UK MS Register Progressive MS Webinar 1/8/2023

[@trevormose9744]

A really interesting set of talks. I'm an active participant in the register and love how it helps me track the progression of my MS. I would encourage anyone to sign up to the trials but don't be disheartened if you don't fit it get deselected. For the trials to work they have to be managed within specific boundaries. We will all benefit from the outcomes. Great to have Jacqueline's thoughts as well.

[@funkb0x]

I was diagnosed with Primary Progressive MS 10 years ago & have been using myself as a guinea-pig, trialing things like Iodine, Methylene Blue, Clove Buds, Ginger, Garlic, Rosemary & Oregano oil, with some positive results. Eating healthier & exercise works wonders. When taking any medications it made me much worse. More natural things need investigating.

[@WatcherintheRye]

Given that the world 'epicentre' for MS is Aberdeen, I can't help but wonder why there is no participating centre here. The many MANY people in this area who could, and would love to, contribute to research can't travel hundreds of miles to Edinburgh or Glasgow (financial as well as health/disability constraints), it's such a shame we're not able to participate.