Muscle Twitching | Fasciculations | Anxiety | BFS

A casual chat about muscle twitching (Fasciculations / BFS) whilst I walk through the Forrest.
Muscle twitching is something that can come out of nowhere and when chronic or persistent it can cause concern triggering stress and anxiety. Muscle twitching with no other symptoms or cause for concern is called benign fasciculation syndrome, it can come with the baggage of anxiety but I will help you guys deal with that too.
It`s so important to discuss how we feel and whats going on, never keep any anxiety or negative energy inside, talk about it and deal with the core issues!
In today's video I chat about some of my own BFS symptoms, how I am currently twitching from head to toe since my return from ASIA last September and I also touch on Mental health.
BFS is nothing guys so just power on, get out and enjoy life !
As always i recommend that you speak to your doctor and do not try to get diagnoses online, if your issues are of a benign nature then please subscribe to my channel as I shall be uploading regularly, mostly focusing on providing you support for BFS and Anxiety.
I hope my VLOG helps you guys that are currently trying to understand why your twitching, until the next one, take care !

[@juslostone]

Thanks for taking the time to make this and sharing I have been under extreme stress and anxiety I am new to migraines and now I'm getting muscle twitching all over my body just very recently. Absolutely completely freaking me out but listening to your video does give me something to stand on Faith almost

[@steveaxo1]

Thanks for posting and being so honest and open about your symtoms.

[@kurtmalcom1987]

Hey, I don’t know you nor have I seen any of your videos aside from this one just now, but thank you. Today of all days this video is exactly what I needed to see.

[@hassb6348]

God bless you man.. the amount of times I have been down the rabbit hole to be picked up by one of your videos is something. Thank you. Twitching doesn’t bother me. It’s the dam tiredness, pain, and i feel every day in the muscles. I can’t work out and they often feel weak. Thanks again for your videos. Hope you are well

[@mattkrantz6453]

I came back to this video for some calming effect. The setting and the discussion about BFS is so reassuring. Everything you talk about is exactly what I have going on. I'm an active person and the hotspot on my tricep has been going on an off for two years now. My calves have been going on and off since about 2010. Your take on life is great and I've tried to adopt this mentality. Knowing there are others out there with this condition is really helpful. I'm going to look into the Facebook group you've mentioned. Thanks again for making these videos and keeping so positive. You are really helping people.

[@hail-lobster]

You gave me some relief. Checking with the doctor these days, but I was totally scared until I found your video

[@bfsanxietysupport]

+Marko Markes I’m really pleased to have helped! I hope your doing well, take care

[@martinballard2392]

THANK YOU - thank you for sharing your experience and thoughts, such great advice. Take care.

[@jameswoodruff6920]

Thanks for posting. Much needed and much appreciated!

[@bfsanxietysupport]

+James Woodruff You’re welcome! Glad to help, take care!

[@mattkrantz6453]

I really enjoyed this video.I have been twitching for a long time and it was really great to hear your story.

[@bfsanxietysupport]

+Matt Krantz Thanks, really appreciate the feedback. I feels it’s important to share and speak openly to help each other! Take care

[@Mom.268]

How are you now

[@ryanduignan9689]

Thanks for taking the time to make this video

[@TheDreadshadows]

Thanks for posting this one man :) I'm one year in and staying strong :)

[@bfsanxietysupport]

TheDreadshadows Your welcome, thanks for watching and stay strong and keep thats positive thoughts process ! Enjoy life and don’t dwell on the twitching.

[@mickgonzalez2115]

Thank you for this video. As a positive note I can tell you it will all pass once you get your mental health in order. Today marks a year from the start of my anxiety attack. I had it all...chest pain, numbness, tingling, fevers, stomach problems, foot feeling asleep, calf twitching and so so much more. It goes away. It’s your body’s reacting to your anxiety. I literally stopped wearing pants for 6 months so I could feel the twitching less. It will all go away. I promise you it will go away. For me, it helped by stopping everything in my life, temporarily, that caused me anxiousness or too much stimulation. So for me it was coffee, googling every single symptom I felt, worrying about my job situation, worrying about my life goals, etc. I stopped and strictly only went to work and church or work and prayed and just stopped with everything in my power to stop worrying. My anxiety attacks/symptoms got to a point where I was literally telling myself I would rather die then live every day the way I was living. The saying “it will pass” is so true. It will go away. Find calmness, find your peace, whatever and wherever it is. For me, it was Jesus. Slow down, take your time, life will always work itself for you. Let me know if there is anything you need. ❤️

[@mickgonzalez2115]

@Ben Smalley hey man..i had it all. doctor called it "manifestation". essentially my brain was creating everything i was thinking about. My advice - dont google, live your life as best as you can. take each day literally minute by minute. meditate/pray. enjoy doing something you used to (for me it was playing basketball). and dont google (i know i said it twice but its so important i promise). Ive been a year and half free from it and I promise there is light. your bodys sensations take a few weeks to stop since they were in hyperdrive for so long, but it will all go away. I have no lingering symptoms from my anxiety attack anymore

[@dustingale9500]

Wow that is literally what I am feeling right now. I've had calf twitches for almost 6-7 months on and off every day. The most annoying part is when I lie down to go to sleep and then cannot sleep because I feel my calf twitching or the bottom of my feet like a numbness or crawling sensation. Literally would drive me nuts cannot sleep. Lucky if I get 3 hours of sleep the past couple of nights. So frustrating and I'm just drained. Trying to find ways not to think about it while at rest but sometimes its so hard.

[@mickgonzalez2115]

@Ben Smalley not sure...but i just know that anxiety fucks with everything very hard. the body is essentially going through alot (thinking that is what it needs to be doing) so who knows....i would say more than likely it is a cause , but again im not a doc or anything. if you, like me, did every test every doctor, every specialist, knocked out every possibility, more than likely the culprit is the current anxiety situation. Again, it takes time, but once you calm down, the body will follow. Took me a little longer than i would have wanted but it is all gone.

[@mickgonzalez2115]

@@dustingale9500 i feel you man...had the same crap plus weird shooting pain, night sweats, the whole gambit. i hate listing symptoms just cause sometimes it doesnt help (i know sometimes it didnt help me cuz next thing you know i was feeling it), but if you checked yourself and the doc says your healthy, your job now is to convince yourself you are healthy. you are fine and you are strong and everythign is okay. your body will follow. it takes a bit for the twitching and other shit to stop, but i promise it will all go away.

[@pam164]

It doesn't i have had this 33 years and my muscles have twitched everyday since then and if I'm happy they still twitch! I think once it starts in your body its pretty much permanent you just learn to live with it.

[@zwikos14]

You helped me so much while a docter said is might be als. It wasnt als at all. It was just bfs. Now 1 year later im still twiching like crazy but i can live with it. As long as your muscles function there is no reason to be scared!

[@Harrycurls]

How are you doing right now

[@zwikos14]

@@Harrycurlsdoing great. Still twitching but no problem at all

[@Harrycurls]

@@zwikos14 these twitched are making me anxious and I am having daily dreams . But I don't want to go for EMG , these happens and then stop and then comeback throughout the day

[@zwikos14]

@@Harrycurlsis all normal man. Dont worry!

[@katiewilliams6130]

This is like listening to myself. I twitch all over, unless I’m walking/active. As soon as I sit down, that’s it. Popping everywhere! I also get patches of vibration and patches of burning. I’m waiting on a neurology appointment. I’m about 9 months into my symptoms now. Funny you talk about life events - that definitely makes sense to me too. As does sky high anxiety!

