Global Care Collaborative Pioneers Consensus for Improving Diagnosis and Care in CTCL (Chapter 4)

Yuliya Linhares, MD is a medical oncologist specializing in the comprehensive treatment of lymphoma and serves as chief of Lymphoma Services at Miami Cancer Institute. In this video, Dr. Linhares discussesdiscusses the CTCL Global Care Collaborative Pioneers Consensus for Improving Diagnosis and Care in Cutaneous T-Cell Lymphoma.
The consensus statement is the inaugural output of the CTCL Global Care Collaborative, a newly
established group united by a shared mission to reduce the time to an accurate diagnosis and
improve the quality of care and support for people living with CTCL. Kyowa Kirin organizes and funds
the group. The Collaborative is focused on driving long-term change in four priority areas - improving awareness of CTCL amongst healthcare professionals (HCPs); improving time to diagnosis and awareness of disease staging; ensuring all patients have access to appropriate care; and empowering patients with the information they need to make informed decisions. The insights informing the group’s work reflect global perspectives, the unique needs of the patient community, and international nuances.
The CTCL Global Care Collaborative aims to address the unmet needs faced by people living with
CTCL, which encompasses several types of rare blood cancer that primarily manifest in the skin.1,2
The Collaborative is organized and funded by Kyowa Kirin, a co-founder of the group.
The Collaborative is comprised of global patient organizations - the Cutaneous Lymphoma
Foundation and Lymphoma Coalition; national patient organizations - Lymphoma Action (UK), the
Portuguese Association against Leukemia and Lymphoma - APCL (Portugal), the Spanish
Association of People Affected by Lymphoma, Myeloma and Leukemia - AEAL (Spain), Stichting
Huid Lymfoom (the Netherlands) and Haukrebs-Netzwerk Deutschland e.V. (Germany); Selbsthilfe
Kutane Lymphome (Germany), Korea Blood Disease and Cancer Association (South Korea), and
House086 (China); and Kyowa Kirin, a Japan based Global Specialty Pharmaceutical Company.
To learn more about CTCL, the Global Care Collaborative, and the 12 recommendations, visit
www.kyowakirin...