9 years on lol how did you go with your results in the end? Did they find anything ?

What If Its turns off while its in you

you're adorable!!

Weird question but... are you still alive? I hope you're okay.

Love the shoes so individual, bit high for me

Love their beautiful print jersey dresses,I have that oriental one you spoke about first.

I'm so nervous I have one on Thursday! Any advice??

I got one on me

The POTS medication Pyridostigmine is currently being studied to treat ME/CFS and exercise intolerance. Have they tried that one with you yet? It's been extremely helpful at managing my POTS, and also addresses my digestive issues. My POTS and other health issues are caused by hypermobile type Ehlers Danlos syndrome.

Voir , sur KZbin , le très bon reportage allemand de ARTE sur l EM/SFC ( Encéphalomyélite Myalgique / Syndrome de Fatigue Chronique ). Il est traduit en anglais.

Hi Emily! This has to be my very favourite and most helpful vlog I found and used for a very long time. 💖 And I would love to see more, especially since the corona lockdown. Your making a relevant vlog would be most helpful. I hope you get to read this and respond. Stay safe, dear. And thank you again for helping us through these difficult times🌈

i had this in june as well as a blood pressure monitor but my cardiologist never got given the results / readings 🤦🏽‍♀️

I just had one of these done for the same reason I've also got a echo scan next week, thank you for making this, I also vlogged my experience.

Are you still on midodrine? I am in the same boat as you with your Illnesses and now have been put on midodrine....it helps.... Alittle... But not a cure. Are you doing Any better these days?

Just found this video whilst looking for exercise for PoTS videos! Would you be able to let me know of a channel(s) for pilates and yoga? I am a bit worried that they will be too intense for me as I also have ME and PoTS. Thanks :) x

you really beautiful

Thank you for sharing. I also have chronic illness most of my time is on monitoring my health..

Hi! I'm getting one next week, did it give you any answers of what was wrong?

I’m currently on fludrocortisone, midodrine, and propranolol. I heard that midodrine does cause a weird itchy feeling on the scalp but I just started these medications I hope they’ll help me. And help you out too.

How did you get referred to the cardiologist? Is it the one in Southampton? I have ME & find standing still the most exhausting of all.

There you are! Pleasure to meet you today and to be part of the maiden train trip. Enjoy the rugby, keep smiling, and keep doing what you’re doing. Inspirational.

Great that you donated it! I'm going to do the same. I did notice that it's a bit difficult to hear the audio. Maybe you can be closet to the mic somehow?

I’ve been stuck in bed with my M.E. and having a hard time but this made my day a lot better :) thank you! you’re doing a world of good 🥰❤️

Clonidine helped my PoTS significantly. I went from 140+ bpm standing (from 60) to 90 or so. Also eliminated 98% of dizziness. Later I started low dose naltrexone, and my excercise tolerance went up, not a lot, but enough not to be depressed about life. I found recovery from exertion was reduced from 2 weeks to about 5 days, with far less pain.

After taking midodrine dd the fatigue go away?

This is a great video of #MillionsMissing in Southampton. I'm sorry you couldn't make it this. We'll cross our fingers you can come along next year.

I have to have one of these the 29th of the month as my heart rate is always over 100bpm

I can see you, Emily. Hang on in there. And I love your hair x

God bless you

I'm having a 24 hr ecg monitor fitted for palpitations and tachycardia. Heart conditiond like svt run in my family so doctor wanted to rule out any heart problems I also have to have a blood test to see if I have anaemia or thyroid problems:(

You look so very cute with short Hair

I was amazed when we discovered our older dog could jump clear over our wall with no effort 😆

Awwww bless! 😂

I saw your comment on boogies video. Hope my sub does something and you'll reach 1k faster. And I'm so sorry to hear about your illness. As a smaller creator myself I know how frustrating it is. And you deserve to be monetized. Love xoxo

Hey there, Have had this for 25 years and something that has helped recently to help my energy was Malic Acid (Ultra ATP+, Double Strength by ProHealth - 1200 mg, 180 tablets)I have been through hell on Earth over my time and I understand your problems. This is just one of the many things that may help you so I offer it as advice and I hold no stake in this product as I can't stand people that try to sell you 'snake oil' for CFS as I must have spent a fortune in my time.Get a good probiotic for your stomach as well, cut out alcohol if you can still handle it, eat good food, cut down on sugar, rest...rest he says yeah like dead on the bed for 18 hours a day at one time!Don't blame yourself or feel guilt and don't try to exercise this awful disorder out of you, I tried and it made me 100 times sicker.I have been to every specialist at one time and going back to the mid 1990's you can imagine the shit I have taken, friends I have lost and life that has disappeared from me. Just take care and much love all

I have ME and POTS too and am also trialling Midodrine. The tingling is such a weird sensation! Can I ask where you got the pedals from? Exercise lying down is something I want to try but I definitely don't have room for a full size recumbent bike in the house! Great video! :)

Wow i love your new haircut, you are so beautiful and one of the prettiest i have seen xxxxxx

You look awesome try going shorter in your next haircut short hair suites u

Your hair looks fabulous. You look great with it short.

Its soo much cuter short but you didn't show us the back or sides?

beautiful Emily with short hair

Suits you really well Emily! Should be a bit easier to manage too.

Looking so awesome with short hair. You should keep it short. Is that a flower shirt or dress you have on.

Beautiful

aww what a lovely thing to do, short hair suits you loads you look so pretty! :D <3 hope you are keeping well!

Wow you look amazing! I donated my hair to the same charity just over a year ago 😊 Good on you! In a way, drastic hair changes often feel like a fresh start which can be a great pick me up 😊

So good to hear that a medication might finally be working for you! Well done on getting your exercises up, i do small dog walks if i have the energy :) it's looking very positive for you girl which is excellent! :D

Nice video and Fender Jaguar 👍

Hi! Just got diagnosed with ME/POTS. Unfortunately, here in France, there is only one expert in this. Many doctors attribute all of my symptoms to anxiety/depression. Which is a nonesense as I've been trying to explain them, my heartbeat goes up to 160 when standing. I'm in the first phase of the illness, each week the symptoms get worse and I am getting more and more tired. Nonetheless, I have started a proper diet and some natural remedies. I'm trying to stay positive. Thank you for your videos, it really helps a lot to see that you are not alone in this.

This is a great video, thank you x