Rare Disease Awareness - Dee's Story

[@mycarefriendsnetwork]

Thanks for sharing your story, Dee! ♥We stand with you and your family -- as our founder's mom has Systemic Scleroderma and along with that came ILD, CKD, and many other complications. She's been fighting for almost 6 years. Keep up the fight and all the great awareness building you're doing!

[@GregWittstockThePondGuy]

Stay 💪

[@johnjenkins129]

God Bless you and your Family 🙏🏽💛

[@swst]

Keep on pushing & keep on fighting!!!!!!

[@Italianqueen]

Thank you for sharing your story,I too have scleroderma and ILD,and a few other things related or from the scleroderma. a wife and a mother to seven children! I just went through something quite hard. I was pregnant in September 2022 and got Covid again. And started to get extremely sick and had to be put under generally anesthesia to have an emergency C-section, and I didn’t wake up I had aspirated, I was put on life-support ECMO medically induced coma. A bunch of other things also went wrong and I was in the hospital 97 days not ever meeting my daughter. And I had to relearn how to walk, swallow,etc which is where I finally got to meet my baby girl at the rehabilitation center. I too am on oxygen,It’s been a long year and a half which my fight is far from over. I’ve tried so many things and I’m willing to keep trying them. But it is so hard being a wife and mother and finding a way to navigate through the scary disease. Best of luck to you and your family!

[@lillyrocks2011]

This terrible condition scleroderma needs more research. There's no enough investigation. It's an absolutely cruel condition. I'm so scared of this. 😢 I hope we can have a treatment to stop the collagen over production. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🕯️🕯️🕯️🕯️🙏🏼🙏🏼🙏🏼🙏🏼