Whats your installation username?

I hope that you are better now. I know how it is... I send you love and hugs ❤️

Brave and necessary… Let people realize and understand what You’re going through on the worst days…🙏🙏🙏

This is exactly how I feel and get unfortunately like this for days at a time stuck in bed mostly sleeping but then only this much functional when awake. How long does this level usually go on for you and is it happening regularly like it is to me? For me it happens to me either once a week or about every 10 days maybe…. Where I will be doing fairly ok and able to function and then ppl see me on those days and I look fine and “normal” (even tho if they paid attention to detail they would still be able to see the signs and symptoms a little bit but I digress lol) ya but then every 10 days or so, my chronic fatigue syndrome causes this “crash” if you will, where I am useless. I’m just like you in this video, and I don’t get outta bed during that time except only to go to bathroom when I absolutely have to. So I basically sleep hard for around 2-3 entire days when this goes on.

Hope you're doing alright these days Bekki

🙏

I really need help.

I searched "chronically ill" & found you. Thank you for sharing some of your story with us. 🌹

well.....here i am...disabled and can not work because i am always SICK chronically, i have no money, can't work and nowhere to go

That's one cute hernia! lol! You look like you are doing a bit better then you were a couple years ago at least! I hope you continue to move forward and not backward!

Hope everyone is doing as well as you can, I will get a longer more detailed video done when I can, I have so much to tell you all! Much love to everyone! ❤❤❤

Oh wow, congratulations!!! He’s gorgeous!

reality happens. don't feel bad for taking care of yourself. that's the more responsible thing to do before you can take care of others. so you're doing it right! welcome back!

Glad you’re back Bekki . Hope you’ll feel better and sending you best wishes

hey Bekki, you're looking much better and stronger! Best of wishes for you and happy to hear from you! I used to have anxiety when I lived with an abusive ex. But now I don't have anxiety, but I have pots syndrome. it comes and goes. Lots of chronic pain, short of breath, headaches etc.. but nice to see you again because I did wonder what happened to you! hugs!

I’m so happy your back. You’ve been on my mind and I’ve missed you💕

💕 yay! I missed you! 💋

love 💕 I love your honesty and silence. I recognize all of what you share in my own journey.. it is a f.. challenge, and I think it is so important to dare to see it, admit it and accept that we feel like we feel and not always trying to cover up stuff in a lighter tone. it is times for hope and distraction, but also time for raw honesty and looking into our own darkness. I believe we all have the specter of light to dark and I requires strength to dare to see it and embrace it. I send love and thank you for the sharing. 💗

Hey how r u now

So they can try fix the house

Try Go Fund me. Or volunteer handy man

I will pray for you in Jesus name.

I am like this everyday and have paralysis and in wheelchairs to get around. I take painkiller , muscle relaxers, Had morphine was ok the first time but after awhile did not work. Try morphine patches also . For me just make me. More sick, stomach and nausea to then make my symptoms feel worse.

If you want to lose weight Google calorie calculator enter you age weight height and amount of exercise you do per week it will tell you eat x amount to lose 2 lbs per week then use a phone app like Samsung s health measure your food so you know how many calories you eat then use a scale to keep track so your a healthy weight. For scale do it wearing the same clothing each time as clothing can change your weight.

Hi, honey, how are you? 💐

I’ve recent been diagnosed with me too your not alone

is teeth grinding part of the seizure??

Yoo hoo! 😄 I miss you 💖

I managed to cure my ME and bfs with a meat only diet. Try it what the hell

Hi Becky , it’s been a while since you’ve posted . I hope you’re ok . Please let me know that you’re relatively ok Sending you best wishes

My friend has a long distance relationship with a girlfriend in New York that has a chronic illness and they ate together for 20 years plus

I have a co-worker that has a girlfriend that has a chronic illness and they had been together for over 15 years

Hi, I was wondering if you get armpit pain without swelling? Doctor told me it can happen, saw a haematologist and could find nothing. It’s been going on for about 3 years now. On and off armpit pain and now they feel like they’re on fire. Was just wondering if you have ever had this. Take care of yourself!

join the club - I just got the VNS operation due to the meds don't work - I have three different types that show in my brain

Thanks for being so vulnerable and showing the reality of our lives! I've been sick for 18 years and sometimes people still don't get it! This shows me I'm not the only one.

