Since July 2022 I've been struggling with AS. Unfortunately I'm not good at exercises, and have been taking Indometazin every day. Nowadays it is rainy in Istanbul, and I feel terrible. Mornings are the worst. Finding a rheumatologist is hard if you do not pay for a private hospital. Therefor I'm just being dragged inside the water. I have felt much better when I saw your story. I hope I can show some progress, too.

It's so wonderful

Thank you for sharing your story! Wishing you all the best!

These videos really help I have this condition too

I have this and have had it for years. I first had lots of symptoms at 15 and diagnosed now at 28.

I'm just 18 and I'm also AS patient plz somebody help me 😭. What can i do...

I wonder what tests were done for ‘arthritis’ as my rheumatologist says there aren’t any tests. If it were that simple the maybe I’d have been diagnosed years ago instead of aged 60

Well done Lad!

So if somebody can give me some advices that will be great thank you

So pain full and it gets to the point that nobody believes u my neurologist said it’s just on ur head 😢

Yes for me it took 2 years

That was an excellent talk. I’m watching this 4 years after it was done, but the information is still just as appropriate. I'm viewing this in 2024 and from the USA and we're still getting psoriatic arthritis and COVID is still lurking around. Dr. Durcan was very helpful and inspiring. Thank you to Gráinne O’Leary for asking such great questions and for shining a light on this troublesome condition and to Dr. Laura Durcan for sharing her heightened level of knowledge and experience regarding the condition, as well as her great amount of compassion for the patients.

I was 17 when i started to have this pain in my back and in my neck and now I am 21, now after 3-4 years I got to know that I have this condition Ankylosing Spondylitis. I was having this back pain and stiffness for more than 4years and more importantly, i was so depressed because of this pain, I used to question Why is this happening to me... and Now when I'm diagnosed with AS, I feel so depressed that at the age of 21 I got this Incurable disease. I used to be the most active one among my friends, I wanted to be a pilot..fighter pilot, wanted to join the defense forces, I wanted to do so much in life... but now it feels like everything is shattered💔. Still I never show people around me(my family, friends) that I'm suffering this hard. And don't know why I feel very lonely this days, my college got completed this year in May,24 and I'am still not earning. Btw my neck still hurting while writing this from my desk. Let it be I know these problems will come but I'm Strong and I will come out of this very soon. I believe in my self. Todays date is 08-11-2024 and I'm 21years 4months old. Marking this date so that when my future self sees this he must be proud of me today and as well as him at that point.🙌

I am on CBT,Accupuncture, walk every day with a walker and fall monitor. No successful meds work for me. Haven,t slept for a year due to pressure pain on 18 ares and bed broken since someone jumped on my bed and got in with a key. Was fixed for one month and it fell two times againFEB 24.

Why does it take over 3years to see a fibromyalgia clinic? August 2021 I was diagnosed and I still haven,t got any help for the pain which is catastrophic since my daughter,s death Aug.30/23 from a suspicious overdose from a sedative illegal in Canada and phentanyl. I had been denied my money back from a trip I borrowed money to go on a vacation. I paid 3 x the price as Covid was on and I had to book directly with Norwegian Cruiseline and not through my usual agent in ThunderBay Shawn Freisen, Expedia or Pat Decouchie, Sell off Vacations. The most important thing is I paid $800 to three insurance companies for $5 million in health, trip interruption, trip cancellation . Then 2 car accidents that I wasn,t responsible for and have a perfect driving record for 58 years I was thrown out of the CAA. I was charged with those accidents as the police wouldn,t let me report the accident and I went there 3x thatFriday with a friend. I now have to pay $375 a month for car and apt insurance and I can,t afford it. I was paying $62 a month for both.

I wish I could skip this area as I have been diagnosed at age72 years of age. I have 4 healthy children and no problem getting pregnant .

I take hydrocodene for pain I’m 91 now. Cayenne capsules. And curcumin

I found this video could get one down.....wouldnt watch it a second tjme. Weight lifting? I cant walk some days.

i just got diagnosed and while i feel totaly lost and panicking, this video helped a lot, thank you

❤

I am 16 and suffering from alkalizing spondylitis Can anybody give me motivation and tips 😢 Every single word of you can help me

Gosh doctors really do make everything sound so bleak. Don’t give up people, find a helpful doc and keep fighting. You can live a full life with this.

Great ending of the video, great attitude, keep it up dear lady, I wish you health on your journey!!

Wow! So, so thorough great talk

So in one breath she says that stress and trauma can cause an onset of fibromyalgia, but back in the day when the “old white men” identified that there was a psychological component it was those men being what, misogynists? How do people like this not see their own hypocrisy when generalizing people based on their sex and skin colour!? Of course she hates Trump and is from California.

is shit. is not life/ worst what can be - its have kids and spread broken genes. I had my from parents

I think i have this. For so many years had so much pain. Dr after Dr. Finally diagnosed with fibromyalgia. Never had this diagnosis tho. My spine is fused lower back and upper mid back. When I bend forward you could eat dinner off my flat back. Lower back is the same. I have arthritis on my feet as well. Wore orthotics for years. Feet have fuse as well . I treat it by exercising and yin yoga.

