thank you. i'm just beginning my journey- i've been having joint pain and frequent dislocations over the past few years and got diagnosed with a connective tissue disorder two months ago. i understand that anger over losing your former life so so well. i'm a runner and i've been so exhausted and in pain after every workout but quitting seems to me like the worst thing ever. i know i can't do this forever. i know i'm not doing myself any favours. but i want to do this while i still can so thank you for telling me what it will be like when this part of my journey is over and the next part begins. it doesn’t seem so much like the end of the world now. ...watching this video and commenting as i prepare to go on a run. see you guys. thank you if you read this whole thing.

Right before you said "lack of spacial awareness" i said out loud...well i just hsve 0 spacial awareness. 😅 how ironic

Hi!! I love your videos so much!! I’m in a really big pickle about forearm crutches, I’m so worried about getting the wrong type. I have borderline rickets and POTs, and I have a lot of trouble holding my body up right and my hips being unable to move. I was going to purchase SmartCrutches or CoolCrutches, but I’m unsure if one will last, or the other won’t support me correctly. Anyone have thoughts? I also have a fractured wrist that causes me pain, so I’m unsure about the pressure on it…

Thank you so much.

i hate this life.I don't even know if I really have chronic pain I lost everything good .evething was going FINE i was FCKING TOP 3 STUDENT and now i am not able to hold aq pencil for 10 minutes straight .Sometimes i get better and i think"WOW,maybe it was all emotional"and then in the other day i wake up in a hell of pain

Toute ce que vois dites je ne dirais pas moi c’est « sans doute l’EMMPOSeffrt après 40ans de pratiques quotidiennes d’un yoga professionnel (j’ai 81 C’est progressif et ça a commencé en2008 Plus une maladie neurologique de Lyme avec méningite et paralysie faciale Toujours en errance médicale. Celle-ci plus la réaction des proches que vous décrivez très bien: cela m’affecte énormément Je n’ai pas encore écouté vos solutions Thank -you and thé Better for you

I got a lot of peristerite nearby, its like labradorite but the blue is way more intense.

I love cats ❤ Koko is so beautiful 😍

So often even specialists do not want to give you a label but without the label, you can not get the help you need.

FaBuLoUs collection 🤩 & sweet how U LoVe every one 💗

So is it effectively the same idea as prolotherapy but without needles? I.e. stimulate a healing crisis in the tendons?

Today I was supposed to head over to my girlfriends house and help her clean it up because she’s trying to sell it to move so there’s a showing today, and late last night I called her explaining the pain I was in and the that I fainted once, and asked her if I could sit down while helping her, she told me that I didn’t have to come over and help and that she’ll just meet me at my place after she’s done 🥹, I thought that she would be upset with that but she just said all she was worried/wondering about was how can she help me when she comes over so that I’m not in too much pain, I love her so so much and appreciate that she is ok with my chronic pain, I do still really feel the guilt though

Very very interesting and informative thank you😊❤😊❤

Hi, I did the test, after sitting for a while I stood up for 2 minutes and my pulse rate went up to 145 bpm my head felt really hot and I collapsed back into the chair. I think I might have a bit of a problem. I'd like to know what everyone else thinks. Thank you

I love your collection ❤

I am dying from cerebral-systemic lupus and in constant extreme pain. My 73 year old mom is caring for me and my partner is now the only one working to pay the bills and for my kid

I am living by myself and its really hard as i am suffering not only from MCAS also CFS ANXIETY and DEPRESSION..is anybody there who also lives ny themselves and can you gibe me sn advice? I cant also work and everything is a struggle financially ...

And how you deal with it ?

I am having a question. I am.also suffering from MCAS but also anxiety and Depressions..javing Flashbacks from my past .does anybody else do? And how

Have you seen the ice machine that are on Amazon that are used for knee replacements. They have separate pads for backs, shoulders etc. ? I freeze small water bottles instead of ice & fill with water. It has been a life saver for me.

Thank you Stela. I just found your channel and I see my own life in this video. I have felt all these things also. I thank God for my husband who has been my caregiver for over 25 years. We are truly blessed to have these amazing men. 🙏 for you.

Warning ⚠️, advice? Carnivore diet!?

I bet the reason why your partner couldn't come in with you was because the doctor didn't want there to be a witness who could advocate for you while also recording evidence of the doctor's discriminatory ways.

