anywhere in eastern or central Pennsylvania for that matter)!
@rocksteadyfighter12 күн бұрын
Six months post diagnosis and after trying many different meds that weren't working, my MDS started talking DBS. Me, still in denial, wanted to make sure I really did have PD and not something else so I went a functional med doctor. They did not test me for SIBO but after having IBD symptoms for years, they had me to thru the SIBO protocol of herbs, dietary restrictions etc. After going through that, my meds started working. I am sure that I was not absorbing the meds. I am now almost 8 years post diagnosis and although my PD is progressing, it is slow and still no DBS. My meds work well but now wear off way too fast.
@thesecretlifeofparkinsons4 күн бұрын
That is so interesting! I don't know why SIBO testing isn't more well known. This was the first time I've heard of it and now that I'm doing more research on it, I'm starting to think that people who say their meds don't work or they get nauseated with taking them might have SIBO. Just a thought, but something I want to address with one of the Movement specialists soon. Thanks for sharing.
@normanrubenzer12 күн бұрын
excellent review, this is what pd people want to know.. my wife has advanced pd and she is waiting for the abbie 951 pump to get approved by the fda, well its been 3 years and the rejected it for the second year in a row. this is terriable. there are millions of pd suffers out there. im starting to feel like america is going down hill.
@thesecretlifeofparkinsons4 күн бұрын
I read that the FDA rejected it recently due to an issue with the facility or the device and not the medication itself (which is a good thing). But it still sucks that it's not making it to market quickly because of that. Might be worth checking into Duopa until that new one gets to the market.
@normanrubenzer13 күн бұрын
please do some research on the extra dopamine left in the brain which becomes toxic to advanced pd please check out doctor johnathan sackner berstein he did a podcast to explain his research . check it out. i think you both would be interested. google away. he has a personal freind that has pd and is trying to help any way possible.he is a cardiologist heart doctor