Wiley Lucente | Beckwith-Wiedemann Children's Foundation Int'l

Online: www.beckwithwiedemann.org/
Facebook: / bwcfi

[@joannnnaaaaaa]

I also got BWS.. Today I look like a normal teenager but when I was born I looked like the baby in the video. My Tounge is bigger than the normal and my one leg is bigger than the other. But that’s okay. I learned to live with it.

[@godfreymiles7066]

Is it only the leg that is bigger than the other or the whole one side of the body is bigger than the other?

[@littlered4259]

Lara DUDE SAMEEEEEEEE

[@marialucente2399]

The whole side of the body is larger.

[@joannnnaaaaaa]

@@marialucente2399 no, in my case it’s only my leg..

[@joannnnaaaaaa]

@@littlered4259 nice dude!!

[@judieahmed98]

Hod please bless and heal this child ❤️🙏🎉🙏❤️🙏

[@user-fq5uv8wr1x]

I have twins one has the syndrome I used to cry everyday after they where born had no support other than my husband's it was reli tough but we reli trying our level best to be there

[@hackhack9063]

Cute cute cute cutr cute cute cute cute boy❤❤😍😍😍😍😍😍😍😍😍😍❤❤❤❤❤❤❤❤❤

[@lynnxavier3918]

it was painful to hear your testimony. You have been brave!

[@marialucente2399]

Thank you 💛

[@TheSiahFr]

@@marialucente2399 higher power gave you an incredible responsibility, your strength is truly admirable.

[@piotsongchannel4060]

Good day sir..im from Philippines, my pregnant wife was pregnant she done of ultrasoun and then we found out that our baby is suffering a macroglossia,frog eyes and omphalocoele inside her womb..can you please help us?thank you and GOD BLESS

[@tigistadeb1619]

my sister baby also born with this problem and we are from ethiopia. Now her baby is 5 years old without any treatment because of poverty. So any one can help us pls.....just for medication.

[@138-sagarmehta8]

Is ur calendar 7 years behind rest of world ???

[@AlejandroRodriguez-rc1nd]

I’m in denial

[@caitlinlyons8376]

I was a 10 pounder at birth. My mom was 13 pounds and she was born in the back of my grandads car on the way to hospital.

[@chrissmith-no3bo]

,omg he is too cute❤

[@mgmartin51]

There’s something wrong with your baby. We’ll be in in a minute. WTF??

[@littlered4259]

AHHH he looks so much like me so cuteeeeeee

[@marialucente2399]

💛💛

[@littlered4259]

I have this syndrome two

[@joannnnaaaaaa]

xXUnLovedXx same

[@littlered4259]

Lara oh my I didn’t see this till now, I would love to get to know you if you don’t mind

[@littlered4259]

@Addison Clark omg that’s so cool 😆

[@littlered4259]

@Addison Clark GOOD LUCKKK ✨✨✨

[@tylahoc9271]

I have it too!