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@darlenepowell5948 6 күн бұрын
I cant understand your accent!
@LivedHealthParks 6 күн бұрын
Subtitles are available on all the videos. Click on the icon that looks like s box with dots and dashes in it. Sometimes these are auto-generated and have a few mistakes but they should be good enough for you to understand what is being discussed. Hope that helps!
@adamali813 10 күн бұрын
FMT into the Transverse colon only will cure it. Google fecal matter transplant.
@Daft_Ideas 18 күн бұрын
Hope my CUE2 comes soon...been signed up for months! My friend Terry has one and swears by it...he's even in Charco's videos...somewhere!
@brianlowe77 24 күн бұрын
Brilliant and informative as always!
@elizabetholiviaclark 25 күн бұрын
Welp, that explains the small drool problem I've developed. I wasn't even sure it was a symptom, but I began to suspect. Man, this disease is just a hoot and a howl.
@sessionmediaa 25 күн бұрын
Another fantastic video. Really informative! Thank you for keeping up these videos Jodie.
@mansionworlds2556 25 күн бұрын
I'll date ya
@MDMB53 28 күн бұрын
Very helpful video, demonstrating clearly how Parkinson's symptoms are unique to every individual patient.
@LivedHealthParks 28 күн бұрын
Thank you. It’s great to know people find these videos helpful. If you haven’t already, take a look at some of our other videos. I try to cover a range of topics- suggestions for future videos welcome! Thanks Jodie
@Morese56 Ай бұрын
Eat carnivore.
@Morese56 Ай бұрын
Say no to drugs that over time will not continue to work. And what are the side effects?
@LivedHealthParks Ай бұрын
In the case of Parkinson's, I completely disagree with this. Dopaminergic drugs have given me about 10 years of my life back with minimal side effects. When I have off medication periods I realise what life would be like without the drugs - difficult and miserable. Sure, they may not last forever but like many people I have responded well and they have vastly improved my quality of life for many years. I totally understand the instinct not to rely on medication, but I'm glad I got over that some time ago... Jodie
@user-xc5es2ut7t Ай бұрын
Jaw Tremor, nightmares......it went down hill from there.
@billstac9162 Ай бұрын
I now have tremors all left side pretty well all the time. Really hard to do physical meets with anyone. Doctor etc.
@elissa8441 Ай бұрын
Great video! So young for a PD diagnosis 🧡
@shaynadavidovhansonrealtor Ай бұрын
How do they know it’s Parkinson’s Vs Dementia w Lewy Bodies?
@shaynadavidovhansonrealtor Ай бұрын
Have you heard of Aminopyridine? A Naturopath said they have some success w this.. I am at my wit’s end w C/L - as it’s causing hallucinations and severe constipation w my HWP… Having a really tough time w HWP and not sure what to do.. The dilemna is: On C/L they get horrific REM disorder dreams/ Nightmares/ Paranoia- and even called 911 in middle of night saying there was truck coming through apartment. They have off C/L for a few days- and these horrible active nightmares where they sleepwalks have subsided.. HOWEVER, it seems like the Dopamine or missing C/L now they have less motivation to get themselves off bed, to physically walk themselves to the bathroom; constantly asking me to help pull them up, I am having more now to dress, put diapers on them ( as they also are having frequent urination) and had last few nights where they don’t know where bathroom is and we’ve traded the vivid nightmares w C/L for lack of motivation / w short term memory issues- and they aren’t having “the get up and go” as much to do daily tasks… Any thoughts? THANK YOU AND SENDING STRENGTH AND LOVE TO ALL OF YOU IN THIS BATTLE 🙏🏽🙏🏽🙏🏽🙏🏽
@SDWP Ай бұрын
Love the jokes! I think it's great to lighten things up and be able to laugh at ourselves. In a round about way, you're helping people to understand/recognize Parkinson's through your comedy. Hope to see some updated videos on your YT page.
@Llilllneek Ай бұрын
Good on ya mate ! Wishing you all the best in your future gigs. From a fellow shaky parky.
@malcolmdouglas5476 Ай бұрын
Superb. Very enjoyable.
@Lion-pu4vm 2 ай бұрын
The jar opener would be more helpful to someone with arthritis, with Parkinson’s it would be very difficult to even position the jar opener on the jar correctly.
@LivedHealthParks 2 ай бұрын
I would say it depends on how severe your tremor is. Many people with Parkinson's, myself included, have no or mild tremor, but have stiff hands and find opening lids and bottle tops very difficult. But I agree it might not work for everyone with PD. Thanks, Jodie
@uquantum 2 ай бұрын
Terrific content and well-presented!
