Thank you very much!!! Thank you Mag. I have LG for 3 and a half years; it’s been a very difficult time, and today also and then I found you THANK YOU VERY MUCH, you made me feel understood. I live in Mexico and here there is no help for people with LG and friends and family think you are crazy or depressed…. There is few people that support you…. It made me feel good hearing you, thanks. 💖💖💖 God bless you!! ✨🙏🏻✨
@rebeccaslater13986 ай бұрын
Thankyou so much. You articulated this just as it is - devastating. This helped me a lot. Unbelievably hard this battle . I am with you ❤
@GreatGreebo6 ай бұрын
Hang in there ❤️
@sallyweiner41806 ай бұрын
Thank you, spot on
@scottcoonrod29656 ай бұрын
I've had lc for two years now. Your video made me feel better please keep up the good work
@RichardClutterbuck-zm5rb6 ай бұрын
Hi .. don’t lose hope .. I had long Covid for 22 months (fatigue , brain fog, depression, insomnia etc). I did the Lightning Process in January, and recovered from my fatigue within a week. Brain fog took a bit longer and was certainly helped by taking augmented NAC . Cold showers daily probably has helped as well as well as the Perrin technique interesting videos from Tina Peers re MCAS and the spike protein.. Happy to have a chat to bring any of the above to life if it helps Don’t loose hope ..
@kimouellette29476 ай бұрын
What is the Lightning Process & Perrin technique ? Already tried NAC & cold showers, both helped. Open to any new suggestions that help with chroni fatigue, thanks.
@kathydoell55716 ай бұрын
Where did you find someone who does Perrin technique?
@RichardClutterbuck-zm5rb6 ай бұрын
@@kimouellette2947 lots of info on thire website. Just Google . Augmented NAC and NAC differ - see Dr Tina Peers video on removing spike protein
@JJs21215 ай бұрын
@@kathydoell5571have you taken the covid vaccine?
@jimkofron86387 ай бұрын
I am sorry. You are much too young for this.
@oliverbird69147 ай бұрын
Have you seen the work on the " metabolic trap" from the open medicine foundation and bob naviauxs work on mitochondrial dysfunction and the cell danger response
@deelicious16107 ай бұрын
I have had CFS for more than 40 years. Long Covid is another label for the same chronic illness. You feel alone, but there are millions of us out there!
@Angela-io2ks7 ай бұрын
Covid targets mitochondria and the gut microbiome in a lot of people. Healing the mitochondria with the supplement called Researched Nutritionals NT Factor Energy and boosting the good bacteria in the gut are essential. Vitamin C 3x a day. Make sure Vitamin D levels are normal in addition to B12 levels, and ferritin. Keep blood sugar balanced by cutting out processed foods and eating a whole food diet (paleo or keto). I've finally recovered after a year and a half of long covid by implementing these strategies with the help of Dr. Maggie Yu.
@kimouellette29477 ай бұрын
I share my story because maybe it is similar to yours.....I have had long covid since 10/2020. I worked until 8/2022 and realized I could no longer do my job and had to resign it was heartbreaking. I loved my career but couldn't function anymore. Everyday I am completely exhausted. I don't see anyone or talk on the phone it's too exhausting. No one understands so I truly appreciate your video. I am blessed to have family support and the finances to stay home. I pray for those who feel like we do and don't have support. I have seen 19 doctors and spent tens of thousands of dollars out of pocket. So many doctors don't understand or even believe in long covid and have diagnosed my symptoms as PTSD, Chronic fatigue, Fibromyalgia, Adrenal fatigue & POTS but its all from long covid. I was healthy before getting covid in 2020. Some positives are my skin rashes are no longer uncomfortable and they are much smaller now and I can actually smell again well most of the time. The other symptoms, insomnia, headaches, brain fog, eye clouds/ discharges, muscle pain, cough, nausea, kidney issues, shortness of breath they all come and go throughout the day and on a good day I don't experience some of them at all. However, the one symptom that is relentless is the chronic fatigue it seems to never leave me. I am hopeful one day there will be a cure. Please stay hopeful you are not alone. Sending you love and strength.
