I'm only 6 minutes in and I think a bunch of people should be in jail!

Fnd is a part of cfs autism heds adhd i have rhem all

There is no such thing as CFS/ME. It is mold illness. These people are curable. Do your research.

Thank you. I can now refer the NICE guidelines to my primary physician. This is like finding buried treasure to ME/CFS patients.

I too suffer with severe M.E didn't think things could get any worse and abracadabra i had a aneurysm 😢 had brain surgery 4 yrs ago and im still waiting for my 6 week check up and i should have had 8 scans by now. Asked my gp 2 yrs ago for a urgent referral to neurologist as i hadn't been given one. That was two years ago. My whole personality has changed and lost so much . New gp came out said she didn't think this was right and was going to investigate why it has happened. That was 4 weeks ago tomorrow. I thought i was going to finally be believed about something, there was solid proof but nope still ignored in bed in my dark room.

Thanks, great video 👍😊

In the book "Betrayal of the Brain" the concept noted here was called "HYPOPERFUSION" of the brain. An old finding, evidently we are going nowhere on this agenda. Meanwhile most patients are being stripped of assets and hunted for sport by way of homelessness. We don't care so we omit this discussion which is the one most important, the culture's embrace of genocide.

May I suggest that this lecturer writes down his speech and read it alloud next time he is schedule for a talk?

Kan inte ens föreställa mej..... Hjälper föga men alla med ME och er familjer har min största sympati

Crazy so few people have watched. What is going on?!

2 papers published Tulane Hypermobility Clinic FOLATE DEFICIENCY MUTATION in EDS & second in LongCOVID, we all now know the enormous links to EDS/ME/CFS. This is not just ME/CFS it is ME/CFS/EDS we now have HSD/EDS added, many have 2 types called crossovers

Stort tack till Jonas och hela teamet som gör dessa forskningar! Det är så konstigt att detta inte ges några bidrag till av staten!! Det borde vara väldigt angenämt när det ger så svåra funktionsnedsättningar hos dubbelt så många än de som har MS… men det är väl för att de väljer istället att tro att detta är en inbillningssjuka och alla dessa (50-10 tusen personer??) bara behöver en spark i röven… men de lyckas ju inte med det heller så vad väntar de på??

Jag är intresserad av att vara med att testa medicinerna

Tack, Jonas och Tack Rme! 💙

🤗

Kommer Sverige införa ICD diagnos koden för ME så som USA gjort? Tror det skulle bekräfta diagnosen hos läkare och inte bara avfärdas så som hittepå. All forskning inom ME är så fascinerande och jag ser fram emot att veta mer om båda studier och även framtida studier.

🤗

I understand this is far fetched, but "IF" the GI tract pans out to be a prime reservoir and "IF" a reliable method is developed to localize the reservoir, perhaps gastrectomy, segmental colectomy or small bowel resection could prove to alleviate the horrendous symptoms.

Greatest thanks to everyone at PolyBio for your ongoing research! It is appalling that at a governmental level (ie RECOVER initiative) that exhaustive biopsy studies of viral persistence, particularly regarding a very easily biopsied site such as the GI tract, have not been completed to date.

This was a fantastic presentation, thank you so much

Respect for dr. Brian Hughes!! Respect for dr. David 'Paceman' Tuller !!!

Good work! We need to find treatment for ME/CFS as quickly as possible!

Thank you for your continued work to try and figure out this extremely complex disease. To have a biomarker would be life-changing for millions with ME (& now the huge LC community too). 💙🙏💙 Hopefully you can find this going forward . We're being denied critical support until this happens 🤞 Very valid point about lucky recovery in first year or so for a few, especially where patients attribute recovery to magical thinking & then blame those who don't get better for not wanting to 🤔 It's created a social situation where we're neither believed by medicine, our peers who are lucky to recover, and society at large because this is just not understood by most. Your work is absolutely critical for these reasons among many. 💙🙏💙

