4 жыл бұрын
5 жыл бұрын
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@kendixon4303 Сағат бұрын
Anyone get fasiculations and calve and foot pain when using any kind of muscle relaxers
@fuadkhatri4905 4 күн бұрын
Body wide twitching and other weird ass symptoms. I have started to twitch in my perineum & it’s hell, so fucking anxious that I can’t tell! Can anyone relate to this, twitching in testilces & in that region?
@YohandrisLazo-ge8cp 4 күн бұрын
Twitching every single day for two years already. Starting after months of stress. It felt like it was starting to go away but I had a bad two weeks with a sick pet and then Twitching has gone through the roof again. I've had a hot spot on My left tricep for almost two weeks. First time I've had one last this long in one spot. I lost my fear of Twitching a long time ago so I'm not worried, it's just super annoying.
@raymondlee3351 5 күн бұрын
Hello, how are you now, I’ve been watching your videos. My twitching started last year with my eyelid twitching, it stay for quite a while, even now I still have it , then my rear delt started to twitch then now my elbow started to twitch too when I hold my phone bending it or when I place my elbow on a table, sometimes to the extend that it will cause moving of my thumb, I’m so scared and worry, I do went to a neuro and they check me clinically and told me I do not have weakness. Everyday I’m worried and scared, you know what I’m afraid of. Thank you for the video and I do hope you can post more or even have any programs to tackle anxiety just like what you said anxiety can be a cause to it
@anyhoos3660 6 күн бұрын
I've had BFS for 9 years. Im 24 now, so for me, it started very young. I just want anyone who reads this after first discovering their fasiculations that it does get better. I can be a very anxious person, so my twitches are still very much present. I also get a heap load of other symptoms such as tingles, numbness, burning sensations, and restless leg syndrome. Looking up these symptoms will only make things worse. Anxiety is your worst enemy with BFS. You can convince yourself that what you have is debilitating, but I promise you're fine. Keep living life. Your twitches are just a little quirk of yours.
@Mr.PJ83 8 күн бұрын
I've had this happen to my both calves for about 5yrs but it didn't happen all the time, well i didn't feel it. Lately in the past year its never stopped i can feel them popping away and my calves cramp a lot when im in bed also feel really sore sometimes when ive not even done much. I'm currently seeing a Neurologist just now as I've started getting the twitching all over my body randomly, good to hear its harmless but still very annoying especially my calves they feel like I'm never off the stair master machine at the gym
@ib4505 9 күн бұрын
Been dealing with BFS all over my body for almost a year. Got all the tests through my neurologist and they said i didn’t have anything but bfs driven by anxiety. Still sometimes I worry because it won’t stop. It hits me in waves and I have good and bad days but I just wanted to say thank you for your page it comforts me and helps me refocus. Happy to hear you are doing well!
@BenDover-jn5el 16 күн бұрын
Can you get these inside your head? I get something similar on the right side of my head above my right ear. I can sometimes stop it by opening my jaw
@ShyamThokchom-m5b Ай бұрын
I have this problem why it’s
@borisvujasinovic1860 Ай бұрын
I have been dealing with fasciculations (especially on my calves) for at least seven years.
@borisvujasinovic1860 Ай бұрын
Have been dealing with it for at least 7 years.
@IssacEvans-n2t Ай бұрын
The worst thing for me is that other people can see me twitching and I try my best to disguise it
@jamesfellender5393 Ай бұрын
I just think to myself I have all my limbs in tact, I have my sight, my hearing and sense and taste and I can breathe, so this isn’t really a bad thing, it does get annoying though sometimes when you try to relax and all you can feel in your body is rigid and pulsating but other than that we won’t die from it and that’s the main thing
@majestic91 Ай бұрын
Same spot for me since 5 days. What is causing this? What can I do?
@DeathRebel369 Ай бұрын
Does the twitching get worse when moving like heavy stuff or get active?
