I'm from Nepal my son also surfing BWS and I don't know what is the treatment? my baby age now 1 years old one side leg and arms large size and tongue is big.

Dad need some weight loss Mom need to advocate dad also

Um nome do meu netinho e Victor Hugo

Meu netinho nasceu com essa cidromi ele tem três meses

Eu tenho um netinho que nauceu com essa cidromi ele tem três meses

Eu tenho um netinho que nauceu com essa cidromi ele tem três meses

Eu tenho um netinho que nauceu com essa cidromi ele tem três meses

Eu tenho um netinho que nauceu com essa cidromi

Eu tenho um netinho que nauceu com essa cidromi

Meu netinho nasceu com essa cidromi ele tem três meses

انا ابني مريض بهذا المرض وعمره 10 اشهر ماهو الشفاء لهذا المرض كونكم مجربون له

Mi hijo tiene BWS y ahora tiene 17 años ..

Respect en Gods zegen mijn dochter heeft bws is 8 jaar ze groeit sneller dan gemiddeld andere kinderen ze doet het heel goed maar ze heeft wel geregeld een bolle holle buik wat ik soms wel eng vind, geregeld bij artsen geweest maar ze hoeft voorlopig niet meer heen maar ik ben altijd extra oplettend als ik zie dat ze zich minder voelt

My child is Beckwith-wiedemann syndrome and after 1 yr Dignosed heoatoblastoma

What are some speech language and feeding strategies for a 20 month old with goals to increase their food repertoire (puree to soft chewable solids) and oral motor strategies?

What a lovely couple, finishing each others sentences 😂❤️ such a beautiful family. Good luck Deliliqh, you are adorable ❤️❤️

Very curious that wife is just sitting there and saying hardly anything at all. She looks nervous and scared to death.

Dads a pretty cool guy also!

She is so cute and strong

I was a 10 pounder at birth. My mom was 13 pounds and she was born in the back of my grandads car on the way to hospital.

she looks very embarrassed

Wonderful strong parents and a delightful, pretty daughter. Her outcome would’ve been so different if they just relied on the medical professionals instead of being her advocates.

Beautiful young lady

,omg he is too cute❤

What a sweet and pretty girl.

I'm 45 with bw and survived bilateral Wilm's tumor, 2 grapefruit sized tumors removed at 5 years old, and have the hypoglycemia . Great to know that there is others who open up and share! God bless you!

Hello, when you said asymmetric tongue. One side was thicker? Did doctor made it thin er from one side? You have a wonderful daughter.❤

Hola soy venezolana madre de una niña con el mismo síndrome me gustaría me ayudarán gracias

Super job of both parents... Sometimes you have to be what is considered " pushy ", even with doctors and God bless them for what they do BUT they are not all knowing, they are sometimes in the learning process also... So parents HAVE to " help " sometimes but tactfully. ( ** Been down that road myself, but we " do what we gotta do ", right? ) Blessing to you Dad and your entire family 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

Türkiye de yaşıyorum bu sendromlu 17 aylık kızım var dil küçültme ameliyatı olması gerekiyor ameliyatın çok riskli olduğunu söylüyorlar ve yapacak doktor sayısı çok az lütfen yardımcı olurmusunuz

I have twins one has the syndrome I used to cry everyday after they where born had no support other than my husband's it was reli tough but we reli trying our level best to be there

my sister baby also born with this problem and we are from ethiopia. Now her baby is 5 years old without any treatment because of poverty. So any one can help us pls.....just for medication.

There’s something wrong with your baby. We’ll be in in a minute. WTF??

Hod please bless and heal this child ❤️🙏🎉🙏❤️🙏

It really makes you wonder how such an idiot got thru medical school.

He is so adorable! One more thing that could have been helpful had it been known or suspected before birth is to really be watching for signs of low blood sugar. I guess they would probably catch it at the hospital, depending on how severe it is, but perhaps it would be helpful to know to watch for it early on.

you need some new updates children

If a Dr noticed tongue protrusion, would he think BWS right away and order tests?

How is Kris doing today??

My baby also has BWS

My baby las his ALT and Ast high always, how do I know if he has AFP high? How to check that ?

How help us wss Foundation, from Bangladesh

Is surgery on tongue done on adults who have a very wide tongue

I have beckwith wiedemann syndrome(micro glossies) and I’m 16 now, and I would’ve gotten surgery when I was a child, but doctors said my nerves would be affected and that would cause my taste to be compromised or indifferent from how it is now, so now that I have an open bite and my orthodontist is saying I need tongue surgery to correct or realign my teeth, I’m asking will my taste be the same after I get tongue reduction surgery?

Cute cute cute cutr cute cute cute cute boy❤❤😍😍😍😍😍😍😍😍😍😍❤❤❤❤❤❤❤❤❤

what's the right time for operation ( 1 year ,after delivery immediately, 6 months after delivery ....etc)????? i hope I got my answer ... thank you

Thank you so much for sharing your story. As a student in a medical profession, I was struggling to understand BWS. I will remember Delilah's story always.

Boa noite. Eu tenho um filho de 6 anos com esta sindrome e ele estar comessando a sentir dores nos ossos o que eu fasso pois com esta epidemia fica fidicio o tratamento. Gostaria de ter o acompanhamento de medicos espessialistas nesta sindrome pr o meu filhos

When will it be right time to do operation.. and how much will be a operation cost?

Sir your address please l am from India.. my baby is 22 days old and have thick and enlarged tongue and doctor said its macroglossia