Thank you so much. It was super useful to hear about this from someone. Who’s a patient rather than just a doctor. And it’s amazing how well educated and clear you are in a way that I can understand super well. This is really helping me to better understand some of what my dad is going through right now.Stay strong. You sound like an amazing person and thank you for sharing this story.
@MelanomaCanada2 күн бұрын
Thank you for your comment, glad to hear that the video was helpful for you.
@thousandknots281313 күн бұрын
youtube keyword Fenbendazole
@steelydan4215 күн бұрын
Im going thru the same thing malignant Melanoma . Im taking fenben 444 and ivermectin and sweet worm and other things. I try not to eat any sugar
@steelydan4215 күн бұрын
Or carbs
@miguelLuna-ym5tx19 күн бұрын
Yo, I Live in Spain and Would like to buy one of this, where can I get it un Spain, thanks
@pankitpatel2922 күн бұрын
Very insightful and detailed. very helpful
@MelanomaCanada18 күн бұрын
Glad it was helpful!
@neerajbhardwaj383722 күн бұрын
Amazin thank you for sharing valuable information!!!
@MelanomaCanada18 күн бұрын
Thank you for watching, and your positive feedback!
@rhondahelfrich2563Ай бұрын
❤❤❤
@ShakeyJake117Ай бұрын
Thank you for your story
@MelanomaCanada18 күн бұрын
Thank you for watching!
@Tammy-mj2rwАй бұрын
Sending prayers your way.
@thegraffpostАй бұрын
Thank you so much for sharing your experience!
@MelanomaCanadaАй бұрын
Thank you for viewing!
@rightthinking20872 ай бұрын
The world stopped for me in 2022. My daughter has stage 4 ALM. Doesn’t seem to be any treatment for her. It’s in her bones and her pain level is so high it throws her into shock. Only Morphine/Tramadol numbs it out a little. She had all the immunotherapies you mentioned as well as Opdualag. It didn’t help, in fact, it just added to her issues, due to the extreme side effects of doing that. And, she can’t sleep. This is horrible. Seems there is no research done for ALM. It seems like the stem cells are the real issue but, the doctors know nothing about them or how to stop them from growing. If anyone knows anything about this disease (ALM), please share your thoughts. Thank you
@MelanomaCanada2 ай бұрын
Thank you for sharing this with us. Your daughter has been through a lot and this must be difficult for you to be a support to her during this time and seeing her in such pain. We have information on ALM which can be found here: melanomacanada.ca/diagnosis-and-treatment/rare-melanomas/ We also have a Facebook group if you wanted to connect with others as well facebook.com/groups/mncacral please reach out to [email protected] for further support as well.
@beverlyperkins83973 ай бұрын
Surgical Drs
@severinemanceau58814 ай бұрын
J ai un melanome stade 1 sur ma jambe je dois faire ma 2 eme chirugie j ai tres peur de la suite
@MelanomaCanada3 ай бұрын
Informations sur le diagnostic et le traitement du mélanome melanomacanada.ca/fr/diagnosis-and-treatment/melanoma/
@lisawhite36484 ай бұрын
Are you still ok??Please let me know.God Bless you.Melanoma Sucks.God Bless you Honey.Are you ok??
@kmiller364 ай бұрын
How is Kitty today? I hope doing well and thriving!
@MelanomaCanada4 ай бұрын
Yes Kitty is an active volunteer with Melanoma Canada!
@nancykistner71674 ай бұрын
🩷💜🩷
@fabiennegodard79294 ай бұрын
Et vulvaire
@sapnadabhi65664 ай бұрын
Sorry for your journey you are fighter
@MelanomaCanada4 ай бұрын
Thanks for watching and sharing your encouraging comment.
@nolahayes15594 ай бұрын
I am so sorry to hear of your Cancer Journey, my husband too has Squeamous Carcinoma of the skull that was penetrating to his brain, he was lucky that so far it has not got there. He is on Immunotherapy for 2 years, he has another 12 months to go. Squeamous Cell Carcinomas are more aggressive than Basel Cell skin Cancers. My husband has half his nose removed as well as other skull lesions being treated. I commend your bravery and resilience to this horrible disease. Keep strong and god bless 👍
@MelanomaCanada4 ай бұрын
Thank you for viewing our video and sharing your husband's experience with cSCC. If you would like to connect with others we have a private Facebook group facebook.com/groups/csccsupport
@ashrithambavaram68305 ай бұрын
I just checked and realized it was a blood blister and I was stressing it too hard. I might have anxiety or hypochondriasis or health anxiety but thanks for all your help
@MelanomaCanada5 ай бұрын
Thanks for updating us, wishing you all the best.
