I am exploring plasmapheresis and IVIgG therapies as well as TB006 which is an monoclonal antibody to Galectin-3, a molecule involved in the progression of the disease

Sem palavras, choro livre por aqui. Tenho o mesmo diagnóstico, é como ver o filme da vida real

La triste realidad...por más investigaciones...

What about scleroderma and chemotherapy? And what about scleroderma and ammunotherapy?

Thank you sharing! Your beautiful 😻

Nola your a brave woman keep fighting. Hoping for a cure ❤

@8:23, you may be incorrect in assuming that Morphea (Limited Scleroderma) is only limited to the extremities. In some, Morphea can be clearly seen on the underside of female breasts, and below the breasts up to the navel area plus. Researchers keep insisting that Morphea and Scleroderma are not the same disease, even if the underlying mechanism may be similar in some ways. The critical need is to ascertain what stage the Morphea is at. Some researchers say that an MRI type assessment is best, while others recommend a biopsy. But isn't it also true that Scleroderma and Morphea can both exist side by side?

Patiently waiting, I can’t wait to see all the good treatment will do and not just for my daughter hopefully but also for everyone else at suffers. Love Dr T…!

How do I conduct modified rodnan on the patient? Well presented topic I’m a dermatology student in my second in South Africa

My rumatologist said it’s to toxic and would never be used on me for my extreme sogjrens raynuds and heartburn it causes me to lose all hope I just want to know that there working on a cure😢he also told me nothing would improve my symtoms and would stay on current drug therapy

How can you have an early diagnosis if most doctors you consulted to are either ignorant or dismissive of the symptoms.

Im experiencing so major lower GI symptoms. I live in Idaho. I go to UCLA once a year. I have been excruciating pain for a about a week. The last 3 day I cant get out of bed and cant keep food in, diarrhea and extreme cramping. I am soooo cold I cant stay warm. How do I go about getting my dr's here to look at it. My rheumatologist here only treats me for RA but I have a strong centemere antibody.

I hope we can get better treatments (more accessible and not only for diffuse Scleroderma but for all the types of antibodies with Scleroderma), and something directly for our skin, to stop the skin tightening, and hopefully a cure. 🙏🏽🕯️💗

Thankou... I have Scleroderma😢

how to secure life any medican or any other thing

Recently, I visited Your KZbin channel and I found some problems. I think and believe that if you can fix that problem, your channel will grow very gradually. Then your channel possible to grow. So are you interested

Your KZbin video content is so good. However the video does not get many views. Because your KZbin channel has some problems. Do you want to know about the problems?

Scleroderma is a terrible disease. 😢 Hope we can get better treatments, 💊💉 medications and hopefully a cure! 🙏🏻

What causes systemic sclerosis? I have been going crazy researching and trying to find answers. It’s so unfair after all this time and still no cause and cure!

Can the nails capillaries recover if you start early medication or they will stay forever ?

I’m so glad that I went as soon as I got some symptoms I was very president and I got diagnosed just few months after my symptoms and started treatment 🙏🏻 I pray to God that helped me to find this early and hoping for a better outcome. Thank you for this information.

You see, I find a whole bunch of information of systematic Scleroderma. And just in general. There is 0 information on a person who's been abused for the first 14 years of their life. There is no information I can find for people like me. Who got it through being abused through belts and other forms. Where can I find that information

or could it be a false positive for the the anti-SCL-70 in the case of someone showing limited signs

What a wonderful man, may he rest in peace ❤🕊️🙏🏻

What other enviromental factors? Vaccines of any kind?

Thank you Sharon and may you rest in peace ! You made a difference indeed! ♥️🙏

20 years and still nothing that has helped me. It breaks my heart that today 23 years later I suffer with an illness and there has been nothing to help. My body is no longer my body and I am unrecognizable. My doctors really no nothing about Scleroderma and sadly dedication on their part is just not there.

When are we going to have a medication for our skin? To control or to stop the skin fibrosis, tightening. This is one of the most cruel and weird of the autoimmune diseases. A disease that turns into mummies. Please, scientists , pharmaceuticals, give us hope. Help us!! 🙏🏼🙏🏼

When are we going to have a medication for our skin? To control or to stop the skin fibrosis, tightening. This is one of the most cruel and weird of the autoimmune diseases. A disease that turns into mummies. Please, scientists, give us hope. Help us!! 🙏🏼🙏🏼

Excellent disclosure of information for me as I am experiencing sever gastro problems as the result of Scleroderma. Thank you for this.

I'm so tired of living with Raynaud's it's miserable... I have primary Raynaud's, I don't have any autoimmune issues just the Raynaud's which sucks !! I pray they find a cure for this and better treatments, it's debilitating

I get this for DAYS TOO

Thank you for sharing ❤

Thank you for spreading awareness Dee❤

Beautiful video ❤

Praying for a cure sharing for awareness 🙏🙏

Great information thank you

I have ssc.plz advise

🙏

What are your thoughts about trauma aggravating limited systemic sclerosis? Your video discussed the duration of onset of Raynauds/ limited SSc being years. In this case, the patient fell backward onto their hands, causing a fracture in the left pinky (55yr fe). The patient developed Raynauds, finger swelling, and ulcers in 3 months (extreme swelling/ulcers in the right index finger to the point there was concern of losing the finger to gangrene). The first signs of skin tightening and hardening were on the tip of the fractured left pinky finger.

Scientists, pharmaceuticals please could you create a medication for our skin? To stop the collagen over production that causes hardening of the skin, and the fibrosis to our body. Please 🙏🏼 😢 👩🏽‍⚕️👨🏼‍⚕️🏥🙏🏼⚕️🕯️☀️ 💊💉 🙏🏽

Scientists, pharmaceutical please could you create a medication for our skin? To stop the collagen over production that causes hardening, tightening of the skin. And a cure, Please !!! 😢 👩🏽‍⚕️👨🏼‍⚕️🏥🙏🏼⚕️🕯️☀️ 💊💉

هل يوجد نسخة مترجمة

I hope we can get medication for the skin, collagen over production. 😢 there's nothing yet for this.

It's an awful disease! 😢I hope a medication to stop the collagen can be found. 🙏🏽🕯️

I presume that due to being the main organisation that conducts research and is the central hub for collective networking and information that it is already aware of this research and has likely decided against it, but on the off chance it hasn’t, and that someone here is linked to the scleroderma foundation, or is a specialist in this video I ask this.. Has the organisation or anyone in it done any research or treatment on human subjects (in vivo) on a protein called caveolin-1? From what I can tell caveolin-1 is a protein produced by the cav1 gene and is responsible for a lot of functions and regulations but abnormalities can cause inflammation and a lack of adipose fat. A deficiency or mutation can cause a lack of this protein and restoring caveolin-1 by use of a peptide or replacing the CAV1 gene if possible might be the key to treating or preventing pulmonary fibrosis or ILD. I’m looking into this and need to get a test done but does anyone here know if this organisation or any of the specialists have looked into this?

Remembering Bob Saget with gratitude and love, always. 😇❤

Thanks for sharing! This helps me understand what is going on in my body, with my complex diseases!

Good movie. I'm sure it was a mixture of hard & encouraging to do but peaceful in the end. Thank you.

I’ve just been diagnosed and found msc’s. Diseases like ms, cardiovascular diseases, pulmonary fibrosis, kidney disease, gut micro biome, etc are all being successfully treated with this in Panama & Mexico by US phd’s (see Dr. Caplan & Dr. Riordan) Are we looking at mesenchymal stem cell treatment (early IV infusion)? Immunomodulatory effects and anti inflammatory. Must currently go outside the USA God bless us all🙏