A bit over a year ago, I asked my doctor to refer me to get treatment for an issue, and he told me to have general mental health check-ups first. I thought that made sense because the treatment for this issue is a surgery and it's typically a good idea to go into surgery with a good mental health, but after a month of intake appointments, I learned that the only mental health clinic in my town doesn't do general mental health check-ups because they're too goal-oriented. I came back to my doctor saying that I couldn't do what he told me to do and that I didn't think it was necessary anyway, then he moved the goal post to a completely different field behind an electric fence and told me to go to therapy for my autism and ADHD. That isn't even relevant! And what is even the goal!? To cure incurable conditions!? I was going to argue, but my mom was acting like she was agreeing so I thought maybe I was the unreasonable one even though it literally made zero sense. But then later my mom said that she didn't agree with the doctor after all! Stupid people-pleasing jerk!

came for the stick, stayed for your personality and adorable luna. I am obsessed with her!

Do u have sibo or any digestive issues ?

Mine is when I’m squatting down or bending over then stand back up.

Wish you all the best ❤

Bless you! Did you complain or have a another tilt table test. It’s appalling the way you were treated. 😢 I’ve got mine in a week and very anxious 😭 xxx

We walk and turn around the same I'm over here crying... Thank you for sharing this video and showing examples! You are amazing!

I'm undiagnosed (for hEDS or any version) and believe I have it and O M G you just explained something I never knew I had a problem with. During a squat/standing up I never purposefully tighten what I believe my pelvic floor muscles and abs tight... etc... OMG... thank you for mentioning this!!! i always recognize that it feels weird and I end up tightening them and my butt after the fact (after I notice I'm weak trying to stand up) and then it helps to stand up. EVERY - TIME.

I had chronic pain for 38 years with restless leg syndrome your video ain't going to do s*** for me

I truly appreciate you helping validate my experience. 🥰

God bless you!❤

Can rotator cuff tear be a symptom of eds??

Do you get internal tremors and shaking 😢

You’re very knowledgeable about crystals which is admirable but I’m sure keeping them altogether like that messes up each of the crystals distinctive energy. I read you should keep them in 100% cotton bags or silk to stop their energies mixing otherwise you have to cleanse them to rest them back to their natural frequencies?

This is So True

Losing Friends -- telling them you can't drink alcohol anymore 🙃 and they full stop. no contact. Leave your life like you're an abuser.

Love the knowledge you share! For anyone struggling with allergies, Planet Ayurveda's Allergy Care Pack offers a natural and effective treatment.

So informative, such a wealth of knowledge in crystals and minerals. Really enjoyed your collection and listening you. I have a huge collection too, so this helped a lot!

Thank you for this video. I have Fibromyalgia and other invisible chronic illnesses, and it can be really hard to stay strong sometimes, and it can feel really lonely at time. It would be great for you to do a video about how medical gas lighting, and having people accusing you of faking your illness can lead to Imposter syndrome, and how that can negatively affect someone living with a chronic invisible illness. I struggle with this myself.

I have a big piece of emerald and I have a big piece of amethyst

idk what I have, but ever since I got covid and dengue fever in Feb and Oct of 2022, I started getting moments of sudden drop in blood pressure and increase in heart rate at random times. I'm always tired, anxious and have headaches. There are times when I'm sitting at my desk for a couple of hours and suddenly my blood pressure drops to around 80/45 or lower and I get dizzy and need to lay down. Or when I'm walking at slow pace and even after eating and drinking water, my heart suddenly races and my bp drops. My heart rate jump isn't as crazy as yours but when I'm laying in bed my heart rate is around 65-70 beats a minute. But when I stand up, it goes up to around 100-120 but usually below 120. wondering if anyone has had a similar experience. Also, I used to be pretty active when I was younger in my teen years and early adulthood (currently in mid twenties). But in the last 1-2 years, I'm always too tired so I haven't entertained exercising and even when I do, cardio is too tough for my heart so I just lift some weights.

Congratulations on your amazing crystals colection. I almost cry warching so much beauty together. ❤

Thank you for this. I got diagnosed with HSD at 18 but I believe I have H-EDS. I'm going back to the GP today and going to try and advocate for myself and get some help.

❤

One of my issues with diagnostic criteria is that they want a family member with it.. but it's under diagnosed and family members die or people are adopted

21:30 I think Lyme disease is possible in the UK

It takes me 2 hrs to shower& dress myself as a hemiplegic.