[@bfsanxietysupport]

Hang in there, twitching alone with no other symptoms shouldn’t be overly worrying so please try to reduce that anxiety. I’ve had periods of relative calm but this past four months it’s been off the chart! I’m at least 13 years in since my first constant twitching hotspot.. I did twitch before that too but not as constant.

[@corkcrew9944]

Ur fine probably

[@SusanM-ez7ky]

Katie how are you now?

[@headacheification]

How are you feeling these days Katie?

[@amberasbjornsen9431]

Thank you for these videos. I'm in year two of BFS. I've had all the tests. It's just BFS. Ok, so great - I'm not worried I have ALS or MS anymore. The problem is that it's such a mental game. When the twitches go crazy I want out of my body. It feels like my body is a prison. I'm on an anti-depressant and anti-anxiety medication. I'm taking daily walks and spending time with my kids, my new puppy, and work. I'm trying to work on sitting with this diagnosis and looking it in the face and saying, "it's ok - you can be here." Since it's going to be here whether I like it or not. Some days I do that really well. Some days I don't. I hate that when it's raining outside and my kids ask if we can watch a family movie I dread sitting down instead of being excited to chill with them and relax. I hate that this will probably never go away but I know I need to accept that it will never go away and stop thinking that it might. If I just do this (insert: acupuncture, elimination diet, naturopath, magnesium, hypnosis, etc. etc.) it will go away. But the only thing that will work is acceptance. So I guess that's my work now - acceptance. Thanks for sharing your story. This can feel like a very isolating issue that no one but another sufferer can possibly comprehend.

[@bfsanxietysupport]

+Amber Asbjornsen Hi and thanks for sharing your story! It can become tough when the twitching ramps up but you have to remember that you’ve been twitching for 2 years now and it’s just what’s going to happen. BFS has highs and lows in terms of twitching frequency and you just have to ride the waves! Stay strong and keep doing things you love and enjoy!

[@averylawson9682]

Hey Amber, how are your twitches now? And i feel the same way. I get a twitch once about every 5 seconds. I used to never notice them and i would still twitch a lot. But now that my focus is back on them i notice every single twitch. I’m trying to get back to the point where i dont notice them at all.

[@Mom.268]

How are you now

[@tacticalboop1194]

I’m only 15 and I’ve had these fasciculations for 9 months almost and I’ve been to a neurologist & multiple doctors and they tell me the same thing that it is normal and not to worry about but I’ve always been an anxious person and I hope it doesn’t last another year and these videos help me understand that I’m not alone

[@bfsanxietysupport]

+Tactical Boop If your doctors tell you everything is ok please believe them and try to relax. Reduce the anxiety and worry, it should help your general mindset. Take care

[@Mom.268]

How are you now

[@sd29basla48]

Great video. I started experiencing twitches about 15 years ago and being that my grandfather had passed from ALS, I was convinced I had it too. I went to the same doctor group that he went to and the doctor told me that I had a greater chance of being struck by lightning than having ALS and to go and have a great day…and I did. 15 years later, I still twitch during periods of high stress, but I know I’m ok.

[@3dBrooke]

Thank you for this video, it really helped me

[@bfsanxietysupport]

Thanks for your comment, it’s lovely to know I can help with my videos. Take care

[@user-py6cj4ot2m]

Hello again! How are you doing on your isolation? I wondered how long does your twitches episodes last or do you have twitching all the time? My calve twitches for like 7 minutes already and it doesn't stop but usually I had only a couple of twitches before. And does your twitches keep going if you move this muscle or it stops right after?

[@bfsanxietysupport]

Thanks, I’m doing good in isolation and I hope you are too! I pretty much twitch every second and have done for years ! Areas like calves never stop!

[@pam164]

@@bfsanxietysupport I have had this 33 years i was 27 and I'm 59 now. You learn to live with it bloody annoying! Doctors thought i was mad in late 80s and its only last couple years i found out off Google what i have. Its very scary at first as you think its something serious.

[@vladcpa]

Thank you for this video. I have been twitching for two months now (mostly in my calf and leg muscles, and seldom in the arms and back) after I played some sports. After I had my EMG-NCV test, it was found out that everything is normal which is quite a relief. Before the said test, I was worrying a lot which somehow worsened the twitching. So, after my results came out, I noticed that the twitching does not happen too often anymore (since I started to worry less, or not at all). Here's what I did which I hope will help some of you. - I did not think about the twitching too often (based on experience, thinking about it just leads to more twitching) - I was low in Vit D, so I supplemented with it (good combo is Vit D3 and K2) - Supplementing with Magnesium also helped me a lot (I learned that Mg is needed for Vit D to work). I take 3 capsules a day which worked miracles for me. (Note: consult your doctor before taking any supplements) - I started to go out in the morning just to have a short walk (sunlight improves my mood, free Vit D as well!) - Every day, I try my best to only think positive thoughts (try reading The Secret by Rhonda Byrne; "thoughts become things")

[@lyndrury3976]

My twitching is changing. It’s becoming pressure, mild pain in multiple muscles, tightenings Sometimes painful cramping. I’m so thankful for your videos.EAR TAPPING SOUNDS with a muscle in my face or mouth twitching

[@Anton-os5lk]

Hey, I'm kind of in your boat. It started with migraine and eye pain, but eye doctor said my optic nerve didnt look inflamed. Now i have constant facial pressure/tingling and legs twitching. I dont know what it is but I've started to accept that I'm not dying lol

[@Anton-os5lk]

@EchoFoxtrot94 go to therapy. All i can say is it helped me. I am better i would say 90% of my weird shmptoms are gone because i feel more calm. I would really advice you to seek therapy. Health anxiety is VERY common and treatable. First see a doctor and when he tells you you’re fine. Listen to him/her and tell him/her you need therapy and how bad it is. Please for your own sake

[@Mom.268]

How are you now

[@raypetter]

Thanks for another good video. One thing though; when you mention that it doesn't hurt us. Well, it really does, mentally when we have rough days-periods and I get it physically too with fatigue and aches (especially in my legs). So maybe rephrase a bit to it doesn't hurt you in a dangerous way or something like that? Cheers.

[@bfsanxietysupport]

Raymond Pettersen It’s intentionality phrased that way, I believe in speaking positively and I firmly believe that we are in control of our metal state and thought process.. So yes whilst I agree that it does impact and hurt mentally this is something you can overcome and then you will have no pain! The twitching itself doesn’t cause actual physical pain so that’s what I refer too. Also we should also be careful to assume that the aches and fatigue are connected. Many people with prolonged anxiety and stress actually get fatigued and other symptoms too. My advice is try your best to not focus on the twitching and also try to never connect twitching your all the other sporadic symptoms you may have. Give less time to thinking inward and look outward.

[@timwannell6477]

God bless you man

[@EpicLifeFail1]

Thanks for another great video man! I’m 4 months into this now. The body wide twitches seem to be calming but my calves are exactly like yours. They fire off constantly all up and down them and on the inside arches of my feet, only feel about 50% them and they aren’t that easy to see but definitely always there. The insides of my knee and middle of my thighs have became a bit of a hotspot in the last few days too. Still no weakness thankfully. Scheduled to see a neurologist in 4 weeks so just trying to keep it together until then.

[@bfsanxietysupport]

EpicLifeFail1 I can’t diagnose but I can assure you that a very high volume of people with bfs have exactly what you describe, including me. Calves and thighs are common. Keep the positive thought process because it can go up and down.