Im an Original Long Hauler - ME! At least is what I comport with yet the biggest hmo ever, KP doesn’t even have this in their system - so it literally doesn’t exist to them. As Dr Byron Hyde suggests, insurance guys ran the numbers and found a back door called cfs - which IS in KPs system and refers straight to the Mental Health Dept. If you haven’t interviewed Dr Hyde he imo has been crying enterovirus is the missing piece for decades and has interacted with Dr Chia . I got a SPECT; it’d be incredible to tie in the brain damage we now maybe all have, as shown on his book cover this maybe another biomark?. Mine was a fast takedown “flu” in august 2008 I’ve never recovered from; I had the live polio vax in the 60s and knew kids with it, Ive wondered if the possible enterovirus in late summer polio season reactivated polio? My muscle wasting from sternum down but sparing my arms fit a polio pattern. I get windows of clear brain less sweat n vertigo time but sure would like to send you my curious observations as a relentless self tester. I was in top athletic condition at 168 and just turned 49 but fell to 126 not being able to match the previous month due to pain but having to work hard operating several bizzes, competitive in multiple sports plus very athletic building crews plus training on a big farm n each op begins at 3 with visible biceps at 6. So Im not deconditioned as I’ve worked hard but slip bk, or could preload failure explain wasting of 40 lbs muscle in a few years constantly using nauseating sore muscles? With tbi I dont get much time with the alien asleep… so a huge issue is that gajigabits are in several million brains who like me are intact but it’s impossible to force a searing brain; it hurts to work whether physical or cognitive, but mental or emotional is harder. It triggers instant vagus take down pain that forces holding catatonic for hours to un-grip. So there’s a wealth of data if people like me who can think clear a few hours usually wee hours, details of symptoms, experiments.. for instance Im blown away how helpful going carnivore was, yet not a doc in 3 dozen puts food ahead of a drug, so this is a huge issue not getting a foundation first. After so many issues trying to cope with pain I had to find another way, and found several. Thanks so much for your work, this gives a reason to stay awhile longer..

You can see from the comments most folk haven't got a scooby doo . Let me explain some facts. CFS dies not exist , so plop they idea into file 13. M.E dies however . And the simple fact here is that it was a man made virus with two countries holding responsibility . From the 1950s. Right next the solution to m.e . Is simple .....Treat m.e as an auto immune illness. Cure it using those fundamentals. We know what's happening in the body and why. Exercise is half baked. It's a serious automimmune illness to effect that correctly . The patient must take total rest. Total rest . For anything else leaders to further deteriate the immune system. Stop using dual terms if you don't know what you looking at you are lost before you start. I had m.e for 15years ....before effecting an auto immune cure. That auto immune cure uses no chemical man made cack. You build the immune system and then apply the solution in stages. Like cancer but more complex with more important realities that need to be addressed for the causation of the man made illness. Everyone avoids both the history and the cause and thus are clueless. Get a grip,on the cause ......get a grip on the fact it's simply auto immune with the complication of wiping out the cause on the brain using appropriate measures. Over a short period of time the viral cause can be wiped out. But it takes years to get the body back to homeostasis. I am always shocked at the ignorance of the terms and the severity of the difference between the two. Now folk are confusing everything with everything ......because they have no idea of causations and effects. 13:02

I also hope I can step out into life again.

😢

How do we fix it tho ...I am plagued with immune issues with my. CFS including AI thyroid disease. I feel that my immune system is fried. When I 'exercise" I get sick. My thyroid and tonsils are swollen and the inflammation will not go down. There is def an immune response happening in my body. I am looking at going on the AIP diet to try and quell some of the immune reax to foods. U don;t have to tell people with CFS that their immune system is involved or in trouble somehow. I have known it for years. Have had CFS for years,. No help from any medical people at all.

Professor O'Leary's wisdom and academic work in bioethics and healthcare is very important and fortunately her work is garnering more attention from both the academic world and the media world in this respect.

