Ooh I also want to see Kerry, soo thank you. Yoga hindu yoke of death, worship moves: no! Just do normal exercise.

I was diagnosed in 2019..I'm 47 now n there is less known treatments here..I was told about 6steroid injections that wud HV same physical outcomes as cancer treatment wud HV so I chose to not have it..I live with excruating pain daily but Being a psychologist by training I work thru it alone ....thank u for your sharing.. I don't feel alone...my first symptoms were early as an eleven year old with tearing pains in my hips when I exerted thru forced exercise...

I'm sorry but 'when the cheese slid off the cracker' is the funniest most relatable metaphor I've ever heard to describe the turning point of when it all started! 😂😂😂 I have not listened to it all yet, but I feel very seen listening to this, so thank you!

I was diagnosed at 18, I’m 20 now and I feel like it’s really put a dark cloud over me beginning my life. It’s exhausting to feel so much pain through the day and wishing I could’ve grown older before getting something like this. Does anyone have tips or tricks to manage better?

Moving and yoga has really helped me.But the biologics should be avoided.I could explain should you wish xxx

bro im 22 and have arthritis and I fucking hate it It started with my tmj's and right knee at 19 then it just got worse fuck me bro I hate this shit so much. Now its in both my shoulders, both my hips my hands and knees im probably just do a 40 day water fast and see what happens, im fucking desperate and it will just get worse the older I get.

Well done, you are courageous and resilient. I am following low starch diet and intermittent fasting plus dry fasting once every week. Suana with cold showers also helps, good luck on your journey of recovery 😊

Is there any diet that can support someone with arginine deficiency enzyme ?

I had a non responsive celiac disease associated with fructose/lactose malabsortion, pre diabetes, many food allergies. When I cheat with some gluten free foods my AS gets reactivated. My diet is mainly based on Omega 3 fatty acid (95% of my daily intake). Clums/sardines/tuna/salmon/trout/mussell/crude olive oil/avocado/beef liver/ grass fed meat/cocunut oil/lemon. I know that this is extreme but due to my celiac and Eoe I found relief finally.

I have celiac disease and arginine deficiency which triggered my neurodegenerative disease which is called hsp.

I developed all the pain during my development. I found out few years ago that I have 3 autoimmune disease and a neurological disorder. I know that something is bad when my neck, lumbar nerve and achille s tendon get inflammed. My triggers comes from my gut: celiac disease and autoimmune gastritis. I help my diet with vitamin d3, methylfolate, vitamin b12, magnesium and vitamin b2.

mine is also low bone density and neuropathy

Excellent presentation, very user friendly and educational

To me most effective treatment was homeopathy which i underestimated. Rhus toxicodendron 1000. 5-10 drops/ 3 times. Silicea and guaicum tinctures. Gabaprentin and naprox are nsaid and has side effects . Now rarely take them and homeopathy worked best . Heal well! Ankylosing spondylitis!

I am 24 years old and was recently diagnosed with degenerative spondylitis and cervical spine issues. However, the pain I experience is not limited to my back; it affects my shoulders, arms, fingers, hips, buttocks, knees, feet-essentially my entire body. At times, I also feel tightness in my chest, pain in my eyes, indigestion, coughing, and struggle with sleep. I can't sit, stand, or lie down for long without discomfort. I experience weakness in my arms and occasionally lose balance. Given these symptoms, I suspect I may have ankylosing spondylitis. This condition is severely impacting both my physical and mental well-being. I feel helpless, and my life seems to lack meaning. I'm also scared about what the future holds for me. I would greatly appreciate any suggestions or personal experiences that could help with managing both the physical and emotional aspects of this condition. Additionally, I would like advice on what my next steps should be, including how to plan for the future and what career options might be viable given my health challenges. Thank you so much in advance for your support. ❤

Glad to hear u r a lot better. Can u please share what r the things u do to get better?

In the year 2018, all of a sudden i got low back pain and gradually the pain radiated to my shoulder, neck, hip, finger, knee and pain is everywhere with pop and crackling sound. I visited to so many doctors, did MRI, only herniated disc issue. In the end visited to a rheumatologist, did HLA B27 and others blood test, all came negative. I don't know is it Ankylosing spondylitis or what the disease is, but I am frustrated and suffering with the pain everyday. Anyone here with these symptoms?

please post your treatment plan!

I'm so glad I found this video I was recently diagnosed with this at 50 years old and my life has changed tremendously.I live with daily pain all over and my ribcage.And my back my hips my feet especially my spine

I feel electric shock like pain

It stopped me living my life. I had no choice in the matter. I have complications and other medical issues but it is the severe enthesitis in my feet and back that cripples me and often leaves me bedbound. Plz be accurate in what you say. It impacts ppls understanding of the desease. It didnt stop "you" from living your life.

Very insightful! and really resourceful Talk/Lecture😊❤.

Thanks for sharing, however, i did not understand much. The remedy is to walk and swim? That's it? I dont have this diagnostic, but from what you described might be that. Even though the pain its not to that extend as you mentioned, but its there, and i live with it for months now. MRI says, cronic inflamation and some discs ( L4-L5, L5-S1), and the inflamation its located at the lower back, my mobility is decreasing, if i sit too long its painful, if i walk too log its painful.

I also have AS but not too much pain now show me a way to control and stop progress of this

Triggered by Lyme Dz after tick bite & antibiotics 2 years ago. Attacked my hips, knees, ankles, feet so fast with so much joint damage.