@oliverbird69147 ай бұрын
I have m.e. exactly the same symptoms. 20 years in. Look up " the open medicine foundation" non for profit organization They think they can reverse these conditions. Standford scientists. Nobel laureates. There is hope
@simonpedley97297 ай бұрын
same here good luck from london
@simonpedley97297 ай бұрын
the link in the description doesn’t work
@rodneyleonard87146 ай бұрын
I could handle zero appetite, brain fog, the rash, but the fatigue is crushing and relentless. I believe you.
@kimouellette29476 ай бұрын
@@rodneyleonard8714 I believe you I am so sorry you have the relentless fatigue. You might try listening to Toby Morrison to help with the crushing chronic fatigue. He helps you find your baseline and gradually you can build energy.
@ShadowMan668 ай бұрын
I've had ME/CFS for 31 years starting in 1993. I understand entirely and at times I've felt gone, so tired with awful symptoms. Living through the disbelief of Dr's in the early 1990's and even with a diagnosis in 2002 I still only have 4-5 good hours a day and that's it! I lost a sporting career when I was 27 and a great job. It took everything away from me. Surviving is so difficult and many don't understand as we look well! My ME/CFS came on after 5 bouts of bronchitis and a bad Flu! My advice for early sufferers is don't PUSH IT as I did as it gets worse that way. Rest and don't exert yourself. Thanks Mag❤🩹❤❤🩹
@aboveaverage42969 ай бұрын
How long you suppose to take famotodine for? I heard that some people take it for 3-6 months🤷🏻♂️
@magleahy99659 ай бұрын
In the trial it's for 3 months so far.
@stillwalker Жыл бұрын
Super informative, reassuring for prospective study participants and helpful!
@washeyermann71782 жыл бұрын
『p』『r』『o』『m』『o』『s』『m』 ❣️
@annedebretagne71542 жыл бұрын
Thank you to all participants for putting into words what is so hard to even get my head round! Primary school former teacher, now teaching assistant for children with complex needs, on long-term sick leave, 11 months into Long Covid and facing probable ill-health retirement proceedings in a few months, having applied for PIP and waiting to start 'treatment' with Long Covid clinic I have been referred to... It's a lot to take in!
@Itsnotsafeandeffective2 жыл бұрын
The biggest problem is employer denial Government gas lighting/nhs gas lighting. I worked on front line on infected wards with infected patients. and only going to work in own car in lock down groceries delivered by asda. There were several individuals that presented with covid at the time I was infected. We routinely took swabs from patients and I contracted virus from patients. In that area. Bluepaper surgical masks when your working with stroke patients is limited protection. You are up close and personal if you can smell the patient halitosis they can smell your coffee breath. Only when patients were confirmed covid +VE Then ffp3 masks were advised. Too late you caught virus giving nebs swabbing patient ng feeds/meds doing up close and personal care. Patients were +VE before their swabs came back +ve. Two days later off work for 18 month plus. still not right and about to fall off financial cliff. Thankfully Ive paid mortgage off.
@kim.in.nature.2 жыл бұрын
Thank you for sharing your knowledge. I have tried everything. I used to work in the vitamin / supplement industry, so I tired that protocol first. Not much improvement. i tried the antihistamine route, even got an Rx for cromolyn sodium, no improvement. I have tried aspirin along with high doses of fish oil to thin the blood, no improvement. Stopped all alcohol 7/2020. Always eaten mostly organic. Zero junk food. No improvement. I got covid in 3/2020 so I have had plenty of time 'experimenting". I was working full time and having a great life. Now my bones ache from being in bed for so long every day. I give up.
@traiandanciu81392 жыл бұрын
After SARS COV2 infection at some patients erytrocyte aggregation like coin rolls (sludge)can be seen at relative low temperature at optic microscope. A dropp of perifereal fresh blood put on a surface of a cold glass lamela agglutinate before coagulate. May be that can trigger microclothing. Eritrocyte aggregation at relative low temperature can , theoreticaly,induce increasing of blood viscousity. May be Dextran40 , N-acetylcysteine ,and avoiding drugs that decrease body temperature are a solution at the begining.
