Thanks for taking us out sightseeing. Your vintage postcards are really cool 😎

Very nice travelogue Jamison ... Including the postcards is a great idea, really pulls the viewer into the narrative ... do you do your voice along with the video action, or do you do a voice over later ? ... excellent video, this one I could SO relate to, having lived in the city for a year, and having walked through many of the places you visited ... Bon Voyage mister!

This is funny cause I just attempted to try writing out a story idea I had. I will be surprised if I ever publish. If I do, it'll be years down the line, but it's nice to try to be creative, if not a bit frustrating with ME. I will be hanging onto any advice while sick. The phone thing is interesting to me because I had the same problem, but I didn't get past it and I can't write on a laptop due to some computer specific tics, so I actually got physical paper I keep by my bed. It's definitely worse physically, but better mentally, so I'm just trying to accept most of the time, this will be an extremely slow process if I keep up with it. I was actually inspired somewhat by hearing that Maeve's mom is I believe publishing some of her incomplete work even after she died. As bleak as that is, it made me realize it's possible to make an impact even if you never do finish a project or make it perfect, so it's probably better to just try something and see where it goes.

Gross

I just found out you have a KZbin channel (from you FB stories), very cool! It’s great to see you doing better. You were the first person I ever saw with ME from that shitty Netflix show years ago and this was before I got ME myself but I’ve been following you ever since. Your drive made me miss the Bay Area sunsets! I use to live in the East Bay but moved out to Asheville, NC 3 years ago because I felt I would heal better in nature and lo and behold, my intuition was correct and I’ve gotten a lot better out here and since moving out of mold. Went from bedbound for many years to only needing to use my scooter for longer walks! Brain retraining has helped too. Have you gotten into that at all?

Hey Jamison, are you still in a romantic relationship? It would be interesting to hear more about this in a future video and how you manage it. Keep up the good work!

I haven't had as many spoons to create and write as many thoughts the past few days, but I recently discovered your channel and I'm so hyped you're doing so much better! It's been so cool to see. Idk if you're taking suggestions, but I'd love to see more about everything you use to make things more accessible and less energy intensive. It's cool to see glimpses of some of that stuff in this vlog. Either way, it's great to see your stuff again!

So glad to finally find the swamp goblin representation that makes me feel less alone 🧌

I've experienced this phenomenon all of my life. Part is mold, part is SAD, and part is that many horrific traumas have taken place since childhood at this time of year. It's interesting to know about the other factors Jamison mentions. I have been crashing now for weeks and it's September 23rd, so it's no joke.

It's hands down Ragweed. Starts blooming mid September to mid November. The pollen travels across the entire continent and effects more than half the population. About 25 million in US get it really bad with full blown flu symptoms including fever for weeks. Here in Midwest, almost everyone I know has some symptoms. For healthy people, it's just annoyance but if have ME/CFS, it hits you hard. It's number 1 allergen in North America

But isn't October the warmest month in the Bay area?

The schedule disruptions of November and December do me in.

I’ve had a lot of friends that seem to be affected by the barometric pressure changes

This is so interesting I always used to get terrible headaches in October. Not so much anymore but never knew it was a thing. My CFS/fibro bounces around so much never really noticed that getting worse but I’ll be more aware now.

It's great to see you so much improved (even though I know there's still more to go!). I've had to take a step back from advocacy and focus on how to make my life sustainable. Focusing on this moment is the most helpful, except when I'm feeling terrible, I tell myself there will be better days ahead. Planning for the future is still very far out of reach but all we really have is today anyway right? One step at a time slow and steady. Xx

Watching you here in Lviv, Ukraine! 17 years of mecfs, definitely thinking about surviving this single day is paramount. I'm learning languages by watching lots of videos in that language, this brings me much joy and passes time.

👍

Jamison, thanks so much for this, and all of your videos. When I start to worry about my illnesses, I try to focus on things I enjoy. Genealogy, reading, writing (I’ve written some articles for The Mighty), and watching TV or KZbin videos. You’re right about not reading too many negative stories. I find that consuming too much social media makes me irritable and depressed. Of course, it’s all about the moderation and the content you choose.

I'm all caught up on your newer videos. I've really enjoyed seeing more about your day to day, but little side note, I have SUPER enjoyed seeing the Bay Area again. I moved away when I was 14, and basically haven't been back in 21years ( I can't believe we're old enough to say stuff like that). So thanks for all the views and narrating where you are. Keep 'em coming, I'm watching 😊 So glad you are feeling well enough to go on adventures!

I still have the t shirt you were selling years ago!

Like you, I developed ME/CFS in 2010. I used to describe my illness as debilitating - but after two crashes that left me substantially and permanently worse, I realised that I was in fact disabled. Unfortunately, govts and the medical profession here in Australia regard chronic illness and disability as two separate things - when in reality, they often cross over.

Thanks for taking us along on your journey, SF looks beautiful! Hope you didn't crash too badly afterwards!

This is so charming. Wonderful views. Thanks for sharing your gratitude ❤

I read your book a few years ago, and am so pleased that you've improved enough to do some things for yourself & take occasional trips. I'm impressed that you can hold up the shower rose. I can't (and can barely type this comment!) On the other hand, I can walk to the bathroom and stand long enough to brush my teeth as long as I don't already have PEM on board. How do you find the bed wedge? I like having my head elevated but find that my hips & glutes get really jammed so it's a tough one to solve!

Beautiful area

fabulous views, intrepidly great narration, inspiring story ... Yay!

