Can you feel the twitching in multiple locations at the same time?

I’m 17 and I started twitching January of this year, it started with small twitching in my calf’s then thighs and then just everywhere. My eyelids, hands,toes, chin, even more recently my inner ear 😭 it drives me CRAZY I still don’t know why this is happening I think it might be BFS since it’s been happening for almost 6 months now… nonstop everyday I actually got open heart surgery April 16 and I thought my twitching went away but it came back the next day 😭 this twitching is driving me crazy I’ve been trying everything to make it go away but nothing as been working… have you been taking medication for your twitching? (before I knew about my heart condition I had super bad anxiety attacks because of my palpitations and high heart rate and not knowing why it was happening (I had a hole in my heart lol) and that’s when I noticed my twitching starting so I think it was triggered by my anxiety with my heart..)

I have been twitching for 3v years now started in just calves now it's all over my body recently v moved to tongue

i love this guy! on point! thanks

Do you have any form of contact for a one to one ?

Har du svært ved at tale, når din tunge er sådan. Jeg har været bange for ALS i 3 måneder?

Har du svært ved at tale, når din tunge er sådan. Jeg har været bange for ALS i 3 måneder?

It is the fourth day and it happens to me every minute and in different places, once on the leg, once on the hand, and once on the face. I went in and searched on Google and read about ALs, and since that day I have been terrified

I am 57m. I am 37 months into twitching. It just continues to get more widespread and intense. No let up at all. Its hard to keep thinking that this is benign. I do realize over three years with no clinical weakness is good, I do have lots of muscle dents. I thank you for these reassuring videos and keeping us all sane. Can I ask how many twitches you estimate per day? Are they all over? Mine is head to toe. I am in the 1,000s per day.

Hi Paul, thank you for this. YES! Please start a podcast or other interactive group. I'm a podcaster myself and would love to listen in / interact / help out in any way I can. I was recently diagnosed with BFS, and it's been a terrifying roller-coaster of anxiety. After a 'normal' neurological exam, the doctors there said I've most likely just got BFS. Of course, they mentioned "the other disease" they were ruling out. And as you can imagine, I've spent the week since my appointment 'looking' for other symptoms. With the heightened anxiety (It's all so "chicken-or-the-egg," am I right?), I find myself overanalyzing the "symptom," which is very likely just a result of the anxiety.

U ever get actual cramps in your calves ?

It comes under a mind body problem or TMS as Dr Sarno called it. All mental in my opinion

I have twitches all over too for 3 months. I had a cancer diagnosis in January. It might be a paraneoplastic or autoimmune response. The symptom is maddening and makes me want to never leave bed. 😢

Must needed for me!!

Man. 😂. I literally have this. Got back from Sri Lanka on April. I have so many of these. Been in a&e got an mri and emg coming up. Totally freaking me out. Interesting we both had been in Asia.

How do you know it's BFS? I have experienced various twitching over the years (at least 7-8 years maybe more) on various places of body, had 3 EMGs (last one was 8 months ago), and multiple tests and neuro and other exams. And I am still scared AF when they appear. Because they are always different! They are always on different part of body, face, leg, arm, shoulder... they are sometimes just constant little flickers, sometimes aggressive hard kicks under skin, sometimes, they are very localized to spot, sometimes spread in one or more areas, sometimes they last a day, sometimes weeks, sometimes months, sometimes they are constant or just at rest... I don't know how to live with this thing anymore! It's like constantly being in fear "what if this time it's not benign?". I know this is irrational thinking but why do I have this thing? These twitches? It can't be normal.

Thank you for your videos. These past two months have bee an nightmare. Out of no where i started getting spasms pluse twitching all over. I went to the dr where they ran blood test along with an MRI. They came out clean. At this point of course I jumped to the worst but i still have to go to the neurologist. My dr believes its BFS i trust them but i cant get the worst out my head. Since starting anxiety meds the twitching calmed down. I still get it in my my legs and my hot spot seemd to be my right hand .

I’ve excruciating stiffness on my shoulder, I feel like my shoulder getting heavier & feel like someone put a heavy stone on my shoulders , ik I’ve health anxiety but sometimes I thought I’ve serious disease 🥺 it’s so painful i couldn’t concentrate my work 🥺 am I the only one who have this problem ??

Very helpful. Thank you 🙏

Do you get twitches in multiple spots at the same time

Can we have twitching in 2 muscle at a same time means in eyelid and any other muscle random like thigh thumb ete and not any other symptoms plz reply I'm in so stress

It’s been a while! This just came up as a recommended video and it’s taken me back! I started experiencing BFS symptoms in 2019, so nearly 5 years ago. Needless to say I’m still alive 😂 and actually better than just alive, I’m living a happy and fulfilling life! This video has just reminded me of the horrific anxiety I experienced when this all started and made me realise just how different life is now. I remember watching your videos seeking reassurance, and during those dark days they did just that! So thanks very much, you don’t have to do this so it’s really commendable that you do! FYI….Do I still have symptoms? Absolutely! Do I care? Not one bit! I just view this as an annoying quirk in my physiology now and am living life like I did before it all started, maybe even happier because I appreciate it all more now!

Hey, have your calves ever felt like tight or inflamed like you've just worked out?

