Project Scleroderma

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@JimTorres-e3u 6 күн бұрын

I was diagnosed in 2021 and have lung involvement also. Jessica, you are brave and strong and an inspiration to me. Keep up the fight!

@onemysore6120 12 күн бұрын

I feel very honored to have heard this story and to learn about this condition and its brave victims.

@dennismarshel7040 21 күн бұрын

I have tested positive for this and they're going to do more tests to see which type of scleroderma i have. My chest lungs are clear !

@dennismarshel7040 21 күн бұрын

Wish you all the best ❤😂😢😊🎉

@beanandabby6726 29 күн бұрын

Hello. I have had systemic Scleroderma for about 30 years. This last few years have been the worst. In and out of Hospitals, Doctors appointments over and over, they don’t seem to care at all. And nothing changes anyway. I read a booklet early on from other patients who had Scleroderma, Lupus, or Rheumatoid Arthritis. They gave their stories and they pleaded with the reader to “never do chemo or all the real dangerous drugs doctors pretend might work. They work alright, they make you worse. Now I have Interstitial lung involvement. I have always eaten organic/ non GENETICALLY Modified food. I juice organic greens, fruits. So, I guess the moral to the story is to not to take the poison doctors pretend might help. I never did but know of many, many people who did listen to the lies. They took the poisonous medications and died early on. If anyone would like to hear from me, you are welcome.

@ihop8783 Ай бұрын

Please keep fighting 😢

@channghiem5012 Ай бұрын

i wish you the best

@Annie497-f5x 2 ай бұрын

I had never heard of it until my cousin was diagnosed with it, following the premature birth of her only child. She fought a hard and valiant battle against this monster until it took her life about 30 yrs following diagnosis. It attacked her lungs and circulatory system so badly, and she was often hospitalized with complications. My prayers go out to anyone with this diagnosis and may new treatments and a cure be found.

@Aritul 2 ай бұрын

What an inspiring story! I wish her the best.

@terry7344 3 ай бұрын

how old are you? can you walk us through your journey how you found out? im nervous

@susanwiggins2759 3 ай бұрын

I have it too. It's systemic. My skin is awful. My hands are bad. But I'm holding on to God!!❤

@terry7344 3 ай бұрын

stop reading google about you live 2-3 years. you can live a normal life but will be on medication. stick and trust the doctors and seek help! dont ignore it.

@fionaflannighan1095 4 ай бұрын

I have morphea localised scleroderma, it’s taken over my body in a few months and I have no one to talk to as no one in my area has even heard about it,my stomach is unbelievably deformed and my breasts too,🙈🥲🥲it’s progressing so fast 😢😢

@lhale9176 4 ай бұрын

❤❤❤❤❤❤❤🙏🙏🙏🙏🙏🙏to u....

@brownkisharae7283 4 ай бұрын

Keep your head up u r beautiful in strong I also have scleroderma im 37 with five children

@CaseyJayde 4 ай бұрын

I was just diagnosed definitively with scleroderma. Been dealing with physical changes now for a year a little over a year and skin has changed a lot since then. It’s scary.

@ileneperez8039 3 ай бұрын

Same here I have systemic scleroderma it’s very scary I’ve been dealing with it for a while not knowing exactly what was going on until I went to the Dr. I’m trying to find a way how to live everyday with this. 😢

@Angelaangelinoo_ Ай бұрын

But when do you think that your first symptoms started ?

@QesankhMaaKheperu 5 ай бұрын

My mother had Sclerodema. She died and now I wish they would discover a cure for it. No one should ever have to experience it.

@shananbeig46 5 ай бұрын

It looks like you are in Seattle area. I am also and I have limited scleroderma. With fibromyalgia. I am always looking for a good rheumatologist. I’ve seen someone at UW but wasn’t pleased.

@pursedelighted 5 ай бұрын

Chanel you are beautiful. Beautiful eyes

@soyalisin2784 5 ай бұрын

It helps to understand!) there is a feeling that people are real and not fake

@hementikanaidoo8144 5 ай бұрын

Hi Jessica, I'm a scleroderma patient as well... ❤ I had it from a young age but unfortunately I was diagnosed by a GP doctor that I'm very enimic, because I was fainting and collapsing anywhere and anytime... I was diagnosed later on after having double pneumonia twice and the second time I was on the brink of death and afterwards I recovered from it, because it was a battle for to recover and at my last doctor's appointment I was diagnosed.. Don't give up Jessica, I'm aware that everyday is a battle but you are not alone.... To you and all other scleroderma patients I would like to say, We all are in this together nomatter the weather 😘❤️🤗😘😘

@chandrawattiesahadeo6367 5 ай бұрын

What is the causes for this decease, my sister is going through this she had to amputated her foot, i don't want anything to happen to her

@elizabethtodd4673 5 ай бұрын

I lost my sister to this, she was 38 and left 3 young children behind. Such an awful disease. Stay strong. Prayers for you.