Lovely trip! Glad your health allows for such escapes and your mother helps you so much with everything🤗 Also don’t let those Golden Bridge haters get to you 😆

epic . Jamison-

Was keen to hear what you had to say but ouch, those whip cracking noises you inserted between points send my nervous system nuts ... Way to triggering for someone sound sensitive. Thanks anyway

I can relate so much to what you say Jamison even though I’d say I’m in the moderate category. At 71 it seems I can’t do as much before consequences come, and then they are worse, so guess I and likely others, as we age, need to recalibrate our pacing.

Thanks for sharing! It's amazing to see how far you have come! I saw you in some documentaries some time back and I read your book when it was released which shocked me to my core! You so vividly described what life is life for someone who is bed-bound, it was a real eye-opener and sounded like such a brutal experience. So it is nice to see you mobile and more functional. I would love to see a video on how you lost so much weight! Ive been housebound for almost 4.5 years now (ME/CFS and POTS from Long Covid) and have been really struggling with weight gain. I was slim before I got sick so it is hard to see myself in the mirror now. Keep posting! It is interesting to see someone else's life with this illness!

Good to see you feeling better enough to start this channel! Also, I like your attitude!

Great video and great growth! For a while I was only getting about 40-50 subscribers per week on my channel so 72 is awesome.

Good to see how you have improved, how long can you sit up right in the scooter?

Great video! Thanks for sharing. It's always interesting to me to see how people pace differently. Keep up the good fight! And I'm looking forward to more videos on this channel.

Your Instagram link is broken on your main KZbin page

Great tour of your daily life, it showed me the nitty-gritty of your daily existence, I apologize for all the emails cheerleading the desire for your increased ability to walk ... I still hold out that hope as your incremental progress continues ... your are an Intrepid Dude, dude ... keep it rolling son ...

What an amazing view of the sunset!! squirrel is such a good dog name btw :) ! I’m amazed that you find the scooter better to maneuver indoors compared to the folding power chair. I’m so happy to see how far you’ve come since being at your sickest.

Great video! And a very nice looking bathroom.

Loved seeing this (especially the very sexy parts) Thanks for sharing 😊

Who cares if it sucks right as long as you can get some benefit from them. I know how you feel bro . I've had ME CFS for nearly 10 years . In the last 14 months I've had some sort of a break through with the "lion diet" . The depression has lifted and I am more motivated . Still get P.E.M. but it is short and shallow and I don't end up in bed. Fatty BEEF or lamb with salt and water can be very boring but it has given me HOPE that I can recover now .

Thank you for your openness and encouragement. Self-acceptance has been the hardest part for me.

Oh I am SO glad I received your email with the link to this vid! Thank you for being so open about your journey…made me go back and consider how it was for me at the beginning of my own journey with fibromyalgia & CFS 33 yrs ago. Like you I was at the pinnacle of my strength and had no problem as a single Mom keeping up with my jr high daughter while running my own business. A minor rear-end car accident changed my life completely…woke up in the morning as a healthy 40 yr old and by bedtime I felt like an unhealthy 90 yr old! In the first few years of learning to live with chronic pain I fought hard to “get back to normal” while sadly focusing on all the things I’d lost…a very natural reaction. My breakthrough came when I finally stopped fighting against the illnesses and tried walking alongside them. No miraculous healing took place but I wasn’t so overwhelmed by my new life and actually caused me to spend more time focused on what I still could do. It sounds like you’ve had a similar experience and I hope maybe someone reading my comment will be encouraged not to give up. I’m now a new subscriber to your channel and look forward to your future posts. 👍👍👍🥰🥰👍👍👍

I think it depends on your ability to work, travel and such. If you can live more or less a “normal” life than it’s not a disability because you are not disabled. But then there’s the question, what does it mean to be disabled? :-)

great to see you up and speaking. proud of you for all you have endured and embraced on this difficult journey. I looking forward to watching more of your videos. I have ME/CFS and I crashed and became severely ill during the peak of my health and fitness journey at the gym.. I kept telling my trainer something was wrong.. I started seeking doctors. progressively got worse and never went back to the gym. I think I have a cocktail of things going on with me with mold in there..long covid etc but I have severe PEM and it's changed every aspect of my life. with periods of bed ridden these last couple years.. I've had to do some serious reflecting. most difficult thing I've experienced in my life.. family gaslit me pretty much deserted me, but found solid relationships elsewhere and through the illness community. so far LDN is what's helped me the most and I am grateful for that. but I still have this condition. It's been difficult to talk about it because I feel I did something wrong to get sick and my 'loved ones' implied it all the time. so I shut down. it took time to be able to speak about it and only with others I feel safe speaking to. lots of love to all!

So happy you are able to sit up and talk!! I've been following you for some years. Unfortunately I seem to be headed in the other direction but then I'm 65. Anyway, best wishes to you!

I have ME too, and became unwell the same year as you. I didn't become as severe as quickly as you did, but I've only ever plateaued or gone downhill. At 55 years of age, it's doubtful I'll improve, so I focus on avoiding the immune provocations that would make me even worse. Question: during the years you were bedridden, how did you manage to reduce the skin and muscle soreness from lying down all the time? It's becoming a bigger problem for me, as is nausea.

Hi from Australia 😊 So glad you've made such improvements. I read your book and worried about your future (as I do mine!) Hope you continue to gain function. All the best 😊

It’s great to see you doing so well Jamison, at least relative to your lying in a dark room days. Enjoyed your book! Did you ever find someone to fly you to Canada? If not maybe this channel will help. ;-)

I loved hearing your experience. I feel like everyone with a disability would give a different answer, but we would all be more similar than different. Really fascinating