10 EDS Myths Debunked!

Today, I’m debunking 10 of the most common myths about Ehlers-Danlos Syndrome.
Thanks for watching! Xxx
My Instagram: @stelasulzdorf
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[@stelasulzdorf]

Are there any other common myths you also hear about EDS? 🦓 Thanks for watching! Xxx

[@chrissulzdorf456]

I think you've covered them all hun👩‍🏫

[@stelasulzdorf]

@@chrissulzdorf456 You think so 😅

[@mlapointej]

I have had doctors think that because it starts to get a little stiff right before my thumbs touch my arm that I can't have EDS because they think it should be super easy for that specific joint. Used to be looser, is a little stiffer now as I have injured those joints so much. Even then i'm still a nine out of nine on the beighton scale. However, since my thumbs are a bit stiff I have had a few doctors who thought I must have the wrong diagnosis. At least a few people seem to be sure that that particular feature is a must. 😒

[@ZtheGypsy]

Thank You for sharing this info!! I started fainting daily at age 8 as a child. I also had an entire list of additional symptoms, as well as being very clumsy… always bruised, had joint dislocations multiple times a year, as well as many fractures from being “clumsy”… I was always doing my party tricks with my flexibility… I was diagnosed with Dysautonomia, POTS, NCS, MVP, and Cardiologist noted Hypermobility at age 11…. My Cardiologist passed away when I was in my 20’s. It’s been hard to find Good Doctors that truly understand all this. Most Doctors now will treat my other Diagnosed illnesses but totally dismiss H-EDS (bc previous doc only made a note of Hypermobility & not EDS) I recently had an appt Genetics doctors that finally diagnosed H-EDS along with my other issues. But, still being dismissed by my regular doctors as just a flexibility thing and not the reason why I have so many dislocations/injuries & pain.

[@chrissulzdorf456]

Very cool video about EDS hun. Done great research here. Well done, love the animations and editing💗💗💖💖

[@stelasulzdorf]

Thank you so much hun! I’m so happy you like it 💕

[@skyy_yoga]

So informative! I had no idea babe ❤️

[@stelasulzdorf]

I’m so glad it was so informative! Love you 💕

[@taniabaltakova1149]

Like your video, it’s very interesting and educational . Sending you big hugs 🤗😻💕💕

[@stelasulzdorf]

Thanks so much! 💕✨

[@heatherstegenga]

Please talk about the allergies and flare up meds. I am recently diagnosed and have terrible allergies and sensitivities, but my MD didn't mention this as connected. Thank you for this!

[@heatherstegenga]

I had a pacemaker inserted in 2019 and also have terrible insomnia. Ambien 12.5mg is the only thing that has worked so far for that.