It's amazing to me that the last thing doctors check when you're having health problems is vitamins and minerals.

Glad you got help finally. Sorry you had to go through that. My brother was recently diagnosed with hereditary hemochromatosis at levels over 600. I asked my doc to run a complete iron panel and she reluctantly ran this: iron binding capacity, UIBC, iron, iron saturation, Ferritin. I'm 54 (no uterus) and my FERRITIN was high, range of 15-150 per LABCORP and mine was 219. Also when it comes to lab ranges Quest shows for someone my age that normal is 16-232 so if that's the case and I'm at 219 am I really in range afterall or do I have to go by LABCORP ranges since that’s who did the test? My Doc said nothing to be worried about and that's that. Do I need to push for more tests? What is the exact genetic test that I need to ask for? She doesn't seem to know about it at all and I don't know if I should see a specialist or not? I also have Hashimoto's, active EBV, MTHFR c677T and feel like I struggle every single day with inflammation, fatigue, brain issues, weight gain, joint pain, etc. My a1c rose to 5.9 but I brought it down to 5.7 over a period of a year. I made her prescribe me a continuous glucose monitor which is super helpful but still trying to figure out why my glucose seems to run high (130) during the day and sometimes super low (55) at night. Especially when I don't eat carbs or processed foods & I try to intermittent fast most days. But I do like my wine with dinner which I'm trying to stop. I know that's a lot but I'm a bit of a mess. I wish I could find one doc or one naturopath that was really good at figuring this out without throwing meds and or 20 supplements at me. When I try to be my own advocate I get that glare. take care!

My experience of Cauda Equina traumatised me and I am still getting flashbacks of my experience!

I have just found out at 67 I have hemochromatosis. I have been sick for many years with many different things and we finally found the cause. I was diagnosed with severe sleep apnea in 2003 but, I had been in out of hospital with different things I had been off work yet again for 18 months. I developed arthritis just after my sleep apnea diagnosis. It became that bad I had a shoulder replacement in 2019. after a long time off work I recovered and went back into work. In March 2021 I had a heart attack at work and was taken to hospital. I was moved to another hospital as they said I had a second heart attack. I had stents put in and after 2 weeks I was sent home. I became sick again and was taken back into hospital and was then taken to another hospital this was in May 2021. I was told I would need a triple heart bypass which I had 1 week later. I spent a year with my bed downstairs as I was just not recovering. We are now in 2024 and I am in a wheelchair with heart failure arthritis and diabetes and severe fatigue. The triple bypass was meant to help but I just did not recover. In October of 2023 I started to have restless leg syndrome and I know millions of people have it but, I also had pains in my legs so I went to the doctors. The doc sent me for an iron test which came back abnormal so the doc sent me for another test and this is when I was diagnosed with hemochromatosis in January 2024. I was told that they had missed my high iron tests from before 2015. The doctor apologised but I lost everything in 2021. I lost my health way before 2021 and then we lost everything financially as I was unable to work my wife was unable to work as she had to look after me. We couldn't pay the mortgage and we couldn't pay our debts. I now have nearly all the complications of hemochromatosis and that is from the NHS website. I have heart failure I have arthritis and just got diagnosed with diabetes in 2024. Every blood test bar 2 I had in February all came back abnormal. I am waiting for more tests to confirm the iron overload in my heart and tests on my liver.

Ive bern misdiagnosed with depression, anxiety, dehydration and peri menopause. I was given depression meds, hormones and told to drink more water. I have hemochromatosis. I discovered it from a 33andme genetic test. I went to my local health department and not only was my ferritin over 3,000 but my ANA was positive, speckled 1:160 titer. Im in the absolute beginning phase of treatment and havent had a chance to adtess my ANA yet. My liver MRI is in teo weeks. We really need to be our own advocates because doctors can have tunnel vision and be shrouded with arrogance.

I survived encephalitis in 1995. I received absolutely no after care or treatment. Not even physical therapy. I had to learn to walk, talk and learn all on my own at the age of 14. Today, I still am working through the traumas of not just receiving no care or assistance, but also the horrors of the care I received while hospitalized and before the spinal tap that confirmed my illness. I was accused of being promiscuous, “faking” and was even told at times to “shut up” when I was in excruciating pain. I eventually feel into the worst stage- coma and paralysis. I wish I could have at least received physical therapy. Keep the good work. In the states we have a long way to go with our health care system and empathy is one

This is ridiculous a solicitor taking advantage of the situation these people are like opportunistic parasites THE QUESTION IS GOING TO THIS SOLICITOR DID IT SOLVED YOUR MEDICAL-HEALTH CONDITION ???

I’ve been sent a link asking to update my information prior to hospital appointment tomorrow (ENT post-op) and found two medical conditions listed which I have not been aware of. 1. hereditary haemochromatosis, 2. type 2 diabetes. It appears on the link sent that I was diagnosed with these in July 2023 and have not heard anything about it. Ive called my GP to clarify but was told I have to bring a letter asking for confirmation of these diagnoses.

