Covid Vaccinations: Efficacy, Options, & Special Considerations for Chronic Illness

[@slbeard]

So I fell asleep listening when it was live. Just listened to it. I didn't find this helpful at all. We kept getting the same responses. I understand every person is different and react differently to just about everything. But I wanted more than what I read on MEaction, which was suggested to us to read from medical provider in this. My doctors don't know much about ME, so I feel like I can't even go and ask my doctor for their recommendations. If there is no scientific data to show if the risks outweigh the benefits, not sure what the point was of this.

[@amysin963]

Thank you for this comment; I suspected committing a full hour to this might be a waste of precious spoons, so I’ll skip it. I’ll add here what my functional medicine doctor (extremely well versed in LC) told me last summer when I asked him if I should consider getting any of the upcoming fall vaccines: “I cannot recommend that any of my long hauler patients take any vaccines at this point. We just don’t know enough about what they will do to an already amped up immune response.”

[@ScottTheScientist]

Is there consideration of vaccine contamination during manufacturing process?

[@marmosher]

Is the data from the referenced studies available for anybody who is interested in doing their own analysis?

[@Jennifer-gc2tx]

I made it 12 minutes into the video and gave up. It's too long. Seems like it is just more of the same info we already had. Same general statistics that have been public knowledge for a long time now. I could use a summary with only the results of studies/trials that included people with ME/CFS. From what I've learned over the past few years, we are intentionally excluded from studies and trials, so the results don't apply to us. Their advice on what to do before and after vaccination is not doable for me and probably many others with ME/CFS. Rest? I need to live my life and I have responsibilities. I am always trying to rest, but there is only so much time to do that. Am I supposed to try to rest even more? Not really possible. Take H1 and H2 blockers...can't take them due to side effects. Reschedule around PEM...how can you do that when it's unpredictable and appointments are hard to get? So I quit watching. Seems like the rest of the hour will be a waste of my time/energy.

[@marmosher]

I find it difficult to imagine that anyone with MECFS would voluntarily take vaccines in a trial.

[@bigfoot8103]

Uhm, I think Long COVID on top of CFS/ME is worse than just having the potential to contract COVID. Why risk it? Anyway, who are these CFS/ME sufferers walking about and putting themselves in a position to get COVID? 😂

[@flammewerfer]

Disregarding the fact that CFS/ME sufferers can still have a limited social life, they probably aren't going to be able to take good care of themselves on their own and will be around people who do go out and potentially bring back the covid virus. Also, people seem to be misconstruing the ideas "the virus and vaccine can both potentially cause long covid" with "the virus and vaccine have an equal risk of causing long covid." They're not even close to comparable, the virus is far more likely to cause long covid than the vaccine.