Love you man. So glad there's some good still in this world to help people (like this new drug).
@wendylarson4322 жыл бұрын
I used to come visit you in the hospital when you were a baby and remember talking to your mommy about what your future. Can't tell you how happy this new drug makes me and how excited I am for your future 😍 (squeeze your mom for me 😁)
@sabastianvigil87952 жыл бұрын
Amazing video, thank you for sharing this with us. God bless.
@lisaogden75262 жыл бұрын
Amen! 🙌🏼❤️ Thank you so much for sharing your story!
@michellewilloby84484 жыл бұрын
So happy for you. May your life continue to get better, and pray the CF becomes a thing of the past.
@eiroa24324 жыл бұрын
You are wonderful. Can't wait to see what you do with that brain :)
@toshomni94784 жыл бұрын
Congratulations. Glad you are doing better. Remember that you don't have to fix everything in your life all at once. Take care.
@wooleywews4 жыл бұрын
Thank you for doing this (the videolog)!! I've been wondering how things were going with the new drug. By doing this, you're helping others with CF understand the ins and outs of a new, potentially life changing drug. YOU ROCK!!!!
@katherinechizk20234 жыл бұрын
Keep it up! It will take some time, but you will find your new normal. As for your channel, do things as you have time, quality over quanitiy.
@katherinechizk20234 жыл бұрын
Keep it up, life is about to get super exciting for you and I am so happy for you.
@rosemarys24654 жыл бұрын
Enoch...first off, I love your name. A long time ago, I knew an elderly man with the name Enoch. He was kind, elegant and such a good story teller. You would have liked him. I am glad that you are looking forward to a long future. I feel that you will be a good ambassador for people your age and for those with CF. What do you want to study in college? Public speaking or service? Video? Technology? Research? In any case, I’m cheering you on. Merry Christmas!🎁🎄
@elizabethbarnes17604 жыл бұрын
I love this. Excited to see how it works for you. I shared on FB and started a fundraiser for the CFF on there.
@JaylaCucu4 жыл бұрын
Good information! DFTBA
@dorkeren14 жыл бұрын
I'm a 43 years old C.F patient who happen to be married to a C.F carrier. 1 year ago after having IVF treatments my beautiful healthy baby girl was born. The doctors used PGD to select only the healthy carrier fetus and not the sick one. So my daughter is carrier of one of my mutations but healthy. Never loose hope and live life to it's fullest.
@cysticfibrosiswarriorsbran62114 жыл бұрын
I'm 30 year old and have a child who is extremely healthy and hes 9 years old and does not have cf. And I'm also on TRIKAFTA
@lltcna_Laura4 жыл бұрын
have you seen the frey life Mary frey has been on this and is very knoledgable
@susanmargaretwills64324 жыл бұрын
U are a lovely kid Enoch
@corinabalut4 жыл бұрын
You are so beyond your years and so scientifically knowledgable about CF, you are truly amazing! I wish you all the best and to fully benefit of this new drug for a beautiful life ahead of you. Lots of love and hugs. ❤️ ❤️ ❤️
@Gretlusky4 жыл бұрын
I'm so happy for this medication. Wishing you the best!
@jamiesteffen45654 жыл бұрын
I love this video! You are awesome! I hope it works for you!
@eNeonoVa4 жыл бұрын
Great video Enoch! Really exciting news indeed! Some corrections regarding Trikafta. It does not correct nonsense/stop mutations or anything else than F508del. But as long as the patient have one F508del mutation, that is enough! Trikafta is potent enough to work on 50% of a patients potential "CFTR proteins" to put it that way. Orkambi and Symdeko required two mutations to fix enough of them. And if you meet a carrier and wish to have a child, there is 50% chance of CF and 50% chance of a carrier. But with IVF i think the docs can "handpick" eggs/sperm without a mutation to guarantee a child without CF.
@elizabethbarnes17604 жыл бұрын
OMG I am so happy for you! I wish you the best. I look forward to your follow up.
@Mrb3cubed5 жыл бұрын
Ick man, just can't get a break, can you? Get feeling well soon.
@Mrb3cubed5 жыл бұрын
Good to see you back on YT. I like the car footage but get an anti shake filter on that bad boy. I like the shorter format with more realistic goals.
@Mrb3cubed7 жыл бұрын
wow! you are really coming along with music production! maybe in a year or so I might start using your songs in videos, only because a year will have passed by the time I start posting again lol
@Mrb3cubed8 жыл бұрын
Nice song tho
@Mrb3cubed8 жыл бұрын
Get this drone a gimbal. PLS
@Mrb3cubed8 жыл бұрын
+MiniMan Studios lol. that so would happen to you
@Mrb3cubed10 жыл бұрын
Did you really use the music that comes with windows 7? There are so many royalty free music websites to use if you wanted. Try machinimamusic.com