@CaptPicard81 Ай бұрын
I started twitching in my right tricep after a few days of inconsistent sleep and alcohol usage, it’s lasted on and off for about a week now. I did a google search and was promptly terrified. Hope it goes away soon.
@ChrisFP2 Ай бұрын
Mine started in May in my lip- shifted to my tongue from July- Sept. now it’s in my calves, abs and feet. My doctor said I’m fine. Neurologist did strength tests, said no need for more testing if no weakness. It’s been 7 months. I have no weakness and actually at age 51, I’ve re-dedicated myself to the gym to prove to myself I’m not losing strength. It’s still so stressful and scary bec of Dr Google.
@VagaTV-mh5il Ай бұрын
Ciao, puoi indurre le fascicolazioni colpendo il muscolo? ad esempio se ti colpisci il quadricipite esso si contrae dopo qualche secondo?
@ChrisFP2 Ай бұрын
I’ve been twitching for 7 months - tongue, calves, lips etc. went to PCP and neurologist. Both took strength tests - said I’m fine and come back if any strength loss - it’s so stressful and causes so much mental suffering bec I think “ what if” Your videos help me a lot.
@Androth12 Ай бұрын
Same brother. Same. All these videos I see about the fear of ALS folks say, they say “well, if there no muscle change in X amount of time, you’re ok.” Then, when that’s said I go ok great, now I have to wait and see if theirs a change, so the waiting to see if theirs progression is absolutely mentally taxing.
@CaptPicard81 Ай бұрын
This is exactly what I’m experiencing over the last few days. My mind always goes to the worst case scenario but I have to remind myself that I’ve had twitches like this for over a decade and they always go away eventually
@erikrichpoor1042 Ай бұрын
Although it gets me emotional the way you are explaining things, you eased my mind too. Thanks!
@mennahelshal8453 2 ай бұрын
I need severe help i see my life ending and i am really suicidal what happens is that after a period of severe fearr i had twitches all over my body that i cannot sleep and even if i sleep it would n non restful due to anxiety i think my brain is bioling i also suffer ocd that tells me that these fassiculations will never go they will only decrease and you will never be able to spleep i am in hell really need help
@anyhoos3660 6 күн бұрын
Hey I can't empathize with the OCD or the suicidal thoughts. I'm very sorry you've been struggling with those. I cannot help with those. The only bit of wisdom I can offer for you is that anxiety and these twitches are only as debilitating as you allow. I've had twitches for 9 years. I am okay. Most of the time I do not notice them at all. When I do notice them, it's usually due to anxiety. The sleep thing is rough. I know exactly what you're talking about. You can't sleep due to the twitches, then you focus on the twitches begging for them to go away, then you get anxious because you can't sleep, and your twitches get worse. Cycle continues. I don't have any advice that I can apply to your life in particular. All I can say is that this is mostly a non issue for me now and I hope that brings you comfort. It still happens every few months or so, but that is more due to anxiety because anxiety interrupts sleep and causes twitches. What I do during these times now is remind myself that the only 2 things I know that I have are BFS and anxiety. Neither will kill me tonight. BFS will never kill me. Annoying? Sure. Won't kill me though. Distract yourself, move your legs around while you're trying to sleep so you don't feel it so much and watch something entertaining and engaging until you fall asleep without realizing it. You will be okay. I really so hope the best for you and everything you're going through.
@bodyharvest 2 ай бұрын
It started for me about 3 to 4 days after recovering from COVID. I was sitting in front of my PC when I suddenly felt intense twitching in my right triceps, happening in a rhythmic, pulse-like pattern. Over the next few days, it spread everywhere: calves, thighs, then back, chest, occasionally my lip, and finally my eyelid. I've been stuck in this madness for six weeks now.
@tkaraca234 2 ай бұрын
I've been experiencing the same thing for 2 years. It happened after powerlifting training. It would be nice if it was just a twitch. Because when I start running, my right ankle and calf get tight and stiff, I can't continue running. Does this happen to you too?
