Why the entire film is not avilable on youtube?

Photobiomodulation with graded exercise

First I had a case of Mono/EBV in March of 2020! After many months of slowly regaining a bit of energy & ALWAYS ENDED UP WITH MANY CRASHES! In 2021 was finally diagnosed with Post Viral Fatigue Syndrome- Today I’m laying down on my sofa Trying To Recover From Another Crash! FYI; I haven’t been able to work in 2 yrs

Es ist so verdammt traurig und macht mich täglich wütender, dass nicht mit allen Möglichkeiten an Medikamenten geforscht wird 😪

M.E was defined and has a medical definition which is explained in its name. It was initially accepted as an organic illness then over time it has been bastardised and diluted by lies misinformation and purposeful intent. Even the estimate for folk I'll with this illness is categorically incorrect. Because folk get the wrong definition for their illnesses. Thus the figures banded about willy nilly are from an estimate banded about willy nilly from the 1980s. Which is absolutely incorrect obviously. It has been firmly and intentionally ignored . Thru medical abject ignorance across the board. It is a auto immune illness. It isxmore severre than anything you have come across but because both it's term and the often used incorrect shadow name of CFS itself made up to support the deception. Back again in the late 80s . It goes back in time to the mid 1950s. No one but no one does their homework in this respect. And once an illness is bastardised to mental health thru medical pointed ignorance, so is every doc and his dog. Thus the condition is further exsaerbated by wrong diagnosis for there simply is no medical diagnosis....so how could it be considered in any formal sane way.! The way to cure is similar to any other major auto immune illness. But sufferers do not understand this because no one suggests this. Thus they are left in the dark permanently continuing to not get better......if you get cancer you get medical help. If you get me you get abuse. It is easy to identify this illness. It is easy to beging to assist folk with it , it is easy to not compound this illness. But none of this is done Thru abject ignorance. If you only think in terms of oxidative stress you start to figure out the issues involved. For sufferers it is made worse because they have to contend with the wrong gases in the blood causing foggy thinking....why they can't concentrate ot work out basics it's like trying to chat to someone who is gassing themselves in a car ! The accumulative effects of this illness accumulate because no one is given proper basic advise let alone any medical care. It is a criminal abomination . Thus the initial ability to deal with this illness is lost and 40years on folk are left in the same painful situation still not quite getting what's actually wrong. And no charity out there is remotely helpful....money goes to the continued nonesensical medical enquiry when it needs none . It needs an appropriate responseclike any other major serious illness , shadowing the same basic principles.....that's it !. It is compounded a 100 times over by folk who have been given the GP waste basket diagnosis.....who then improve because it's not what they have anyway that complicates the issue horrendously. As does all ignorance on the matter . Becausec gps have no concept of what they are doing and nor does the innocent sufferer. Whatever they have !.. PS any comparisons to any other illness is gross stupidity .

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I'm in Canada and am suffering undiagnosed with this right now. Waited 2 years to get into a rehab clinic, now they're trying to push me beyond my energy reserves and "educate" me that my chronic pain/symptoms are simultaneously "real" but "just in my head", while my fatigue and brain fog are ever present but not getting looked at as the main reason for me not being able to exercise or do anything really. What I would give for a long meandering bike ride, an hour of laps in the pool... its assumed I'm not doing these things because I've somehow made myself overly sensitive to pain?!?! Its getting too hard to recover from the commute to meetings and workouts and I have no energy left for anything else. I feel lucky that I'm well enough to sustain getting out of my house for a few hours once or twice a week... but I'm probably going to be kicked out because I'm getting too tired to make it there on time or keep the rest of my life organized. I can tell my increasingly-hard-to-conceal frustration is likely going to result in a conversation about how my "negative attitude" and "faulty beliefs" are "contributing to poor outcomes for (my) condition".😩!! 'Thoughts and prayers', FFS. RRRRGH! This is heartbreaking and emotionally, its making me feel like I'm either crazy- making it up in my head, or god forbid LAZY, or like overall I'm ALL those things and a complete failure if I can't avoid being kicked out of rehab. I'm giving it my all to get some sort of help, but it's not enough. I'm sad. It sucks. I need to rant. Next week I think I'm going to politely refuse to comply while simultaneously refuse to quit. Hopefully they can take feedback and maybe the next ME/CFS or Fibromyalgia client they treat will have it easier and get their actual needs met instead of being penalized or neglected for the symptoms of the illness that are debilitating them. Hopefully I wont have a relapse in between everything. UGH! So frustrated. Hang in there, ME /CFS/ Fibro/undiagnosed/mystery condition people out there! You peeps who can recognize how familiar this struggle is are the ones who keep me going. Dr.s & clinicians (I've yet to meet one who has experience in treating CFS patients) can make me feel crazy but talking to other sick people makes me feel real. Hang in there!