[@ace4348]

How did the appointment go?

[@Mom.268]

How are you now

[@lyndrury3976]

I’m about five months into this. Started at night before I fell sleep and as I woke up, I was ok with it being only during sleep transitions, ONLY face, cheeks, lips , throat.... then after a few months it CAME TO DAYTIME. Quick fast twitch of foot, then quick fast in shoulder, then lip, then eye, then shoulder, one after another all day long. I also have an autoimmune disease called MCTD which is a form of lupus. I do have some neuropathy for YEARS , but never this muscle twitching which is new, also HATE the internal vibrations of my legs at rest, it’s like laying on a dozen cell phones set to vibrate.YOU GIVE ME HOPE, THANK YOU!!

[@lyndrury3976]

Ok so new muscle in face started going last night during sleep causing tapping in my ear

[@cainegardner8832]

Just discovered your videos. I’ve not been diagnosed with BFS, but I’ve always been prone to twitch is all over my body. Recently I just started having a twitch on my tongue which is caused a great deal of anxiety. Went to the dock have low vitamin D and magnesium, but otherwise she thought that everything look fine. She didn’t do any strength testing or anything like that, but did not seem concerned at all. I’m really glad I found your videos though. It explains a lot of stuff very clearly.

[@bfsanxietysupport]

Try the vitamins and get some fresh air but most of all don’t give the twitching any time in your thoughts! My tongues been twitching for the past week as it’s not usually that busy but it can happen so try not to worry.. take care

[@seanlindemann4011]

Excellent video.

[@GarethYNWA]

Really appreciate this mate, I’m struggling with this at the moment. Anxiety is a bitch but I will beat it!

[@bfsanxietysupport]

+Gareth Mc Donald Stay strong and fight that anxiety! There’s always light at the end of the tunnel and life is a beautiful gift so please always look for the positives in life! I’m always here to support Take care!

[@dustingale9500]

Calf twitches and weird bottom of the foot crawling sensations for me. More or so at rest and trying to sleep, so frustrating. How to you cope with it during rest and when trying to sleep?

[@Miguel-jd2mw]

thank you for sharing brother :)

[@bfsanxietysupport]

Napal You’re welcome, glad to help.

[@robertobarto8823]

I wish someone had told me what I know now... THE REAL CAUSE of MY BFS. I have been suffering from BFS twitching for 4 years. It began during the lockdown. I started searching the internet to find out more about it, only to find myself looking at horrible diseases that I could be suffering from. It started in my calves, hands, and arms, and then spread all over, including my chest where it felt like an internal tremor. I went to a neurologist, got cranial CT scans, saw psychiatrists, and even my psychologist seemed unable to help me. I am taking the time to share my experience with you because I would have loved to know the REAL REASON years before I was able to find it. I hope it gives you peace of mind as it did for me. I am not a medical doctor, and this is in no way medical advice. I am simply sharing my experience because I couldn't live in peace, thinking I could have a serious disease without doing anything about it, until I found the ROOT CAUSE of my twitching. Once I discovered it, I was able to let it go and stop twitching. Long story short: I had respiratory alkalosis caused by my anxiety. Alkalosis causes twitching because of the free calcium ions that cause the muscles to misfire. This leads to more anxiety, more respiratory distress, and therefore more twitching. Fortunately, in Mexico, I walked into a hospital and told the lab that my doctor had ordered an ARTERIAL BLOOD GAS test, and they did it. That was the piece of evidence that showed me my blood was too alkaline. Reading other medical studies, I have come to believe that for some reason, my fight or flight mode is always in overdrive. Some people have it because of PTSD, others as a result of childhood trauma, or the loss of a loved one. If you find yourself in this situation, I am not sure if you can ask your doctor to perform this kind of test just to give you peace of mind. But if you cannot do that and want to experience a positive change in the twitching, work on your anxiety, and in turn, your breathing will return to normal, eventually stopping the twitching. I am not a native English speaker, but I hope that with my words and personal experience, I could have pointed out a way for you to find some peace and stop fighting this invisible monster that only gets stronger if you fight it.

[@shanbazall]

Thanks for sharing this. Very helpful as its another thing to consider. I am curious about this since i stopped smoking few months ago and now i wonder how that might have had an effect on respiratory alkalosis if I do have it. more oxygen intake means more alkalosis, right ? What exactly do you mean with respiratory distress ? I think I might have had some forms of respiratory distress for over 5 years because of anxiety and poor physical health. Now that i've increased the amount of excercise, do you think that might contribute to the alkalosis ? Also. Is respiratory alkalosis a short state or does it become long lasting ? Like if I stop breathing for awhile, does it go away ?

[@biljam972]

Thank you, this is quite informative! I am also always in fight or flight mode, hyperactive and high anxiety person, and of course, I have twitching all over and in hot spots and they can last and last and the more obsessed I am, the worse they get. This makes perfect sense as explanation to BFS in a lot of cases.

[@sabrinakrause9636]

Dankeschön! Es stimmt. Bfs fing bei mir an, am Tiefpunkt meines Lebens. Ich hatte so große Angst über Tage hinweg. Ein deutscher Arzt Dr Weiss sagt das auch dass es am atmen liegt. Man hyperventiliert unbewusst chronisch. Wir sind alle angespannt und auf der Flucht.

[@Peko-qy8eo]

Thank you for your video. I have it now for 1,5years. Besides twitching all over the body with some hotspots in my arm and pelvic floor, I have pain in my knees and my leg muscels. I can not stand or walk as long as before without having pain...Several EMGs, blood tests, Electrophysology, MRIs, no result so far...

[@bfsanxietysupport]

Sorry to hear you story, keep seeking the answers with your doctors! Do you get good days and bad days?

[@Peko-qy8eo]

BFS & Anxiety Support Thank you. Yes i have good and bad days. But the pain in my knees is never fully away. Twitching for instance get worse during a flight or after a MRI. Did you find the reason for your symptoms? By the way, i love ireland 😉

[@bfsanxietysupport]

Peko1305 Flying is super stressful for many people so that’s a clear correlation to a common trigger. I’ve not found why I have it but I do see correlations your stressful periods and other triggers that amplify symptoms.

[@Manu-se6lr]

Thanks for this video man ! I have twitching mostly in my calves since 3,5 months. My calves twitching at different spot. Since 1 months, my thights twitcing at different spot too (before i don t have twitches in tights). Do you think this progression is a bad news?

[@bfsanxietysupport]

Ma nu Always speak to your doctor for advice. From a personal perspective and from what I’ve seen over the years, it’s normal for BFS to start in one location and move around or literally explode over your whole body. For me, even though I have twitched first decades, this past few months I’ve noticed way more activity on my thighs and they never were an active area..

[@Manu-se6lr]

Thanks man !!

[@anshulyaduvanshi_]

How are you now bro​@@Manu-se6lr

[@autumngabba7676]

Thank you so much for this! I’m in the middle of testing after seeing a neurologist and so far tests are coming back normal. My twitches started nearly 4 months ago. I had been dealing with extra stress and maybe that’s what triggered the twitches? They started in just one calf but have spread throughout both legs (calves, quads, hamstrings, knees), feet, occasionally my shoulder or bicep, hip flexor, side, even abdomen. The twitches in my calves and feet are nearly constant. I’m definitely a high strung, high energy, worrier. I need to work on that. Maybe that will help eventually.