@SupremeODMG2 жыл бұрын
Nac is OK for clotting? I need more...
@traiandanciu81392 жыл бұрын
@@SupremeODMG not for clothing, only to decrease blood viscousity and enhance capillary blood flow. To decrease rysk of arterial blood cloth acetylsalicilic acid(aspirin)was used at very low dose(50mg/dayly) and dipiridamol -especialy against arterial cloth.(decrease plattelets activity) Against vein cloth other anticoagulants are used.(IT decrease blood coagulation)
@charlottes.12652 жыл бұрын
Why are you not communicating the risk of the triple therapy - it is well quantified in papers from its use for other conditions, e.g. stroke? These statistics are what you off setting the risks of not treating against. How will it materialise over time......in 10 years when the long term damage of neurotoxins, low ATP, structural brain changes and all the other things, become know? I'm pleased to hear about further studies - are you buying the kit for fluorescent microscopy for your research ?
@SupremeODMG2 жыл бұрын
It is interesting. I'm waiting to read myself when more data shows but I'm not sure how much I'm messing myself up waiting as well.
@jvjv84842 жыл бұрын
Very nice. Quick question. So an MD holder shoud apply 4 year course data science or can he just enroll a Masters program for data science? Thanks.
@doctorasdatascientistucl1422 жыл бұрын
We offer several MSc programmes in the Institute of Health Informatics at UCL. Please see: www.ucl.ac.uk/health-informatics/study for more information. Thanks!
@dianaw12422 жыл бұрын
I'm sure that this discussion is very important to many people but not everyone has 20 minutes to spare to watch it. Please could there be a transcript, which would be much faster to read than watching the video.
@doctorasdatascientistucl1422 жыл бұрын
Hi Diana, the transcript should be available. Click on the More Options (three dots below the video) Select the Open Transcript option from the drop-down menu and it should appear.
@dianaw12422 жыл бұрын
@@doctorasdatascientistucl142 Thanks. I can't see a date for this discussion but the internal comments suggest that it took place before January 2022.
@powertothepeople38322 жыл бұрын
Aspirin is so clear cut for long covid, and it is a very benign chemical.
@stanleysteamer32122 жыл бұрын
Imagine if are countries put the same amount of money into healing as the do into building bombs and starting wars..and gain of function research
@benedictnichols15393 жыл бұрын
Thank you for this!
@lukasvandersteen98723 жыл бұрын
Thank you for the discussion. I note that antiplatelets and anticoagulants have been trialed separately at UCL, but I think the rationale from prof Pertorius is quite clear that they should be taken together, possibly explaining the mixed results at UCL so far. Regarding the risks, I understand them but under careful medical supervision this shouldn't be an issue. It may be unusual to use the triple stack approach, but we are dealing with an unusual disease. We must realise what the impact of doing nothing is. Patients cannot wait another 1 or 2 years for treatment. Every month, every week, every day counts. Further, I think everyone agrees that microclots are not the full picture. Autoantibodies, mast cells, and others are also possibly at play. It is however most likely that all these are working together in some way. It will take years before we fully understand what's going on (if at all) and I think it is clear that identifying and treating microclots in patients are the best be have at the moment. I'd like to hear/understand what UCL is doing in terms of looking for microclots in patients with light microscopes - following the Pretorius protocol. This is very hard to get done at the moment, unless you have connections at research labs (which some have successfully done). If we can show they are there, that is half of the puzzle. It will also help understand which patients will benefit from this treatment. It is really encouraging that you are working outside of the protocols and trying get us the treatment we need - and being so open about it. I'd like to see a bit more of this proactive approach to treatment in the UK - listening to patients, balancing risks and benefits.
@siobhanchristine-bligh1833 жыл бұрын
This has given me SO much hope - thank you to all involved. God I hope we can roll out a treatment protocol to the many of us who have suffered so much