i've never met someone who has the same disease as me. addison. and its been 10 years so , thank you so much for sharing your journey with us. helps a lot 🤍

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LIVING HELL IS RIGHT!!!

Bruh. I hate to see you try to explain, as someone who has been through this so many times, igi ... 💜 thankyou for sharing. edit: It needs to be stressed how important mood/wellbeing changes DIRECTLY CORRELATE with crisis coming on. Sometimes the first thing you know, besides a few minor physical changes, is that your moods GET DARK and you KNOW 'this is not me, yet here I am...'

It’s so hard to find videos like this due to the rarity of the disease, but so many of the points your made about your experience hit the nail on the head! I was 26 when I spent the 7 months battling undiagnosed Addison’s. I saw my GP numerous times, several trips to the ER where they told me I was just dehydrated and needed to “just eat a turkey sandwich,” gastroenterologist put me under twice for a stomach scope and a colonoscopy (I thought the colon prep the day before was going to kill me and it literally could have!). My family thought I was anorexic. And it was oh so lonely to have no one believe you that something was going very wrong in your body. Finally ended up in the ICU with very low blood pressure (70/30), sodium of 119 and high potassium (recipe for heart failure). It took that ICU doctor who finally actually listened to what was going on, do the right tests and diagnose me with Addison’s (and also Hashimoto’s with a TSH of 52). I was so relieved to finally have an answer and validation! That was 14 years ago and I’m still in awe of God’s grace to intervene and save my life.

Ho brother ! I have addison for about 20 years now :) nice to meet you !

Love u from india❤❤❤

Thank you for sharing. Diagnosed today with primary and being checked for secondary. Didn’t go into shock but glad to know how dangerous this condition is. Stay well

Wow, thanks so much for telling your story!

I'm literally sobbing, thank you so much for sharing your story. I'm a medical student, I think I have it, 5 years ago I was feeling really tired, I went to a doctor and she asked me to do a cortisol level test, I completely ignored it, I was like what in the world is she thinking of. ( probably cuz she told me it might be a medical student syndrome lol ) that made me mad But now I’m really thinking of nothing but Addison’s It’s like you don’t want it to be true, but at the same time you are so tired of being tired, so tired of having the potentials but barely can achieve anything, so at least you wanna find a reason for it to treat it

Praise the Lord Jesus Christ ❤God bless you and continue to heal your body and nourish you back to full strength and restoration in the mighty name of Jesus Christ of Nazareth ahmien.

Omg what a nightmare to experience thank you for sharing I never heard of this before. God bless you and anyone who is dealing with this situation praying 🙏🏽

I have Addison's. Recently I was in the hospital for A-fib and was put on fluid restriction and low salt diet, and I was going into crisis. I finally convinced the hospitalist to call my endocrinologist so I could get increased hydrocortisone.and stop the low salt and fluid restrictions. I felt like I was fighting for my life.

Thank you for Sharing

Zdravo Levi, Addisonovo bolezen so mi odkrili naključno pri osmih letih... bil sem zelo živahen otrok in se še v enem letu 3 krat zlomil roko nato so me sterši dali na preiskave v bolnico za 1 teden kjer so mi naposled ugotovili Addisonovo bolezen. Sedaj sem star 40 let in redno jemljem hydrocortizone 15+5+5 ko vstanem nato čez 5 ur in zadnjo čez 4 ure. Rad bi omenil da bi bilo super uživati d3 5000ui+ k2mk7 200 mcg in magnezij 400 mg zaradi preprečevanja osteoporoze ki je zelo pogosto razvike pri tej bolezni prav tako pomaga pri boljšem počutju. Pozdrav vsem z Addisonovo boleznijo.

Having an Addison crisis right now, tho they didn't find out why yet. But your experiences resonate so much with me, it makes me cry. I'm just so unbelievably tired of trying to battle everything..

john f kennedy also had the disease! and thanks for sharing your story

😭😭 man. I got goosebumps, big time, when you said they called you back and said come back now something is very wrong. I just got diagnosed with Hashimoto's and who knows what else. I'm wearing a heart monitor right now to see why my heart is beating irregular at times but i have extreme fatigue too. I'm so sorry this happened to you. The struggle of "something is wrong" and no one understanding sucks!