[@averylawson9682]

The ones in my legs/feet are almost constant as well. I get one about every 5 seconds. But just a few months ago i would get them just as frequent but i would never notice them unless i payed attention. I could sit through a whole movie and not notice them. But now that i started to pay attention to them again i feel every single little twitch. I wish i could go back to not noticing them, I’m trying.

[@Mom.268]

How are you now

[@Mom.268]

@@averylawson9682how are you now

[@averylawson9682]

@@Mom.268 i still notice them. they don’t bother me as much but i’m still trying to make progress to the point where they don’t bother me at all

[@Mom.268]

@@averylawson9682 did you not notice them until a particular time in your life? My onset was panic attacks.

[@Irishpixel]

Man. 😂. I literally have this. Got back from Sri Lanka on April. I have so many of these. Been in a&e got an mri and emg coming up. Totally freaking me out. Interesting we both had been in Asia.

[@marksteeven7494]

I have my twitching all over my body, almost 2months now, i would ask if it is considered as BFS? and i would like to share if im doing something i dont feel twitches in my body then if im going to bed to relax and its starts the twitching in any part of my body

[@JamesSmith-ds2hi]

Hi @Neurophysiology. I hope you are well. Going off topic quickly, is Benign Fasiculation syndrome a brain disorder? And what can be the causes? It’s just about 6 months ago I caught covid, and about a week later I took ketamine for the first time. 2 days later I woke up with involuntary twitching and myclonic jerks. A few days later it went, but the one thing that happened a few days after that, and has stuck ever since, is that both of my calves constantly twitch at rest, and it led me to having a mental breakdown. I paid to see a private neurologist and he told me that it is all anxiety related, as I am scared that using drugs once has ruined my whole life. I had an emg on my calves and it came back clear. Of course I’m not asking for medical advice over the internet. But in your opinion, do u think this can go away? And would something like Botox be a suitable treatment? Thanks

[@Mom.268]

How are you now?

[@SleimanSam]

Thank you so much for your video.....I went to 2 neurologists and they told me I'm fine, I did the electrical conduction and the needle tests, I've suffered with anxiety all my life and I'm quit sure I used to get them before I went to Dr Google, But I'm still getting them and I'm always worried, I feel like I want to go to a neurologist every week just to be sure I'm OK....its really effecting me and my life... Is there anyway to get in contact with you through email or other ways?

[@bfsanxietysupport]

+Sam S Tryst your doctors, if your strong and healthy, if you can do everything you could before your twitching then it’s excellent! BFS is nothing to be worried about and in fact worry and anxiety can amplify the symptoms so please work on reducing that aspect. Take care

[@zwikos14]

I have twitches for over 3 weeks now. Non stop all over my body. Im a fitness trainer and my strenght is still super good. I actually dont have any other symptoms. I have an appointment in 2 months at the neurologist. Im sometimes still a bit scared to be fair. Love you videos

[@patrickshellyavfc]

Do you still have it ?

[@zwikos14]

@@patrickshellyavfc yes I do. went to the neurologist. he told me its BFS. there was no reason to think its ALS because all my strenght is still there. the muscles working tip top. so gladly I can feel the twitches still non stop going on, but I'm at peace with it

[@anshulyaduvanshi_]

​@@zwikos14how are you now

[@zwikos14]

@@anshulyaduvanshi_ I went to the neurologist. No als. Just bfs. Till this day I have twitches. Non stop all over my body. But I can live with it very good actually. Sometimes it keeps me from sleeping because its so intens. As Im typing this my right arm is twitching like crazy. But overall its good

[@anshulyaduvanshi_]

@@zwikos14 Thanks for sharing ❤️

[@eleshaburgess8567]

Can you pin point differences between bad twitches (asl) and BFS Does muscle weakness come first with als then twitches. Do both only happen at rest?

[@bfsanxietysupport]

+elesha burgess I mention this in either my first vlog or the FAQ I think.. essentially in bad it’s due to neurogenic changes so the twitching is a result of the changes, there will generally be other symptoms that a doctor or neurologist will identify during a clinical exam. In BFS, they can’t see any other symptoms of concern so it’s classed as benign.

[@quant2011]

What if the trigger is mold combined with histamine intolerance? And a sick person is being told constantly for 10 years - "its anxiety" ? I have twitches but i sleep perfectly well and cannot connect them to any stressful event or stressful period - they come without any correlation to increased stress or calmness.

[@ealter95]

I go back to these videos every time my twitching becomes persistent. I am also battling occasional fatigue and stiffness/soreness in my legs. I have had every test and the doctors say I'm fine and its probably BFS. I Obviously was worried about the things that don't need to be mentioned. Have had this for 7 months. It's been the worst rollercoaster of my life, but I'm glad people are talking about this. Your videos are important, reassurance is important, there is something about twitching and anxiety that are just kind of awful.

[@bryanjacobs9680]

I have these too. They started during a very stressful period in my life. It's a very annoying thing and I constantly have to remind myself it's not anything more than BFS.

[@borisvujasinovic1860]

Totally agree.

[@Mom.268]

How are you now

[@Mom.268]

@@bryanjacobs9680how are you now

[@bryanjacobs9680]

@@Mom.268 im doing better. The BFS pops up sporadically but mentally I am in a better place. When I get stressed they occur more often but nothing extreme. I have finally accepted that it's BFS and nothing more

[@kmisi1]

has anybody tried autogenic training? I've been doing it for 4-5 weeks and it already helped a lot. eye twitches and lump in the throat are almost gone, twitches elsewhere are much less frequent. I know there will always be ups and downs, I'm just happy that after almost 5 months I found some relief

[@bfsanxietysupport]

No, but I’ll read up on this! Always open to new techniques to relax and reduce anxiety!

[@maryemasad9076]

Autogenic training?

[@AndrewHedlund100]

Your the man

[@silviogiovanniviola975]

Thank you from Italy

[@bfsanxietysupport]

+@silviogiovanniviola975 you’re welcome and thanks for the comment. Take care.

[@nng1979]

I have a hotspot which i dunno is a twitch or just caused by my pulse and breathing. Where my front neck muscles meets my traps there seems to be something trying to bob in and out. Doesnt look like a fiber twitch just looks like a balloon slowing blowing in and out. Weird and 6 year (that i know about) twitcher.

[@ducheau100]

I've been twitching now a year. I'm not worried about ALS anymore. I've developed other problems which stem from the BFS like fibromyalgia and gerd. I wish I could just go back to the days where I just twitched and no other symptoms.

[@thinfeelings]

How are you now

[@Mom.268]

How are you now

[@strang7234]

Do you ever get twitches in your wrist ? My calfs twitch all day every day but my right wrist seems to twitch a lot to

[@lyndrury3976]

Yes , under wrist, hands, scalp, ears, nose, you name it. Shocking to me

[@htrepanier]

I started to have Health Anxiety 3 years ago when my kid is born. I was finishing my MBA and was working full time as a plant manager. I was so tired. From there I started to be worried about everything about my health and the health of my kid. LIKE EVERYTHING. Worst, last year they found a tumor on one of my kidneys. Even if it was minor, it still brings me a lot of stress and anxiety. So 6 months ago, I was already in a high anxiety states then I got a big fight with my boss and he got fired then I took his job. After that, my body totally felt weak, I had lots of pain every day and lots of twitching to everywhere. 6 months later, my anxiety really goes down, but still I have lots of twitch and still lots of pain especially in my ankles and forearms… I don’t really feel weak, but I feel that I have no resistance at all to effort. I saw my doctor 3 time in the last 6 month and she not worried at all. I got blood test and everything was ok. She does not want me to have an EMG because its clear for her that my symptoms is related to my anxiety and all the recent events of my life. Even if it seems to be clear that anxiety could be the reason of all that, it just don’t get into my mind… I also feel lost because without an EMG, I am not sure at 100% its not something bad… I just cant get out of this... (Sorry for my English, its is not my native language)

[@bfsanxietysupport]

Hugo Trépanier You’ve been through a very stressful period, it will have an impact on your mind and body. Please listen to your doctor and believe the advice. If you watch my other videos I talk about a lot of events in life that can trigger BFS or make it worse and you have already mentioned some above. Take care

[@kathymyers7279]

I'd have whatever test I could . Especially if I had insurance. Lymes disease, chiropractic exam x Ray's ect. Mri . After THOSE ,THEN THERES NOTHING ELSE YOU CAN DO BUT submit to anxiety diagnoses.

