I was certain I had heart failure but im almost certain this is my problem I did the stretch test and it hurt bad , the fact that this could cause my headaches is also aggravating

28 years ago I was diagnosed with TOS and over 2 dozen Cervical Rib spurs in my neck and PMS as well as my C5C6 and L5 are all hyerinated. I live in constant severe pain daily. I was told that it was a 50/50 chance of being paralyzed if I did the surgery under each armpit taking a ligament out on each side or I would be most likely paralyzed with in 15 years. Dr said I could be be a Ginny pig lol I wonder if I have any options now

Do you have any advice for bi lateral symptoms?

I commented on this 6 days ago. So excited thinking that there may be hope. However I wonder with myself having over two dozen cervical rib spurs in my neck. This was diagnosed 28 years ago. The dr said that Drs would want to make me a guinea pig being I am such a rare unheard of case. Please Dr. please respond and let me know if there is any hope for help for me?? Please

Hello. I've been trying to educate myself on TOS most recently because of my symptoms and I came across your channel. I am currently under Dr. Hagan's care in STL. I had an MVA in September 2022 and am still dealing with surgeries and injuries from that. I had 3 level cervical disk replacement in April of 2023 (C3-4, C4-5, C5-6) done by Dr. Matthew Gornet. After certain symptoms didn't subside, I was sent to Dr. Hagan who originally thought my DSN was entrapped and did surgery to release it. He released my middle scalene, and said he found a lot of fibrous bands while he was in there. This surgery was in July 2024. My original symptoms returned around October 2024, and I have since developed new symptoms that I believe are leaning toward a positive TOS diagnosis. He has me seeing Patty Zorn for PT, and I've got 3 weeks left of that. She found that my pectoral muscles were incredibly tight, and after giving me exercises, I have gained full range of motion back in them. Now we are doing strengthening of the trapezius muscles, but so far, no change in symptoms. I'm assuming Dr. Hagan's next steps will be imaging (hopefully an MRI of the Brachial Plexus area). I have a few questions for you. In your experience, could a compressed DSN lead to TOS? Or could it be possible that I had TOS initially but wasn't showing many symptoms of it? Could the 2 coexist? I am concerned that it has been over 2 years since the MVA and I'm worried I may have or end up with permanent nerve damage. I know that I am in good hands with Dr. Hagan. It's all been such a frustrating experience of dealing with this pain for so long and I feel like it's never going to be figured out and resolved. BTW, the DSN surgery recovery was the worst of the 5 other surgeries I've had because my trapezius muscles stayed in spasm for like 2 months post op! Thank you!

After my 2nd child I got bad headaches and my arm were barely usable. Then after my 3rd child I went to the er where they after testing all night and the next day they diagnosed me with TOS and sent me to a specialist. The epidural was inflaming my condition!! This specialist was supposedly the best Dr in this field in Houston. This was 28 years ago. He did all day testing on me and the Dr. tells me that my case is so very rare that I had TOS and that I had over two dozen cervical rib spurs in my neck and that they would have to go under each arm pit take a litigate out on each side to try to get to the bone spurs to shave them off. He said this would be a 50/50 chance of being paralyzed. He signed me up with NORAD which after years I lost contact with. I also have my c5,c6,& L5 are herniated. He said I would likely be paralyzed within 15 years it’s been 28 I’m not paralyzed yet I do live in constant every minute of the day horrific excruciating pain. Is there any help for my now in 2025. I’m 52 years old. Please

I have severe pain and swelling of my arm. Does this look to you like it might be TOS my Physical Therapist thinks so.

Mobilization of the 1st rib and clavicle might offer some relief. Scalene stretches might be a good addition in some cases after getting professional evaluation.

When I use my theracane I tend to get relief for a while. a massage therapist told me about this years ago. What do you think of it?

OMG.... Thank God I found your channel. I'm in Pennsylvania U.S.A. This video really confirmed it. When I lightly press or massage the left side of my neck and left clavicle there is a lot of pain with an accompanying headache. This also explains all the burning, aching, numbness I feel along my left upper arm and hand. My left middle scalene is also quite noticeably swollen. I picked up a 60 pound rolled-up compressed hybrid pocket spring mattress on my left shoulder and went up a flight of steps on October 27th 2024 and have had worsening symptoms ever since. I started doing research to figure out this now very painful discomfort and came to the conclusion that I may have TOC, but this video and your channel has really confirmed it and gave me the best info to seek help. I delayed going to the doctor because I saw so many horror stories/testimonials of misdiagnosis for pain in this region. I found people who shared about their misdiagnosis and the stress, time and unnecessary physical pain and procedures they endured because of those misdiagnosis only to find out much later that they had TOC. So thank you Dr. Werden. Please if you have any resources or info for me to seek help, or can point me to any of your collogues here in Pennsylvania or New York City, please please please let me know. Thanks in advance.