"Oh come on, just lose weight." "Stretch more." "Eat this, not that!" "Pray". "It's all in your head... toughen up." I was 10 when I first realized something was wrong with me. I didn't understand how other kids or athletes on TV could be so active and not hurt. I was told I had "growing pains"... the pains never stopped. I played on 2 different softball teams in my 20 's, telling myself I just had to get in shape and power through the fatigue and never-ending pain. I bore a child. Then I hit "the wall," place within where no matter how hard you want to go on, you simply have no reserves to draw on... you are done physically and mentally. I was declared disabled at age 42, completely exhausted with life and my body. I was one of the few at the time (early 2000's) that Fibromyalgia is listed as one of my disabilities. I was told it gets easier. It doesn't. There are newer treatments, but the fatigue and underlying pain are my constant companions. "Do yoga," "Take this supplement/drug," "Soak in Epson salts," "Try CBD". The advice is endless, from well-meaning people and educated doctors, but there are no cures, only symptom blockers and they are inadequate. I am now 67. I just came out of a flare, which exacerbates my pain from a 5 to a 9. I'm thankful today that I can think straight, walk around a store, feel like talking to people. I fight this Fibromyalgia every single day, every single day. Sometimes, I even draw even.

My uncle struggled with Psoriatic Arthritis for years, enduring pain and discomfort. Thanks to Ayurveda, he found complete relief. The holistic approach not only alleviated his symptoms but also improved his overall well-being. We’re grateful for this natural healing path that restored his quality of life and brought him joy again!

Did she mean Dr. Fahd Adeeb ?

So glad I found this video!

This guy is lucky if they call that advanced I’m screwed

Yoga is originated from Hindu Indian culture.... proud to be an Indian

What was the treatment? Thx

I’m very grateful for this video! Thank you

I was given the diagnosis yesterday i don't know what to do

Now im going in for surgery for kidney stones.. scared 😳... Had a scan done for my gut problems and they found my kidney stones 😢

I'm 35 y.o with ankylosing spondilitys I've tried everything but I can't see the light at the end of the tunnel!

Ooh I also want to see Kerry, soo thank you. Yoga hindu yoke of death, worship moves: no! Just do normal exercise.

I was diagnosed in 2019..I'm 47 now n there is less known treatments here..I was told about 6steroid injections that wud HV same physical outcomes as cancer treatment wud HV so I chose to not have it..I live with excruating pain daily but Being a psychologist by training I work thru it alone ....thank u for your sharing.. I don't feel alone...my first symptoms were early as an eleven year old with tearing pains in my hips when I exerted thru forced exercise...

I'm sorry but 'when the cheese slid off the cracker' is the funniest most relatable metaphor I've ever heard to describe the turning point of when it all started! 😂😂😂 I have not listened to it all yet, but I feel very seen listening to this, so thank you!

I was diagnosed at 18, I’m 20 now and I feel like it’s really put a dark cloud over me beginning my life. It’s exhausting to feel so much pain through the day and wishing I could’ve grown older before getting something like this. Does anyone have tips or tricks to manage better?

Moving and yoga has really helped me.But the biologics should be avoided.I could explain should you wish xxx

bro im 22 and have arthritis and I fucking hate it It started with my tmj's and right knee at 19 then it just got worse fuck me bro I hate this shit so much. Now its in both my shoulders, both my hips my hands and knees im probably just do a 40 day water fast and see what happens, im fucking desperate and it will just get worse the older I get.

Well done, you are courageous and resilient. I am following low starch diet and intermittent fasting plus dry fasting once every week. Suana with cold showers also helps, good luck on your journey of recovery 😊

Is there any diet that can support someone with arginine deficiency enzyme ?

I had a non responsive celiac disease associated with fructose/lactose malabsortion, pre diabetes, many food allergies. When I cheat with some gluten free foods my AS gets reactivated. My diet is mainly based on Omega 3 fatty acid (95% of my daily intake). Clums/sardines/tuna/salmon/trout/mussell/crude olive oil/avocado/beef liver/ grass fed meat/cocunut oil/lemon. I know that this is extreme but due to my celiac and Eoe I found relief finally.

I have celiac disease and arginine deficiency which triggered my neurodegenerative disease which is called hsp.

I developed all the pain during my development. I found out few years ago that I have 3 autoimmune disease and a neurological disorder. I know that something is bad when my neck, lumbar nerve and achille s tendon get inflammed. My triggers comes from my gut: celiac disease and autoimmune gastritis. I help my diet with vitamin d3, methylfolate, vitamin b12, magnesium and vitamin b2.

mine is also low bone density and neuropathy