[@htrepanier]

For every one, keep strong... I am 15 month in and i still twich alot. I got 2 clean emg. Healt anxiety is hard to deal with and it is ok, no one is perfect!

[@JackyRogue]

It all began with a consistent "sinking feeling" or nervous feeling in my glute area and lower back for weeks. It was a very strange sensation, like when you're going down on a rollercoaster but low intensity and constant. The twitching followed once that feeling subsided, this all happened end of 2020 for me after a long period of anxiety. Never had any of it before then. Daily stretching routine has had a tangible positive effect on my twitches. Calf, quads, lats, rear+front deltoid, eye lids, rib area all common areas for me. Leg twitches always feel like worms the others feel like contractions. One concern recently is I've noticed I can't flex my left Calf the same as right and it feels smaller. I take relief in the fact that anxiety is a stark common denominator in anyone suffering from BFS. I've got a neurology appointment coming up and I hope that will rule out anything sinister. Best of luck to any fellow twitchers. Please share your own experience if any of this sounds familiar

[@Alpha-Scythe23]

How did your Neuro appointment go?

[@headacheification]

How are you now? How did your appointment go? Please share your updates with us. Thank you and hoping it all went well.

[@JackyRogue]

Hi guys thanks for asking for a follow-up. So far I've had the EMG test and various phyical neurological examinations on separate occasions and each time they ruled out anything concerning to do with the muscle twitching or any other musculoskeletal symptoms that I'd experienced. The formal diagnosis is Cramp Fasciculation Syndrome. As a final reassurance my neurologist booked me in for an MRI of my lower spine, which is in a couple of weeks. Symptoms have improved greatly as has my mental state regarding the twitching. I've since had a lot of time to reflect on these findings and here's what I now believe: Once any sinister possibilities ruled out by a medical proffesional blood test for any deficiencies and seeing a Neurologist, I think its then very clear there is one common denominator between all of us twitchers, and that's *Health Anxiety*. It's become reallty clear to me, and the more I learn about the brain and the power of our thoughts and fears the more i am certain that this is something that can be overcome or at least lived with in a way that does not disrupt or upset you. It's going to take time. Steps that have really helped: The biggest one STOP WORRYING. I would put that for step 2, 3, 4 and maybe 5 too! Get good Sleep and work on improving your circadian rhythm, (listen to Andrew Hubermans video about sleep on KZbin) Do not let the twitching scare you from doing excercise, keep going and dont worry. introduce strecthing before and after. Fix your diet, lower sugar, caffiene, alcohol, drug use. introduce fish oil with at least 1000mg of EPA per day for at least 8 weeks, this has much to do with Depressive symptoms related to mood as a possible link (Once again listen to Huberman on this matter too) I've moved on with my life, stopped thinking about it all the time and focused my attention elsewhere immediately anytime theres a twitch and eventually the twitches have become less frequent and less severe. The brain is a frightfully powerful tool and a brilliant trickster! Its approaching 1 year since onset of my symptoms. I'm happy to talk to anyone who needs my support.

[@headacheification]

@@JackyRogue thank you so so much for this. I M so glad you are okay and have been able to put everything behind you and move onto being a happy healthy person once again. I cannot wait to feel like that way soon. You are so true. Brain is such powerful tool! It has made me believe every sinister possible as reality when i do not even know the truth yet. I still have yet to go to the doctor and it terrifies me but i know i have to. I have never been diagnosed as anxious but I know I struggle from health anxiety and my brain like you said is making every single second of past month and a half just impossible to live. I have a one year old and a loving caring family and all I do all day is look at their faces and imagine their lives moving on without me. I am swallowed by my thoughts and my mind keeps looking for symptoms new signs and then it’s like fueling an already blazing fire. Everyday has been a challenge to get up and breathe. But I have hope from listening to fellow experiencers like yourself and I truly appreciate you sharing your thoughts and experiences. I will try Andrew Huberman and though i am already taking fish oil, I had stopped few days ago, which now I will take a note to take daily. I wish you nothing but the best and once again truly glad to hear that you are doing so so much better. Always stay blessed and healthy as that is what this life actually basically boils down to. Without health there is nothing. Thank you so much 🙏🏻

[@bellarosita100]

Have you had muscle spasms? Had one last night😢 been having twitching for 6 months now

[@amandaleahspears]

Do any muscle relaxers help? Neurology appt in may. But doing process of elimination tests is what is next. My legs hurt so much sometimes among other things. Idk if it's RRMS that I have or BFS. But just trying to be positive.

[@bfsanxietysupport]

+Life Is Beautiful Hey I hope your appointment in May went well! I prefer to stay natural and relax with fresh air walking or a hot bath etc always try natural before medication if possible as you can achieve a lot that way. Take care

[@amandaleahspears]

@@bfsanxietysupport well zoom call with dr thanks to covid. 😒 but he seems very very un-concerned about the twitching. Had emg and it was good. Next up is a skin biopsy for small fiber neuropathy. If its nothing in that realm i may go to a chiropractor. Hopefully you are doing well. Thanks for the encouragement 😊

[@lyndrury3976]

Did you get results

[@tgms177]

My problem is that the twitching itself stresses me out. I absolutely hate it. It completely ruins my mood. Everytime I twitch somewhere, I get anxious and hope that it only lasts for a couple of seconds. I'm not afraid of ms, als etc. I got all of that checked.

[@chriscold5830]

Mine started 6 months ago keep going to doctors n doing bloodwork nothing they tell me it’s anxiety man it messes with you hard especially when u lay down to sleep

[@bfsanxietysupport]

+@chriscold5830 I hope you’re doing better now. Take care

[@makeitfixit4674]

One question I had was do your calf twitch even when flexed? As I read that is the difference between bfs and als ? Mine are a lot less noticeable but if I do flex my calf and hold it I can still feel it firing off. Can see small movements too

[@Mom.268]

How are you now

[@makeitfixit4674]

@@Mom.268 still got calf twitches. Two neurologists said it’s normal

[@makeitfixit4674]

Thank you for this video. I am terrified I have ALS. It is reassuring to hear that you have similar symptoms to me. Most people I see say that the twitching is intermittent all be it regular. My right calf has been firing for about about three weeks now and left one is starting to. Same as you it is like a pin ball machine it never stops all of the calf 24/7. It does slow down when I sleep and when I am waking but can still feel it. Then as I wake more it really starts to get going. Terrified I have ALS. I am only 34 so know it is rare but does happen. I haven’t cramped yet but feel close to it often and my legs do feel weak but can’t work out if that is the extreme anxiety.

