I have diabetes and take Metformin do you think it masks my MS benign

Thanks all for the work and commitment you put into the MS register (ppms) so no meds ever for this disease hopefully one day that won’t be the case but it is nice to know that the fight for knowledge continues

Thank you

❣️ Promo`SM

A really interesting set of talks. I'm an active participant in the register and love how it helps me track the progression of my MS. I would encourage anyone to sign up to the trials but don't be disheartened if you don't fit it get deselected. For the trials to work they have to be managed within specific boundaries. We will all benefit from the outcomes. Great to have Jacqueline's thoughts as well.

Given that the world 'epicentre' for MS is Aberdeen, I can't help but wonder why there is no participating centre here. The many MANY people in this area who could, and would love to, contribute to research can't travel hundreds of miles to Edinburgh or Glasgow (financial as well as health/disability constraints), it's such a shame we're not able to participate.

Placebo controls with the progressive forms of this disease seems pointless, and in my opinion, cruel. It's been done in every study to date. No one (to my knowledge) has EVER got spontaneously better. Use the placebo results from previous studies and don't waste patient's time. It may be standard practice to do placebos but to use the apocryphal Einstein quote "Insanity is doing the same thing over and ever and expecting different results." Prediction: The placebo group will show no improvement Prediction 2: Future trials will keep on wasting the time of half of the participants because that's the way it's always been done. And yet still call the trial 'innovative'

Ye easy to register but no luck for me to enter star or octopus i register they said i am too disabled and i can still walk with a trolley 😢just something is off this lady in end is in wheelchair then agter i had to stop Tysabri for couple of months in covid time was so hard to het mri and in the end they were worried i have jsr cos i have worsening of my condition I stayed without drug for 3 months then i had a new lesson but again from the trials they said no cos i was not on Tysabri when i had my last mri but I probably had my new lesson befor as I said in a 2 years i got a lot more worse especially last months anyway i am so disappointed from drs i was dx very late cos i was looking too good for drs to hive me mri scan they didn’t believe i have my leg after a walk like not woking with first dr ppms then next dr said rrms and i had two dmts and disablity progressing quickly

I was diagnosed with Primary Progressive MS 10 years ago & have been using myself as a guinea-pig, trialing things like Iodine, Methylene Blue, Clove Buds, Ginger, Garlic, Rosemary & Oregano oil, with some positive results. Eating healthier & exercise works wonders. When taking any medications it made me much worse. More natural things need investigating.

I haven't yet caught covid and hopefully I won't catch it. I am working from home 3 days per week and office 2 days. Towards the end of September, I will ask for occupational health review as I tend to get more symptoms when the weather gets colder. Currently not on disease modifying treatments but consultant is considering starting me soon on either obagio or another one. My struggles at the moment is mostly sleep and fatigue and weakness in my left leg. I try to keep up with exercises mostly running or walking Does anyone know which other 'strengthing' exercise that I can do please?

I feel lucky! I did catch covid, and only did 1 day feeling like I was dead 🤔 I only got the 1st one in Feb, because I was in hospital in time for my 2nd, and then when I came out, 27 days after, after being admitted on 16th April. I was discharged, and told I couldn't get another vaccine yet because I'm going on ocrevus 🤷‍♀️ only 6 weeks to go now 😁 yay! Hope everyone else is doing ok! Ps, if anyone is claiming ESA, they'll only do payments for 28 days of being in hospital. Thank god I was released early! 😂 x

Does the MS register have an Annual Report? Where does it get its funding? Does it pay its participants?

just spent 20-minutes trying to figure out how to put that I have had my covid jab but couldn't find it and gave up

Thanks for your support Ann Deakin WarwickUK

Since lockdown we aft my home Lychester House near Warwick have only been able to go into our garden.I used to go to church Sunday/Tuesday now only on line no trips out.Do online trips acuities. Use online tours around the world.Rick. Steve’s troops are good to sign up to.lots life sevises also online.Look for word to meeting up with friends soo. Farther flan oonline.

Already completed 👍😊

I have no difficulty in understanding this, I must do the questionnaire with my pc.

MS questions will keep you up to date with what's going on . These people who run this do a fantastic job, Thanks to all involved .

This Doctor is impossible to under stand written words Please . I'm from N. Ireland we speak differently.

Thanks for this, I am part of the MS register UK

07765951477 I'd rather talk .

The lack of response is depressing. I have PPMS and as such don't have a close Medical response as I'm not on DMT. So Nothing seems to apply to me. Do You have some advice for Me please.

Fill in all MS questionnaires that I find useful or MS Orgainisation for research Ann Deakin 2020

I am. Well a the. Present moment.Still get lied and get up most day though will haave @/2 dayX a week in bed to ensure I protect my bottom.All other aspects of my body are good. Have broken both legs 1980s and 1980 am in an electric Wheelchair.Go out on bus from from my Care Horne in Warwick.

I have never received letter to shield seems to have been very hit and miss. I am a nurse practitioner So have been in contact and contracted virus symptoms lasted 10 days I was very lucky. Still feel very scared as some people reswabbed and still positive after weeks, no guarantee won’t contract again.

I too am on DMT Fingolimod, and have been particularly vigilant with shielding for 12 weeks now, I'm lucky I can work from home, but business has been affected as so many have, and with my Husband's support have been keeping away from crowded places, general public etc, so it has worked, but would be good to know anyone has been affected by the coronavirus who is currently on a DMT and how their immune system dealt with the virus, only then can we be assured of the true risks, so for the meantime I will be keeping away from supermarkets and crowded places, to ensure my own survival!

If you think this all over you are totally deceiving yourself.Its a unknown virus

Hi Edward, Yasmine here 😊

Is there only two of us ? I been in isolation for 12 weeks bored out of my mind .

Good data, but it would be easier for me to read this just as slides or a pdf (not a video)

This is so reassuring. Stay safe MS Warriors!

I should like to create an account

When you first sign in you go to the page saying 'Let's make sense of MS', how do you get to the page you show? I can't find it following what would seem the obvious routes. The 'My MS' link takes me to my profile page.