Fellow NI guy here - got BFS symptoms in August 2020. Tested for ALS etc (negative- phew!) and it just got worse and worse. Finally my doctor prescribed Tegretol, an epilepsy treatment, and i take one tablet at night. The tablet greatly reduces severity as the twitches had become quite violent / mildly painful and disturbed my sleep. Mostly sleeping all night now and this has greatly helped my coping ability. My neurologist was worried about "medicalising" this condition, but i was needing some kind of intervention and this was the first treatment / therapy which made a difference.

Like your Video ! Im trying Gaba, Possibly SRI's, B1, magnesium, exercise, and the hardest, stop my anxiety to stop being a twitcher.

My problem is that the twitching itself stresses me out. I absolutely hate it. It completely ruins my mood. Everytime I twitch somewhere, I get anxious and hope that it only lasts for a couple of seconds. I'm not afraid of ms, als etc. I got all of that checked.

I'm in the first category. I got pretty much every neurological test done. I don't have MS, ALS, Parkinson, no deficiency, nothing. I just got these twitches and they are ANNOYING. They are completely random, don't get triggered by anything really and last as long as they want to. 1 second, 1 Minute, 1 hour, 1 day. I've never had any muscle twitching till late September of 2023 and I now I have it and I just don't unterstand why. They are not constant. I twitch every day though. It's most annoying around the eye region for me. I'm not afraid of any disease (I was in the beginning) now I'm just afraid of the twitching itself. Which really doesn't help.

Hello,are you feel all twitches or some of them are so light that you only see them,not feel?

I am from India and I had this muscle twitches since two years. It first happened on me on 12th March 2022 after two months of covid vaccine. I googled my symptoms and I thought i had read about ALS, MS. I cried whole night. I visited doctor next day with my father. The doctor said it's anxiety but I know that don't know the real cause of this disease. Twitching haapens when I was sleeping also. It bothererd me for six months. It was severe. My head pulsate and muscle twitches all over body. I could not able to sleep at night. Then after my symptoms improve and I noticed 90 percent of relief. But now since a week it bothers me again and I feel heaviness in my brain. Its not headache not pain, but something they i can't explain. It bothers me and distract me. I am taking B12 capsules now a days.

Definitely reassuring video. Had this for 10 years now. Neuro thinks anxiety and "hyperawareness" ..how can you not be aware when your twitches are literally everywhere. Ive not been anxious for 10 years but think triggered by a lot of anxiety. Ive tried EVERYTHING to stop twitching. Nothing works for me, other than distraction for a while..then..bam..here it is again..its always there whatever I do. Not even sure why Im writing this..reassurance I guess...

Apart from twitching, esp.in my calves, I just can't fall asleep because I get woken up by my body's involuntary movements😢 I know it's something everyone experience but...in my case...they always wake me up, it's imposible for me to fall asleep. Does anyone experience something like this? Thanks❤

This were i get twitching out the blew. And more places but so scared of als

i have them as well in the calves only but as long as its harmless i couldnt care less

Hi Paul, im so glad i came across your channel, ive been a bad mindset for months thinking o was alone so tha k you. If you could tell me if your have had numbness or tingling in your feet every now and again

I didn’t finish the video yet, but are doctors looking for a cure for this?

Thank you from Italy

My both claves has facicultions twesting 24/7 ... Please help me

Hey man, finally a new video, thank you so much for this. This is really helpful for people suffering this condition. Hope you continue the updates from time to time. God bless!

Does it matter if doctor you see was gp and not neurologist? Also some of my twitching does be hard and fast and then quick and light does the when and where matter

21 months in to both calves twitching now...appears and disappears all over my body...it's either intense background anxiety or an L5S1 nerve pinch in my lower back. Thank you for this channel

I have had this for 20 months. MRI shows a disc bulge at L5 S1. I did a 250 lb deadlift four days before this started. In PT now trying to heal. The health anxiety from this has thrown my nervous system entirely out of wack and led to twitches in various places all over my body. It's hell.

Hey friend, do your muscles get sore or tight after twitching?

Hello, Do you have it (tongue fascitulatuons) all the time or only from time to time?

Thank you for this video, it really helped me

Thanks for your Video Paul! Came across your initial videos after going through work ups with GP and neuro. 4 neuro appts, 1 EMG, MRI and CK bloods x 2, they found no clear signs of MND etc… Learned to l live them now after 18 months, but every now and again I question it when I have flare ups. Nuero wants me back for another review but still no sign of any other symptoms so maybe I’m wasting my money there. Really appreciate the recap, as it just reinforces and supports a positive outlook. I have also found the Facebook group extremely helpful, knowing there are many of us that have been frozen by fear and it’s clearly a benign condition for many. Cheers

Thanks Paul - good to see another fellow NI experience of BFS - finally 4 years and 10 months into my BFS journey definitely feeling more optimistic about it - it’ll always be here but seeing others that get on with it, helps! In terms of the running, did you stop due to the BFS, as I know it stiffens muscles which I have struggled with as it’s caused many a calf injury for me

Mine started 6 months ago keep going to doctors n doing bloodwork nothing they tell me it’s anxiety man it messes with you hard especially when u lay down to sleep

Thank you very much! I'm so happy that you're well :) GOOD JOB!

Thank you so much!

Hi Paul 👋🏻 such a great video! Thank you for the shoutout, the one positive thing I gained from BFS is gaining friends. You and Leanne are 2 of the best people I know and I am truly thankful to be able to call you my friends ❤ no one is more helpful, calm and patient with people in the group than you are. Blessed to have you 🙌🏻 truly thankful for all your support across the years ❤