[@xfishman123]

How are you now? 33 here same problem.

[@MdlKg]

I am also 35 and have the same problem! It is horrible. It is localize in the leg and twitches all the time since I felt kinda weak in that side today. I am terrified. I will see my doc in 2 weeks

[@makeitfixit4674]

@@xfishman123 still the same. I have seen a specialist and he wasn’t concerned at all. Just said twitching is very common

[@anshulyaduvanshi_]

How are you now

[@makeitfixit4674]

@@xfishman123 still twitching all over right leg as we speak. Seen two specialists who say nothing wrong with me. Been almost 18 months now so I just accept it. Anxiety is minimal

[@ameynichal3956]

There is a KZbin channel called anxiety center..and the founder...Jim, claims he used to have these twitches and tremors for 12 years before they resolved after treating anxiety...is it a hoax or something to look into? What do you guys think? Have you heard of anyone who has completely recovered?

[@bfsanxietysupport]

amey nichal BFS is a personal journey and we may all have different reasons for the twitching. Anxiety may be the only cause for some whilst it could be a contributing factor for others either way anything is possible. I have had insane levels of twitching head to toe then it almost stopped completely except my calves for years. To be clear it was always in my calves but I seemed to switch off and not feel the majority... Anything’s possible and our journeys are personal.

[@stanleybright2597]

Hey to ask. Do you you also suffer from Myclonus with the BFS?

[@bfsanxietysupport]

+Stanley Bright I would say depending on how often, even general population can get that. Do people with bfs get it often? I can’t answer statistically but I’ve seen it mentioned frequently enough.

[@PeterMansour]

VITAMIN WATER zero sugar has done trick for me. I've been drinking 1-2 bottles of vitamin water every day for the last 3 months and my spams have been entirely eliminated, I went a few days without drinking it and started to get spams.

[@sheepdotexe7600]

Hi, my twitching started after a period of extreme stress and anxiety where I was having panic attack everyday and it’s been 9 months. I saw a doctor who did some basic tests and said I do not need an EMG because I had no sign of weakness or atrophy. Should I be concerned? Thanks.

[@corkcrew9944]

Mr Sheep Derp no if it’s been 9 months with no muscle weakness or atrophy then your fine

[@stanleybright2597]

I had BFS since my father died. I had twitching for nearly 2 years. I told so. Many doctors all day I'm fine n because I don't have weakness or wasting they don't want to. Test anymore.

[@bfsanxietysupport]

Your story is aligned with key points I have identified that many others with BFS share. Watch the videos and see what you think.. take care

[@Mom.268]

@@stanleybright2597 how are you now?

[@Frankocean3]

Where is your fb group? I’d like to join!

[@terrymattson3587]

Thank you. Calf’s all day every day. Ear drums to toes randomly. Most my life. I’m 52. I thought I was gong crazy.

[@bfsanxietysupport]

+Terry Mattson Ahh the good ole ear drum rumbling! Calf’s are probably the most common area to twitch constantly, I know mine never stop.

[@sivakumardasaraju4238]

It’s just happening a lot in my right leg. First started in the feet and then after a week its in calves. And sometimes so rare all over the body. Just wondering what it is. May I know how your symptoms has started. Does it start at one part of the body. Please reply

[@Mom.268]

How are you now

[@stephensecord6919]

2 years of CFS (cramping fasticulation syndrome), do you think we in this community are burning more calories than the "norms" lol. Our muscles are being worked much more it seems. Not sure if anyone has addressed this. Just looking for the positives here.

[@bfsanxietysupport]

I often joked about that, are our muscles working out more due to always twitching... possibly lol

[@Idontcare69696]

Go you get twitching when moving? Or only at rest or not moving?

[@bfsanxietysupport]

VortexFlex V7 I only feel it when I sit still but I might twitch when moving. I try not to analyse that deep.

[@Alpha-Scythe23]

Do you get burning and tingling sensations?

[@biljam972]

I have a lot of twitching on a lot of spots. I had 3 EMGs so far, several neurologists exams, and various tests. I have "hot spots" those are literal spots on body where twitching appears more often and it's quite localized. Like both quads near knee, both thumbs, left side of upper lip, lately small portion of chest area etc. But I also have them all around on other places. It's scary because they are always different, sometimes strong, and prominent, other times, barely there little pops, sometimes last for few hours, sometimes weeks, even months, usually in same area. This started, I think, maybe even 10 years ago. Freaking dr Google scared the crap out of me! I think BFS, if I have that HAS TO have some causes, I am thinking problem with electrolytes even if that's not visible in blood tests, anxiety, one doctor even suggested problem with tendons (because my hot spots are all near joints and tendons), also Iron deficiency, B12 deficiency, hormonal imbalances etc.I still have no answers but I am trying not to get so scared every time I got them. Now the last one, near shoulder on chest, lasted 2 freaking months! It still goes on sometimes. And the the thumb one 7 weeks and dr "kindly" suggested als to me because my thumb was jumping like crazy (it was 7 years ago so...). And lately quite violent, fast twitching on right tricep... Those on eyelid or calves I don't even count.

[@sound_elevation]

Bottom line, but I'm putting it at the top: *You've nothing to fear* Potassium channels, autoantibodies, chronic inflammation... I've done my research and have my hypotheses, but the causes are likely as diverse as the presentation of the symptom, which manifests across a plexus in people of all walks of life. One common thread seems to be anxiety, naturally, and the need for reassurance. Most should be able to find this after a few months with no other symptoms. I hope you can find peace of mind.

[@biljam972]

@@sound_elevation Thanks! I especially agree with this: "One common thread seems to be anxiety, naturally, and the need for reassurance." If you spend hours daily looking for twitches or other symptoms, chances are, you will find them and get scared and cause more of them by hyperventilating. I am pretty sure I have huge health anxiety and a lot of things I find scary others wouldn't even notice, but this is how this mental disease works.

[@SkepticTalk]

So I've been having this issue and I'm getting EMG testing. They aren't sure what is causing my fasculations yet. They are literally everywhere, but they started in the face and have moved. Lately they have been in my calf muscles a lot of course, especially on the eft. I've also BEEN GETTING PAIN like charlie horses or cramps in those twitching areas. This is noticeable especially when I'm lying down. Has anyone here had pains/cramps/ charlie horses in these twitchy areas besides me?

[@PhiLBng]

How you Feeling now?

[@SkepticTalk]

@@PhiLBng still have the fasciculations, but I got EMG tested and it's not ALS..... So more good news than bad, however I'm having a lot of other symptoms that might indicate MS. Numbness and tingling etc. It could.be MS related in my case, so I'm going to a neurologist soon.

[@stivib5937]

Hi i have had like twiching for like 7 months now since corona started pretty much, nothing else to be fair. Some days is intense somedays it doesnt happen at all. It started on my feet and eyes than it stopped there and started on my thighs. Now i get random twitches here and there but they are presistent only on the arch of my feet , both of them. I have counted like 11 twitches per minute.Its weird because i dont have ceamps at all, i just get twitching and sometimes tremors. Should i worry does anyone have info?

[@Mom.268]

How are you now

[@jordanwelch696]

Ive had these since i was 16... im 29 now. I was a heavy pot smoker for years and they went away. Recently i quit smoking and they they returned with vengence... anyone get relief from twitching from pot?

[@Manuelg1989]

I’ve noticed certain yawn trigger certain twitches.

