This is wonderful! Please will you consider recording it and uploading it for those of us in parts of the world that cannot register at a decent time?

- We HOPE That the 'mainstream newsmedia' will support us & 'nag' the worlds govt's Into providing PROPER AMMOUNTS OF £££/$$$ FUNDING TO FIND US A CURE!!..... :)

I would like to know how you get local mass spectra from a brain MRI? Also how do you get Thermograms of Brain sections?

Tell ALL 'Mainstream newsmedia' & Politicans AS MUCH/AS OFTEN AS POSSIBLE to get behind this!!... :)

Sent to my senator.

Why no Immune Repertoire Sequencing? Would be easy then to find the specific 'auto-immune' antibody in the IgG bulk sample.

Would be helpful if these vid had timestamps :) Thanks for doing this.

Does it matter if the patient is motivated or depressed? The disease is real, regardless.I hope clinical research grows exponentially. So many people who are suffering and the medical system abandoned them.its inspiring to see these studies being done. I hope treatments come in my lifetime.

KZbin the channel CFS recovery. People who have had this condition for 50 years are getting healed and recovered in so many people! You CAN get better!

I don't know cuz cold packs make me feel TERRIBLE.

I had severe insomnia during and it lasted for a year 3 years on I still have disturbed sleep but better

Thank you for sharing this in this format so that I can listen at a pace that works fo rme.

"Post pandemic" Long Covid?! 🤔

Thank you, Dr. Rowe. You're the best.

This was a very informative talk, glad I was able to watch.

Will the Cardio-Pulmonary Exercise Testing CPET developed by Dr. Systrom, and others, have a big impact on the ability of cardiologists to manage individual pts? Should we be trying to get more pts through that kind of functional examination? Will most cardiologists know how to use that data? POTS is understood well enough to describe the pathophysiology in a textbook or review paper. But what more is needed to take that understanding to the level of allowing for successful interventions in a wider group of pts. Perhaps these are scientific and pts management questions worth discussion by clinicians at a future cardiology conference so that we give every pt who can benefit from it the opportunity, while also setting some reasonable expectations. Of course, data in this level of detail is not going to be understood by lots of people in practice without good interpretative assistance. Just a printout won’t be enough. And further testing for people given meds may also be worth doing to see how the meds are impacting their performance. Thanks!

Thank you, this was a great talk.

THANK YOU SO MUCH FOR THIS INFORMATION THANK YOU AND BE WELL

Thank you for creating the most inclusive title regarding these diseases i have witnessed in almost 7 years of being ill. I really do feel it is the most considerate to all approach. So many infection associated chronic conditions arise other than the often mentioned ME and Longcovid. As though there are only two outcomes/damage/ autoimmunity after viruses or bacteria. I, myself, like others i know of have been very ill after a viruses and bacterias. Mine was a hideously terrifying neurological onslaught of flu in 2018 where i had all the same systems as those with Covid -19. Even my GP could not believe it when the pandemic hit and what was happening to people. They said it's exactly like your symptoms. Like my medical records were psychic or something. Not possible. Even down to loosing my complete sense of smell and taste, balance and vision for months to years on end. I have never had PEM and certainly don't have ME and I'm in absolutely no doubt. And to be honest I have gotten sick of people who constantly try to poo-hoo and disbelief my experience when i I have do e nothing but believe theirs over the years. I have had other incredibly debilitating disabling issues that don't fit under the MEcfs label or any other common comorbities. And all my doctors agree. The 6.5 years of now long chronic EBV detected always active in PCR and IgM in my blood cause increased reactivations for months on end and I am in need on 24/7 care until my lymphocytes CD19 kick in. I also have hyperadrogenic POTS and no other comorbities. But also vision impairment /damage neurology finds. Basically, to cut a long story short. Thank you for thinking outside of this horrendous box of illness. For it in my experience and others I got to know, it is a spectrum of varying conditions and illnesses. Like you are highlighting with : ' IACC'. Thank you, so very much for thinking of everyone. And being much more inclusive. Unlike other organisations, unfortunately that don't ever mention other conditions/people suffering too out there. Everyone deserves help and research and respect and belief in these devastating conditions.

We need a treatment STAT on the unrefreshing sleep. People going mad. I use to love sleeping.

Any follow up on this research?

As a me/CFS survivor since 2020… the very first thing we must do is seek an experienced functional medical or intergrative Dr that specializes in CFS. Get tested. Whether it’s for metals, hormones, food allergies… etc. Since being chronically ill I’ve desperately done it all. Acupuncture, asian herbal medicine, kinetic energy, vitamin drips… etc. What finally worked for me was getting monthly treatments of UBI ozone therapy & NAD drips. It is not a cure but now I’m in a place where I can function. I refuse to get crashes or be bedridden. These treatments have got me out of both. Yes, pacing & setting realistic goals are key. Also finding support system thru friends or family can truly empower you as well. Some days are better than others but honestly I choose death. It’s very costly, debilitating & consumes your whole life.

I have recently had Covid. And developed long Covid. Can the inflammation of the brain be tested for long Covid question they headaches I have are horrible and the only thing that will do it is the pentene you know I can’t can’t think much with Covid I’m sorry I just dictate and and as it is, and I can’t, I’m not up to even correcting it, but thank you very much if you could reply.