@seanlybisenio2231 2 ай бұрын
Thanks for this video, it relieves me so much seeing people with same syndrome that i have. My twitches started 3 days ago, it started as a twitch in both of my feet and i ignored it, thinking that it was just anxiety. Then, the morning after that, my twitches started AGAIN, that's the time i started to worry about my health (im a very hypochondriac and anxious ). I searched google about muscle twitches and when it said ALS, my world was just like boom, my anxiety went up through the roof, had a silent panic attacks, thinking that i have ALS. My twitches are now in my feet, calf, thigh, abdomen, hands, arms and face. I started lifting weights to see if i have muscle weakness (because its one lf the symptoms of ALS), asking myself if i had trouble walking, talking or speaking. My GAD also makes it worse.
@jonathanbecquet4231 3 ай бұрын
Bonjour quelle est le nom du groupe Facebook sil vous plait ? Que je me sente moins seul.. Merci😊
@_4AMX_ 3 ай бұрын
I got that same exact one
@garydersarkissian6858 3 ай бұрын
I’m new to your channel and I’m so impressed with your content on BFS, as I was recently diagnosed with a relatively mild condition. I’ve had BFS for 2 months and the first month was absolutely brutal as I didn’t know what was happening with me. I started googling and went down a very very deep rabbit hole, until I saw a neurologist and he confirmed I was wrong with the sinister disease and that I have what’s called BFS. Obviously extremely relieved but now after having this condition for two months, I’m starting to really read my body and staying positive. My question to you is what type of exercise routine do you recommend as I was a soccer player and an adult league as well as weight training 2 to 3 times per week as well as jogging and long walks with my Wife. I have not lifted a weight and two months but have gone for several long walks. Does weight training exacerbate twitching? Any information that you may have gathered over the years would be extremely helpful and I really do appreciate your videos and they are extremely comforting Sincerely Gary USA
@theterminator5383 3 ай бұрын
My fingers twitch also the neurologist says it’s not als I don’t know
@theterminator5383 3 ай бұрын
I want through 2 traumatic health events that’s when the twitches started for me they are all over
@spaceoddity54 3 ай бұрын
@bfsanxietysupport hello, thank you for your videos. I often watch them when I am struggling and feeling low. They help me refocus when attempting to be more positive. I’d really appreciate it if you could answer me one question please. Do your calves still twitch constantly? Both my calves and arches of my feet twitch every second of every day 24/7. All other twitches are random and sporadic with occasional hotspots. I’ve been to a neurologist and had all the usual tests and been diagnosed with BFS. I remember you saying in one of your videos that your calves always twitch but I just wondered if they still do and if so if you meant literally every single second or just occasionally. Thank you!
@christianperine8885 3 ай бұрын
Thank you! You are helping people to understand this syndrome in a very smart way. God bless you
@evejones2852 3 ай бұрын
My twitches started about 4 years ago and I seriously thought I had ALS. 4 years on and they’ve basically completely gone. I get the odd one now and again but they’re no where near as bad. For me the best thing was accepting it’s a benign condition and ignoring them. The more you worry about them the worse they become, so stop worrying! Obviously that’s easier said than done but if you’ve had the tests done by the doctor and they say it’s BFS, you have to accept that you’re fine. I promise it will get better and that’s from someone who worried themselves sick over it. I found keeping distracted and doing things I love helped me to stop worrying.
@rockyyagi6014 3 ай бұрын
Thank you
@sebastianliwinski222 3 ай бұрын
I've had it on my left side of my forehead... it's a weird feeling as if your skin is being pulled out and twisted vertically, it last few seconds though.
@deborahstrau711 4 ай бұрын
Try scrambler therapy. It’s designed for pain but works well on fasiculations also.
@shipmate3577 4 ай бұрын
I sometimes get minor cramping and/or fatigue in mornings after waking up, especially when then twitching is bad at night in bed. Stretching, hydrating, and keeping your spirit/mind off it helps. Usually by noon the fatigue goes away. I hate BFS. It’s not bad in that it won’t kill ya, but it’s like a nagging wife.