[@charbeelaoun]

Yes it happens to me when yawning in the back of my head and my chest

[@scottmurray8483]

And sneezing for me

[@axmmusic3129]

It comes under a mind body problem or TMS as Dr Sarno called it. All mental in my opinion

[@SnoozeTheRecluse]

Have you tried magnesium supplements?

[@bfsanxietysupport]

It’s in my multi vitamins, I just uploaded a new vlog on this today!

[@imabing2494]

Im From philippines, but i have a twitching all over my body, i get dizzy sweating sometimes i cant sleep, then now i have many small cyst under arm and my Ears, then my right eyes are in pain, the my left chest is pain. Im only 22 years old, and i dont know if this is BFS or ALS. i dont know but i want to live but my family is poor for checking me out on the doctor. Please can you help me for some advice? Or Medicine.

[@bfsanxietysupport]

Please see a doctor to be sure as there could be many things easily treatable that could cause issues. If your strong and other wise healthy but you have twitching, try not to worry but please check with your doc.

[@natereed-1zr528]

My calves are going off and sometimes it goes to my shoulders. Arms, neck. The calves scare me cuz my leg muslces are in so much pain. Idk if bfs causes muslce psin. They also fatigue very quickly . And my back hurts and hips.

[@bfsanxietysupport]

iNateReed yeah I know what you mean, try not to over analyse your body though. Take care

[@headacheification]

How are you feeling now? Have your twitches and pain settled down? Are you doing okay? Hope you are well. Please send us an update.

[@Mom.268]

How are you now

[@lmmrealgenius]

Is here any solutions to solve this now ?

[@MdlKg]

Is someone having twitching in the legs and globus sensation in the throat?? I am freaking out as I have both symptoms and the twitching in the leg is mostly focus on my left leg and I fell some weakness in the left leg and arm :(

[@Progressivelyyou]

I had those exact feelings in the begining. Gllobus went away and weakness, twitching and cramps didnt.

[@Mom.268]

How are you now?

[@abdulmootealabrash9938]

thanks , do you have brisk reflex , hands and knee.

[@bfsanxietysupport]

+Abdulmoote Alabrash People are aired differently, some can have brisk.. if your concerned always speak to your doctor. Take care

[@danealexandertrusk8079]

I do have brisk reflexes and neuropathy..

[@axmmusic3129]

U ever get actual cramps in your calves ?

[@tak5098]

Can you feel them a little in your calves or feet when you standing still?

[@KararszEleman]

Yes

[@SleimanSam]

It's almost like when ever I get a twitch that whole area goes weak....and then I'm back to the Doctors

[@hassb6348]

Man.. I agree! Happens all over my body too. The area gets super tired and you can’t do much. Not even work out? I love working out and this has really messed me up.

[@kotsarikos9603]

Hi guys! Is it only me that feel sometimes pain, twitching, burning sensations and other strange sensations all in the same time?

[@bfsanxietysupport]

+asgenitos kordios Sensations absolutely come and go for me and others with BFS. Is it connected? We can’t say for sure. Maybe we have a sensitivity? Either way always check with your doctor. Take care

[@MP-mx9nf]

lets grab a beer when you are in Amsterdam

[@christopherschwenk9107]

Did u get tongue twitching later in your BFS journey??

[@bfsanxietysupport]

+TheWellhasPoison Yes, I think my first tongue hot spot was about 7 years after my first ever hotspot both went for months.

[@courtlhea6724]

Hi there I’m new to this twitching I’ve had it for 4 months started in my eyes then all my body about 4 months ago! Now I’m feeling pain in my legs and arms was wondering was this the same for you ??

[@bfsanxietysupport]

Courtney Smith It’s common for BFS to start off in a single location, you notice it then in a matter of days or weeks it’s widespread. Could be that you’ve tuned into your body and just noticing everything now. Being hyper aware with bfs is not good, try to filter out the noise and do t think about it.

[@courtlhea6724]

BFS & Anxiety Support I was doing until I noticed the pain, I’m only 27 so I know it would be rare if it was *** 😭 I see a neurologist in a few week I’m worried 😟

[@Mr-bf6so]

@@courtlhea6724 how are you now? Did your eyelid stop twitching? Or subside atleast If so how long was that particular twitch for? I've had it in my eyelid now for a year everyday

[@courtlhea6724]

@@Mr-bf6so they didn’t do any test they told me it was threw severe anxiety. it has stopped now I’ve not had it for a few months

[@Mr-bf6so]

@@courtlhea6724 thats great news, thanks for your reply I've sort of got it in my head that once these twitches start they will never go away so hearing positive stories like yours brings me hope. How long did your eyelid twitch for in total? Thanks again for your time

[@corkcrew9944]

I have had muscle twitches for about 1 or 2 months in mostly the thighs and arms but they can happen for me everywhere. I only get them when I’m laying down and stretching helps but my arms can sometimes get them when I’m walking. I don’t have any other problems yet. I usually get them on my most active days and when I’m thinking about them. I was wondering if als could be a possibility or if it’s bfs. I’m only 13 and my parents aren’t worried UPDATE: I found out it was either stress or a mix of stress and bfs, I know it isn’t something to worry about because my amount of twitches went down to about 10% of what it was when I was worrying

[@bfsanxietysupport]

Glad you got the official bfs diagnosis! Hope your doing well, take care!

[@jhoncarl2805]

@@bfsanxietysupport hi I have muscle twitches for 5 months mostly in my legs calvs thighs arms but it happen anyware. I meet neurologist Last day I'm asking him about this but he said nothing to worry....but I can't stop my mind to worry bcoz I'm always thinking if this symptoms maybe turn to als

[@Mom.268]

@@jhoncarl2805 and how are you now?

[@anshulyaduvanshi_]

How are you now

[@ashleigh2491]

Hurts in my intestines area :( I can’t sleep

[@kylosun]

Anybody get twitching on the side of their head? Usually right side

[@bfsanxietysupport]

+Kya Suleyman Yeah, head to toe! In fact any voluntary muscle is fair game to BFS.

[@loadashwin]

i get them all around my scalp and it jumps and twitches around the side of my head !

[@Manuelg1989]

I get twitches everywhere. Fingers, eye kinds, hands, legs , feet, butt, back, neck, side of head , nose, lips.. EVERYWHERE. What are the curious? Why does it happen??

[@quant2011]

Many people say its anxiety, but in my case, after 4 months, i am not sure, or rather I cannot trace the worst episodes to particular stressful periods. One night, during heavy twitching i just went to sleep on a terrace when it was not that cold. and.... twitches stopped totally! After few hours of excellent sleep, went to the bathroom... and INSTANTLY twitches all over! This leads me to blame histamine/mold as a trigger. But could also be many factors

[@besteterzioglu9258]

How are you now

[@richij3160]

Have same problem when I’m sleep I’m good soon as I wake up twiching starts

[@SusanM-ez7ky]

Do you still make videos?

[@johnrobbins7669]

Was wanting to know if you could give me some advice

[@bfsanxietysupport]

Sure, just ask!

