PhD, Dr. Bhupesh K. Prusty: Understanding infectious origin of ME/CFS

PhD, Dr. Bhupesh K. Prusty, Inst Virology and Immunobiology, Julius-Maximilians-Universität, Würzburg, Germany.
Recorded at the Swedish ME Association (RME) 2023 conference at the Stockholm County Council.

[@clairenaylor8346]

Thank you for your continued work to try and figure out this extremely complex disease. To have a biomarker would be life-changing for millions with ME (& now the huge LC community too). 💙🙏💙 Hopefully you can find this going forward . We're being denied critical support until this happens 🤞 Very valid point about lucky recovery in first year or so for a few, especially where patients attribute recovery to magical thinking & then blame those who don't get better for not wanting to 🤔 It's created a social situation where we're neither believed by medicine, our peers who are lucky to recover, and society at large because this is just not understood by most. Your work is absolutely critical for these reasons among many. 💙🙏💙

[@P111poker]

Clearly an asset to the field. Even if worst case scenario he is not presenting a 100% smoking gun he is demonstrating facts which must be accounted for in any other theory. Would be nice to hear from him more frequently.

[@Turtledove2009]

Very interesting. Thank you.

[@MRAIDANGWALSH]

2 papers published Tulane Hypermobility Clinic FOLATE DEFICIENCY MUTATION in EDS & second in LongCOVID, we all now know the enormous links to EDS/ME/CFS. This is not just ME/CFS it is ME/CFS/EDS we now have HSD/EDS added, many have 2 types called crossovers

[@themupsmuppet]

17:40 Good idea to include the spouse! Think our whole family has been affected by the mold in our cellar. Too bad though that they're often not of the same sex.

[@themupsmuppet]

And 85% is almost a marker, great!

[@janineclemons746]

I would like to see more research on this finding. We are using Nattokinase for possible clotting issues after COVID. We have experienced some joint and ligament pain, inflammation and failure. We take collagen to facilitate growth of collagen connective tissue. I've began looking for a good source of silica because the regeneration of collagen doesn't seem to be very robust. I'm wondering if there might be a better approach.

[@Truerealism747]

Are you hypermobile any luck with vitamin c

[@erikjohnson4275]

Be aware that HHV6A was discovered in the 1985 Lake Tahoe "original CFS" outbreak. NOT in "ME" This is part of why the Holmes committee couldn't use the ME term. Know this and understand. Do not argue.