@shipmate3577 4 ай бұрын
Past two months the twitching has gotten bad, but last night must have been the worst. I woke up so tired and cramping a little. I’m thankful I have no muscle deterioration. I feel so alone in this except I feel some comfort from these videos.
@shipmate3577 23 күн бұрын
I have been experience constant twitching all over my body; initial diagnoses is "Benign Cramp Fasciculation Syndrome" by the neurologist since I'm likely not to die from it. I dislike the term "Benign" because is belittles the stress, anxiety, and constantly cramping pain/aches that I feel. Every time I hear someone call it "benign" I want to punch them in the face and tell them they have a "benign broken nose."
@veerow6035 4 ай бұрын
I would caution against bringing up somatic symptom disorder to your doctor if you have fasciculations or any symptoms at all. Don't bring up health anxiety, conversion disorder, hypochondriasis... They are a scarlet letter among doctors. Having one of these in your medical chart may make proper diagnosis and treatment impossible. I'd go to a good (private) clinical psychologist specializing in these disorders to talk about the mental stuff. Fasciculations have many different causes and treatments can work! Botox helped me most!
@stevehiner7392 4 ай бұрын
You are the best.
@supertedholty1053 4 ай бұрын
Can I ask a few more questions to you and others? My twitching/burning/tingling started after an episode of thunderclap headaches 14 months ago. I've spent the past year working on mindfulness techniques but i haven't improved. I've actually been diagnosed with fibromyalgia but I'm not sure if this is right as no UK GP I've seen has even heard of BFS and i dont have widespread pain. Do other people get migraines with aura, insomnia and some dizziness? I'm not worried about the twitching at all its the fatigue and headaches which are hard to deal with.
@hayd9785 4 ай бұрын
Do muscles fatigue quicker (exercise and walking) with this condition?
@TheDetoxCureGuide 4 ай бұрын
BFS is a bad sign I had it for many years when I had CFS, I treated CFS mostly by detoxification. As I improved the BFS went away. At first it would come back when I felt worse but now I basically never get it.
@jonathanbecquet4231 4 ай бұрын
Je suis francais donc difficile de tout comptendre .. Jai des fasiculation sur tout le corps , énormément au pied , au mollets et dans les cuisses ... Quel que fois dans les mains et les bras .. Cela fais maintenant 2 ans et jen ai encore plus qu'avant ... As tu un conseil a me donner ? Jai fais un emg il y a 1 ans il etait normal ... Bien a vous . Jonathan
@luisrosero1059 4 ай бұрын
Can I have the last 43 seconds of my life back?
@tylerb6066 4 ай бұрын
I've had this for 4 years now after a period of a lot of stress in my life. Some days are worse than others but it's always there to some extent. At times it feels like I have butterfly's flapping away under my skin in various parts of my body.
@davidcthomasmusic 4 ай бұрын
I have all the symptoms of anxiety - hives and muscle twitches, but feel quite content and calm. Very confusing and wish someone could help. :/
@Kanseal 4 ай бұрын
Got diagnosed yesterday Thanks for your video What really helped me is creatine Surprisingly it basically stopped 90% of my twitching in my face and arms Also Good nights of sleep…. This is SO important
@stevehiner7392 5 ай бұрын
Love this - you do a great job calmly describing the reality of BFS. It can be consuming and cause extremely high anxiety but as you clearly state, as inconvenient as it may be, it’s not going to kill you or harm you in any way. If we focus on that rather than the worst, it helps us accept and move on. Would love to understand why people get it? I suppose since it isn’t harmful, it’s low priority in terms of research but an understanding of it could help a lot of people mentally.
@stevehiner7392 5 ай бұрын
You do a great job explaining in a calm matter. I was just diagnosed with BFS and like many, I was freaking out. So much I couldn’t eat or think of anything else. I acknowledge it takes some time but as you effectively described, don’t think about it and it will minimize the effect or impact it has on your life. Sounds simple but it’s not for most of us but it is absolutely the right thing to do.