Intercranial Pressure and TOS What causes hearing loss in TOS

Could post-car-accident repeated chiropractic adjustments cause TOS later in life from the adjustments done on the shoulder causing the shoulder blade and clavicle to compress the brachial plexus/ TO ?

I'm feeling pain, I just found your channel.Thankyou!

I believe I have TOS. I had neck surgery & have a metal plate in my neck 20 years ago, I do repetitive movements everyday at work, my R arm started hurting & weak with numbling & tingling in 7/2024. I felt like I've been loosing muscles on my arms, but thought because I'm 53 so it's normal. I asked if Kaiser can give me an MRI, they said no & gave me physical therapy. The therapy helps, but it never went away. Then I filed workman's comp with work in 8/2024 & they sent me to have nerve test, PT, now acupuncture, I feel it's helping, but it hasn't gone away & the pain is still there. The numbling & tingling went away. I don't know what to do, please help🙏

I was diagnosed w/TOS several years ago. Dr at the time suggested I have my first rib removed. I declined. Because I’ve left it untreated for so long I’m Now Finding it’s increasingly difficult to relieve the intense numbness and pain in my hands, palms & arms. Effects my sleep waking me 4-5 times a night because the numbness is so intense and my daily life. It’s hard to use your hands when they are so numb and hurt so bad from the numbness. It’s my entire hand on both sides, my palms. When I first wake up it’s REAL bad, I used to be able to move around & the symptoms would subside some. Now I just can’t get it to subside no matter what I do. I can’t use my hands normally after waking up and for a large part of the morning. Have to stop whatever I’m doing because I’m unable to hold, grab to do much due to the pain & numbness

What about IIH Idopathic Intercranial Hypertension caused by TOS

I have been having similar syntomps for months, ive had all kinds of tests and they cant find anything now my doctor thinks its psychological, i am almost in tears with frustration.

Thanks for the great info ...Can someone with inference tell me based on occurance and probability what might be going on in my case. It was a sudden onset when I tossed a tennis ball above my head with my left non racket hand to serve during a tennis match. I uses to surf and play tennis but now in my 50's I only play tennis. After it occured It just felt like a funny bone trigger but a little more sharp and it would reoccur everytime i tried to serve.. so i tried to fight through it by not tossing the ball as high but I escalated its anger and before I know it it waa happening when Id run and swing the racket ...seems to be associated with how i position my head as in looking upward. It was not tgere one minute then when i threw my arm up looking up it would feel like someone just plucked my left side like it was a tightrope. Now, after a week or so i am feeling numb feeling in my thumb and index finger. How it can just happen so suddenly with no prior indication of an issue after 50 years is troubling ... I am a tennis coach and quite worried atm plus I can't afford surgery

Thank you for your expertise and advise!!! I so badly needed to see this video to stay encouraged and learn more.

Do you have a specialist for TOS in my area? I notice Dr Jenkins is in New York.

My injury was 2,032 days ago. Nearly 2 years after the injury, and bumped around to several providers after failed procedures, injections and failed PT before I made it to vascular surgery. I was looked up and down and, after a few assessments, dismissed as, "not TOS." I have had the XR's, CT, MR, MR Arthrogram, DVU US, bil wrist US, and not really showing much. The DVU was today, and there's an EMG coming up. I have requested an MR Neurography from PM&R. What can I say to get these providers who have, "done all that I can for you," understand that my pain is real and I can't do any strengthening exercises for shoulder stability due to the loss of circulation and numbness/tingling in digit 3-5. I'm on medical leave and being sent for an Independent medical exam who sent me back to work the 1st time I was off for this 4 years ago. I just want to be heard and not given up on.

Cannot find anyone to help me with PT here in Metro Detroit, Michigan. Therapists don't have training or experience in treating it.

Thank you for doing this video...

Very good explanation

I have it what can I do

Can scapular dyskinesis be associated with TOS?