We went to the ER 5 days in a row , 5 ER VISTS until they finally took us seriously! Now my husband is paralyzed.

So what was your gain /compensation?

I was diagnosed at 58 with a ferritin of 4580. Took 5 years to get my ferritin normal with regular phlebotomies.

Yup.. I was thought to be an alcoholic and was treated like..,, Well, we're not going to help you till you help yourself and stop your drinking. At this point in time I hadn't had a alcoholic beverage in 2yrs. They of course wrote patient denied alcohol use. 😡 Heart Dr had me sit through a lecture about what alcohol does to your heart.. ie. palpitations and irregularity. It wasn't until my dad died and I found out about hemochromatosis.

How is cauda equina syndrome diagnosed ? Symptom based ?

My farther was left fir 15 years in pain. Undiagnosed told he had diabetes. He lost all his limbs and died. Then 2 years later my 28 year old brother had the same pains and symptoms. He was given insulin a year later he died. He had been having problems with his oancreas since he was 14 years old. It was only when he died they told us he had hemochromatosis. They should never of had to suffer or die because the nhs failed to correctly diogenes them. We never even recived an apology.

*promo sm* 😠

I am 54 . I was diagnosed today.

i have just had surgery for this at 22 and i am so grateful that i don’t think i will have long lasting effects! i was treated terribly and will be pursuing legal action as well :)

Hearing stories like this makes me so grateful I was able to get my diagnosis so young. Just last year right before I turned 22, I had panels done that showed high iron. So I asked to get tested for hemochromatosis because I’m a hypochondriac and am always googling. They agreed and two weeks later got the results back. I’m heterozygous, but for some reason I’m experiencing quite extreme symptoms. My doctor told me she had never seen anyone with symptoms like mine who’s not a man over 40.

Major trauma is any injury that has the potential to cause prolonged disability or death. There are many causes of major trauma, blunt and penetrating, including falls, motor vehicle collisions, stabbing wounds, and gunshot wounds. Depending on the severity of injury, quickness of management, and transportation to an appropriate medical facility (called a trauma center), may be necessary to prevent loss of life or limb. The initial assessment is critical, and involves a physical evaluation, and also may include the use of imaging tools to determine the types of injuries accurately, and to formulate a course of treatment. In 2002, unintentional and intentional injuries were the fifth and seventh leading causes of deaths worldwide, accounting for 6.23% and 2.84% of all deaths. For research purposes, the definition often is based on an Injury Severity Score (ISS) of greater than 15.

I have it I was paralyzed 12/24/17. I was u paralyzed on Christmas. It's really hard living with something and no one can help.

Where are you located? I have a similar situation with cauda equina syndrome.

worthless doctors haha

i`ve had the same experience. been feeling unwell, joint pains, tiredness, feeling angry and memory lose. steadily getting worse over the past 2 years. constant doctors appointments, 8 months signed off work due to how bad it got, to then be diagnosed with Hemochromatosis , where my ferritin lvl was in the 1300`s. to then be told by my gp that my ferritin was high since 2018 but they never notified me or investigated it. so now i`m 36, unable to work the job i`m trained in or follow the career i built up myself due to constant joint pains, loss of grip in my hands and a diagnosis of artheritus caused by the build up of iron for such a long period

everyone missed HC, they waited till you developed liver cancer or diabetes, damn lucky to get liver function or that lucky blood test. Needs to be screened for in celtic populations

T3. T 4. T 8. You tell me which one it was on my mom. She was paraplegic. No function below the waist. Totally preventable

✝️🙋🏿‍♀️🤣🫡🫡🫡🫡📞. One rings dingy

A slow paralyzation as blood flows into the space of the spine compressing all nerves and paralyzation dependent upon the vertebrae that the clot manifested itself on. No. I don’t take blood thinners.

John Is there anyone I can talk to I'm very desperate sir. I am alone and I have nothing else left no hope nothing what can I do sir? I'm giving up...

Im 36. From the usa. My care was threw veteran affairs... it has progressed to the point of liver chirosis. All of my symptoms are documented for YEARS. The gastroenterologist there that they sent me to was HAPPY to tell me she has seen people with cirrhosis live for 15 years... im 36... with 2 children under 10... and the studys i have read say its more like 10 years.... if i dont develop liver cancer first.. which usually happens within 5 years of hemochromatosis diagnosis with liver chirosis.

Whats so difficult about it? Are you saying it's a nightmare trying to bring legal action ?.

Is it no win no fee ?.

I've been told i have CES symptoms but nothing is being done about it, still suffering, been suffering for decades and i just cant seem to get help.

