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@AsherBonaventura 3 күн бұрын
We need your encouragement and strength
@SharisAlita 6 күн бұрын
I’m so sorry about your experience. I understand what you’re saying. I did PD while I was in high school for about 2 years until my transplant surgery. I did treatments manually and not by machine so that I could have more freedom as a teenager it was over 26 years ago. Wishing you the best! 🙏🏽❤️
@diaryofakidneywarrior 6 күн бұрын
Thank you ☺️
@TerryStewart-mb5ly 15 күн бұрын
Well Done , Dee. You deserve recognition for promoting awareness of kidney disease. Yes, choose life. Truth indeed. Love Terry ❤️
@diaryofakidneywarrior 14 күн бұрын
Thank you so much ☺️
@MiySadochok 15 күн бұрын
Congratulations! Well deserved!
@diaryofakidneywarrior 15 күн бұрын
Thank you ☺️
@kickboxergal 17 күн бұрын
Hi Dee, hope everything works out 💯🙏🏿♥️♥️♥️
@diaryofakidneywarrior 15 күн бұрын
Thank you ☺️
@christinathermidor5018 18 күн бұрын
Thank you so much for telling me and others out there. Praying that you may heal and live a properous life ❤
@diaryofakidneywarrior 15 күн бұрын
Thank you ☺️ ❤️
@ernestkola0 18 күн бұрын
❤
@josiem1671 21 күн бұрын
Thanks for sharing. 🙏
@diaryofakidneywarrior 21 күн бұрын
🙏🏽
@bryancollins5661 23 күн бұрын
Hi Dee, Really enjoyed your Podcast.The information you supplied was really informative.I'm a CKD Stage five.I reside in London and I'm treated at the Tottenham Hake Kidney Centre.I have an an interesting journey over 7 years reaching the stage where I'm on the Transplant List .Recently had a graph in left arm in preparation for dialysis. Shall be seeeking a councellor and Kidney psycologist as one's mental health is paramount when going through this journey.Currently off on sick leave from work as my kidney percentile is at 9%. I have been told my heomoglobin level is at 100 and should be higher.For a 6ft tall individual who has been very active,its a blow to my ego.Experiecing a lot of tirednes and wake up covered in sweat.Also I suffer from shortness of breath after not much exertion.So your Podcast has been very heilpful,keep up the good work. I'm also a Christian and having the faith knowing you can put all your cares on him helps.Stay Blessed keep up the good work. [email protected].
@kellymccomb8197 27 күн бұрын
It’s so great to see this topic covered! I’ve been recently diagnosed with LPHS and with it being so rare, it’s nice to know there are others out there who understand what we live through every day.
@katienewell9605 29 күн бұрын
Congratulations Dee on your wonderful podcast. Thank you for all your work you have done within our diverse kidney community. You have brought a voice to many of the voiceless on their journey. your story and all the others inspire me every episode and thank you to you for letting me be a small part of your wonderful podcast 🎉 xx
@jayfletcher958 29 күн бұрын
This episode is EXCELLENT. For all sorts of reasons. CONGRATULATIONS! I don't want to sound patronising. I sincerely appreciate the nuggets of truth that relate to life generally. I've learnt a lot. God Bless you both!
@SanaSzilage Ай бұрын
Thank you for sharing your PD experience. My husband just started PD, and I am hoping and praying to God that it works well for him. He still has his hemodialyis vein catheter, and it would not be removed until the PD Team determine is working as it should. God you and keep you strong and positive!
@diaryofakidneywarrior Ай бұрын
Thank you and all the very best to your Husband his PD journey 🙏🏽
@SharisAlita 6 күн бұрын
I did PD for close to two years until my transplant and it went well. And it was over 26 years ago. I did my treatments manually though not with machine.
@MiySadochok Ай бұрын
Thank you! Very interesting and helpful information.
