My fight against MG has been fierce, but having a friend like Anita Longoria helped me know what to expect and how to attack it. Being a Marine Sgt I have never thought of giving up...she gave me the knowledge to go along with my determination. I have a lot to be thankful for. Thank you Anita from one of your biggest fans.
@sarahmansoor617319 сағат бұрын
Hi my name is Sarah and I was diagnosed with C3GN at age 9, in Jan 2014. For me, the C3GN was idiopathic, and around time of my diagnosis, i was given cyclosporin which I know is a widely used treatment option in the world of kidney disease but I bad a very rare and very severe reaction to it. I had an allergic reaction to cyclosporin and I became severely hypertensive, had PRES syndrome, and ended up in a coma. This severe reaction was so rare that my nephrologist himself said to us how he had been giving cyclosporin to patients for over 30 years, and he had never before witnessed the type of reaction I had. He said it is possible when you look deep into the history of the medicine cyclosporin, but the chance of it happening is so unlikely that he had never had a patient experience it. Since then I've had different treatments, 3 renal biopsies, and had many weird medical experiences. My doctor says im stable right now and they say im in stage 2 of kidney disease. I greatly appreciate the doctors and researchers who help find cures and treatments for such rare conditions, you guys really help motivate me to stay strong and keep fighting my battles with C3GN. 😊
@RayleignOsborn-r7k21 сағат бұрын
Weimann Junction
@GeraldHill-e9t23 сағат бұрын
Garrick Forges
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Jimmie Union
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Marie Island
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670 McCullough Rest
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@TheRZapp234 күн бұрын
What virus?
@Ryan-s2z5 күн бұрын
How about you guys find a treatment rather than putting effort in these rare reversals. What happened to all the money put into this disease and right to try back in 2021? It's almost 2025 and I see shit worth of progress on this disease.
@JohnThornhill-d9e5 күн бұрын
Florencio Land
@dawnhines53315 күн бұрын
What is the breakthrough treatment? How do we get it?
@NancyBond-i2u6 күн бұрын
Bednar Springs
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Vesta Freeway
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Kraig Bypass
@dawnhines53316 күн бұрын
I'm trying to save my life and my children's lives if we have this. I'm pretty sure that we do. I'm 47 and my mom passed away at 49 and I don't smoke but my liver has been injured over and over and I have been really sick the past two years. Can you please tell me what direction to go? I have done all the research in my own to find out what is wrong because the doctors around here really don't know what they are doing and I can't believe that. I always thought that they cared enough to do whatever it took to find out but I can't even get them to believe me. This has been a nightmare and I feel like time is running out for me. I'm not going to give up I'm not going to let this happen to my children. Like I said it is mostly my liver but sometimes I feel like I can't get enough oxygen so I started expanding my lungs with deep breathing so I don't panic because my mom was on steroids and she couldn't breathe. I'm begging you for any information and how to get treatment. I live in Shelbyville Indiana. Thank you for this video 🙏
@GraySaxon-t5b6 күн бұрын
Abernathy Plains
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Emie Crossing
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Mraz Shoal
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Julie Land
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Pete Harbor
@derrickoraphael23317 күн бұрын
I am extremely grateful to Dr Ikpoko on KZbin, this great herbal doctor get me healed from my Genital warts without no side effects. I am bold to say I’m completely free from this virus after using his herbal medicine as prescribed to me.
@AdrianScottty7 күн бұрын
Rodriguez Matthew Harris John Perez Jason
@onlythemessenger2807 күн бұрын
Fast forward to September 27th 2024 , this drug Oxbryta is being withdrawn from the market worldwide because of safety concerns. The drug maker said the benefits of Oxbryta no longer outweigh the risks. The company's data indicated patients could suffer from severe pain and even death.