Genetic to adhd autism hypomobility

Apparently you cant be diagnosed with cfs if you have chronic migraine because thats the cause even though i am? With heds

Is CFS/ME being seen in patients post-covid?

🎉🎉🎉🎉🎉

I am moderate to severe for 16 years. I really wanna participate in the study and I’m willing to travel to Alabama.

Does CFS cause Migranes ?

Terrible audio!

Thank you.

Want us to have the real cause

Any updates on BC007 from Berlin Cures? They have an aptamer in stage two clinical trials to neutralize autoantibodies

I made it 12 minutes into the video and gave up. It's too long. Seems like it is just more of the same info we already had. Same general statistics that have been public knowledge for a long time now. I could use a summary with only the results of studies/trials that included people with ME/CFS. From what I've learned over the past few years, we are intentionally excluded from studies and trials, so the results don't apply to us. Their advice on what to do before and after vaccination is not doable for me and probably many others with ME/CFS. Rest? I need to live my life and I have responsibilities. I am always trying to rest, but there is only so much time to do that. Am I supposed to try to rest even more? Not really possible. Take H1 and H2 blockers...can't take them due to side effects. Reschedule around PEM...how can you do that when it's unpredictable and appointments are hard to get? So I quit watching. Seems like the rest of the hour will be a waste of my time/energy.

A real good youtube channel on Vaccines and all of the myths surrounding them is "debunk the funk". If you are going to trust authorities the incidences of injuries are very very very low. I've heard the analogy taking tylenol is statistically less safe than most vaccines for most complications. I used to be anti vaccine not so much anymore. Still have a lot of distrust towards authorities especially the once trying to push the BS that CFS/ME is psychological and can be cured through graded exercise and cognitive behavioral therapy. Far as I am concerned they are criminals. A lot of the claims to vaccine injury are flukes in other words not statistically significant. But you hear about those not all the recipients who got there vaccine without incident. There is also cause and correlation. If someone got a stroke that doesn't mean the wouldn't have gotten it anyways. Or in other words correlation doesn't "necessarily" mean causation. And then there are people with invisible illnesses like covid and me/cfs. There is no way for authorities to quantify this since they can't confirm it with a diagnosis. Where I'm going with this is "Long covid vaccine injury" or "Long Vaccine" There is no way to quantify something like this cause there is no way to A confirm it, and B confirm the vaccine was responsible. IE the person could have gotten covid and not known it. And dr's never mention this because of political correctness but there are lots of people put plainly who are full of crap. Those people ruin it for everyone else especially those who are suffering from these debilitating illnesses.

Is the data from the referenced studies available for anybody who is interested in doing their own analysis?

Is there consideration of vaccine contamination during manufacturing process?

Thank you! I was diagnosed with Fibromyalgia in 2013 and ME CFS I'm 2018. Praying for more funding and hopeful for better treatment.

So I fell asleep listening when it was live. Just listened to it. I didn't find this helpful at all. We kept getting the same responses. I understand every person is different and react differently to just about everything. But I wanted more than what I read on MEaction, which was suggested to us to read from medical provider in this. My doctors don't know much about ME, so I feel like I can't even go and ask my doctor for their recommendations. If there is no scientific data to show if the risks outweigh the benefits, not sure what the point was of this.

I wonder if this is why many ppl can't deal with temps above 75 deg F. At least the folks who have chemical sensitivities have this issue. As well as hyper sweating symptoms.

🐑💉🧪🧬🦠⏱💣🫀💥🚑

Uhm, I think Long COVID on top of CFS/ME is worse than just having the potential to contract COVID. Why risk it? Anyway, who are these CFS/ME sufferers walking about and putting themselves in a position to get COVID? 😂

But how do you treat it???

I've had ME/CFS for 31 years and there was no way on God's Earth that I was going to risk that Covid shot on my illness and I'm so glad I didn't fall for the spin and lies as I now know many people who are very injured or worse from it.

Only wealthy middle aged women in Western countries get this disease. It’s fake, it’s just laziness and depression.

7 years ago .. nothing came of this??

🔴Anyone help me PLEASE.Is it known/heard of as a Symptom of people with M.E,to be unable to produce CORTISOL?? = Req.cortisone etc meds to vaguely function & also prevent Adrenal Crisis?? Thank you😊

Solve M.E.Thank you for ALL you do.Great info here,thanks Dr. L.Jason😊

As someone w/ ME & homebound I'm terrified to even leave the house. I'm fully vaccinated.

What helps me to sleep is 10mg of melatonin, magnesium citrate and zinc before bedtime every night. Then I get up around 3a.m. , use the restroom and then eat a banana and yogurt with honey. That puts me back to sleep 😴😴😴😴😴. Nighty-nite!!!! Studies can be good, but why waste time and money when natural remedies can help just as well. My opinion of the so-called studies going on are again a waste of time and money. Doctor's and nurses need to be trained using Dr. Sarah Myhill's book snd Dr. Jacob Teitelbaums book. Reading and studying those two books i have gone from bed ridden in 2021to now about 80 to 90 percent well. MECFS is such an individual disease we need more naturopathic doctors trained in caring for those with MECFS. Just my 2-cents.😮 Miss Monique