Hi levi ,wow song is beautifull.wishing you the best and thank you for speaking about addissons disease my name is virginia and i akso have addisdons disease.would love to share my story .

Such great story! Thank you so much for sharing it. Love your attitude! Wish you all the best🙏🏽

I was diagnosed with Addison's Disease about 4 years ago when I ended up in the hospital 1 day away from my entire body shutting down and dying. I connected with this video so much and I am so glad that you are trying to raise awareness for this disease. Even with medication I never feel 100% normal and it is hard to balance it since not much is known about the disease. Thank you for sharing your story, I know that I am not alone.

I love how you love Jesus

Jip you are afraid that you are going to die, but then you start fearing not to die

And it is ALWAYS anxiety....

Wow I can so relate...feel like when you close your eyes, you going to drift into the after life

All the glory to God ❤

I am from Bangladesh, and I have Addison's disease and diabetes also, i am 40 years old, now I am taking cotson 10. Thank you very much for sharing your story

Medical gaslighting… seems to be an epidemic in this country

Didn’t believe that I’m gonna see someone speaks about Adison’s in real life, thought it was just a rare disease I read about it while studying years ago. I’m glad that u made it this far, I wish you all the best.🙏🏽

I shared this video with my professors at college as we are currently studying this disease. Hoping that your story can be shared amongst other students. Thank you for sharing. Best wishes

I HAVE SECONDARY ADRENAL FAILURE. I HAD A TUMOR ON MY PITUITARY GLAND. THE PITUITARY GLAND IN CONJUNCTION WITH THE HYPOTHALIMUS SEND HORMONES TO THE ADRENAL GLANDS. WHEN THE PITUITARY GLAND IS DAMAGED, THE ADRENAL GLANDS DON'T GET THE HORMONE OR GET A REDUCED AMOUNT AND THIS CAUSES PROBLEMS WITH CORTISOL PRODUCTION AMONG OTHRE THINGS. I HAVE TO TAKE ORAL HYDROCORTISONE EVERYDAY SO THAT MY ADRENAL GLANDS FUNCTION PROPERLY. THIS IS A VERY WATERED DOWN DESCRIPTION, BUT THERE ARE MANY VIDEOS ON KZbin THAT CAN EXPLAIN IT BETTER AND THE ACUTAL HORMONES THAT ARE INVOLVED. BTW, HOW I WAS DIAGNOSED WITH THE TUMOR IS THAT MY PERIPHERAL VISION IN MY RIGHT EYE WAS DECREASING AND MY OPTHOMOLOGIST HAD ME DO AN MRI AND IT SHOWD THE TUMOR. THE SURGERY IS ANOTHER AMAZING OPERATION THAT YOU MAY WANT TO CHECK OUT.

We want to listen the sounds. Why do you put music over it?

this is very sad, i feel u i get fatigue aswell, but less than yours

I was diagnosed last week. I have been struggling with these symptoms for 5 years. Seen doctor after doctor, blood test after blood test. The Labcorp tech knows me by name since I go there so much. So thankful a doctor finally cared enough to look at my bloodwork (test me for things no one else did) and realize what it was. Thank God he saved me. Thank God he saved you and you can help other people. Praise God. Bless you.

You are amazing! I’m being tested now … trying not to let the anxiety take over… what a testimony you have ! God is using you in a mighty way ! Praying for you! In Jesus name!

I had it too because of too many cortisol in my inhaler , i had to take 2 puff twice a day 400microgram each puff, i had to increase to 100mictogram 1 puff twice a day, a big different, i had low bloodsugar, had to throw up, exhausted, pain in my belly and much more, i lost weight I had to take cortisonacetaat each day I found out myself not any doctor, i Said to him i have a low cortisol level He Said yor bodh is making cortisol I Said, yes i know but not enough I was almost dead Later tests confirmed it My general practitioner

I’m going through this now at 60yo. Waiting on test results and feeling awful. Please keep me in your prayers ❤ Thank you 🙏 😊

Thank you for sharing!! I’m sorry the doctors gaslight us all so much with “anxiety & depression”! Completely neglecting real investigative research to find the problem and treatment! I to am experiencing those same mobility problems and more. I am currently going through autoimmune testing so I don’t know exactly what I have yet. I’m so happy you are alive, got treatment, and live a fulfilling life! Praise the Lord!

Thank you for sharing! I ended up with a pacemaker before they figured it out. I'm still trying to get on the right dosage after 2 years to keep out of ER. So many specialists tested for every autoimmune disease but never my cortisol. The ICU finally figured it out. So frustrating.

I should add here, NO pun intended, that the Gold Standard for treatment of ANY type of this disease, is primarily HYDROCORTISONE. That secondary steroid is only prescribed in the case of the core of the supra-renals not producing the rest of the steroids they're supposed to. Sorry I'm sketchy on the details. My brain isn't braining, as my grands would say, it's been a long day & I'm really tired. But y'all get my drift, yeah? The point is, the emergency rooms will most likely give you IV hydrocortisone, & your emergency injection will probably also be the same. But otherwise, it's whatever your local clinic or pharmacy has most in stock, unfortunately. Still, you CAN insist on your Dr relaying to your pharm that your steroid be hydrocortisone as it gives you the best coverage for Addison's. ❤