Im 54 yrs old 195lbs. Can you share to me please your daily dose of Hydrocortisone pls. During flare up of fatigue and pain it takes me morethan a week to recover and start moving again, what do you do in order to recover in just a few days? Thank you

I just got back from the hospital and was diagnosed. My story is eerily similar to yours though perhaps not as severe, with a sodium of 110. Sharing your experience was so encouraging to watch right now. Praise Jesus he saved us both! Let me know if you have any tips for building back after this. Thanks again for sharing with us.

Do you experienced lack of motivation or sadness/depression or anxiousness with Addison disease?

My favourite part now that I have watched the whole video through! Was when you stood in your authority and recognized how the devil tryed to take you out and your standing on the power and authority of the word of God how he gives us authority to trample on serpents and scorpions . When you said Satan nice try I shouted AMEN!!!!!!! Praise God hallelujah God is good and I know if we stand on the word and stay in our bibles daily we will be transformed and renewed! All the glory to God man God is good all the time! we can’t waver in our faith brother we got to hold strong and have no doubt in our hearts that God will heal us ❤

What a testimony , you have now . God brought you alive to your parents . Me and u both know how dangerous that was the state that you were in I know that feeling where u feel like your body is shutting down and u were able to drive to your parents without crashing

I’m tearing up , I belive every word you’re saying . I started having my health ailments when I was 21 . Been down hill since then . 34 now I went through so many trials and tribulations either misdiagnosis and being brushed off while knowing I’m slowly dieing . I have a long story but the best part out of all of my pain and suffering is I found Jesus Christ our lord and Savion whom saved me from the pit of hell . He is my rock and the reassurance that I know our bodies will return to dust but my soul will spend eternity with our Heavenly Father . Me and you both will gain a new body no more pain and no more suffering a glorified body! What a day that will be . Listening to old hymns of the church really lifts my spirit up when I am in a flare up . God bless you brother!

People don’t understand medical trauma . Or the emotions we go through and how it affects our mental health . My heart goes out tk young people who are going through health issues hang in there everyone who reads this!

Thank you so much! My heart is breaking and I went through something similar and was hours from dying. I'm only alive today thanks to following my intuition no matter what all doctors were saying. I ended up doing a very expensive blood test for women (on credit) and was admitted to the ER hours later. Still until this day I don't trust doctors. I don't trust my family or friends who still can't seem to understand that things like Xanax can kill us (Valium not), that uppers like adderall also can kill us (doesn't make us more awake/less fatigued) and that our problems are different. My story also started 2018. Lots of love to you! ❤

Hi I have Addison's. I was diagnosed in my 40's my situation was similar to yours. I'm now 64 years old. I'm in Stage 4 Adrenal Failure. I'm on 7 5mg Hydrocortisols in the morning and 4 in the afternoon. I receive two injections a month also. I'm so sorry for your journey. I'm from a small town in North Carolina and until I watched your video I felt no one in the universe had Addison's but me. Thanks for sharing.

