Great video Jamison. Merry Christmas and sure hope your health improves even more in 2025.

Thanks for your story. I fell very ill Last year and its getting worse. Chronically bed ridden. Diagnosed with ME Last month. I am so scared. I have high mono antibodies in the blood from a previous infection. Can I ask you which antivirals they have you? (I know this would not be Medical advice)

Thanks for taking us along. The postcards are so cool, I love seeing them alongside the vlog

I am trying Truvada currently for ME. I will let you know how it goes. Very beautiful scenery! 🎄

Gonna try the chickpea bread and brownies.

Hello- I am wondering what dose of valcyte you are on? Have you tried Truvada? It is for HIV Prep but a study showed it worked better for EBV! It also reversed one ladies MS.

I've been doing intermittent fasting for about 10 years now. I eat all my food in a 6 hour window and fast for 18 hours. So that would be 11am and 5pm strict no snacking in between. Interestingly going to bed hungry improves my sleep. I am less likely to wake up at 3am and be unable to fall back asleep. My food choices are key also. I eat all the starchy vegetables and fruits I want but no highly processed things like potato chips, crackers, candy, chocolate, white rice. I try to eat red meat sparingly, turkey, chicken make my own broths from them. As many vegetables as I can stand. I cook a lot of them in my home made broth. I do often have a 12 ounce glass of frozen milk blended with a tablespoon of sugar for desert, nuts raisons also. I don't allow any gluten to the best of my ability. IE some things like walmart rice which are questionable which are not certified gluten free but I eat them anyway. I'm 148lbs at 5'6" 23ish bmi 65 years old. I live in a metal building that can be checked for mold behind the walls in South Central NM. Originally 1983 to 1998 lived in a 50 year old home with serious mold issues. Didn't get sick until 1997. In that situation I was bed bound but able to care for my basic needs myself. Where I live now I can do light chores and projects in my garage. Many times I pay for it afterwards though. Spend at least 8 hours a day in front of my computer. Try to do chores for exercise but also exercise some times for about 2 minutes. Many times I pay for that also. Point I am making I am much more active than many which makes it easier for me to burn calories. Certainly not to the degree of a healthy person but non the less much more than someone who can't get out of bed. A lot of people might say they are cured but cured to me would mean not having brain fog, pem, flue like symptoms fatigue that keeps me from being able to work. With all these symptoms I simply couldn't do any job consistently productively no matter how simple. I just don't have the stamina.

So you've basically went low-carb, which lowered your insulin levels, which are pretty much the only reason we gain weight! I've had mecfs for the last 17 years and only 4 years ago I went from 85kg to 105kg. 7 months ago I started keto and lost 10 kg already. It's been a gamechanger and I'm writing an article about it. I'll send you a copy soon! PS I highly recommend an amazing book: "The Obesity Code" by Dr. Jason Fung. And also Dr Sarah Myhill's blog about why me/cfs patients need to go keto.

Congrats on the weight loss (40 lbs is really a lot of progress!) and general improvement! Thanks for the recipies; I want to try the chickpea bread and jicama fries (wondering if the latter will work in an air fryer).

I think it’s so incredible that you’ve not only been able to write, but are willing to work hard to share your story and raise awareness

The POTS description is so vivid…indeed Franz Schubert the famous composer who had neurotoxic injury explained something similar like “blood rushing towards head”. Hope you are much better now!

I remembered this session in your book😢

Thanks for sharing your story. Thats so amazing that you were able to finish college 🎉

Damn, love the gloomy scenery. Fits perfectly with the halloween season👻

Is Shannon Ok? She stopped posting anything on FB or Instagram. I know she had horrible crash 2 years ago due to forest fires smoke. I hope she's doing better.

So lovely, thanks for taking us along 🙏🏻

🌊☮️💙💙💙💙

Thanks for taking us out sightseeing. Your vintage postcards are really cool 😎

Very nice travelogue Jamison ... Including the postcards is a great idea, really pulls the viewer into the narrative ... do you do your voice along with the video action, or do you do a voice over later ? ... excellent video, this one I could SO relate to, having lived in the city for a year, and having walked through many of the places you visited ... Bon Voyage mister!

This is funny cause I just attempted to try writing out a story idea I had. I will be surprised if I ever publish. If I do, it'll be years down the line, but it's nice to try to be creative, if not a bit frustrating with ME. I will be hanging onto any advice while sick. The phone thing is interesting to me because I had the same problem, but I didn't get past it and I can't write on a laptop due to some computer specific tics, so I actually got physical paper I keep by my bed. It's definitely worse physically, but better mentally, so I'm just trying to accept most of the time, this will be an extremely slow process if I keep up with it. I was actually inspired somewhat by hearing that Maeve's mom is I believe publishing some of her incomplete work even after she died. As bleak as that is, it made me realize it's possible to make an impact even if you never do finish a project or make it perfect, so it's probably better to just try something and see where it goes.

Gross

I just found out you have a KZbin channel (from you FB stories), very cool! It’s great to see you doing better. You were the first person I ever saw with ME from that shitty Netflix show years ago and this was before I got ME myself but I’ve been following you ever since. Your drive made me miss the Bay Area sunsets! I use to live in the East Bay but moved out to Asheville, NC 3 years ago because I felt I would heal better in nature and lo and behold, my intuition was correct and I’ve gotten a lot better out here and since moving out of mold. Went from bedbound for many years to only needing to use my scooter for longer walks! Brain retraining has helped too. Have you gotten into that at all?

