Patient Forum: CAR T-Cell Therapy & Scleroderma - Today and Future (2024)

[@rejuvenatemedi-spa]

I am exploring plasmapheresis and IVIgG therapies as well as TB006 which is an monoclonal antibody to Galectin-3, a molecule involved in the progression of the disease

[@lillyrocks2011]

I hope we can get better treatments (more accessible and not only for diffuse Scleroderma but for all the types of antibodies with Scleroderma), and something directly for our skin, to stop the skin tightening, and hopefully a cure. 🙏🏽🕯️💗

[@SRFCURE]

Thanks for your comment, Lilly. The Scleroderma Research Foundation is committed to helping advance research that can improve treatments and bring us closer to a cure for scleroderma.

[@lillyrocks2011]

@@SRFCURE Thank you 🙏🏼 hopefully soon. This is such a really really a cruel disease. God bless all the scientifics doing research. Hopefully we can get treatments that really stop it. And can find the cause. 🙏🏼 Thank you. 💗

[@user-DVpazyamor]

Fingers crossed and praying they do and I’m very hopeful they will!!! Xoxo

[@user-DVpazyamor]

@@SRFCUREthank you!

[@lillyrocks2011]

@@user-DVpazyamor 🙏🏼🕯️💗

[@JeffGerman-c8x]

My rumatologist said it’s to toxic and would never be used on me for my extreme sogjrens raynuds and heartburn it causes me to lose all hope I just want to know that there working on a cure😢he also told me nothing would improve my symtoms and would stay on current drug therapy

[@SRFCURE]

Hi Jeff, we are so sorry to hear that you are struggling to manage your scleroderma symptoms. It sounds very difficult. The Scleroderma Research Foundation is laser focused on advancing research aimed at improving therapies and ultimately, finding a cure for this challenging disease. To learn more about the research we fund, please visit our website: srfcure.org/research/our-research-program/

[@user-DVpazyamor]

Don’t lose hope, not now not never, one day maybe not today but one day. Hugs 🫂