THANK YOU for telling the world! They need to see our suffering!

My son is Autistic ..I love you already 💓💕👍

Oh that’s good news you’ve lost weight. I have gained back some due to my flair and I realized how hard it is in my body to carry even 15 pounds more. Especially with the severe bone loss I have. I have had an eating disorder as well. I just stopped eating a lot of times afraid to gain weight due to the pain it causes and now I’m paying for it with the bone loss. Ugh. Back in 2009 I had hit my all time high weight and had to drop about 60 pounds. It was a real struggle but I did it. I have a very small frame so the extra weight was beating the crap out of me. Now I need to drop about 10 to 15...much better than before...sounds like your diet is working for you so that’s really good! Hang in there hun. You’re doing great even though I know you don’t feel well. I think the weight loss may help a bit with your mobility. I know it helped mine. Sending you love and hugs❤️

Bless you my sweet friend. So happy your infection is gone and you didn’t need the steroids! The steroids are so hard...but I did get some relief for a couple weeks so that was good. I’m so sorry you’re having a rough go with this flair up darlin’...it just seems to be hanging on. I’m finally up at my daughters. She did a medical assessment on me and found a shit ton of things wrong that the doctors say “is fine” concerning labs...so glad I’m here. I had my first detox and healing breakfast this morning and felt more energetic than I’ve felt in a while. I was able to go 9 hours without pain meds which is nothing short of a miracle. Sooooo...hoping to upload a video soon! I got so excited when I saw you posted a video. I haven’t watched your last one yet. Was having a rough go. Was in the hospital for an adverse reaction to meds I keep telling my doctors I cannot take. They seem to think I don’t know my body. Welp I did what they said to give it a shot and damn near died. Ugh. Also found out I have 27% bone loss...I’m sure is due to the ME and not being able to retain vitamins and minerals as well as being bed ridden for a very long time. The bone medication is narley and makes me even more ill. But I’m hanging in there. Glad to be here at my daughters where she’s feeding me whole, organic, powerful foods to help with the pain, fatigue and side effects. If you want to join her Facebook page she has a lot of info on treating our symptoms with the proper food. Her name on FB is Vanderbilt Garden. Her name is Jessica Vanderbilt. It may pop up as “My Today”. All I know is the power breakfast she fed me today did wonders. I’m going to start filming my journey soon. I sure miss chatting with you girlie and happy that some positive things are happening in your life. Feel free to email me any time you need to talk. I’m always here for you. [email protected]. Sending lots of love and hugs to you and hopes you get some relief soon!❤️🌈🌸💕🤗

**trigger warning** I chat a bit today about binging/purging and starving. if these are triggers for you please don't watch, if you are triggered and suffer a crisis please contact your regional crisis helpline. Don't suffer in silence. Sending love and strength to you all 💖💜💖💜

Hey my lovelies, well this is a big thing for me to do, admitting my weight to you all is embarrassing! But I felt it was time to share and be open and honest. I feel that talking about my eating disorder triggers may help me make sense of my eating pattern which is pretty terrible tbh. Anyway thanks for watching and I hope my weightloss journey can continue. Love and strength to you all 💖💜

So good to hear from you and see your face Becky. I’ve missed you girl! The false teeth chatter 😂 I was laughing so hard. Haha. With it being close to Halloween and all you made me think of a pair of dentures chattering on a table. Lol. Sorry you’re having a rough time pulling out of this. You’ve been in my thoughts and I almost commented yesterday to check on you so it was nice to wake up to this. Finished my steroid sesh almost a week ago now and ended up with a real bad headache last night and woke with it this morning...been icing all night. But I have some good news I found a wonderful doctor! I decided to go with a female because I’ve been having the worst of luck with male doctors for some reason. I met her for the first time yesterday and she is the first doctor who understands what ME does to a person. She says she’s been following all the research and is hoping they can get more funding. Girl I was so happy to hear her say that I had a permanent smile on my face the whole visit. Just to be acknowledged was oh so refreshing. I am headed up north to my daughters house beginning of November to spend some time with the fam and my daughter is going to try a lot of natural remedies to see if we can get any kind of improvement in my health. She’s studying to be a naturopath and she has Lupus as well. I also believe she has ME but hasn’t gotten that far in her diagnosis. Anyway she’s my little healer. She wants to heal everyone so this is why she’s chosen this form of studies. When I go up is when I’m going to learn to upload and I’m hoping to vlog the whole experience in case it really works or helps. It’s definitely helping her so I’m feeling positive about it. Hang in there darlin’ and thank you for the update. You are such a beautiful person and I really enjoy and look forward to your vlogs. Sending lots of love and hugs to you! ♥️XOXO