@ashrithambavaram68305 ай бұрын
@@MelanomaCanada thank you very much and your wlecome
@PeterboroughOntario5 ай бұрын
awesome news ....so inspiring ....My husband is a patient of Dr. Patrella ...who is now in Toronto sunnybrook hospital ....she is wonderful
@MelanomaCanada5 ай бұрын
Thank you for viewing, glad that you are well supported by your healthcare team!
@PeterboroughOntario5 ай бұрын
thank you for sharing ....and for those who don't know....Us, Canadians pay absolutely nothing for any medical treatment or appointments etc.... all we have to pay for is parking and meals ...Happy we are !!
@ashrithambavaram68305 ай бұрын
Has brandon been sent into reimission?
@ashrithambavaram68305 ай бұрын
It also had a blackish mark around it but now it is gone
@ashrithambavaram68305 ай бұрын
Did brandon have nebular melanoma because I had this black dome shaped thing on the back of my leg but I got scared and scratched it off. If fell off pretty quickly and not much bleeding happened after. I think there is skin growing underneath is it nobularmelanoma or a scab?
@MelanomaCanada5 ай бұрын
Important to speak to your healthcare team about any concerns that you have, you can read more about his story here melanomacanada.ca/patient-story/melanoma-my-invisible-enemy-for-11-years/
@MikeSwain-l5t5 ай бұрын
Dave, power to you and hang in there. I just want to say as a 62yo male I have been going through an almost identical journey as you including blistering sunburns as a child and scc on my right shoulder the metastasized to lymph nodes in right am pit. Then to lungs and latest is tumor on my spine. Multiple surgeries, chemo and radiation and currently one year into immunotherapy (keytruda). Unfortunately inoperable tumor in armpit and it’s big but slowly getting smaller with immunotherapy. Strange thing is and you described it perfectly is the occasional kaleidoscope vision issue. That started with me about a year ago. Wondering if there is anyway we can connect? I’m in Colorado USA. Stay strong.
@MelanomaCanada5 ай бұрын
Hello, thank you for viewing our video and sharing your journey. We have a private Facebook group available that Dave is a part of you are welcome to join and connect with others here facebook.com/groups/csccsupport
@ellenjones94355 ай бұрын
Thank you so much for sharing you story. My mum has got diagnosed with stage four melanoma. Have you got any tips to support her on her journey through this.
@MelanomaCanada5 ай бұрын
Thank you for viewing our video. Having a stage four melanoma diagnosis can have a complex variety of emotions, especially fear. One thing that many patients feel helps them along their journey is to connect with others going there a similar journey to offer support and hope. We have a number of support services available. Melanoma Canada offers a monthly support group for patients, more information can be found here melanomacanada.ca/support-and-resources/melanoma-skin-cancer-support-group/ do not hesitate to reach out at [email protected]
@ashrithambavaram68305 ай бұрын
Brandon I’m so proud of you. I’m 12 and I think I have melanoma it is a brownish spot that is about 3-4 mm wide and it has a uneven jagged border and I am scared it’s melanoma but my parents say it’s nothing and it’s a mole. I keep telling them I am scared an I want a checkup say to wait if it gets bigger but I think if it gets bigger it will be to late for me and I will die and im afraid I think I might not live for longer and this feeling of thinking I might die is gut wretching.
@MelanomaCanada5 ай бұрын
Thank you for viewing our video. Sharing with your parents this fear may allow for a deeper conversation to be had and highlighting the need to have your spot checked. You can also share how to detect information with them to perhaps bring any clarity that may be needed to seek medical attention melanomacanada.ca/understanding-skin-cancer/melanoma/melanomadetection/
@rblegend506 ай бұрын
Is support only for Canadian citizens?
@MelanomaCanada6 ай бұрын
Please reach out to [email protected] to discuss appropriate supports available to you.
@CapeRN6 ай бұрын
First week after hearing diagnosis. You have detailed the “ waiting period” is the hardest. You have caught our experience wonderfully, Thank you so much. These are exactly the words I needed th see. Awaiting Pet and Brain MRi and for now our tentative plan is and Nivo and Ipi
@MelanomaCanada6 ай бұрын
Thank you for watching our video, glad to hear the information resonated with you. Wishing you all the best as you navigate the next steps of your melanoma journey.
@bradbrockhaus6336 ай бұрын
this is wonderful...My wife starts this in a few days
@MelanomaCanada6 ай бұрын
Thank you for watching, glad it was helpful.