Absolutely appalling that only a handful of people have seen or watched this hugely interesting and important update. Thank you so much for presenting it in a way that a layman can just about keep up. Me, I'm a long hauler and can identify with so much that you talk about. I find Herpes flareups , erratic heart rythm, fatigue, erratic blood pressure, muscle akes etc, and all these can come and go in terms of severity singly and in combination..

thank you for doing this work. I hope someday I can get my life back

what happened to the Long Covid aspect of this seminar?

Clearly an asset to the field. Even if worst case scenario he is not presenting a 100% smoking gun he is demonstrating facts which must be accounted for in any other theory. Would be nice to hear from him more frequently.

I would like to see more research on this finding. We are using Nattokinase for possible clotting issues after COVID. We have experienced some joint and ligament pain, inflammation and failure. We take collagen to facilitate growth of collagen connective tissue. I've began looking for a good source of silica because the regeneration of collagen doesn't seem to be very robust. I'm wondering if there might be a better approach.

12:00 This is the difference a good doctor and judge can make 💙

Great talk & ME-history lesson.

17:40 Good idea to include the spouse! Think our whole family has been affected by the mold in our cellar. Too bad though that they're often not of the same sex.

Be aware that HHV6A was discovered in the 1985 Lake Tahoe "original CFS" outbreak. NOT in "ME" This is part of why the Holmes committee couldn't use the ME term. Know this and understand. Do not argue.

Thank you so much for publishing the research information. My ME/CFS symptom path started after contracting Viral Meningitis in 2009. In hindsight, it was mild/moderate over the years. In 2017 I ended up with Systemic Envenomation caused by a Redback (Black Widow Spider) bight and was severely ill for 6 weeks. This caused severe ME/CFS symptoms. Following the Covid Vaccine in 2021 I relapsed. In 2022 I was finally diagnosed with ME/CFS, PEM, and POTS. This year I ended up with a relapse caused by Covid and thought I wouldn't make it. All in all,I have been bed & house-bound for most of the time since 2017. The new research gives hope that a cure can be found for this horrible disease.

Hard to watch, but SO important. Thank you.

Thank you.

Very interesting. Thank you.

Fasting doesn't reduce blood sugars in my diabetes. I have to take metformin and glipizide to keep blood sugar down

Får ni andra ljud på dessa kortfilmer ?

Inte blir det lättare med läkare som fortfarande tror att det bara är en hitte-på sjukdom och deras chefer anser att KBT är en bra behandlingsmetod mot ME.

My family member had a stroke and collapsed from pneumonia in the hospital. Hospital doctors instantly administered a couple of the strongest antibiotics available while they waited for bacterial cultures. After three days, the culture indicated the bacteria would best respond to amoxicillin and this was initiated. The patient left the hospital with 100% drug resistant C. dif. which became life threatening. No antibiotic, probiotics or other strategies had any effect. I did a lot of research and prevailed upon the doctor to refer us to a GI specialist who did fecal transplant. This was done and my family member recovered from C. dif. The specialist said most C. dif. at this time is completely impervious to antibiotics or other measures and fecal transplant is the only solution.

I wonder.......ME/CFS frequently follows a terrible illness, for instance a viral illness. If a person is sick enough, long enough and seeks medical care, s/he is likely to be prescribed antibiotics. Antibiotics damage the gut microbiome. I wonder if people who have had antibiotics during the course of a severe infectious disease, are more prone to ME/CFS?