@symbyxbiome 2 ай бұрын
Hi Team, we love your channel ! If you ever want to discuss light therapy for parkinson's, we would love to do something with you. You might have missed us at the WPC2023 in Barcelona last year, but our devices are CE and ARTG listed reduction of Parkinson's symptoms (motor and non motor). We have already completed clinical trials, and have another three currently underway.
@jennd6590 2 ай бұрын
Was just watching out of interest, my alteimers symptoms first showed after pregnancy but took many years and now I have joint pain etc. So many doctors dismiss that pregnancy can bring the first symptoms, even suggest more kids have the longevity increases. Will switch to woman doctor for albeit sympathy on how scary it is and my diet may only help albeit to live to see my grandkids
@Dr.Ovie1 Ай бұрын
For your parkinson's healing send me a DM
@sessionmediaa 2 ай бұрын
Absolutely fantastic video! Great to see how technology is developing. I've seen a few wearables now for PD and i'm really excited to see them become more refined in the future! Well done Jodie for getting out and delivering these videos!
@themikeshow 2 ай бұрын
Is it a sign of Parkinson's that music playing while I am trying to listen to people talking, like in this video, is irritating?
@LivedHealthParks 2 ай бұрын
Sorry to hear that you find the background music distracting. We try to make the videos engaging, but we'll bear your comment in mind for the future. Thanks, Jodie.
@user-ff8vo1se8v Ай бұрын
I agree, music is distracting. Why do people chose music in background?
@Sten111 2 ай бұрын
People should be cautious about ascribing a condition to Parkinsons....there is a lot of misdiagnosis as well as underdiagnosis.
@LivedHealthParks 2 ай бұрын
Indeed, one of the problems is that PD is currently diagnosed based on clinical symptoms like muscle rigidity, slowness of movement and tremor, but these vary a lot between people with PD, and it's easy to confuse PD with other movement disorders. The new SAA test should help provide a more objective diagnosis - see our video on the topic: kzbin.info/www/bejne/mHaTdomJd72bfassi=d-TJzulC0LxPqoWw
@erichouck9487 2 ай бұрын
my first symptom was the loss of my sense of smell, about 10-12 years before any termers started
@katmouse9974 2 ай бұрын
Me too. Even had a CT Scan of my sinuses to look for an infection which turned out negative.
@LivedHealthParks 2 ай бұрын
Loss of sense of smell is a common early indicator of PD, but I haven't heard of this happening so long before diagnosis. Thank you for sharing.
@erichouck9487 2 ай бұрын
@@LivedHealthParks I believe that is because I am an ultra endurance athlete, I was running 50- 100 mile races. I do believe that being that active held the PD at bay. In January of 2020 I was diagnosed with a rear form of bone/blood cancer. Well the meds they started me on knocked me down so hard that I couldn't do anything. After 6 months they changed my meds. It was shortly after that is when the termers started in my left hand.
@masudahmed6029 2 ай бұрын
Hi jodie. Thanks for the information. I just wanted to ask would you go for dbs maybe later on? Do you know if Michael j fox or muhammad ali (rip) had dbs?
@LivedHealthParks 2 ай бұрын
Hi, I have several friends who've had DBS with good results, including Jon (check out the video here: kzbin.info/www/bejne/npjQZnSiftCAeqssi=MAf6TJUhwvIaoS60) so it's certainly a possibility. Michael J Fox had a different surgical procedure before DBS was widely available, a thalamotomy, which seems to have been pretty successful. Thanks, Jodie
@masudahmed6029 2 ай бұрын
@LivedHealthParks that's awesome. Thanks for the reply.
@jessa2542 2 ай бұрын
My husband only eats once a day because any kind of food interacts with the levodopa. But in all honesty, it seems like in the Parkinson's forums that levadopa is pretty sensitive to foods, drinks and other medications. Seems like it's a hit or miss for everybody. In regards of timing and when to eat. If anybody else was curious about others experiences with levodopa and Parkinson's
@LivedHealthParks 2 ай бұрын
Hi. Everyone's experience is different. Many people, myself included, respond well to levodopa, though I do notice it takes effect more quickly on an empty stomach. Many people also say that eating dairy interferes with levodopa uptake. It also takes a few months for the body to settle down when you first start taking any sort of dopaminergic drugs. My suggestion is to keep trying different foods and eating patterns to see if you can find something that works... good luck. Jodie
@sessionmediaa 3 ай бұрын
Fabulously informative video as always! I'm so glad these are being made! Well done Jody! Keep it up.
