Curing mice is all well and good but a fimannis much different, Besides the neurological condition the muscle wastingneeds to be dealt wirh as someone who as had the condition which is left me disabled and bedridden a cure or more eggectibe treatment can improve my quality of life,

Et si cest dut a un.syndrome de stress post traumatique ?

Les pompier sont gentille 😊😊😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂❤❤❤❤et la voix c Nice 👌👌👌👌👌👌👌👌👌👌👌👌👌👌(pour les pompier c le 112 ou le 18)2 ème commentaire . Change de micro sinon très bien LOL (-)_(-)(ФωФ)(((ＵωＵ｀ *)(* ´ＵωＵ)))🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂🥲🥲🥲🥲🥲🤫🤫🤫🤫🤫🤫🤫🤫😜😜😜😛😛😛😛🤢🤢🤢🤢🤢🤢🤢🤢🤓🤓🤓🤓🤓🤓🤧🤧🤧🤧🤧🤧😕😕😡😡😡👽👽👽👽👽👽👽👽👽👽👽👽👽😈😈😈😈😈😈😈😈👿👿👿💀💀💀💀💀💀☠️☠️☠️☠️☠️☠️💩💩💩💩💩💩💩💩💩💩💩😽💩😽💩💩💩💩💩💩💩💩💩🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕

Que la magie soit avec vous! ;)

Is heavy weight lifting good or not for someone with this disease?

Excellente présentation! Je suis nutritionniste au soutien à domicile et fais régulièrement des évaluations dysphagie/ observation de repas à domicile. Nous avons à l’occasion des usagers atteints de dmop, ceci m’aidera grandement dans ma pratique. Merci

Dear brother and sister please pray for my healing and marriage as I'm long suffering from spinal muscular atrophy type 3 rare desease my name is Vinay I'm from India. Thank you 🙏🏻✝️

Thanks

I wish I could learn to edit. I'd like to show myself naked with privacy Shadows so people could see the extreme ravages of muscular dystrophy. I have bmd and doctor say it's the most extreme case of BMD they have ever seen. I can still walk but it should be impossible. My thigh muscles are completely detached from my knees. I shouldn't be able to lock my knees with each step.

I used to have enlarged calves and enlarged triceps untill I got gastroparesis. I spent so many hours sick and dehydrated that my body ate away my enlarged calves and triceps. My triceps actually had a lot of strength instead of weakness. But they were very easy to strain/cramp up if used too much.

I have Becker MD. It's the same as duchene's it just Progressive slower. My uncle and brother has DMD and i have BMD.

I'm dealing with this still today over a year and half later . Please tell me your suggestions for this !

Im in RJHS now when this video was made i was in grade 4

I know his sister !! 💗

Thank you so much.

Looking good Stef. You're a strong & courageous woman, I admire you ❣️

Merci pour votre travail

Merci de nous informer

Descobri que possuo este gene TNN, gostaria de mais informações para terapia!

I m patient muscular destrophy

There is a presentation on natural remedies for MD using pressed wood oils and certain plants. Can there be a collaborative work on this angle?

I have had Becker’s myotonia congenita from as early as 5 and now I’m 60 panic attacks trigger the myotonia and potassium I’m the only one in the family to have it it’s autosomal recessive clcn1 mutation

NICE

THKS

THKS

THKS

𝓅𝓇𝑜𝓂𝑜𝓈𝓂

more research on Heterozygous Missense mutations , distal myopathy

Merci atteinte familiale vous avez éclairci soulagé des anxiétés

Extremely well presented and informative. Easy to follow for someone who comes from a non-medical background. Thank you! (The newly diagnosed depression (Jan. 2018 on the timeline) broke my heart. I have a son around this age. Wishing the very best for this patient and their family.)

GCN

My gun is 10 not gun, machine error

My gun is 10, yet have swallowing problems, drooping one eye, one side of face, hearing loss, resp, hx pneumonia and sleep apnea. Problems with hips and ankles. I am of french Canadian descent. Can this be the cause?

Fascinating video! How can I get hold of someone from this research centre so speak to us here at MDF in South Africa? I wish this info was more widely distributed. After 30 years with MD I have not come across studies like this. Well done.

I am sick with muscular dystrophy and I want you to help me, thank you

I had mysthenia before shoul i do vaccine

Can anybody give an answer for whether a myesthenia gravis patient can take covid 19 vaccination??????

Thanks so much for this great info. I have FSHD.

Voir , sur KZbin, le très bon reportage allemand de ARTE d'une très bonne qualité scientifique et journalistique sur la maladie immunitaire et neurologique EM/SFC ( Encéphalomyélite Myalgique / Syndrome de Fatigue Chronique ) diffusé en juillet 2021. C est traduit en Français. L Encéphalomyélite Myalgique est une maladie du système immunitaire, grave , très invalidante, multi-systémique, orpheline. Elle est reconnue par l OMS depuis 1969 , codée G93.3 CIM 10 en 2021, caractérisée par son symptôme spécifique du Malaise Post Effort ( MPE ) . Merci pour votre intérêt et pour tout ce que vous entreprendrez pour faire sortir cette grave maladie de l ombre.

That is interesting, I have never heard of autism and myotonia being related. I have DM1 and both my little brother and I are both diagnosed with Asperger's.

Pour finir totalement et définitivement avec vos problèmes du VIH/SIDA, la Dystrophie, érectile et diabètes, l'anomie Contacter le Dr sur appel +22962062392(WhatsApp)

Pour finir totalement et définitivement avec vos problèmes du VIH/SIDA, la Dystrophie, érectile et diabètes, l'anomie Contacter le Dr sur appel +22962062392(WhatsApp)

Thanks for posting. Just found out from my dad he was diagnosed with this 3yrs ago. He is doing very well though. No changes since diagnosis.

Timetable 0:00 Introduction 2:39 1) What is FSHD? 11:54 2) What are symptoms/signs of FSHD? 13:23 3) How is FSHD diagnosed Prognosis? 16:10 4) What are treatment options? What about supportive treatments for FSHD? 18:14 5) What research is being done on FSHD in Canada? 36:58 Q&A

It was very useful as I expected.

Myasthenia gravis patient take corona vaccine sir

trop stylé la vidéo

Hi Alex, thank you for taking the time to tell your story. I'm curious to know how the graduation went, especially in our time of COVID. Congrats!

We got good improvement in muscular dystrophy patients cases for further information please contact me on WhatsApp 91 9322303271

♥️🥰♥️🥰