Never knew that TOC was bilateral... thanks for the distinction.

Hi! How do I go to you? I live in Loa angles

This was by far the best info I have seen! Thank you! Maybe I missed it, but is there a specific MRI that will show the compression of the Brachial plexus? During shoulder surgery, if a thickened coracoacromial ligament is released can this cause the shoulder to roll forward and end up becoming TOS? Is the pectoralis muscle ever involved with TOS?

My doctor made me wait years to get the surgery and had me go through rounds of Botox my insurance wouldn't pay for and had to be fought for I just can't help but wonder if they had done it sooner you say you don't want to get to that point but they didn't diagnose me for years so what was I supposed to do

This is one of the best and most informative videos I have seen on TOS. Thank you so much for your expertise! I am tempted to fly out to get your care.

Very insightful tysm! What would you suggest? What test? I go tomorrow for my test,😅

These protocols focus on the optimal visualization of the thoracic outlet region, ensuring that all potential areas of compression are thoroughly examined.

MRI provides high-resolution images, allowing doctors to clearly see the detailed structure of the nerves, blood vessels, and skeletal muscles in the thoracic outlet area. 😊😊

Hi what happens if you have Vascular TOS but the left subclavian vein is occluded? Can you still weight lift? What is the best course of action for a normal life

right, but how aboug a bad curve needing surgery real young, and causing a host of issues like nTOS?

Hi, I have Vascular TOS, however my the left subclavian vein is completely patent and I’m currently taking blood thinners. Will I ever be able to weight lift or exercise again and do I need my rib removed? I would appreciate a response

Thank you for creating this video!

I live in France, I am 38 years old, i live in France and I have two jobs, one at the computer and the other in a bakery, but it's similar to what you'd describe as a UPS delivery person's job - carrying boxes and lifting my arms a lot. The first symptom appeared 2 months after I started working at the bakery. I ignored it because I thought it was just a sore wrist, then the pain moved to the elbow on the other side. After 6 months it got drastically worse, until before my sick leave, I left work crying in pain. I couldn't move my arms, and I had tingling, weakness, pricking sensations, arm pain, and numbness in one arm. At first, I was diagnosed with tendinitis, then the physiotherapist with a bilan suspected something else. After an X-ray that showed astrose in my chest, I was seen by 2 family doctors, and the work doctor, I was their first case. I insisted on seeing a specialist and not leaving without a final diagnosis. Since I live in France, I went to a vascular doctor. He did an echo on my arms and saw that blood wasn't circulating in my left arm when it was at a 90° angle. He confirmed the diagnostics. I am currently doing physiotherapy, but my questions are: don't know if is neurogenic, arterial or both and is this a professional disease? Thanks for the content.

I'm so thankful I've discovered Dr. Werden and this little channel dedicated to us patients with this hard-to-diagnose condition. I've had symptoms for 4 years now, been to A LOT of doctors as well (got different diagnoses) but nothing helped. Only Dr. Warden confirmed my suspicion for more than a year now and I've decided to take another chance and go to a specialist in our area - but this time with more information and confidence of advocating for myself. I hope I could go to great specialists like Dr. Werden but I'm all the way from Asia.

Very interesting! I appreciate the information. I was recently diagnosed & treated with a first rib resection for Pagett Schrotter

I really appreciated art jenkins video when he showed tos 2 tos patient cases with pain/parestesia CBSQ diagrams of the patients. Can you share more CBSQ pain patters of patients with TOS? Specially when there are non classical pain/parestesia patters?

Thank you for this. There is very little info out there. I was diagnosed with Paget Schrotter.

I have gotten nerve injury after laparoscopic appendix surgery. The pain is over 10. Thanks for all your efforts and time. I have been diagnosed with TOS, but none of my doctors cares😢

Can’t believe I’m the first to comment. This video is so helpful and deserves a lot more views. Well done doc.

also which is the name of the study about no correlation between adson test and plexus compression?

Can you share the name of the study you talk about in 32:23?

would love to see the cases of patient 3 and the rest that wasn't shown in this video. Any way to see that?

Would love part 3. What about MABC diagnoses tos shown in 7:02.

These videos are dope, i'm watching every single one of them. Doc. Jenkins mentioned the Bertolotti syndrome, I swear... Finding an extra pseudo-rib while pressing on the QL (i was trying to relax it) is really the strangest thing happened in my studio!