I believe CHRONIC STRESS is one of the most important factors as to why people develop Chronic Fatigue Syndrome/ME, Long COVID, Fibromyalgia, Chronic Lyme Disease, MCAS, and POTS. Eliminating the Chronic Stress root cause is required for treatment of these diseases. If the CFS/ME patient has reached the point where some movement is also possible, stretching , ight yoga, mild exercise, such as a walk in Nature, may help improve Sleep, further reducing Stress. The JUST ROB Channel offers Polyvagal exercises to calm the Nervous System and other unique information. Loss of a Loved One, Divorce, Loss of a Job/Financial Security, a Traumatic Accident or Childhood Event, Surgery, or Athletic Overtraining are all examples of Chronic Stress. But one of the WORST Chronic Stresses is if you Believe you will get Very Sick or Die from an illness. A Type-A High Achiever/Perfectionist Personality typically will place healthful activities, such as getting a proper night’s sleep, as secondary to accomplishments. Type A’s will often want to quickly resume work and exercise, rather than rest and fully recover. An acute infection, such as COVID-19, can be merely the Trigger to the complete breakdown of an ALREADY Compromised Immune System from Chronic Stress. Once the breakdown occurs, secondary infections of other viruses (such as Epstein-Barr Virus), bacteria, molds, protozoans, and parasites that were FORMERLY being held in remission will now resurface. There is also little innate Immune System response to stop any NEW infections. The exacerbation of the effects of Environmental Toxins, Autoimmune Diseases, Allergies, and other Comorbidities may further complicate the disease and make it unique to almost EVERY Long Hauler! 🙀 Chronic Stress suppresses the Immune System and Digestion, making it more likely to develop Immune System dysfunctions, such as MCAS, and poor absorption of essential nutrients, leading to deficiencies that can cause issues like Leaky Gut. A deficiency in B-Complex Vitamins can lead to Leaky Gut as well as a Leaky Blood/Brain Barrier. A leaky BBB will allow pathogens and foreign proteins into the Brain, where they may cause inflammation, leading to Dysautonomia, Brain Fog, Loss of Memory, Headache, Depression & Anxiety, Chronic Fatigue, and other neurological symptoms. A B Vitamin deficiency will also make you feel more Stressed, and the primary objective is to Reduce Stress. Deep Sleep is the ONLY Time the waste products of inflammation and normal metabolism are removed from the Brain, so reduction of Chronic Stress to allow a Good Night’s Sleep is important for treatment. Typically, a Change in Attitude is required to reduce Chronic Stress and disrupt the endless repetition of negative thoughts. LifeWithKyle discusses how he uses Meditation to Calm his Nervous System and diminish Long COVID symptoms during a relapse. He offers Guided Meditations that are designed to make one feel SAFE, reducing Stress and avoiding the “Fight or Flight” Immune response. Fasting is a good Lifestyle Change to help restore integrity to the Gut and Blood/Brain Barrier as well as repair a dysfunctional Immune System. It gives the intestines a rest from Digestion, allowing energy to be focused on Repair. Fasting is a Stress on the Body, and like Exercise, should be approached gradually, probably AFTER you’ve had success with Meditation and Breathwork. However, one should realize EVERYONE FASTS WHEN THEY SLEEP. The key is to extend the benefits of Fasting into your Waking Hours. You should start with Time-Restricted Eating, gradually reducing the time of your Daily Feeding Window until you are comfortable eating within an 8 hour or less Feeding Window. From there, you can attempt a 24 hour or Multi-Day Fast. Don’t be discouraged if you end a Fast early. You can try again on another Day. Fasting will be easier if you follow a Healthy Low Carb, Whole Food Ketogenic Diet. Dr. Eric Berg can show you how to begin. Eliminating Grains and consuming Nutritional Yeast, a great source of B-Complex Vitamins, along with other B Vitamin-rich foods and supplementing Vitamin B1, will help to restore Intestinal and Blood/Brain Barrier integrity.