Fucking Gabapentin is a horrible drug. Good luck as soon as it stops working. Brain retraining works. Do not take SNRIs or Gabapentins. They really are horrendous drugs which are now replacing benzodiazepines, the worst of the worst. There are no long term studies on any of these drugs. Ask how you’ll get off when they no longer work. The doctors have no idea. If there’s a facebook group on them, big red flag.

What was the medication used? Did I miss it?

Thanks for posting, very informative.

Your video quality is good but you have some problems with your channel. So that you can't have more views and subscribers in your channel. I have a great Idea for your channel. If you want , I wanna discuss your channel. Thank you

You are doing great and the content is awesome Carry on dear,

Great video, Thanks for sharing

Thank you for sharing. I'm 35 been suffering with pain for 10+ years, being passed from doctor to doctor, being diagnosed with apparent 'Fibromyalgia' had an MRI this morning hoping it confirms AS. For year I've been told its just my posture and it's normal, even at times thinking I'm going mad thinking is this all in my head. To anyone suffering keep going ❤

I haven’t been able to lay on my back and not have extreme stiffness trying to get up since I was in 7th grade. I was just diagnosed with psoriasis at 33 and I think I’ve had misdiagnosis of back pain repeatedly since I was 13 years old. I was shocked at how much I identify with the symptoms and stories I’ve read about. It’s very sad how badly healthcare works sometimes. The specialists don’t work together with the pcp. Advocating for yourself is exhausting. I live a busy life! I shouldn’t have to investigate and play doctor to get serious help after 20 years of symptoms.

What was the medical treatment that the rheumatologist prescribed?

Fibromyalgia is the biggest brainwashing medical scam to ever hit the american people

This comment is just to give people a text version of the things to do to help with fibromyalgia. And it's pulled from her lecture. Number one you need to get your sleep in order only sleep in your bedroom don't work or play with devices in your bedroom and no caffeine after 4:00 p.m. Drugs that she recommends that you might want to try are Lyrica gabapentin venlafaxine deluxe seen amitriptyline tramadol difene, lxmprim Food should all be organic whole foods vegetables mostly no sugars or carbohydrates eat a healthy diet full of vegetables Limit your carb intake For sleep this is a list from her lecture Number one no caffeine after 4 no liquids after 7:00 p.m. Do not take naps Establish a regular bedtime routine and wake up routine Exercise but not close to bedtime If you're not sleeping in 20 minutes get up Do not eat a heavy meal Snoring or apnea problems look into They have a Facebook group Facebook.com / groups/ fibroFridge food and ideas for support. Other things to do to help fix to help to avoid crashes and fibromyalgia She recommends put your health first Know your limits Learn to say no Cut out toxic people in your life that are always trying to fight with you Try to avoid stress Body physical symptoms of stress which result in emotional upheaval actions that you do under stress which are the thoughts that you think that can stress you out mentally and can lead to depression

Really appreciate the information here. I was lucky to get a quick referral but I was diagnosed by a poor rheumatologist who did absolutely no tests and refused to send me for any. Told me I had a lifelong illness and just prescribed painkillers. Currently waiting to be seen at a better hospital for a suite of tests to weigh up options as it's painful every single day. It's a scary prospect of what RA can do to the hands, especially as a musician, so it's nice to hear about all the treatment options in the video. Let's hope that research goes somewhere 👌

I am also all alone suffering from spondylitis.dont know what can I do. Please pray for me 🙏

I am 29 and got daibosed toady of this desies 😢

Hands down to you, I want to live a life just like yours. I was diagnosed at 30 ish, the pain started when I was 19. I'm 33 now, and trying to change my relationship with the pain, no letting it rob me again. I lost my medical residency because of it, and so much more. But it made me a very empathic person, very insightful. The medication you were given was related to opressing your inmune system?

You dont need to explain yourself Im under the care of cragavan hospital wer needs must im not didnt go private i hope u fèel better the pain is awful but the tiredness is awful your right self care is right im on biologic

Hope hes well but im 40 and im not lucky like him im on biologics

What a lovely clinician! Every knowledgeable and very compassionate and understanding. ❤ thank you

Damn i got fibromyalgia after COVID... Is that the 'trauma'?

WOOW SHE'S SO SMART

I went to my Dr in horrible pain and turn into crisis ,,but she THINK IT'S IN MY HEAD ,,,

THIS DR IS THE BEST

Hi Andrea, perhaps I can fill in the missing details - the answers aren't unknown, it's just that few people have knowledge of them. I believe I have a good understanding and explanation of Fibro that I can contribute to helping you understand this simply. My experience? Well, since 2011, I have personally helped over a thousand people recover, typically in demonstrations in front of audiences of students learning how to help people remove their own chronic pain and conditions. And having trained over 1,750 practitioners that includes doctors, nurses, physiotherapists, psychologists and a few neurologists! I wrote up the theory I and all my student put into practice regularly, I provide this free, not even needing to give an email. Several people have even written to say they got better just from reading it. I guarantee if you have Fibro you will totally recognise my description of how it starts and why it can go away - totally, I really don't believe in managing pain when it can simply stop being produced once you have the message. See for yourself at oldpain2go.com/meandfm. What you do about it after that is up to you, but you will certainly understand the illness and can start your own journey of discovery and recovery that can be incredibly quick. This weekend I demonstrated in front of some students, helping Liz, who had fibro since 2006 and she left totally pain free an hour later. Do not despair there is hope for you once you understand. On Sunday I fly out to Amsterdam as an exhibitor at the International Association of Pain 50th Anniversary Congress, where I will be explaining this to many of the 6,500 top pain specialists and scientists in the world, so hopefully many more pain professionals will understand how best to help you.

Such a lovely lady and such a nice attitude towards life and its challenges.

What kind of nedicin do you take, because my story is similar to yours!!