@KenHartman152 Ай бұрын
Fight on Kidney Warrior ❤️ 💪 ❤️ You are always in my Prayers 🙏
@diaryofakidneywarrior Ай бұрын
Thank you 🙏🏽
@ThankYouVersionOf Ай бұрын
Thank yiu
@diaryofakidneywarrior Ай бұрын
☺️
@felixjosephine1478 Ай бұрын
😢 My God
@diaryofakidneywarrior Ай бұрын
🤗
@diaryofakidneywarrior Ай бұрын
I’m ok now ☺️
@lauren_WI Ай бұрын
Great collaboration!! I’m literally at UWHospital and am now scheduled for several appointments for LPHS to receive an auto transplant. 🤗 🤗 to those whose experience a chronic condition and who pain. Not a lot of videos that have this information, so thank you so much! Bless 😊you for sharing your story, you are a WARRIOR 👏
@diaryofakidneywarrior Ай бұрын
Thank you for your kind words ❤️
@katienewell9605 29 күн бұрын
Thank you so so much for your kind words! Praying that your auto transplantation works wonders for you ❤
@beingkeshia100 Ай бұрын
New here glad I found your channel 💜💜
@diaryofakidneywarrior Ай бұрын
Welcome and I hope you find the information helpful ❤️
@ninclarke1357 Ай бұрын
Thank you so much for sharing your story. I'm new to pd and suffering horrific pain during the drain cycles. I have been told it's constipation. I dread hooking up to the machine every night. I have my pet test in a couple of days time so hopefully I will be able to get it sorted x
@diaryofakidneywarrior Ай бұрын
So sorry you’re going through this. Have you asked them to change the settings so that there is a tidal? This may vastly reduce/eliminate your pain.
@catg7706 Ай бұрын
Hey Dee, thank you for this episode. I'm also on the transplant list and it's hard living with the uncertainty. X
@diaryofakidneywarrior Ай бұрын
I hope the strategies Dr Emma shared are helpful.
@yolandawilliams1494 Ай бұрын
I did well
@soniawilliams9159 Ай бұрын
Thanks for your encouragement.
@Miss_Pearls Ай бұрын
Bless you Dee! I hear your message loud and clear. Thank you.🙏
@diaryofakidneywarrior Ай бұрын
❤️
@helenstuart3414 2 ай бұрын
Thank you for sharing. ‘Hope’ - that is what we must have when facing a journey like this. Talking about everything you’ve gone through and experienced is very helpful for those facing similar situations, whether recovering from septic shock or living with CKD. Well done for being so brave to talk about it and thank you again for this podcast.
@michaelgray8841 2 ай бұрын
Ive had 10 months of persistent kidney Stone pain & blood in my urine. This is excruciating! My nephrologist has concluded LPHS just today! Mrs Gray
@diaryofakidneywarrior 2 ай бұрын
Sorry you’re going through this. I hope that getting your diagnosis means that you can now get the right treatment to help your condition.
@lauren_WI Ай бұрын
@michaelgray8841 I was diagnosed too! Are you considering ant medical interventions? I’m currently at UWMadison Hospital for a two day to meet the medical staff and get a procedure done. 🤗 to you, I know that pain you feel. We are in a rare group that nobody wants to be in!
@michaelgray8841 7 сағат бұрын
@@lauren_WI I'm an NHS patient, so I'm still a long way off from even discussing treatment plans, I've been told so far there are no treatments for me, and I'm not sure my diagnosis has been finalized or just suggested. I've been prescribed butec patches, codine & medical cannabis to manage the pain. I haven't tried the patches yet, and only take the codine when I simply can't cope anymore. I'm very cautious of addiction, I'm determined this will go away, it's unreasonable to believe it wont. The pain sits at about 6 or 7 out of 10 24/7! With frequent spikes that reach 100000/10. It's been over a year of this constant pain now, so I think my pain threshold is increasing slightly. they've just discovered cysts on my liver last month, waiting for the appointment to talk about that. I hope your procedure works!! 🤞🙏 How is your mobility? I'm on crutches & can hardly leave the house. I'm now wondering if I need a wheelchair to go outside. I can't live hunched on a ball on the floor forever surely? Only going from the car to the Dr and back? How far in are you?
@michaelgray8841 7 сағат бұрын
@@diaryofakidneywarriorThank you, it's literally living hell. I'd be happy to share my experiences with you too one day, theres so little out there about this condition. I've been keeping a detailed diary & been doing a lot of research. I've revaluated the proposed rarity of the condition too using AI, It's far far far lower than 0.012%👌
@rasuk2117 2 ай бұрын
Great Podcast, learn more about kidney disease every day 😢🙏
@diaryofakidneywarrior 2 ай бұрын
Thank you ☺️
@ninclarke1357 2 ай бұрын
Can you not do haemodialysis at home? ❤️👍❤️🙏❤️
@diaryofakidneywarrior 2 ай бұрын
Yes but it’s a much longer process. With PD you can start at home immediately. HD is a much longer process but yes it can be done.