I believe CHRONIC STRESS is one of the most important factors as to why people develop Chronic Fatigue Syndrome/ME, Long COVID, Fibromyalgia, Chronic Lyme Disease, MCAS, and POTS. Eliminating the Chronic Stress root cause is required for treatment of these diseases. If the CFS/ME patient has reached the point where some movement is also possible, stretching , ight yoga, mild exercise, such as a walk in Nature, may help improve Sleep, further reducing Stress. The JUST ROB Channel offers Polyvagal exercises to calm the Nervous System and other unique information. Loss of a Loved One, Divorce, Loss of a Job/Financial Security, a Traumatic Accident or Childhood Event, Surgery, or Athletic Overtraining are all examples of Chronic Stress. But one of the WORST Chronic Stresses is if you Believe you will get Very Sick or Die from an illness. A Type-A High Achiever/Perfectionist Personality typically will place healthful activities, such as getting a proper night’s sleep, as secondary to accomplishments. Type A’s will often want to quickly resume work and exercise, rather than rest and fully recover. An acute infection, such as COVID-19, can be merely the Trigger to the complete breakdown of an ALREADY Compromised Immune System from Chronic Stress. Once the breakdown occurs, secondary infections of other viruses (such as Epstein-Barr Virus), bacteria, molds, protozoans, and parasites that were FORMERLY being held in remission will now resurface. There is also little innate Immune System response to stop any NEW infections. The exacerbation of the effects of Environmental Toxins, Autoimmune Diseases, Allergies, and other Comorbidities may further complicate the disease and make it unique to almost EVERY Long Hauler! 🙀 Chronic Stress suppresses the Immune System and Digestion, making it more likely to develop Immune System dysfunctions, such as MCAS, and poor absorption of essential nutrients, leading to deficiencies that can cause issues like Leaky Gut. A deficiency in B-Complex Vitamins can lead to Leaky Gut as well as a Leaky Blood/Brain Barrier. A leaky BBB will allow pathogens and foreign proteins into the Brain, where they may cause inflammation, leading to Dysautonomia, Brain Fog, Loss of Memory, Headache, Depression & Anxiety, Chronic Fatigue, and other neurological symptoms. A B Vitamin deficiency will also make you feel more Stressed, and the primary objective is to Reduce Stress. Deep Sleep is the ONLY Time the waste products of inflammation and normal metabolism are removed from the Brain, so reduction of Chronic Stress to allow a Good Night’s Sleep is important for treatment. Typically, a Change in Attitude is required to reduce Chronic Stress and disrupt the endless repetition of negative thoughts. LifeWithKyle discusses how he uses Meditation to Calm his Nervous System and diminish Long COVID symptoms during a relapse. He offers Guided Meditations that are designed to make one feel SAFE, reducing Stress and avoiding the “Fight or Flight” Immune response. Fasting is a good Lifestyle Change to help restore integrity to the Gut and Blood/Brain Barrier as well as repair a dysfunctional Immune System. It gives the intestines a rest from Digestion, allowing energy to be focused on Repair. Fasting is a Stress on the Body, and like Exercise, should be approached gradually, probably AFTER you’ve had success with Meditation and Breathwork. However, one should realize EVERYONE FASTS WHEN THEY SLEEP. The key is to extend the benefits of Fasting into your Waking Hours. You should start with Time-Restricted Eating, gradually reducing the time of your Daily Feeding Window until you are comfortable eating within an 8 hour or less Feeding Window. From there, you can attempt a 24 hour or Multi-Day Fast. Don’t be discouraged if you end a Fast early. You can try again on another Day. Fasting will be easier if you follow a Healthy Low Carb, Whole Food Ketogenic Diet. Dr. Eric Berg can show you how to begin. Eliminating Grains and consuming Nutritional Yeast, a great source of B-Complex Vitamins, along with other B Vitamin-rich foods and supplementing Vitamin B1, will help to restore Intestinal and Blood/Brain Barrier integrity.

So, the hypoxic findings must be similar to states found in lung diseases like COPD? Intermittent fasting has been proposed for a number of chronic diseases. The ketogenic diet has been used for disorders of brain and nervous system, that ketones may calm the nervous system. So, I wonder if ME/CFS is a neuroprotective attempt by the body? My friends and I have been devastated by "unknown" "really tough" viruses that tested negative for influenza and which were here long before C*VID. A simple pattern for these illnesses was that they began as mild upper respiratory and within about 48 hours, the GI tract was attacked, especially intestines. After the GI involvement, neurological symptoms set in. Those who got neurological symptoms frequently did not fully recover and some had long term ME/CFS symptoms. Whatever the actions of these viruses and individuals' immune systems, perhaps an underlying component is that the brain and nervous system became under attack. What, if anything, does the body do to protect these systems in such situations? Maybe there are solutions to be found with this line of investigation?