@mbkimber 3 ай бұрын
Listening from Australia and I really appreciate the podcasts
@chippy7745 3 ай бұрын
I think we are closer than 30 yrs away from a cure. My gosh, that’s very long. Let’s hope that gene editing can help edit this out of the DNA chain either before birth or after. We have got to get more attention on getting Parkinson’s cured! Alzheimer’s gets alot more attention for some reason and it’s not fair! Parkinson’s is impossible to live with…very hard on patient and spouse, family, etc… so hard to live a normal life. God bless the patients.
@LivedHealthParks 3 ай бұрын
I hope you're right but my personal view is we're still some way from properly understanding the disease and completely preventing or curing it. But there will likely be a lot of progress in the meantime. Firstly I think it is likely that some drugs will be approved in the next 10 years that slow the progression of the disease for some people. Secondly I think cell replacement will become a viable option in the next 10-20 years. Thirdly I think we will start to find therapies for genetic forms of PD (which account for 10-20% of cases) in the next 10-20 years. Maybe there will be a major breakthrough soon but the reality today is that Parkinson's was first described over 200 years ago and don't yet have a therapy that actually slows or stops the its progression, only ways of treating the symptoms. Fingers crossed that 30 years turns out to be overly pessimistic! Jodie
@ascenjoe 3 ай бұрын
Are you suggesting that the results could continue to improve after 5 years? And possibly last for 29 or more years? Thank you very much!
@LivedHealthParks 3 ай бұрын
My understanding is that the original cell transplantation experiments done as far back as the 1980s using foetal nerve tissue restored dopamine production in some patients for 15-18 years. See for example www.cell.com/fulltext/S2211-1247(14)00419-7. After some years, the transplanted cells also develop signs of Parkinson's but they are still able to restore motor function for a period of time that is significantly beneficial for patients. The challenge now is to achieve the same thing with stem cells and turn this into a reliable mainstream therapy. I personally think this has a good chance of becoming a reality. Jodie.
@ascenjoe 3 ай бұрын
@@LivedHealthParks thank you!
@annepaulinedl9038 3 ай бұрын
Hello, Would like to ask if Madopar can be taken 15minutes before and 15minutes after the prescribed time? Thanks.
@LivedHealthParks 3 ай бұрын
Everyone is different and it's worth experimenting to find what works best for you but, yes, some people (myself included) vary the time they take Madopar each day without any problem. It's also worth bearing in mind that the drug will take longer to have an effect if taken after eating.
@Don-io6cr 3 ай бұрын
I can’t find the name of the app or where to get it.
@LivedHealthParks 3 ай бұрын
The app is called "Parkinson's ON" and you can find it in the app store by searching for that name. I hope you find it useful.
@bluecube7247 3 ай бұрын
A small constant shake of my eyes... later it was my whole head.... other people noticed these,i did not.
@user-xc5es2ut7t Ай бұрын
I head shake in Parkinsons is EXCEEDINGLY RARE!
@bluecube7247 3 ай бұрын
15 YEARS I'VE BEEN ASKING VETERANS ADMINISTRATION DOCTORS WHY AFTER COMBAT I CAN'T DO THE FINGER TO THUMB THING yet i still work with my hands!? 15 YEARS!!!! NO ANSWER... thank you for sharing your story... it was the missing passage in mine.
@bluecube7247 3 ай бұрын
I had a dead sinking leg in the pool... swam daily for years.... then my left leg would just drag me down and start sinking when swimming.
@manjeetroxana 4 ай бұрын
Sir, Should a Pakinson patient travel by plane?
@LivedHealthParks 4 ай бұрын
Flying with Parkinson's can be difficult depending on how far progressed you are, but there are a few things you can do to make it easier: 1. Most airlines offer disability assistance where they will transport you through the airport and escort you onto the plane by wheelchair. This needs to be booked in advance. 2. Many airlines allow priority boarding for passengers who need extra time. In the UK you can wear a sunflower lanyard to let the staff know you have a hidden disability. If you go up to the desk before boarding starts they will normally let you on first. 3. Try to time your medication appropriately, e.g. take levodopa about 30 minutes before boarding starts and before landing, so that you are more mobile at these times. So, yes, I would say keep travelling by plane if you want to. Jodie
@JasonHill5371 4 ай бұрын
I am waiting on an appointment at the Walton already have a dnet brain tumour, but if your left arm stops swinging when walking is this a sign I could have early parkinsons I am 53 and tried the pinch test and although I don't go slower I go smaller straight away I can't go back to that starting point distance between finger and thumb. I see the neurologist on the 18th but from what I have read so far I am thinking it's likely. I have an occasional small tremor which I notice when holding my phone or holding a spoon. I ask really because the lack of arm swing does seem a strong indicator from what I have read. Haven't got long to wait now so at least maybe able to get the help. Thanks for the work you do.