@MiySadochok 2 ай бұрын
Thank you so much for sharing your story! It is very scary, what happenned to you. My understanding you were on PD only 4 months? When did you notice, that your body, knees were swollen - it was from beginning? did your doctors were aware of that?
@diaryofakidneywarrior 2 ай бұрын
Yes only 4 months. I noticed my legs were swollen after a few weeks and also the weight (water) gain.
@ninclarke1357 2 ай бұрын
Thank you for sharing ❤️
@diaryofakidneywarrior 2 ай бұрын
You’re welcome ☺️
@jmarie1202 2 ай бұрын
Keep up the amazing work my beautiful sista 💯❤️💪🏿👀Im a kidney patient as well..your videos are helpful
@diaryofakidneywarrior 2 ай бұрын
Thank you for your encouragement. I’m glad you are finding the videos helpful. Have a great day 😊
@EndTimeMessenger77 2 ай бұрын
Very informative Dee.🤩🤩🤩🤩🤩🤩
@diaryofakidneywarrior 2 ай бұрын
Thank you ☺️
@freemanmt 3 ай бұрын
CanPrev brand Fibre Feel . Acasia fiber ( gum arabic) to flush kidney from toxins. Look it up .
@diaryofakidneywarrior 2 ай бұрын
Will do
@mevans578 3 ай бұрын
Wow...this 2-part episode with Darren was POWERFUL! Like Dee, I too was speechless (& moved to tears) several times while listening to his story. Clearly, Darren is a fierce & determined kidney warrior. Dee is a soldier warrior too for managing her own kidney journey while finding the time & energy to share other's kidney stories with us. Thank you both for this moving 2-part episode!!! ❤🙏🏽💪🏽
@diaryofakidneywarrior 3 ай бұрын
Thank you so much ☺️
@ninclarke1357 3 ай бұрын
❤️🙏❤️🙏
@MiySadochok 3 ай бұрын
In soviet union health care was free , doctor's salary was the same, as salary of an engineer - a bit higher, than salary of truck drivers. For that reason doctors helped as little as possible. In the USA is opposite situation - doctors suggest hundreds unnessesary tests, procedures and surgeries, as it makes them rich. I do not know, if there exist any perfect health system in the world.
@anthonysaah1829 3 ай бұрын
Whoever is reading this, know Jesus loves you. He died so we may live. He lived a perfect life that we could not. We deserve eternal death, but because of His grace and forgiveness we can experience eternal life with Him. This is the truth. Humble yourself and accept God’s forgiveness. His love will make you whole. It will change your life forever.
@rasuk2117 3 ай бұрын
😢
@danieldavies4503 3 ай бұрын
You have put my mind at ease thank u
@diaryofakidneywarrior 3 ай бұрын
Thank you ☺️
@alaaachem7863 4 ай бұрын
I like that
@diaryofakidneywarrior 2 ай бұрын
😀
@FrankAbayan 4 ай бұрын
How long does every pd session takes?
@diaryofakidneywarrior 4 ай бұрын
Automated PD sessions are 8 hours
@RakibulislamDM 4 ай бұрын
Great podcast..
@diaryofakidneywarrior 2 ай бұрын
Thank you ☺️
@dacshidge1882 4 ай бұрын
Thank you for showing this, trying to work out where and how we are going to store and work with all the "bits" as we are in a one bed flat with very little storage.
@djibrilyadd4131 4 ай бұрын
Be strong and you will make it. God bless you
@hopkins771 5 ай бұрын
Your more than welcome it was definitely some difficult times in my life but managed to make it through 🙏🏾 both my Grandfather and father are doing well thanks
@MiySadochok 5 ай бұрын
It is possible to look after 8 months baby and get PD? Could PD patient lift a 12-pounds baby from crib ?
@diaryofakidneywarrior 5 ай бұрын
You would need to discuss this with your renal team. As if you’re choosing APD you would need to be connected to the machine for 8 hours or if you do manual exchanges you would need to do so 4 times a day. This may be more of a challenge than the weight of the baby.