@VerityJohnson-sy6kf6 ай бұрын
I. Totally understand I. Live in the UK ive suffered melonama twice my second time was stage 2 no treatment
@MelanomaCanada6 ай бұрын
Thank you for viewing our video and sharing your journey.
@VerityJohnson-sy6kf6 ай бұрын
I totally understand how you feel I had melonama twice second time was stage 2 no treatment
@terrigermaine83786 ай бұрын
Good thing now there is treatment for stage 2b and c 😊
@kremepie67056 ай бұрын
Great Cancer story! Very positive. I was just diagnosed with Melanoma and my PET Scan showed a lump in my lymph & some spots in my lungs 🫁 so I am scheduled for 3 biopsies I intend to be completely unconscious for.😂 Thanks for sharing your account.❤️G.
@MelanomaCanada6 ай бұрын
Thanks for viewing our video and sharing your journey thus far. We have more information about melanoma that can be found on our website as well melanomacanada.ca/understanding-skin-cancer/melanoma/
@BrewtalBoyz7 ай бұрын
Just seeing this now (June 2024). Like Don, I am living Stage IV Melanoma and can discuss my journey openly until certain memories trigger strong emotions. I commend Don for getting through his story and hope he is well.
@MelanomaCanada7 ай бұрын
Hi, thank you for watching. Discussing a melanoma journey can certainly trigger a lot of emotions you are not alone in that. Do not hesitate to reach out for support we have a community of people to help along this journey melanomacanada.ca/support-and-resources/
@tamaraarshynska67897 ай бұрын
Did you try methabolic therapy
@cosmicgiggle70457 ай бұрын
is this linda michael?
@MelanomaCanada7 ай бұрын
No it is not.
@janetashbrook56147 ай бұрын
Wow you poor chap. I had a Basel Cell. They say does not spread and rare with Scc
@MelanomaCanada7 ай бұрын
Thanks for your comment and viewing our video. More information on Basal Cell can be found here as well melanomacanada.ca/understanding-skin-cancer/basal-cell-carcinoma/
@JoanSeibert8 ай бұрын
WOW
@MelanomaCanada8 ай бұрын
Thank you for viewing.
@terrigermaine83786 ай бұрын
Right!!!! I get that response alot 😂
@thunderdragon8888 ай бұрын
Hi Brandon..how do you actually get skin cancer....? Did you spend time under the sun a lot ?.or multiple sun burns ?
@MelanomaCanada8 ай бұрын
85% of skin cancers are caused by UV radiation, this includes overexposure to the sun and other sources of ultraviolet radiation.
@thunderdragon8888 ай бұрын
@@MelanomaCanada From your experience, most of the people suffering skin cancer are white - skinned or they are also from coloured - skin people like Asian : Chinese , Japanese , Korean ....?
@crocadoodle71018 ай бұрын
Too young for skin cancer???? Absolutely ridiculous. I have cared for an 18 month old in the hospital with ovarian cancer, and my co worker gave birth to her last child who was born with kidney cancer. My friend’s 3 year old daughter was having some obvious symptoms, they took her to the family doctor, she tested positive for sugar in her urine and the doctor said she was too young for type 1 diabetes!!!!! News flash….type 1 diabetes used to be called juvenile diabetes because it is typically diagnosed in children and there is no such thing as being too young to have type 1 diabetes! My friend’s child was diagnosed with type 1 diabetes several days later when the parents further pursued a diagnosis. NEVER accept a doctor telling you that you are too young for a diagnosis. I am terribly frustrated with these doctors who dismiss the patient’s story/history without doing a thorough examination/inquiry. Never underestimate the value of being your own advocate. And it helps greatly if you have someone/loved one supporting you with your advocacy. ❤️ I am a former long time emergency nurse.
@MelanomaCanada8 ай бұрын
Great advice to advocate and bring a support with you, Thanks for watching!
@Salty8268 ай бұрын
I was diagnosed late spring of 22. Stage 3c. The day of tje biopsy of a weird freckle on my arm, the lymph nodes on my collarbone blew up. My primary saw me the same day and was very concerned i had cancer of a major organ. Long story short, i was lucky, only 3 of the 26 were affected. But immunotherapy is not an option because i have lupus. The risk of severe health problems is too great for the small chance itd work. A year of getting scans every few months and then lymph nodes in my armpit showed up enlarged. Went through biopsy and then surgery in Oct of 23. Once again, ive lucked out, only a handful of the bunch and tissue were affected. But once again, i cant do immunotherapy. The risk is to great because i have lupus. So here i sit, scans in a couole weeks feeling like i have a big target on me. Again. Ive changed my diet, i take turkey tail mushrooms, exercise more. Doing what i can but feeling helpless.