@LivedHealthParks 4 ай бұрын
Hi, your symptoms are certainly consistent with Parkinson’s but obviously it’s best to get a view from a specialist. Fortunately, a diagnosis of PD doesn’t mean your life is over as you can see from our channel. Good luck! Jodie
@SpeedRacer24X 4 ай бұрын
What a great video and app created by a fellow PwP to meet our needs. I went to the Apple App Store to get it and nearly dropped my iPhone whem I saw the price at $99.99! Why so much money when there are free apps out there?
@LivedHealthParks 4 ай бұрын
Strange, it was free for me to download in the UK and Kuhan tells me it's free in other countries. Are you sure it was the right app, i.e. Parkinson's ON? Thanks!
@SpeedRacer24X 4 ай бұрын
@@LivedHealthParks Oops, I guess my PD fingers got confused. I found it at the App Store and it's free as you said. Thanks for your help with this!
@Ann-sf6od 4 ай бұрын
Do trials involving stem cells appear to indicate a reversal of some symptpms or merely slowed progression?
@LivedHealthParks 4 ай бұрын
Yes, by replacing some of the lost dopaminergic cells, motor symptoms have been significantly improved in some patients. The disease itself is still present and the transplanted cells also start to show signs of Parkinson's but because the disease progresses slowly this doesn't matter so much.
@meshapious1597 4 ай бұрын
Nicotine is not addictive, however, what they mixed in with it Pyrazine is !!!... After tobacco the next highest nicotine content plant is the egg plant !!! (Is the egg plant addictive !)... It's the nicotine that helps the Parkinson's disease sufferers !!!...
@GoProGoalieUzi 4 ай бұрын
Oh man, I haven’t taken vacation with my wife for many years now after being diagnosed with Parkinson’s. It’s our 20th year anniversary in March. We use to go to Mexico every year. Now, I don’t know if I can handle it. 25 sinimet per day..
@FloridaGardeningdiva 4 ай бұрын
I'm 40 and one day, my right leg felt like I was walking in quick sand. I had just had heart surgery so my PCP brushed it off until a year later
@barbmullen9923 4 ай бұрын
See Johnathan sackler bernstaeins piece on no silver bullet.
@LivedHealthParks 4 ай бұрын
Thanks for your comment. This is indeed an interesting hypothesis (kzbin.info/www/bejne/oWiTZIaeocyentk) and in general the No Silver Bullet KZbin channel is excellent. However, as I understand it, Dr Sackner-Berstein's theory has not yet been proven and remains one of many theories about the pathology of Parkinson's. It is also possible that the toxicity of cytosolic dopamine is just one piece of the jigsaw. Even if Metyrosine is shown to slow the progression of Parkinson's I think there is still a long way to go to fully understand the biochemistry underlying Parkinson's and to actually develop a cure. Jodie.
@CoffeeStop101 5 ай бұрын
I absolutely love the questions you ask in this video Jodie and really looking forward to the episode of movers and shakers.
@paulwlash6882 5 ай бұрын
and buntanetap in phase 3
@Fip999 5 ай бұрын
Couldnt sign my signature at the bank
@billstac9162 Ай бұрын
Very hard time controlling the computer keyboard
@keithclatworthy6480 5 ай бұрын
Wonderful podcast, I look forward eagerly to every episode, I can't overstate the good it does for me and the extended Parky community. Keep up the excellent work.
@LivedHealthParks 5 ай бұрын
Yes, I too am a big fan of the Movers and Shakers podcast and they have a series 3 and series 4 on the way. For this KZbin channel I recorded a second conversation with Rory and Nick - coming soon!
@shahmohammad888 5 ай бұрын
It is unfortunate that I am from a country having PD since 2014 where hardly 1% people heard about or know a little about the disease. There are many Neurologists, but I could not find any movement disorder specialist. My condition deteriorated even visiting three senior Neurologists. Finally, I went to another country (Thailand) and fortunate to get a good Doctor who is really a Movement disorder specialist trained in USA. Things started improving from that point and I have been under the same Doctor for last eight years. Can I join the Congress 2024? (Just fyi, I am going to US in April 2024. Regards, Shah Murshid
@LivedHealthParks 5 ай бұрын
Glad to hear you are now getting the right treatment. Yes, the World Parkinson Congress is open to anyone with PD. They haven't announced the date for the next one yet so keep an eye on their website: www.worldpdcoalition.org/
@annb5610 5 ай бұрын
No symptoms until I got vaxxed and 1 week later I couldn't use that arm.
@user-bp1mz1bl2l 3 ай бұрын
Same for me
@WW-sw8ls Ай бұрын
the vax is working! it was safe and effective
@nathankaye1577 11 күн бұрын
Sorry to hear that. I'm Unvaxxed and still got Parkinsons at 46. My work have been amazing with helping me.