The people who repeat ME/CFS suffer from some kind of severe mental retardation. As clearly this is no such thing.

This is such great progress toward making a better future for ME/CFS treatment and I'm so glad it's happening.

I got my test result yesterday and I finally tested negative to HSV 2...., It really feels good to have my life back and I am so thankful to Dr. Okiti for helping me out..... If anyone reading this comments wants to contact Dr. Okiti for questions or help

Yep, GET was established globally as the norm. Insane. I was told the same and thankfully ignored it as just going up one flight of stairs was too much, and the one time I did some minor "exercise" I was done for 2 weeks and peed on a freaking bottle as I couldn't get out of bed. I was wheelchair bound and finally slightly mobile to today 6y later being able to slowly walk 1km thanks to a doctor who worked out the right meds and fine tuned them. My key message: don't give up, and the days you can do something, do to max 50% of your capability. 2nd: Get a Garmin watch to track your "stress" Level and body Battery. That was what helped me seeing how my body felt. Game changer!!

Ideas for anyone watching this: * Ozone therapy. * Ketogenic diet. * Fasting * LDN (Low Dose Naltrexone) * Trauma therapy. e.g. Somatic Experiencing, EMDR.

3:04 "On average, people with ME/CFS have lower quality of life compared to people with multiple sclerosis, rheumatoid arthiritis, cancer or depression."

2:55 "These patients have an inability to create energy for physical and mental activities that they want to do."

Why don’t you name the colleges and doctors who are blocking this??

Let's not forget how B12 aids recovery.

*tries not to cry, cries a lot* When will the medical field decide to help people? 😭 We NEED research. Every time research is done, they find there IS evidence. I’ve had doctors write me off for decades and it has directly negatively affected my health long term (nearly killed me). Chronically ill patients are dismissed as drug addicts, lazy, or that they just have a bad perspective.

I ve had. C. F. S. For decades. I've found that. Taking. Co q.10. Omega three Neuro mag. Zinc. I. Carnitine a good multiple and v D3 2000. I. U. A good veggie diet with protein.

I contracted ME in 1983 and tried all types of therapy, it took about 6 years to get back to 95% right. I didn't even consider exercise as a therapy as after exerting myself a couple of times I was very very tired, it's as though your life force has been drained. I recovered by reducing all activity, reducing stress in little ways, eating a vegetarian diet and getting my stomach bacterial right. Once your stomach is right the rest of your body can start healing within.That worked for me , I understand it may not work for all ME sufferers. My love and prayers for all ME sufferers as I know what you are going through.

I can't wrap my head around that THREE Royal College Physicians still want to attach their names to such low quality "research" - the PACE Study. 😱 They hang onto GET & CBT as 'therapies,' having built & banked their reputations on the recommendations (GET & CBT) from the PACE Study. Simply because they won't admit that they were wrong. Such a small, harmful group of science-deniers have done so much harm to so many. They've broken the Hippocratic Oath - "First, do no harm." Shame on them. Publish your new report now NICE, please.

I got it at age 21. Now I'm 68. I was misdiagnosed for 20 years. I was a backcountry skier & climber. Trying to maintain an active life & physical conditioning caused immeasurable harm.

Diabolical.

These videos are great. The only reservation I have is the music in the background is a bit drippy and distracting. I think they would be more powerful tools in the fight to persuade hcps without it. Maybe also the narrator is too softly spoken. It’s important to have a strong voice that carries and commands attention.

You can’t move . You try to move. Your body will not move

Is anyone still naive enough to think that they will be "cured" by mainstream medicine? I am just coming out of 4 years of ME - in the final recovery stages and the key points for me were fixing my leaky gut, detoxing from heavy metals, rebalancing my hormones with bio identical hormones and eating an extremely clean diet high in farm raised meats, bone broth and kefir. Also vitamin D supplements. The cure may be different for others because the body has suffered an onslaught of toxicity and depletion which have affected multiple systems. Graded exercise does work but only in the final stages of recovery, and needs to be extremely slow and gradual. It has been key for me in this last leg of recovery. I wish you all the best. It takes a huge amount of research and discipline in eating the right things, ditch the coffee and sugar and stay on the path. There is no doctor or pill that can cure you. You have to put the body into a healing state. You can recover.