Hi there, I am writing a story for my blog about autism and ME. I have both as well. I was wondering if I might interview you for that story. If you would like to find out more, please contact me at [email protected]. Thank you!

I’m so sorry about the ugly comments. People can be really mean. Hopefully all the lovely comments make up for those nasty psychos that couldn’t live a day in our shoes without sniveling like babies (not that I don’t 😭)My sunglasses are my mask as well. I keep thinking if I popped on some false lashes it might, at least, help me to not feel like I look so crappy but every time I get sick I don’t even have the energy to do that. But I found a lash hack that’s semi permanent that I shared on one of my playlists here on KZbin. It’s supposed to last up to 10 days. So I’m considering it since I’ve been bed bound, this time around, for about 90% or more of this year. Oh and beanie caps help too in the winter ❄️ But usually it’s a messy bun, sunglasses, and a pop of color on the lips for me. Love this video by the way 😃🤗😘❤️

That’s really great news!!!! If I could even feel a third better I would be ecstatic💃🏻🕺

Hi beautiful 🧚🏻‍♀️ Social gatherings WIPE ME OUT. I can’t even go to certain restaurants anymore because the of the noise. So many people yacking, music in the background, servers bustling all around. It’s one of the places I tend to get orthostatic intolerance pretty bad. I think the back of the booths are too straight up so I’m not able to lean back, plus eating wipes me out too. I will never forget going to breakfast with my daughter, her husband, and the babies. I had a new boyfriend who was joining us. Everyone was chatting and having a good time when suddenly everything started echoing in my ears and fading in and out, my head fell fell back and my eyes rolled to the back of my head!!! I was going down fast. I ended up with my face in my boyfriends lap😂. Oh what a sight that was 🤭 That was back in 2009. I’m now single and refuse to date anymore. I stopped dating a looooonnng time ago because of this illness. I just know I can’t keep up and would bore the crap out of him. I was actually looking for a me/cfs dating site here but there are none 😭 it would be so nice to find someone to spend the rest of my life with that understands this illness. Sigh 😔 Love and hugs🤗💕Christina

Oh girlfriend once I start making vids we will have to compare our nail supplies💅Maybe on a good day we can collab on a nail tutorial where we pick a nail design or nail art. That would be so much fun❤️ I’m up with insomnia again tonight and your vids are comforting to my heart. Looks like we have even more in common than me/cfs, fibro, and sociopaths🤓Sending you lots of love, well wishes, and hugs beautiful 🤗😘

I’m a manicurist as well. I will never forget the pain in my hands after a full day’s work. I used to cry and beg my husband, at the time, to massage them. I am not working anymore. Sigh

❤️

One vote for sociopath video 🙋🏻‍♀️But only if you’re up for it deary. I don’t want you wearing yourself even more. I think we are going to have much more in common than ME and Fibro. Lol. I’ve gained 20 lbs since May 😫 I just feel like when I’m this sick I deserve popcorn 🍿 and ice cream 🍨. Ha! Hoping we both pull out of this soon 💕I gained 45 lbs from 2007 through 2009 during a really long crash. I really hope this doesn’t keep on. Your kitty is so cute talking to you like that. What a little lover. I need a little buddy too. I really want a conure. I love all Angie’s birds. Hearing them calms me. Makes me feel like I’m outside. I’ve always been an out doors girl but when I got sick that all changed. I’m so grateful you uploaded another video💛 Thank you hun. I don’t feel so alone today 👯‍♀️ My sister is going to show me how to upload a vid soon so I’m super excited about that 😃 Sending love and hugs your way darling 💜🤗🌤🍿🍨yes I had to add the goodies 🤪Oh and yes about the weight updates too!