I have 2dary Addison's. I also have Systemic Lupus, & been on steroids for over half my life. So the question 1st came up, was my adrenal insufficiency due to my overuse of steroids or were my glands just not working properly bc my Lupus has destroyed them? Chicken or the egg, iow. In the end it didn't matter. I had an Addisonian crisis. I'm "sensitive" to MANY foodstuffs, & I mistakenly ate something that caused severe diarrhea. In less than 4 hrs I was too weak to stand & about to black out, so my adult kids took me to the ER where I was told I was severely dehydrated, my sodium was too low, as was my calcium & magnesium. However, I am PALE, ghostly even, & blood pressure is high, & I don't have a thyroid, so hormonal things are complicated. May i also make a note here that if anyone wants more in-depth info on Addison's, the NHS (that's the UK health system) has SO much good info! They have the gamut in complexity of info so that anyone can choose to get as much detail, or as little, as they can handle. I got lucky, in a way, that i didn't have to almost die in order to get Dx'd, BUT, I recently almost did bc of a lack of communication in a rural clinical setting. OP it's EXACTLY right. If you have Addison's, YOU need to advocate for yourself, & LEARN to understand what your body is telling you. Even if it's only for yourself. ❤ I'm not religious, but I truly believe there's a Universe that has to maintain a state of equilibrium. I believe in karma, which is the law of consequences. For every force there's an equal & opposite force, but we're also all of us, every creature & being, connected. Us Addi's may be the zebras that appear when Drs hear hoofbeats, which is why we must insist they keep doing tests when they want to give up. 🫡 🤓

Thanks for sharing your Story

I am watching this video in 2024, how are you feeling now?

Happy to see your video. I found this helpful in terms of understanding what I have been through.

Thank you,had been diagnosed with this years ago ,but nothing was done,but my symptoms are escalating & some days cannot cope , so thank you

A me è venuto come effetto collaterale dell'immunoterapia. Italia

I have to add this can occur not from food. Mine started with a antibiotic I took 45 years ago

Dad (84) has lived with undiagnosed (yet randomly “treated” AD for 30+ years and uses Prednisolone (without regime due to docs and lack of diagnosis) - recently admitted to hospital for vascular disease (also a symptom of chronic AD), they take him off Prednisolone because it’s a vascular ward, despite 30+ years of taking it because he doesn’t make enough! Gawd knows how he has survived 10s of mercy dashes … at 84 … he is experiencing exactly this criticality over the past 10 days and many times before - we’re hoping tomorrow that a GP will understand what that “kill switch” is like and that you are literally dying (I experienced the same thing for over 12 months, 3 years ago) - it’s inexplicable aside from being conscious while dying - it’s not even like fainting, despite sometimes doing so - that’s just the light weight version that somehow buys a bit more time. So sorry you went through this, from experience I know that it carries with it a form of PTSD - I hope you’re doing OK. All the best, Anna South Australia

My mother has Addison’s disease. She was diagnosed 48 years ago and is now 100 years old.

Jesus saved my life too

Does anyone in your family have this too ?

Thank you for sharing Didn’t get diagnosed for 45 years after crisis. I would go in and out of symptoms my whole life. I’m grateful to be here. 95 lbs to 120 lbs 😊

They keep calling it migraines. Doesnt explain the BP drops and low sodium retention...

in Usa there is a thing called law suit, have you try this? it's easy win with this disease. Instead you chose to kill people on the way back home driving while passing out.

Hey, what’s up Levi? I just saw your video. I got diagnosed with Addison’s about 25 years ago. It’s been tough to regulate it. Be nice to talk to someone that has it. I’ve never met someone that had it before.

I’ve been researching and finding anything I can on Addison’s, my 18 yo granddaughter was just diagnosed with this after an ambulance ride and 1 night in ICU and 4 nights in the hospital. Y’all’s story has definitely got a tremendously amount of similarities. Thank you so much Levi and many prayers.

THANK YOU SO MUCH, I HAVE BEEN DIAGNOSED WITH IT, BUT THE BLOOD WORK DOSEN'T COME POSITIVE, SALIVA TEST SAYS YES. I'VE HAD THIS OVER 15 YEARS, MY SKIN GETS WORSE, MY HANDS ARE BLACK ON TOP. I'M GOING FOR MORE TESTS IN A FEW WEEKS. IF THE BLOOD WORK SAYS NO, THEY SAY IT'S SOMETHING ELSE. I KNOW BETTER, I TOLD ONE OF MY DRS. THAT I'LL BE ALMOST DEAD WHEN IT SHOWS UP ON BLOOD TEST. I STAY TIRED, DRINK CAFFEINE TO GO AT ALL. IT 'S TERRIBLE WHEN THERE IS NO DIAGNOSIS. FROM GEORGIA❤❤❤😊😊😊HAVING BALANCE PROBLEMS AND FALLING.😢😢😢

Jesus = VICTORY. You are victorious in Jesus Christ! 🙌

Beautiful story and very inspiring mentality . Thank you for sharing this journey 🙏🕊🔥🌈👍

What a beautiful story and testimony! I cried like five times. Thank you for sharing. 🙏🏽

Thank you for your video on Addison’s disease… Is very informative

Praise God. He protected you 🫶🏻

It's a struggle trying to get help with this. People to believe that you're sick. I drink lots of water and Propel and put salt under my tongue but I still get pretty sick and then they're like oh but your levels are good

Can I ask you to get in touch please. I too was told to take Xanax I have been my own advocate for a healthy lifestyle with Addisons ! I would love to better understand what we can do to advocate for others. Spread awareness.

Diagnosed about 15 years ago and aside from longer stays when accidents happen I learned to listen to my body and I am proud to meet another advocate. How can I help as I have felt my story needed to be heard.

❤

I’m waiting for my blood results bc I might have it :/

I have addisons and it so hard some days to get out of bed.