I have just been refused a NHS gene test for the condition. irreglar Heartbeat (I will be having an ECG), liver and kidneys raised and blood count, 22 years of ME/Chronic Fatigue Syndrome, Osteo and Rhumatoid Arthritis and fibromyalgia. Past months I keep vomitting and feel nausea often. i have lost over a stone in weight and not trying. My legs in particular are extra painful these past months with mobility almost at nil. Thinking of going private. NHS said and I quote, 'hour blood levels are not bad enough'..yet had enough to refer me to haematology. Not sure what to do next. Just heard this today so all new. I did feel as if the doctor spoke to me like I was hindrance which really got me down and upset me.

I'm a US Navy veteran, they ran the tests and my FE level was like 150x normal. I had to go to another state to get diagnosed with hemochromatosis. Why don't they use CRSPR and fix my gene that's a problem? They can cure all cancers right now with the MR1 vector. Look it up on Google it'll read it to you. It's crazy that they don't just fix the disease and just treat it. That's nuts!

I also had a late diagnosis when I was 60 yrs old. Now at 68 yrs old, I have found, through experimentation, that a combination of carnivore/keto diet, annual phlebotomies, and coffee enemas are working for me. With a ferritin of 1007, it was clear I had some damage repair work to do. Stay positive. . . .be resourceful!

I am in a similar position two years have had a condition where I have had high ferritin, liver diagnosis shows lesions but not followed through. Two years of chronic pain. Genetic test for hemochromatosis in this county negative but my brother living in Australia has been diagnosed with the disease showing it is hereditary. Have tried to get an appointment with the GP to raise the issue but this is almost impossible as its is based on the first 30 calls received in the morning that get through. Now thinking of filling a negligence claim. Knowing that a person is being poisoned by high iron in the blood my GP has done nothing to bring it down but more blood tests . I am over 65 so cannot give blood to reduce the iron level that way.

Hello, love the work. From what you said, I think you might be interested in this channel 👉 #drjohnaking. I find him instructional and practical.

I am suffering cauda equina syndromes my surgery late by doctors and I am not recover after surgery my surgery done 3month before

I had slow onset from 21 when my *down there* went numb. Despites many doctor visits I was told it was nothing. as time went on I got sciatica.. Again doctor said it was all my head and even recommended antidepressants. Then I got cramp fasciculations and by the time I was 27 I couldn't walk, pee or sleep. luckily I pretty much made a full recovery after surgery apart from a few patches of numbness and twitching. I went to A&E day before NYE where they did an mri and ultrasound of my bladder. The doctor rang me on new years eve saying pack a bag an ambulance is on its way. if it wasn't for him god knows what my life would be like now.

jump to : married before, no one’s fault, divorced now. Loser gets to be loser, criminals get to wash their hands off quickly. Courts win!!! No fault. Damn, are these people humans , or has humanity come to this pathetic times!!??? Maybe so, justice is blinded, deaf and dumb. What can we expect. Marriages are a joke. Some seriously crooked criminals live peacefully married lives making business out of it. Only humans can bring such destruction upon each other.

and then the marriage will lost its meaning and purpose and so just dont get marriage

so helpful thank you 🙏

This is Real!!!!

They probably shouldn't take a vaccine with ferritin nanoparticles... it might not have a good reaction if you store ferritin... 😕 my good friend has this and got a vaccine and it "stored" that and his levels were over 6680 yesterday.

I feel like I am sitting on a pair of rolled up socks. Does that jive with usual symptoms of Cauda Equina?

Same thing happened to me in America but trying to get representation in California has been like looking for Noah's Ark, the ignorance from the legal side in CES is unbelievable when they should be very easy cases where lawyers can be making huge recoveries but instead CES cases are static. The way I see it is a patient goes to surgery with 2 arms and comes out with one. Yes surgeon R. Bagheri in San Diego ruin me for life. I go in for Laminectomy surgery and once home I was rushed to hospital for another surgery one day later because I was leaking spinal fluid, it was found that the surgeon left two small holes in my Dura. During recovery of second surgery that Dr. Bagheri also did the pain in my lower back was unbelievable, I started with symptoms of Cauda Equina Syndrome and my wife look the type of symptoms I was getting in the WWW and her inquiries showed that the symptoms I had were related to CES. He stated that the symptoms I had were due to the anesthesia and that they should clear out in months. My regular check ups with Dr Bagheri was the same thing "give it a couple of months and symptoms should come back to normal" he continued the same lying scheme and at one year he sends me back to work. My boss was very patient because I was really in no shape to go back to work but I continue working because we needed the money. Well the symptoms after 9 years are just getting worse, I can't work because I can only walk a few steps then I need to rest by either sitting down or lying down. I only wish there was more legal awareness in the US for CES but there is not.

This guy has sciatica for a year. It didn't come out of nowhere. I'm afraid the reason is simple we don't look after our spines. How many people can't touch their toes. Lift their bodyweight off the floor easily. We are a obscenely deconditioned species as a whole. These are the consequences.