I went into heart failure at 33 with a near fatal low potassium and gained an excessive amount of fluid prior to my hospitalization. I did well for awhile and was told by my doctor his goal was for to be off all meds and only wear compression sock for the venous insuffiency I was dx with but was never tested for anything else so most likely why I was misdiagnosed and have been going undiagnosed all this time and I'm now 44 . I've had to self advocate for myself for over 3 years now and from my physical state at that time and supporting labs I had hyperaldosteronism. In 2020 I went all meds with my current pcp's permission bc that was the goal of my prior family physician. Well my high bp came and started to retain fluid once again so when I tried to get my scripts refilled I couldn't get the clinic I was going to at the time. They changed my meds to what they thought was best nevermind the person who has lived this life daily for 7 years and knows what works best for her. Well the beginning of the year I found a doctor who refilled my scripts and thought things would finally start looking up and I would feel better once they got into my system and took affect. But something was different and they didn't make me feel better at all but worse. My bp med with the diuretic in it started causing me to get these lupus like sores when exposed to sunlight and the spironolactone just didn't seem to work either. So after that pcp said the meds were not the cause and I knew different. So 5 months ago I took myself off all meds which is a good thing I did bc now without bp med my bp runs around 80/60. Also after stopping the one medication spironolactone 4 years ago I developed hyperpigmentation on my face, neck, and chest. I was dx with hypoglycemia at age 20 and always have craved salty and sweet things and more often than not my blood serum stays at a low level when labs have been done in the past even more so than my potassium level. In May of this year I seen a urologist and requested a 24 hour collection done bc I already suspected I was losing calcium and came back showing that my urinary sodium levels are 332mmol range is 50-150mmol. And for over 2 years now I've been experiencing these narcolepsy like episodes where I lose consciousness for 30 min to an hour and as you start to come out of it all I can describe it like is someone breathing life back into you and you take this big inhale of air in and feel like your in a drunkin stupor. Those episodes happen when I'm exposed to stress and physical activity. When doing research last week I discovered an article on spironolactone that if your being treated for hyperaldosteronism and stop if for a lengthy period of time it can cause you to develop Addison's disease.....and where I'm at this point.

Thank you for this video. God bless you 🙏

Have had it for years and take my pills daily. I still sometimes have strange episodes like almost passing out and really confused. Yes Jesus has saved me more times than I can count. Thanks for sharing.

Did the skin discoloration go away after treatment, or is it permanent?

Interesting if plastic alters endocrine system on hormonal level wonder if it effects thyroid especially if your premature as child tubed for breathing and eating. Dude bless you check out Anthony Williams thyroid healing make sure your western medication aren't effected by any diet changes like dark greens alter thyroid medicine none specific example...

Um my eastern med or integrative claimed my diet and genetic mutations make me proun hashimoto thyroid. Unfortunately I taken MRNA immune suppression drug.

I was just diagnosed a few months ago as a result of immunotherapy…it was so scary…glad my oncologist knew right away what it was…my endocrinologist said there will be more cases now due to the use of these drugs…so hopefully more doctors will be more aware of this

Thank you so much ❤ my husband is going thru this is not diagnose yet but I can see all symptoms

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Great video! I was just diagnosed with addisons after five years. It’s been a wild ride. I’m happy to hear your faith got you through the tough times. I hope all is well

Praise Jesus.

Watching this and wondering if I have this. I’ve suffered for many years with what doctors have diagnosed as Chronic Fatigue, Insomnia, Narcolepsy, etc etc. I can’t seem to ever feel normal or healthy no matter what they tell me to do. Exercise and stress causes “flares” and I’m ALWAYS THIRSTY and I carry around my own personal salt shaker. Because of this video I’m going to ask for a test. Thank you for advocating for those who “seem fine”, but are terribly terribly sick.

This sounds like me. Referred to a cardiologist, pulmonologist, rheumatologist, hematologist. “ All your labs are fine 😊” I’m currently in physical therapy and can’t even finish each session because my muscles give out on me and I’m sooo exhausted towards the end. I have a dr appointment with my primary. I really hope they test for Addisons. We ruled out POTS and Lupus 😩

I have it too, just lucky that I found out❤

Your doing the 666 hand signal!

Hi levi ,wow song is beautifull.wishing you the best and thank you for speaking about addissons disease my name is virginia and i akso have addisdons disease.would love to share my story .

Such great story! Thank you so much for sharing it. Love your attitude! Wish you all the best🙏🏽

I was diagnosed with Addison's Disease about 4 years ago when I ended up in the hospital 1 day away from my entire body shutting down and dying. I connected with this video so much and I am so glad that you are trying to raise awareness for this disease. Even with medication I never feel 100% normal and it is hard to balance it since not much is known about the disease. Thank you for sharing your story, I know that I am not alone.

I love how you love Jesus

Jip you are afraid that you are going to die, but then you start fearing not to die

And it is ALWAYS anxiety....

Wow I can so relate...feel like when you close your eyes, you going to drift into the after life

All the glory to God ❤