Semi professional football player, then triathlete, working full time, raising family. Valuable member of community. Now, unable to work exercise or be a good father. Anxiety they say. I've climbed highest mountain in South East Asia, I've bungee jumped etc zero fear and minimal anxiety

Thank you for ….understanding; /

So after this beautifully done vid, they sign off saying to check with experts and list exercise physiologists.

There is 'no such thing' as 'ME/CFS'. It seems to be another name for 'CFS' and a silly name for an undiagnosed, uninvestigated individual. M.E. is the same illness as Enteroviral Encephalomyelitis. Its a (motor neuron illness - neuromuscular disease if had Enteroviral Encephalomyelitis). CFS is the 'lack of energy' people. Its a totally different group of people lol everybody has a different condition to 'ME/CFS' as there is no such thing. The illness they do actually have MISSED.

Great video....one day we will be free of this my fellow survivers

I used to roll my eyes when my doctor would tell me to exercise more. How do you exercise when you can’t even move some days.

Love these videos. Thank you.

I wish this did not have the piano playing simultaneously with speech. Or that the music was very much lower in volume. Its too much for my brain to try to filter out.

Anti viral herbs then brain and nervous retraining is best I’ve dealt with it for decades from the chicken pox

Thank you to so many who are "fighting the good fight" on my /& our behalf. We are too sick to fight for ourselves. Thank you, thank you.

There are many more of us who have me/cfs because we haven't been diagnosed. I've spent my life dragging myself to work & back home to sleep. My symptoms became much worse after getting Covid-19 from a work client or at home. I "fired" my nurse for gaslighting & not updating my medical files. I've filed for disability, was looking forward to retiring & my "golden" years. I believe mine started with infected tonsils as a child...my Dr. refused to do a tonsillectomy. As a young adult in my early 20's, in the 1980's my dentist said my tonsils were so infected he refused to clean my teeth & said I could die from this infection. I had the tonsillectomy, but years of being chronically ill & stressed have taken it's toll. Having me/cfs has robbed me & others of our lives. Someday soon, the medical community will "catch-up" & provide some much needed assistance.

In spite of still no cure, at least we finally have a credible diagnosis. So many of those who got sick in the 1980’s not only suffered from the disease symptoms, but from almost total lack of support or interest from the medical community or the general population.. Considered fakes, hypochondriacs, maligners, or depressed and hormonal, living with this was extremely difficult. The general feeling towards us was “ Get well or die!” Having genuine credibility at last is miraculous to us. Videos such as this are very helpful to share with those who are still skeptical or are interested. Thank you!

thank you for standing up for truth and for helping those who are hlelpless among us. For those who can't exercize, being told by a doctor that either their symptoms are psychological (despite scientific studies showing otherwise) or that they just need to excersize, is really patient abuse.

Thank you for this very informative summary. I have ME since 10 years. I get absolutely no care from my GP surgery, only Tramadol to manage the pain which they try to withdraw from time to time and I have to fight to keep. Tramadol is the only thing that makes my life bearable when I am in a crash out.

There was an error in this video. When one of the interviewees said that there is no biomarker to diagnose this disease, in fact there HAVE been multiple studies involving brain scans and blood tests following exercise that reveal distinct differences.

2:03 Excellent excerpts on ME/CFS

RIP Graham

3:20 Share with your doctor: doctorswith.me

What a brilliant video.

I have been an exercise addict my whole life & it has taken many bad crashes to concede that even graded exercise can be toxic to ME sufferers. In this case, I would prefer the shrinks to be right, because a simple cure would be better than the complex research challenge of ME which means that at 60, a useful treatment is unlikely to occur in my lifetime,( other than living the life that's more limited than some 99 year olds.)

After many years NICE finally change their guidelines! After getting ME from a very severe coxsackie B infection I recovered to maybe 75%. A relapse in 2006 and hospital advice for graded exercise cost me my career. Who is accountable? No one of course!

excellent video i wonder how many DRs will watch this?? i am 20 years me/cfs sufferer and thankfully i ignored the advice to exercise more. I knew it was making me worse. I did push through my life though as i had 2 young children, but i have now had to stop working in a NHS career i loved due to this horrible disease that has stolen my life. But I still have some hope, hoping this is the beginning of change.

I wonder if we'll ever be able to figure out why our bodies can't produce energy as they should and why M.E is often accompanied by fibromyalgia.

Very good summary of the current situation regarding NICE. Thanks. We are all watching what happens next.

Wo gibt es den ganzen Film?