The Long Covid Clinic: What You CAN Do Introduction

[@larajhilton]

Three years on… my husband is still getting daily migraines (otherwise it’s a severe headache) and now heart palpitations. Appreciate this beyond words… anything on migraines would be gold. Thank you so much. Feeling overwhelmed, frightened and alone.

[@mrfunkyman6860]

Have you tried any medications? My GP prescribed me propranolol which is amazing for me, a different one might work for him though. The GP should be able to try something for migraines, at least.

[@ChristyCollins]

Hi! I would love to know more about microclots and vascular pathology (and to what extent it might be reversible!). Thanks!

[@laurabyrne7028]

This is a great idea. Looking forward to seeing the content.

[@elizabethm3652]

Thank you so much for creating this! I would love to learn more about what sorts of tests should be done right after an acute covid infection, to catch any long covid stuff as early as possible.

[@EllaSloman]

Thanks you so so much for.doing this . Us long haluers really appreciate you both . Yes I've been told there's no treatment and I'm almost three years on. What are your thoughts on the fibrin issue and acidosis hypotheses?

[@cordeliaappleby7663]

Looking forward to hearing

[@larajhilton]

Please could you cover Long Covid Migraines please. Thank you.

[@KHT603]

Catch up for the latest research and what we know about the illness. Can we treat something symptomatic? We know for sure something about many puzzles of the whole picture- what can we do to get some relief?

[@jobob355]

Right, seen em all so far. I think I am doing all *I* can do. Really REALLY need medics to actually apply EBM and EBM+... how can you help me to better persuade medical practitioners that they do not need to wait for a cochrane review showing stat and clinically significant benefits or NICE Guidelines to try some treatments. No, they don't have the right diagnostics; no, they can't find THE endpoint to treat, BUT YES, they could clinically classify me in to post-acute infection illness LC category, and YES they can use available evidence (on plausible mechanisms, small association studies/trials, other PAIIs etc and try a range of things that show promise. Or we have 10 years of just "rest if you need to, get some sleep hygiene, do some mindfulness". Can't be right, people losing everything, disabled, excluded, disease progression.... there is evidence that some things probably will help, even if more upstream. That is the biggest challenge IMO, encouraging medics to actually try some medicine.

[@heatherlomaxmusic4776]

Hypoxia