@MelanomaCanada8 ай бұрын
Thank you for sharing your journey and watching our video. Please reach out for support to our team at [email protected] you are not alone.
@yug15.6 ай бұрын
what's ur health i pray for u❤
@Lifetalk-f7b2 ай бұрын
Hey friend, Have you heard of Dr. Kathleen Ruddy MD (integrative oncologist); part of the FLCCC cancer team...? I have a family member in a similar situation to yours, and she may be able to point you toward an effective, alternative option. She has helped cancer patients who literally have nowhere else to turn... Best wishes to you!!! 🙏🙏🙏
@Salty8262 ай бұрын
@yug15. I'm 1 year since my axillary nodes removal. My oncologist has deemed me NED..no evidence of disease. I alternate rounds of ivermectin and fenbendazole. I take hcq for lupus. I have good and not so good (I won't say bad!) Days. Overall I'm doing much better and am looking into alternative treatments for the if n when it returns.
@Salty8268 ай бұрын
I was diagnosed stage 3c metastatic melanoma summer 22. The day the dermatologist biopsied that odd little freckle, the lymph nodes blew up on my collarbone. My primary saw me immediately. He was very grim and informed me that presentation usually means major organ involvement. I got a referral to be seen by a general surgeon. He referred me for a biospy and i was lost in the system for nearly 2 months, despite calling repeatedly where the referral stood. The results were posted to My Chart before that Dr called. The horror of reading Metastatic Melanoma with zero explanation. I called my primary who referred me to a leading specialist. Things moved fast. Thankfully, my PET came back clear other than the collarbone. Had those removed, only 3 of the 26 affected. I was lucky. Immunotherapy was/is not an option as I have Lupus and risks outweigh the benefits. Did my scans every 3 mo. Got to my 1 year mark and the lymph nodes in my armpit, same side affected. I was very upset my oncologist cancelled my PET scan stating he has a "good idea" what's happening. I'd still like to know myself. Had surgery to remove the axillary nodes last October. Once again, a small percentage were affected. I developed a stubborn seroma and went through nearly 5 months of drains, scans and radiology visits. My next round of scans are in a couple weeks. The anxiety is horrible. The waiting. Not having any type of treatment options..however, if there's no cancer presenting, what to treat? The small percentage immunotherapy would work to kill off the cells dispersed in my lymphatic system vs the high risk of having serious health problems and complications because of my autoimmune disorder makes it a "take it as it comes" situation. I see my oncologist in a few weeks. I've had a lot of time to build a question and answer session. I've learned we have to be our own researchers and advocates
@MrRrrr6988 ай бұрын
Is melanoma stage 3 a death sentence?
@MelanomaCanada8 ай бұрын
Not a death sentence, there have been many advancements in treatments for melanoma showing great benefits to patients.
@MrRrrr6988 ай бұрын
Is stage 3 melanoma a death sentence??
@MelanomaCanada7 ай бұрын
There have been many tremendous strides in treatment for Stage 3 melanoma and it would certainly not be considered a death sentence. You can learn more about available treatment options here melanomacanada.ca/diagnosis-and-treatment/melanoma/adjuvant-therapy/
@shirlburris-fg8eq8 ай бұрын
It can damage liver and kidneys
@MelanomaCanada8 ай бұрын
All treatments have associated side effects it is important to speak to your healthcare team and ask questions about your personal medical history.
@travisstokes74188 ай бұрын
I was stage 3B 8 years ago just had two biopsies and found out it came back.
@travisstokes74188 ай бұрын
But!!! We will be ok 👍
@MelanomaCanada8 ай бұрын
Hi thank you for viewing our video and sharing your latest results with us. Hope you found this information helpful for your journey. Please reach out if you have any further questions [email protected]
@shantishanti19499 ай бұрын
Kitty how are you doing now 10 months on. It’s April 2024 when I write this. The cold plunge - Wim Hoff is well known for wellbeing. I wish you a recovery that allows you to complete your bucket list - make it a long list please. 🙏🙏❤️
@MelanomaCanada8 ай бұрын
Kitty is an active volunteer with our organization and is being monitored on watch and wait. Thank you for viewing!
@FreelancingRazzak9 ай бұрын
nice
@FreelancingRazzak9 ай бұрын
nice video Your channel's videos don't have any KZbin search results. If you want, I can bring your videos to search results through SEO, then your audience will increase, your channel will grow