[@johnrobbins7669]

BFS & Anxiety Support The last month I’ve experienced some body wide twitching and I mean everywhere my lips, eye, my arms and legs, sides of my stomach, everywhere. It started one day after I noticed it in my calf from working out. The next morning it hit me like a train. My legs felt like noodles especially going up and down stairs. My calf’s were super tight. I also had some pain and soreness in my legs hamstrings and calf’s and glutes. Of course I went on doctor google and saw MND and als. I’ve had some pretty bad anxiety my whole life, irrational fears, health anxiety, etc. So I went to my pcp and we did bloodwork and everything was fine. He assured me I didn’t have a MND or ALS. But he referred me to a neurologist anyway. We did a clinical exam and everything was fine, I had some briske reflexes in my knees but he said since I was so young and in good shape, and they were bilateral, it was nothing concerning. And I was nervous and uptight etc... he assured me that MND doesn’t start as I’ve prescribed it. He didn’t want to do an EMG and sent me on my way. With my job I’m fortunate to know a lot of people so I sought another neurologist. Both neuros have been practicing for over 27 years. Really good guys. So we did an EMG and it was clean. Only abnormality I had was slightly prolonged f wave latencies in my legs but he said that was because I’m tall and have longer limbs. I said ok and with my research that turned out to be true. We did both my legs my back and neck, and my right arm and hand, didn’t do my left arm. They assured me EMGs don’t miss anything when done properly and if this was a MND with the twitching I’m having it would have 100 percent shown up on the EMG as the twitching is a sign of atrophying apparently and the EMG can pick up symptoms way longer before a patient can feel them. Just wanted y’all’s advice? Also I’ve experienced a huge increase in appetite, I struggle to eat enough and stay full. They said that was my anxiety and hormones released in my body. They but me on two anxiety and depression medications and paired me with a behavioral therapist and we meet twice a month. She’s really nice and sweet. But I’m just worried and scared that the EMG was done too early even though they assured me they can’t be done too early lol. I read about one guy who had the twitching like me who had an EMG which was clean and he experienced weakness about 6 months after when he noticed his leg wasn’t working properly and he had als. Which scared me to death. I also read where some doctors and scientists believe that bacteria leaving the gut can cause MND which I’ve had acid reflux and some gut problems my whole life, see the connection I made there? Made my anxiety worse. Which I’m sure his EMG wasn’t done properly and they only did his left side not his right which made me feel they missed something. I would really appreciate anyone’s advice.

[@Mr-Mr66]

@@johnrobbins7669 how are you now bro?

[@johnrobbins7669]

@@Mr-Mr66 still twitching in calf’s and legs mostly. I’ll get random thumps all over. But calf’s are constant.

[@rootedrotor525]

I don' think I'd worry about mine either, if I didn't have 20 other symptoms going on. Bone pain, cramping, stiffness, numbness and the list goes on and on. From running marathons 3 years ago to a shell of myself today. A dozen different diagnosis and mis-diagnosis. Lyme, Neuropathy, BFS, neck issues, Fibro. What an absolute joke - these Dr's know very little - especially neurologists. When it comes to the brain - the medical community is lost.

[@bfsanxietysupport]

I probably should do a video on the vast number of symptoms I get on and off.. They include tingling, burning or cold sensations on limbs, tingling mild pain on spine and limbs or even skin areas, vibrations, buzzing, aches and pains, vertigo etc etc the past 2 years I get all kinds of stuff on and off, sometimes they all come at once too..

[@itzisou]

BFS & Anxiety Support I’m writing this while crying. Thank you so much for your videos, they are comforting. Please do another video with other symptoms you experience. I’m struggling with bfs, health anxiety and depression. I got married last year and since then I have put my life on hold because every new symptom kills me inside and I don’t know what to make of it. I’m constantly afraid. I have been having buzzing and interval tremors in my legs, especially my calves. It terrifies me. A have an appointment with the neurologist next week and I’m so afraid. Is this a symptom of bfs? Is it not? Is any one out there experiencing the same thing? A video of you explaining other symptoms would increase my understanding of bfs since you have had it for years. Thank you so much and god bless.

[@rootedrotor525]

@@bfsanxietysupport Yes, I think we'd all very much appreciate a video on this. Thanks for your content - we all appreciate it. If you had one piece of best advice for us - what would it be? Thank You

[@marquisjones148]

BFS & Anxiety Support yes please do a video

[@mimitaa9552]

Rooted Rotor I agree with you 100%. It’s all about $. I am so disappointed by the way physicians handle everything. I wish I had never had to deal with or had to visit so many of them for the random symptoms I am experiencing. They are clueless and a prescription for any particular antidepressant is always readily available to test out.

[@malidutch6888]

Thanks. Do you twitch while walking? And do you also have cold feets? Do you think they will find a cure? If they even are looking for it... Thanks for video

[@bfsanxietysupport]

Hi, if I do I don’t notice it. I find when I am active I really don’t feel my twitching as I’m moving and engaging muscles. Most people notice it when they stop moving due to being still. How about you?

[@jaynewoffenden4833]

Do yours ever hurt ?

[@bfsanxietysupport]

No just people can get cramps which hurt.

[@melodybasta7734]

What is the Facebook group name? I need to join this!

[@bfsanxietysupport]

BFS Recovery - Benign Fasciculation Syndrome Support Group. I should have a link on some of the VLOGS

[@lastcall170]

Same here....all over...lol

[@bfsanxietysupport]

lastcall170 Ive been twitching for many years, the rollercoaster continues but I like to share with other to give confidence.

[@mustafabaris9681]

Mannnn , you look like 41 ..! Can’t believe you are 49 ..! Must be doing something right despite these annoying twitches 👍👍

[@bfsanxietysupport]

Lol I just turned 41 in March! Where did I say I was 49 😂

[@mustafabaris9681]

BFS & Anxiety Support My Bad .. Must have been the accent when you said “ I am 40 now “ that “ now “ sounded like “ nine “ .. I gotta brush up on my listening skills for sure .. 😂😂 But thanks for the video , just found out about your channel and subscribed today .. Been having the same problems since 2003 , mine started on my calfs , now kind of at random places in my body but mostly on my calfs and it gets annoying as fuck as you can relate to ..

[@nawabKhan-tv7vh]

@@mustafabaris9681 sir please help me in reducing twitching 😭

[@mustafabaris9681]

@@nawabKhan-tv7vh where do you have twitching ? On your legs ? Arms ? I have been twitching since 2003 .. Been to the doctor twice , they all said the same thing .. Nothing to worry about ..

[@nawabKhan-tv7vh]

@@mustafabaris9681 i have full body twitching

[@austinheading2165]

Try some CBD, it helps for some

[@bfsanxietysupport]

Catcatcat Im good, fresh air and riding the highs and lows for over 13 years.. thanks for the suggestion though, it might be good for others.

[@reliegab6593]

I chinese medicine twitching is related to lake of chi energy also related to blood deficiency. My advice is to go to see a shiatsu Practitioner where you live and they can explain to you and treat you! Good luck

[@bfsanxietysupport]

I shall certainly look into that, thanks.

[@lastcall170]

@@bfsanxietysupport I feel your anguish.

[@mustafabaris9681]

Relie Gabard Can you explain more about blood deficiency ? What do you mean by that exactly ?

[@reliegab6593]

@@mustafabaris9681 well its better you ask an acupuncturist or shiatsu practioner they can tell you in details about it. But from what I know is when your body and your liver is struggling to created blood in your body. Hope that helps

[@nawabKhan-tv7vh]

@@reliegab6593 means

[@kaciem1673]

Are you from n.i ??

[@bfsanxietysupport]

+kacie wacie Hey, I am indeed.

[@kaciem1673]

BFS & Anxiety Support so am I😂

[@bfsanxietysupport]

kacie wacie There’s quite a few people from the FB groin and on here from NI & Ireland. I hope your feeling better about your BFS. Take care