My Peritoneal Dialysis Nightmare: Diary of a Kidney Warrior (VLOG)

Рет қаралды 4,177

Күн бұрын

Пікірлер: 39

@SharisAlita 3 ай бұрын

I’m so sorry about your experience. I understand what you’re saying. I did PD while I was in high school for about 2 years until my transplant surgery. I did treatments manually and not by machine so that I could have more freedom as a teenager it was over 26 years ago. Wishing you the best! 🙏🏽❤️

@diaryofakidneywarrior 3 ай бұрын

Thank you ☺️

@LisatheHousewife 2 ай бұрын

I started PD in February 2024. Well the surgery and training went well but my life went down after that. PD dialysis made me sick every week and kept me in the hospital every 2 weeks.i lost Over 20 pounds of muscle mass, loss my appetite and no one could figure out why on top of end stage kidney failure. When I almost lost my independence and my mind they finally put me on hemo dialysis and I felt so good after dialysis. The way they promised I would feel on PD dialysis after a few months I felt after 1 day on hemo dialysis at the center. I have been on Hemo dialysis for 3 months and my energy is back, my appetite is back and my life is back. I wish I would have done more research on home hemo dialysis but they did make it like the best option for me. I hope to be trained on home hemo very soon. I am waiting to get my AV graft because my vascular DR said my veins are way too small. I don’t mind being in center but I feel being at home is the answer for me. I am on two transplant lists as welll. I had a pancreas transplant 10 years ago and now I need a kidney transplant. I feel you live and learn but I just wanted to share my experience. I’m not saying PD is a bad choice, it just did not work for me and my body. I wanted it to work and I worked hard to do the training and learn everything as a model student. I did it for 4 months with no infections, just never felt better. My Pd Cather was removed two weeks ago and it hardly looks like anything was there. Thanks for sharing great video.

@diaryofakidneywarrior 2 ай бұрын

Thank you for sharing your story, I can totally relate! I so badly wanted PD to work for me but unfortunately as you know it didn’t and like you HD has been so much better for me.

@chewmargaret3098 Ай бұрын

Hows hemodiaylsis treatment for u now? Feeling alot better compared to peritoneal still? Since u said u tried peritoneal dialysis for 4 months but not never had any infection.. Whats kind of unwell u were feeling? Stomach bloated or any pain? Can share more. Thks

@LisatheHousewife Ай бұрын

@@chewmargaret3098 I love home hemo dialysis. I feel the difference like day and night. On PD I always felt like sick to my stomach. I had no appetite and when I would go to the ER my labs looked like I never had dialysis. PD was not cleaning out the toxins at all and I was dehydrated due to all the nausea. Once the put be on hemp dialysis I felt better instantly. The nausea went away my labs got better, my appetite came back and I got my energy back. Hope that helps.

@diaryofakidneywarrior Ай бұрын

@@chewmargaret3098 I didn't actually feel unwell as such when I was on PD, I did however, feel the effects of the fluid build up and that was what was the problem. So I didn't ill as such from the PD I felt the effects of the excess fluid.

@SanaSzilage 4 ай бұрын

Thank you for sharing your PD experience. My husband just started PD, and I am hoping and praying to God that it works well for him. He still has his hemodialyis vein catheter, and it would not be removed until the PD Team determine is working as it should. God you and keep you strong and positive!

@diaryofakidneywarrior 4 ай бұрын

Thank you and all the very best to your Husband his PD journey 🙏🏽

@SharisAlita 3 ай бұрын

I did PD for close to two years until my transplant and it went well. And it was over 26 years ago. I did my treatments manually though not with machine.

@khalilthompson437 5 күн бұрын

Thank you for what you do also a survivor

@diaryofakidneywarrior Күн бұрын

Thank you so much for your kind words and for sharing that you’re a survivor too! It means a lot to connect with others who truly understand the journey. Wishing you continued strength and resilience 💚

@scoopdg Ай бұрын

Hello! Thank you for both your bravery and for your solidarity in sharing your story with us. I really hope life gets better for you over time. Just one question, how did you find out that you had chronic kidney disease? What were your first symptoms?

@diaryofakidneywarrior Ай бұрын

Thank you so much. Check out episode 1 of Diary of a Kidney Warrior Podcast where I share about how my journey with kidney disease began, my signs and symptoms etc kzbin.info/www/bejne/jKvbcqaaadVmfa8

@scoopdg Ай бұрын

@diaryofakidneywarrior Thank you!

@ninclarke1357 4 ай бұрын

Thank you so much for sharing your story. I'm new to pd and suffering horrific pain during the drain cycles. I have been told it's constipation. I dread hooking up to the machine every night. I have my pet test in a couple of days time so hopefully I will be able to get it sorted x

@diaryofakidneywarrior 4 ай бұрын

So sorry you’re going through this. Have you asked them to change the settings so that there is a tidal? This may vastly reduce/eliminate your pain.

@chewmargaret3098 Ай бұрын

How u getting now? Can share little of your experience here?

@diaryofakidneywarrior Ай бұрын

@@chewmargaret3098 are you asking me or @ninclarke?

@FlorRosa77 2 ай бұрын

Thank you for sharing your story! Where did you do your pd catheter placed originally?

@diaryofakidneywarrior 2 ай бұрын

Sorry I don’t understand your question

@josiem1671 3 ай бұрын

Thanks for sharing. 🙏

@diaryofakidneywarrior 3 ай бұрын

🙏🏽

@ojones3582 2 ай бұрын

Praying for you 🙏

@diaryofakidneywarrior Ай бұрын

Thank you 🙏🏽

@MiySadochok 5 ай бұрын

Thank you so much for sharing your story! It is very scary, what happenned to you. My understanding you were on PD only 4 months? When did you notice, that your body, knees were swollen - it was from beginning? did your doctors were aware of that?

@diaryofakidneywarrior 5 ай бұрын

Yes only 4 months. I noticed my legs were swollen after a few weeks and also the weight (water) gain.

@chewmargaret3098 2 ай бұрын

Do u still encounter any more prob now?

@diaryofakidneywarrior 2 ай бұрын

HD definitely has worked for me and I have had much better results than PD

@chewmargaret3098 2 ай бұрын

@@diaryofakidneywarriorany nausea or gidiness after HD? Heard that blood pressure will go down..

@diaryofakidneywarrior 2 ай бұрын

@@chewmargaret3098Everyone’s response to HD is different, some people experience nausea/feeling weak etc blood pressure is monitored through the HD session. Some people experience a drop in BP some don’t.