Hey Jamison, are you still in a romantic relationship? It would be interesting to hear more about this in a future video and how you manage it. Keep up the good work!

I haven't had as many spoons to create and write as many thoughts the past few days, but I recently discovered your channel and I'm so hyped you're doing so much better! It's been so cool to see. Idk if you're taking suggestions, but I'd love to see more about everything you use to make things more accessible and less energy intensive. It's cool to see glimpses of some of that stuff in this vlog. Either way, it's great to see your stuff again!

So glad to finally find the swamp goblin representation that makes me feel less alone 🧌

I've experienced this phenomenon all of my life. Part is mold, part is SAD, and part is that many horrific traumas have taken place since childhood at this time of year. It's interesting to know about the other factors Jamison mentions. I have been crashing now for weeks and it's September 23rd, so it's no joke.

It's hands down Ragweed. Starts blooming mid September to mid November. The pollen travels across the entire continent and effects more than half the population. About 25 million in US get it really bad with full blown flu symptoms including fever for weeks. Here in Midwest, almost everyone I know has some symptoms. For healthy people, it's just annoyance but if have ME/CFS, it hits you hard. It's number 1 allergen in North America

But isn't October the warmest month in the Bay area?

The schedule disruptions of November and December do me in.

I’ve had a lot of friends that seem to be affected by the barometric pressure changes

This is so interesting I always used to get terrible headaches in October. Not so much anymore but never knew it was a thing. My CFS/fibro bounces around so much never really noticed that getting worse but I’ll be more aware now.

It's great to see you so much improved (even though I know there's still more to go!). I've had to take a step back from advocacy and focus on how to make my life sustainable. Focusing on this moment is the most helpful, except when I'm feeling terrible, I tell myself there will be better days ahead. Planning for the future is still very far out of reach but all we really have is today anyway right? One step at a time slow and steady. Xx

Watching you here in Lviv, Ukraine! 17 years of mecfs, definitely thinking about surviving this single day is paramount. I'm learning languages by watching lots of videos in that language, this brings me much joy and passes time.

👍

Jamison, thanks so much for this, and all of your videos. When I start to worry about my illnesses, I try to focus on things I enjoy. Genealogy, reading, writing (I’ve written some articles for The Mighty), and watching TV or KZbin videos. You’re right about not reading too many negative stories. I find that consuming too much social media makes me irritable and depressed. Of course, it’s all about the moderation and the content you choose.

I'm all caught up on your newer videos. I've really enjoyed seeing more about your day to day, but little side note, I have SUPER enjoyed seeing the Bay Area again. I moved away when I was 14, and basically haven't been back in 21years ( I can't believe we're old enough to say stuff like that). So thanks for all the views and narrating where you are. Keep 'em coming, I'm watching 😊 So glad you are feeling well enough to go on adventures!

I still have the t shirt you were selling years ago!

Like you, I developed ME/CFS in 2010. I used to describe my illness as debilitating - but after two crashes that left me substantially and permanently worse, I realised that I was in fact disabled. Unfortunately, govts and the medical profession here in Australia regard chronic illness and disability as two separate things - when in reality, they often cross over.

Thanks for taking us along on your journey, SF looks beautiful! Hope you didn't crash too badly afterwards!

This is so charming. Wonderful views. Thanks for sharing your gratitude ❤

I read your book a few years ago, and am so pleased that you've improved enough to do some things for yourself & take occasional trips. I'm impressed that you can hold up the shower rose. I can't (and can barely type this comment!) On the other hand, I can walk to the bathroom and stand long enough to brush my teeth as long as I don't already have PEM on board. How do you find the bed wedge? I like having my head elevated but find that my hips & glutes get really jammed so it's a tough one to solve!

Beautiful area

fabulous views, intrepidly great narration, inspiring story ... Yay!

Lovely trip! Glad your health allows for such escapes and your mother helps you so much with everything🤗 Also don’t let those Golden Bridge haters get to you 😆

epic . Jamison-

Was keen to hear what you had to say but ouch, those whip cracking noises you inserted between points send my nervous system nuts ... Way to triggering for someone sound sensitive. Thanks anyway

I can relate so much to what you say Jamison even though I’d say I’m in the moderate category. At 71 it seems I can’t do as much before consequences come, and then they are worse, so guess I and likely others, as we age, need to recalibrate our pacing.

Thanks for sharing! It's amazing to see how far you have come! I saw you in some documentaries some time back and I read your book when it was released which shocked me to my core! You so vividly described what life is life for someone who is bed-bound, it was a real eye-opener and sounded like such a brutal experience. So it is nice to see you mobile and more functional. I would love to see a video on how you lost so much weight! Ive been housebound for almost 4.5 years now (ME/CFS and POTS from Long Covid) and have been really struggling with weight gain. I was slim before I got sick so it is hard to see myself in the mirror now. Keep posting! It is interesting to see someone else's life with this illness!

Good to see you feeling better enough to start this channel! Also, I like your attitude!

Great video and great growth! For a while I was only getting about 40-50 subscribers per week on my channel so 72 is awesome.