This is very helpful. Many well meaning people I know are almost abusive because they don't understand what I am dealing with.
@fleurhille16542 ай бұрын
Thank you!!!!
@brendabrenner28913 ай бұрын
Excellent .would love to hear about oxygenation wout hyperbaric chambers.. studied this 2 years, was ore med, bone of my Drs kno what I'm talking about.. no help/clinic here.. 3years, long c, long Lyme, mold injury, gut dysbuosis, ru for all
@brendabrenner28913 ай бұрын
As a pre med student decades ago + a retired educator if31 years, I use these apologies, depending on to whom I speak, .. or to a mechanic, I say it's sugar in your gas tank.. great post. 🙏❤️
@catherinebryant19524 ай бұрын
trying to manage the energy to fill out paper work for short term disability and social security disability takes all the spoon I have for day and they always want more paperwork, dr visits etc. I can't do it
@danielsingh94154 ай бұрын
Pacing may mean getting the paperwork early, prefilling what u can a few days early, or whatever ur cycle is, so ur prepared as much as u can, napped, hydrated, medicated, etc and knowing afterwards ur gonna be wiped for days in recovery, that's the price & the cost👍
@sallycornish3104 ай бұрын
Just finding your videos. Wish I had sooner! This is really great, I'll be using these explainers. Thank you!
@freeandhappy8 ай бұрын
long covid is bullshite. it is jab damage such nonsense who believes this crap????
@KajalNayarVlogs Жыл бұрын
Nice I subscribed
@elizabethm3652 Жыл бұрын
Thank you so much for creating this! I would love to learn more about what sorts of tests should be done right after an acute covid infection, to catch any long covid stuff as early as possible.
@pdevonald Жыл бұрын
Fantastic info, perfectly described. Vital important work, thank you
@angelacrowley819 Жыл бұрын
Thank you so much to both of you for these new channel and also for what you have done to raise awareness and speak for us long haulers.
@reginadegiovanni6685 Жыл бұрын
Thank you for this channel
@larajhilton Жыл бұрын
Please could you cover Long Covid Migraines please. Thank you.
@samwilliams818 Жыл бұрын
And sometimes, brain fog means that I forget to do a lot of the things I am supposed to do. And then my pacing falls over.
@samwilliams818 Жыл бұрын
This is a really excellent explainer. Sometimes, as a parent, pacing has to go out the window.
@pamelabishop2825 Жыл бұрын
Wonderful channel, thank you! Will be following with great interest.
@larajhilton Жыл бұрын
Three years on… my husband is still getting daily migraines (otherwise it’s a severe headache) and now heart palpitations. Appreciate this beyond words… anything on migraines would be gold. Thank you so much. Feeling overwhelmed, frightened and alone.
@mrfunkyman6860 Жыл бұрын
Have you tried any medications? My GP prescribed me propranolol which is amazing for me, a different one might work for him though. The GP should be able to try something for migraines, at least.
@EllaSloman Жыл бұрын
Thanks you so so much for.doing this . Us long haluers really appreciate you both . Yes I've been told there's no treatment and I'm almost three years on. What are your thoughts on the fibrin issue and acidosis hypotheses?
@KHT603 Жыл бұрын
Catch up for the latest research and what we know about the illness. Can we treat something symptomatic? We know for sure something about many puzzles of the whole picture- what can we do to get some relief?
@heatherlomaxmusic4776 Жыл бұрын
Hypoxia
@ChristyCollins Жыл бұрын
Hi! I would love to know more about microclots and vascular pathology (and to what extent it might be reversible!). Thanks!
@cordeliaappleby7663 Жыл бұрын
Looking forward to hearing
@jobob355 Жыл бұрын
Great if you could cover the evidence, mechanistic AND associative, in LC AND all those interrelated post acute infection illnesses with similar pathology, for LDN and IVIG. And PLEASE, something for the medics on applying EBM+ appropriately alongside their expertise and ptt preferences. Thank you again.
@jobob355 Жыл бұрын
Great effort, youve both been through the horribleness, that so many of us have. But as i think you both seemed to recognise please dont make this about ONLY what WE can do... i havent met many that dont know to do less when they are bedbound, feeling so ill and disabled... gotta help us all to get the MOST out of the health system. Of course its individual, so i know you cant list meds/supps... but you can guide us to get SOMETHING that might help us from our medical docs.
@jobob355 Жыл бұрын
Right, seen em all so far. I think I am doing all *I* can do. Really REALLY need medics to actually apply EBM and EBM+... how can you help me to better persuade medical practitioners that they do not need to wait for a cochrane review showing stat and clinically significant benefits or NICE Guidelines to try some treatments. No, they don't have the right diagnostics; no, they can't find THE endpoint to treat, BUT YES, they could clinically classify me in to post-acute infection illness LC category, and YES they can use available evidence (on plausible mechanisms, small association studies/trials, other PAIIs etc and try a range of things that show promise. Or we have 10 years of just "rest if you need to, get some sleep hygiene, do some mindfulness". Can't be right, people losing everything, disabled, excluded, disease progression.... there is evidence that some things probably will help, even if more upstream. That is the biggest challenge IMO, encouraging medics to actually try some medicine.
@jobob355 Жыл бұрын
Hi. Thank you. Following intently. I have the nuroimmune, ME/CFS-type LC of approaching 2 LONG years now. Disabled for months mentally and physically, housebound for a long while too. A year off work. On a very long, windy road to what I hope is a full recovery, but still pretty disabled. Have Qs. Did you miss magnesium off the tests? I am in two Long covid clinics between them and GP I've never had a cortisol test. The service is infrequent, don't really offer to try with medical treatments, only NPIs with little evidence... information giving and recommended self care from therapies.
@pdevonald Жыл бұрын
Important vital work. Thank you so much for all you do
@laurabyrne7028 Жыл бұрын
This is a great idea. Looking forward to seeing the content.
@marianbrooke6728 Жыл бұрын
This sounds so helpful thank you. I’m searching it now